ABSTRACT
Model of the study: This is an exploratory and descriptive study which was executed in sector of Nutrology nursing at University Hospital, Faculty of Medicine of Ribeirão Preto, University of São Paulo (HCFMRPUSP). Objective: The aim of this research was to evaluate the perception of quality of life of individuals with short bowel syndrome (SBS) with the help of the Quality of Life Core - 30 Questionnaire (QLQ - C30). Methods: The instrument used was the EORTC- QLQ-C30 (European Organization for Research and Treatment of Cancer Quality of Life Questionnaire/ Quality of Life Core - 30 Questionnaire) version 3.0 in Portuguese. The study was conducted on six patients with SBS. Results: The applicability of the questionnaire was adequate and the mean score obtained for this sample (70.7) was considered to be satisfactory. Conclusions: The most affected domains were: Emotional Function and Symptoms: pain, insomnia, fatigue, and diarrhea. The application of the QLQ - C30 permitted us to evaluate the perception of the patient regarding his condition and quality of life, important aspects that should be considered by the team
Modelo do estudo: Estudo de corte transversal do tipo descritivo e exploratório realizado na enfermaria da Unidade Metabólica do Hospital das Clínicas da Faculdade de Medicina de Ribeirão Preto, Universidadede São Paulo (HCFMRP-USP). Objetivos do estudo: Avaliar a aplicabilidade do Quality of Life Core- 30 Questionnaire (QLQ - C30), não específico para Síndrome do intestino curto (SIC) em portadores da síndrome. Metodologia: Para a coleta de dados foi utilizado como instrumento o questionário EORTCQLQ-C30 (European Organization for Research and Treatment of Cancer Quality of Life Questionnaire/Quality of Life Core - 30 Questionnaire) versão 3.0 em português. O estudo foi realizado com 6 pacientes com SIC. Resultados: A aplicabilidade deste questionário foi adequada; o escore médio obtido nesta amostra foi considerado satisfatório (escore médio = 70,7). Conclusões: Os domínios mais afetados foram: Função Emocional e sintomas: dor, insônia, fadiga e diarréia. A aplicação do questionário QLQ -C30 possibilitou avaliar a percepção dos pacientes quanto a sua condição de saúde e qualidade devida, revelando pontos importantes que devem ser considerados pela equipe.