ABSTRACT
SUMMARY OBJECTIVE: The aim of this study was to understand the dynamics of families with children with myelomeningocele undergoing intrauterine fetal surgery. METHODS: A retrospective cohort pilot study was carried out with 11 mothers of children who had undergone intrauterine myelomeningocele repair. Participants in this study responded to an electronic questionnaire (via Google Forms), developed by the study authors, that consisted of 22 multiple-choice questions, of which 17 were closed-ended and 5 had a standardized format. RESULTS: The mean (± standard deviation) of the mothers' age was 37.6 (± 3.5) years. The median of gestational age at delivery and birthweight were 34.9 (range, 33 to 36.1) weeks and 2,300 (range, 1,950 to 2,763) g, respectively. The majority of mothers were white (81.8%), had university degree (81.8%), were Catholic (63.6%), and were married (100%). The majority of mothers rated their relationship with their husband, family, and friends as excellent (54.5, 72.7, and 54.5%, respectively). All 11 mothers reported that the newborn with myelomeningocele was born <37 weeks gestation and the birthweight most often<2,500 g. Approximately 64% of the mothers reported that their child required adaptations or had special needs, of which walking aids (50%) and bladder control (50%) were the most common ones. CONCLUSION: Telemedicine proved to be a useful tool in the long-term follow-up of children who underwent intrauterine surgery to correct myelomeningocele.
ABSTRACT
Resumo Objetivo: Comparar modos de enfrentamento mediante diagnóstico pré-natal de anomalia fetal viável e inviável. Métodos: Estudo transversal de análise quantitativa em 120 gestantes realizado em centro de referência de medicina fetal, de janeiro a dezembro de 2014. Os dados foram obtidos por meio de entrevista semiestruturada contendo características sociodemográficas; antecedentes pessoais e obstétricos; e aplicação do inventário de estratégias de enfrentamento de coping. Teste qui quadrado, teste exato de Fisher ou razão de verossimilhança foram utilizados para comparar variáveis categóricas entre malformação viável e inviável. O teste t de Student foi usado para variáveis contínuas e quando necessária, foi aplicada a Análise de Variância. Resultados: Houve diferença significativa da estratégia autocontrole entre as gestantes com diagnóstico de inviabilidade fetal e as com fetos viáveis. Conclusão: As gestantes com diagnóstico de anomalia fetal inviável apresentaram maior tendência à estratégia de autocontrole que as com feto viável.
Abstract Objective: To compare coping strategies for congenital abnormalities pre-natal diagnosis of viable and nonviable fetuses. Methods: Quantitative cross-sectional study of 120 pregnant women, conducted in a center of excellence of fetal medicine, from January to December, 2014. Data were obtained through the following: semi-structured interviews which included socio-demographic information, personal and obstetrics history, and use of the coping strategies inventory. The tests used to compare categorical variations between viable and non-viable malformations were the chi-squared test, and Fisher's exact test or likelihood ratios. Student's t-test was used for continuous variables, and when necessary, it the Analysis of Variance was used. Results: There were significant differences in the self-control strategy between pregnant women diagnosed with a non-viable fetus compared to those diagnosed with a viable fetus. Conclusion: Pregnant women diagnosed with a non-viable fetal anomaly presented a greater tendency to use the self-control strategy than those diagnosed with a viable fetus.