ABSTRACT
Objective@#To explore the development trajectories of quality of life and acceptance of disability of burn patients in the rehabilitation treatment stage and the influencing factors.@*Methods@#Totally 207 burn patients, including 157 males and 50 females, aged (40±13) years, who were in the rehabilitation treatment stage were selected by convenient sampling method from October 2016 to July 2017 in the Department of Burns of Fujian Medical University Union Hospital for this longitudinal study. At discharge and 1, 3, and 6 months after discharge, the patient′s quality of life and acceptance of disability were scored using the Burn Specific Health Scale-Brief and Chinese Version of Acceptance of Disability Scale-Revised respectively. Taking the intercept, the slope, and the curve slope as latent variables, the latent second growth curve model was constructed for the quality of life and the acceptance of disability. The robust maximum likelihood estimation (MLR) method was used to estimate the mean, the variance, and the covariance, so as to analyze the discharge level, the growth rate, the acceleration, and the correlation among them. Taking the acceptance of disability, the gender, the cause of burn, the severity of burn, the existence of complications, the payment way, and the education level as covariates, the latent second growth curve model was constructed for the quality of life. The MLR method was used to estimate the influence of covariates on the discharge level, the growth rate, and the acceleration of the quality of life.@*Results@#At discharge and 1, 3, and 6 months after discharge, the quality of life scores of patients were (102±36), (111±36), (118±37), and (122±37) points respectively, and the acceptance of disability scores were (73±17), (75±17), (77±17), and (78±18) points respectively. The estimated mean intercept of the quality of life and the acceptance of disability were 101.680 and 72.993 respectively at discharge, both of which showed a curve increasing trend in 1, 3, and 6 months after discharge (estimated mean slope=11.024, 3.086, t=15.376, 7.476, P<0.01), and the increasing rate (acceleration) gradually slowed down (estimated mean curve slope=-1.393, -0.426, t=-13.339, -4.776, P<0.01). There were significant individual differences in the discharge level and the acceleration of quality of life of patients (estimated intercept variance=1 174.527, t=9.332; estimated curve slope variance=2.379, t=6.402; P<0.01). There were significant individual differences in the discharge level, the growth rate, and the acceleration of patients′ acceptance of disability (estimated intercept variance=267.017, t=9.262; estimated slope variance=32.264, t=2.356; estimated curve slope variance=0.882, t=2.939; P<0.05 or P<0.01). There was no significant correlation among the discharge level, the growth rate, and the acceleration of the quality of life and those of the acceptance of disability of patients (estimated intercept and slope=37.273, -1.457, t=0.859, -0.131; estimated intercept and curve slope=-6.712, -0.573, t=-1.089, -0.248; estimated slope and curve slope=-5.494, -5.988, t=-0.930, -2.512; P>0.05). Among the time-constant covariates, only the severity of burn and the presence of complications had a significant impact on the quality of life of patients at discharge (estimated intercept=-10.721, 5.522, t=-6.229, 1.977, P<0.05 or P<0.01). At discharge and 1, 3, and 6 months after discharge, the level of acceptance of disability had a positive impact on the quality of life of patients (standardized regression coefficient=0.616, 0.669, 0.681, 0.678, t=18.874, 21.660, 22.824, 22.123, P<0.01).@*Conclusions@#The initial levels of quality of life and acceptance of disability of burn patients in the rehabilitation treatment stage are relatively low, both with a curve increasing trend over time, and the increasing rate gradually slows down. Patients with complications and serious burns have poor quality of life at discharge, while the acceptance of disability has a positive impact on the quality of life.
ABSTRACT
Objective@#To investigate current status of acceptance of disability and hope level in burn patients and the correlation.@*Methods@#Totally 216 hospitalized burn patients conforming to the study criteria were admitted to Department of Burns of Fujian Medical University Union Hospital from September 2016 to May 2017. Self-made General Information Questionnaire, Acceptance of Disability Scale-Revised and Herth Hope Index score were adopted to investigate condition of acceptance of disability and hope level of burn patients with different general information and to record the score, score of acceptance of disability and the dimensions, score of hope level and the dimensions of 216 patients. Correlation between scores of acceptance of disability and hope level and their dimensions was analyzed. Data were processed with t test, one-way analysis of variance, and Pearson correlation analysis.@*Results@#(1) Scores of acceptance of disability and hope level of patients with different age, gender, and relationship status were close (t=-1.299, -0.249, -1.142, -0.315, F=1.168, 2.362, P>0.05). There were statistically significant differences in score of acceptance of disability and hope level of patients with different burn sequela, inhalation injury, education level, population category, home address, burn degree, and burn depth (t=9.581, 7.854, -8.385, -7.972, F=2.989, 2.958, 7.759, 4.928, 8.099, 8.489, 44.942, 32.071, 8.221, 5.570, P<0.05 or P<0.01). (2) Score of acceptance of disability of patients was (70.4±19.0) points, which was in medium level. Among 4 dimensions of acceptance of disability of patients, dimension of expansion of values scope had the highest score [(22.1±6.0) points], and it was followed by dimension of transformation from comparison value to fixed value [(20.1±5.9) points] and dimension of tolerance for disability′s influence [(18.9±6.3) points], and dimension of subordination to body shape had the lowest score [(9.3±2.8) points]. (3) Score of hope level of patients was (31.2±7.8) points, which was in medium level. Among 3 dimensions of hope level, dimension of keeping close relationship with other people had the highest score [(10.8±2.6) points], and it was followed by dimension of taking positive action [(10.6±2.5) points], and dimension of positive attitude to reality and future had the lowest score [(9.9±3.1) points]. (4) There were significantly positive correlations between scores of acceptance of disability and its dimensions and hope level and its dimensions of patients (with r values from 0.522 to 0.884, P<0.01).@*Conclusions@#Burn patients with different general information have different scores of acceptance of disability and hope level. Acceptance of disability and hope level of patients with burns need to be improved, and there is significantly positive correlation between acceptance of disability and hope level.
