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Resumen Diversos estudios han reportado que el cuidado informal de adultos mayores, personas con alguna enfermedad o discapacidad, e incluso el cuidado de menores de edad, tiene un impacto en la salud física y mental de las personas cuidadoras (PC). El objetivo del presente estudio fue identificar los riesgos a la salud mental de las PC, teniendo como referencia el concepto de "carga de cuidado" que alude a las demandas físicas, emocionales, sociales y/o económicas de las actividades de cuidado, y la tensión que estas producen. Los participantes respondieron a un tamizaje entre abril y diciembre de 2020, vía una plataforma electrónica, mismo que tuvo por objeto identificar y atender problemas de salud mental que pudieran presentarse o agravarse por la pandemia y las medidas de confinamiento adoptadas para mitigarla. Más de 51,000 personas reportaron ser PC de menores, adultos mayores y/o enfermos crónicos, lo que permitió identificar variaciones en la carga de cuidado considerando el impacto de distintos perfiles de cuidadores (según el tipo y número de personas dependientes). Las condiciones de salud mental evaluadas fueron estrés agudo, ansiedad generalizada, ansiedad por la salud y depresión. Los resultados confirman que las PC que cuidan más de un tipo de persona dependiente tienen mayores probabilidades de riesgo a desarrollar alguna de las condiciones de salud mental. Así mismo, quienes cuidaban alguna persona con enfermedad crónica fueron los más vulnerables, mientras que tener un menor de edad al cuidado actuó en alguna medida como un factor protector.
Abstract Several studies have reported that informal care of older adults, chronically ill, and children's, has an impact on physical and mental health of caregivers. The goal of this study was to identify mental health risks of caregivers, considering the concept of caregiver burden that points to the physical, emotional, social and/or economic demands of care activities, and the tension they produce. Participants answered a mental health screening (via an electronic platform) that intended to identify and attend mental health problems that could arise or be aggravated during the pandemic and confinement measures adopted to mitigate it. More than 51,000 people reported being caregivers of children, older people and/or chronically ill, which allows to identify variations in caregiver burden considering type and number of dependent people. The mental health conditions evaluated were acute stress, generalized anxiety, health anxiety, and depression. Results confirmed that caregivers who take care of more than one type of dependent are more likely to be at risk of developing any of the mental health conditions measured. Likewise, those who care for a chronically ill, were the most vulnerable and, to take care of children was at some extent a protective factor.
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@#Caregiver interventions have been shown to reduce caregiver depression, the burden of care, and improve their health and quality of life. Caregiver support also benefits the person with dementia (PWD). It is important to recognise that caregivers need caring too. Caregivers of PWD are usually middle-aged daughters and sons followed by spouses. Foreign domestic helpers also play a pivotal role in Singapore. Stressors arising from caregiving change at different stages of the disease. As the disease progresses into the advanced stages, stress from dealing with behavioural problems can lessen as the burden from coping with physical and functional impairments increases. For this reason, caregiver interventions should be stage appropriate. There is a need to create a positive experience in the GP consultation with the important elements of early diagnosis, providing stage specific information and interventions, and up-to-date information on dementia resources available in the community. The role of the GP in supporting the caregiver is more important than ever amid the current COVID-19 pandemic.
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Background: Autism is extraordinarily difficult for families to cope with for various reasons. Perceived burden and care for the child with autism, available forms of social support, and the interactions between the autistic child and other family members are areas of significant concern for families. Objective: The objective of this study was to determine the burden of care perceived by the principal caregivers of autistic children or adolescent visiting health facilities in Lucknow city. Methods: The cross-sectional study was conducted from October 2016 to September 2017 with a sample of 90 principal caregivers (aged <60 years) of autistic children and adolescents aged 3–19 years and diagnosed with autism, attending government and private health facilities providing treatment for autism in Lucknow, Uttar Pradesh, India. Validated tools were used to assess the burden of care and disability level of autistic children. Data were analyzed using the software SPSS version 16. Results: The caregivers of autistic children and adolescents perceived the burden of care in different domains in varying extent with “caregiver's routine” and “taking responsibility” domains affected the most. The burden perceived was found to be affected by the permanent residence of caregiver, rural/urban dwelling, type of family, socioeconomic status, age at which diagnosis was made, knowledge about autism and the severity of autism. Conclusions: Availability and easy accessibility of autism treatment facilities must be the most probable reason for less burden perceived in three domains, by caregivers of urban settings and those belonging to Lucknow. Furthermore, better knowledge on autism and family and friends' support led to decrease in the burden perceived by the caregivers in various domains. Thus, it was found that the burden perceived can be reduced by universal availability of evidence-based early diagnosis and treatment of autism and improving the knowledge of caregivers about autism.
