ABSTRACT
The treatment of Celiac Disease (CD) is a strict and permanent gluten-free diet (GFD). Factors exist that influence adherence: motivation, information, costs, correct labeling and food availability. Objectives: Describe adherence and impact of GFD in children with CD. Patients and Methods: Prospective descriptive study, through application of a 28 question survey to children 12-18 y.o. with the disorder, and parents of children 3-18 with the disease. Results: Median age: 10.5 years, 1.8 years at diagnosis. 62.5 percent women. Adherence to treatment was seen in 42,5 percent of patients according to parents, 15 percent according to children > 12 yrs. vs 35 percent parents of children > 12 y.o. 80 percent of children state feeling no different on a diet, 70 percent find the diet hard to follow. 55 percent have difficulty following the diet, among them, 42,8 percent are not sure what they can eat, 51.5 percent state it creates financial distress in the family. About 55 percent believe it affects family life due to the following: 55 percent food limitation, 50 percent food preparation, 75 percent affect eating out, 35 percent affect traveling. 50 percent of parents have fed children a forbidden food, mainly at home (44 percent). Information regarding GFD is obtained at the hospital (85 percent). There is 32.5 percent adherence to CD foundations. Conclusions: GFD impacts children's lifestyle with difficulty in adherence and management.
El tratamiento de la enfermedad celíaca (EC) es la dieta libre de gluten (DLG) estricta y permanentemente. Existen factores que influyen en adherencia: motivación, información, costos, rotulación y disponibilidad de alimentos. Objetivos: Describir adherencia e impacto de DLG en niños celíacos. Pacientes y Método: Estudio descriptivo y prospectivo con aplicación de encuesta de 28 preguntas a niños celíacos > 12 años (12-18 años) y a padres de pacientes celíacos entre 3 y 18 años. Resultados: Edad media 10,5 años y al diagnóstico 1,8 años, 62,5 por ciento mujeres. Adherencia 42,5 por ciento según total de padres; 15 por ciento según niños > 12 años vs 35 por ciento padres de niños > 12 años. El 80 por ciento refiere no sentirse distinto, 70 por ciento encuentra DLG difícil de seguir. 55 por ciento le molesta seguirla porque no saben que comer (42,8 por ciento), siendo la principal dificultad de los padres económica (51,5 por ciento). Un 55 por ciento cree que influye en la vida familiar: limitación alimentos (55 por ciento), preparación especial (50 por ciento), comer fuera de casa (75 por ciento), viajes (35 por ciento). El 50 por ciento de padres ha dado alguna vez alimentos prohibidos a sus hijos, principalmente en casa (47 por ciento). La información de DLG la obtienen en hospital (85 por ciento). Existe 32,5 por ciento adherencia a fundaciones celíacas. Conclusiones: La DLG implica impacto en la vida de niños celíacos, existiendo dificultades en el manejo y regular adherencia a ella.
Subject(s)
Humans , Male , Adolescent , Adult , Female , Child, Preschool , Child , Celiac Disease/diet therapy , Patient Compliance , Parents/psychology , Attitude to Health , Child Behavior , Celiac Disease/psychology , Prospective Studies , Surveys and QuestionnairesABSTRACT
The loss of sexuality observed in the climacteric period is difficult to evaluate. An important advance has been the development of the Female Sexual Function Index (FSFI), a test based on the norms of the International Consensus Development Conference on Sexual Female Dysfunctions. Aim: To study the effects of hormone replacement therapy (HRT) on sexuality, applying the FSFI. Material and methods: The FSFI was applied to 300 healthy women between 45-64 years, sexually active, beneficiaries of the Southern Metropolitan Health Service. Results: The mean age of the sample studied was 51±5 years, 27% were HRT users, 21% had had an hysterectomy and 98% had a stable couple. The total score of the FSFI decreased from 27.3±5.8 in women between 45 and 49 years of age to 19.3±7.0 in women between 60 and 64 years (p <0.01). A significantly better sexuality was observed in HRT users, with FSFI scores of 28.1±5.5 and 24.6±6.8 in HRT users and non users, respectively (p <0.01). Women on HRT obtained a higher score in all of the test domains, especially in lubrication, orgasm and sexual satisfaction. Conclusions: Female sexuality decreases with aging. HRT users have a better sexual function than non users (Rev Méd Chile 2003; 131: 1251-55 ).