ABSTRACT
Objective To explore the relationship between social anxiety and acceptance of disability in breast cancer patients with mastectomy. Methods Totally 325 patients with breast cancer were investigated with general information questionnaire, Interaction Anxiety Scale and Acceptance of Disability Scale.Results The total score of Interaction Anxiety Scale was(40.01±9.38)points.The total score of Acceptance of Disability Scale was (78.02 ± 11.61) points. One-way ANOVA showed that age, education level, marital status, economic level, whether the spouse care about the appearance or not, therapy types affected social anxiety significantly(t/F=-4.696-35.694,all P<0.01).Significantly negative correlation was found between social anxiety and acceptance of disability (r =-0.469--0.371, P<0.01). Multiple regression analysis showed that acceptance of disability,age,whether the spouse care about the appearance or not, therapy types were influencing factors of social anxiety. Conclusions Nurses and doctors should explore effective psychological intervention mode to rebuild the patient′s self-confidence and return to normal social interaction in order to improve the acceptance of disability.
ABSTRACT
Objective:To investigate the acceptance of disability for ischemic stroke patients and its related factors, in order to provide a theoretical basis on rehabilitation intervention in ischemic stroke patients with mental disability. Methods: A total of 180 patients with ischemic stroke were recruited. The Adaptation of Disability Scale-Revised (ADS-R), Medical Outcomes Study Social Support Survey (MOS-SSS), Herth Hope Inder (HHI) and Patient Health Questionnaire-9 (PHQ-9) were used to evaluate the patients. Results: The mean score of acceptance of disability was (88.2 ± 14.3) in ischemic patients. Multiple stepwise regressions indicated that the religion, education, MOS-SSS scores and HHI scores were positively associated with ADS-R scores(b'=0.33, 0.21, 0.30, 0.15). The medical insurance, disability(MRS) and PHQ-9 scores were negatively associated with ADS-R scores(b'=-0.16, -1.53, -0.43). Conclusion: The acceptance of disability in patients with ischemic stroke may be at a low level. The religion, education, medical insurance, disability, social support, hope level and depression may be related to the adaptation of disability.
ABSTRACT
Objectives: To survey and analyze the level of acceptance of disability and its risk factors for spinal cord injury(SCI) after 18 months of injury. Methods: 78 patients with SCI in our hospital from March 2006 to December 2008 and 83 cases with SCI from work injury mutual support group were reviewed retre-spectively, their ages at onset were above 18 years(18-62 years, average 36 years) and they suffered from in-jury for more than 18 months(18-35 months, average 27 months). The survey ranged from January to April 2009. Of them, 29 were face-to-face interviewed and 132 were telephone interviewed. The questionnaire con-sisted of World Health Organization Disability Assessment Schedule Ⅱ, Acceptance of Disability Scale, Rosenberg Self-Esteem Scale, Center for Epidemiologic Studies Short Depression Scale, Generalized Self-Effi-cacy Scale, and Multidimensional Scale of Perceived Social Support. Results: The acceptance of disability had a fair degree of negative relationship with pain and WHO disability assessment (r=-0.28 and -0.40, P<0.01, respectively), and had a fair degree of positive relationship with self-efficacy and social support ( r=0.45 and 0.36, P<0.01, respectively). It was also found that moderate to good positive relationship between acceptance of disability and self-esteem(r=0.65, P<0.01), moderate to good negative relationship with depression(r=-0.66, P<0.01). The linear regression result indicated that depression, self-esteem and pain intensity were the best predictors for acceptance of disability(P<0.01). Conclusions: Multifactors may influence the acceptance of dis-ability for SCI. However, depression, self-perceived pain intensity and self-esteem are the best predictors for acceptance of disability.
ABSTRACT
Objective To explore the relationship between acceptance of disability and hope level in patients with total laryngectomy.Methods Totally 84 patients with total laryngectomy were recruited and investigated with the general information questionnaire,Acceptance of Disability Scale (ADS)and Herth Hope Index (HHI).Results The total score of ADS was (85.82±12.64),which showed medium level acceptance of disability.The total score of Herth Hope Index (HHI) was (35.50±8.12),which showed high level HHI.Significantly positive correlation was found between acceptance of disability and HHI.Conclusions Nurses should pay more attention to the acceptance of disability in patients with total laryngectomy,and provide effective psychological intervention to improve the patients' menial health and quality of life.
ABSTRACT
Objeetive To investigate the relationship among social avoidance and acceptance of disability in burn patients.Methods Totally 127 patients were investigated using Social Avoidance and Distress Scale (SADS),Acceptance of Disability Scale (AODS),demographic information questionnaire and disease related information sheet.Results The points of burn patients' SADS was (21.38±6.75),One-way ANOVA showed that gender,marital status,special parts burns,amputation affected social avoidance significantly.The total score and factors scores of acceptance of disability were all negatively related to the score of social avoidance.Regression analysis showed that acceptance of disability,head burns,gender were the independent risk factors of depression.Conclusions Acceptance of disability were negatively related to social avoidance; Nurse can help them accept the reality of disability,develop the confidence to partici-pate in social communication,and improve the social adaptability.
ABSTRACT
Until the time arrives when stroke patients truly recognize themselves as handicapped (living with their disabilities), it is well known that they usually pass through the five stages of grief, namely : denial, anger, bargaining, depression and acceptance. It is difficult to know which stage a patient is at, but we have found that a patient's writing, their letters, the occasional poem, etc are all of great use to identify the stage. Patients who are satisfied with their present lives are more able to accept their situation and therefore have fewer tendencies toward suicidal thoughts. The richness of their lives helps them to overcome their disabilities and enables them to return back to society. We should not force our patients, especially those in the denial or confusion stage, to accept their disabilities and rather must try to listen sincerely about their suffering and their stories. Most patients with brain strokes are encouraged to do their best “ganbare" by medical staff such as nurses, physical therapists, occupational therapists, speech language hearing therapists and doctors, and their family members and their friends. Usually, they are pleased to hear these words. However, some patients may perceive such encouragement as stressful, but if we know how to use these words in a supportive, positive manner, then they can be useful words in the care of stroke patients.
ABSTRACT
Objective To explore the relationship between quality of life and acceptance of disability of colostomy patients.Methods Using convenience sampling method to investigate 111 colostomy patients.General information questionnaire,QLQ-C30 scale,QLQ-CR38 scale and Acceptance of Disability Scale were used to investigate patients' general condition,quality of life and acceptance of disability.Data was analyzed by SPSS 17.0.Results The general health condition of colostomy patients was better than reference value and the score of ADS was at an average level.There was a relationship between general health condition,functioning dimensions,symptom dimensions and acceptance of disability.Conclusions There was a close relationship between quality of life and acceptance of disability.The acceptance of disability should be improved to help patients to obtain better quality of life.
ABSTRACT
Objective To determine the relationship between acceptance of disability and posttraumatic stress response in patients with brachial plexus injury. Methods Total 160 patients with brachial plexus injury were recruited and investigated with the Impact of Event Scale-Revised (IES-R) and the Acceptance of Disability Scale (ADS). Results The total score of ADS was (79.07±11.99) which showed medium level of acceptance of disability. The total score of IES-R was 4-66 (33.51±14.41), which showed that most of the patients suffered from posttranmatic stress response. Significantly negative correlation was found between acceptance of disability and posttraumatie stress response(r=-0.480, P<0.001). Conclusions Nurses should pay more attention to the acceptance of disability and posttranmatic stress response in patients with brachial plexus injury, and provide appropriate health education and effective psychological intervention to improve the patients' mental health and quality of llfe.
ABSTRACT
OBJECTIVE: To investigate the disability identity and life satisfaction according to the severity of disability in the spinal cord injured persons resident in the community. METHOD: The subjects of this national wide study were 397 spinal cord injured persons resident in the community. We investigated their disability identity, life satisfaction, depression, social integration and social support. The questionnaire included the newly developed disability identity scale to evaluate the disability identity, that consisted of five sub-scales (personal worth, self-acceptance with the disabled, individual civil right, common cause and external barriers) and 23 questions. The subjects were divided into four groups according to severity of disability: motor complete tetraplegia, motor incomplete tetraplegia, motor complete paraplegia and motor incomplete paraplegia. RESULTS: The scores of life satisfaction, depression and social support were not different according the four groups. However the disability identity scale of the motor incomplete paraplegia was lower than motor complete tetraplegia or motor complete paraplegia (p<0.05). The sub-scale score of the personal worth and self-acceptance were lower in less severely disabled persons. As the disability identity scale was higher, social integration (r=0.478, p=0.000), and social support (r=0.465, p=0.000) were moderate and the depression was negative (r=-0.252, p=0.000). Conclusion: Less severely disabled persons showed lower disability identity. Disability identity scale was significantly correlated with higher social integration, higher social support and lower depression score. The newly developed disability identity scale will be a useful tool for the evaluation of the psychological status and planning the rehabilitation strategy for spinal cord injured persons.