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@#Caregiver interventions have been shown to reduce caregiver depression, burden of care, and improve their health and quality of life. Caregiver support also benefits the person with dementia (PWD). It is important to recognise that caregivers too, need care. Caregivers of PWD are usually middle-aged daughters and sons followed by spouses. Foreign domestic workers also play a pivotal role in Singapore. Stressors arising from caregiving change at different stages of the disease. As the disease progresses into the advanced stages, stress from having to deal with behavioural problems can lessen as the burden from coping with functional impairments increases. For this reason, caregiver interventions should be stage appropriate. There is a need to work towards creating a positive experience in the GP consultation with the important elements of early diagnosis, providing stage specific information and interventions, and up-to-date information on dementia resources available in the community
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Background: There were very few Indian studies regarding caregiver burden and needs of caregivers in patients of schizophrenia. Methodology: The study evaluated socio–demographic data, caregiver burden, caregiver needs and their associations in caregivers ofschizophrenia. Conclusions: The mean age of the caregivers was 51 years.There were equal number of males and females. Most of the caregivers were married, parents of the patient, Hindu by religion and belonged to the lower middle class.Most of the caregivers felt moderate to severe burden. The most frequently expressed need (85%) was for effective doctor patient skills. Other expressed needs were those for correct cognitive disorder management (83.33%), correct behavioral disorder management (81.67%), information about applying for economic help (76.67%) and emotional support for problems pertaining role change (80.00%) . Implications: These are important implications for mental health services, training of mental health professionals, research and policy guidelines.
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RESUMEN Objetivo: Analizar la relación de la carga y las estrategias de afrontamiento con las características demográficas de los cuidadores de personas con esquizofrenia, así como las variables demográficas y clínicas de los pacientes. Métodos: Estudio transversal correlacional multicéntrico en el que se evaluó a 70 personas diagnosticadas de esquizofrenia o trastorno esquizoafectivo y 70 cuidadores informales primarios con la escala de sobrecarga del cuidador de Zarit, el cuestionario de estrategias familiares de afrontamiento, la escala para la evaluación de síntomas positivos, la escala para la evaluación de síntomas negativos y la escala breve de evaluación de la discapacidad. Resultados: En este estudio, la carga se correlacionó positivamente con el deterioro del funcionamiento ocupacional y social y presentó asociación negativa con la escolaridad de los pacientes. El escape, la coerción y la comunicación positiva presentaron correlaciones positivas con el deterioro del funcionamiento ocupacional y social de los pacientes. Asimismo, el interés social y las amistades mostraron asociación positiva con la escolaridad de los cuidadores. Además, la ayuda espiritual presentó correlaciones negativas con el deterioro del funcionamiento social y la edad de los pacientes, y la resignación se correlacionó negativamente con la duración del trastorno y la escolaridad de los pacientes. Conclusiones: La carga y la adopción de estrategias de afrontamiento disfuncionales, como el escape y la coerción, se asocian con el deterioro del funcionamiento de los pacientes. Estos hallazgos indican la necesidad de brindar a los cuidadores apoyos ajustados al nivel de funcionamiento del paciente que prevengan la carga del cuidado.
ABSTRACT Objective: To analyze of the relationship between burden of illness and coping strategies and the demographic variables of caregivers, and the demographic and clinical variables of people diagnosed with schizophrenia. Methods: Multicentre correlational cross-sectional study including 70 people diagnosed with schizophrenia, or a schizoaffective disorder, and 70 primary informal caregivers. They were evaluated using Zarit Caregiver Burden Inventory, Family Coping Strategies Questionnaire, Scale for the Assessment of Positive Symptoms, Scale for the Assessment of Negative Symptoms, and the brief Disability Assessment Scale. Results: Burden of illness positively associated with patient impairment in occupational and social functioning, and negatively with education level. Avoidance, coercion and positive communication were positively associated with impairment in occupational and social functioning of patients. Social interest and friendships showed a positive association with the education level of caregivers. Spiritual assistance negatively correlated with impairment in social functioning and patient age, and resignation was negatively associated with length of the disorder and patient education level. Conclusions: Burden and dysfunctional coping strategies, such as avoidance and coercion, are associated with functional impairment of the patient. These findings suggest the need to provide support to caregivers, adjusted to the functional level of the patient, in order to prevent burden of care.
Subject(s)
Humans , Male , Female , Adult , Middle Aged , Schizophrenia , Demography , Caregivers , Psychotic Disorders , Adaptation, Psychological , Patient Education as Topic , Cross-Sectional Studies , Coercion , Disability Evaluation , Symptom AssessmentABSTRACT
The caring burden of the relative caregivers of breast cancer covers many aspects which include physiology,psychology,social interaction and economy,and is a multidimensional and complex self-cognitive feeling,involving caregivers themselves,patient and family.In the process of care,there are a large number of physical and mental problems and nursing needs,and the burden of care is affected by a variety of mixed factors.However,effective nursing intervention can reduce the burden of care and negative emotions,improve their quality of life and physical and mental health.
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Objective To investigate the level and influencing factors of care burden in caregivers of patients with nasopharyngeal carcinoma undergoing radiotherapy. Methods Totally 117 caregivers of patients with nasopharyngeal carcinoma undergoing radiotherapy and 117 patients were investigated with general information questionnaire, Zarit caregiver Burden Interiew (ZBI), Self-Perceived Burden Scale (SPBS), Karnofsky Performance Scale (KPS). Results The caregiver burden score of nasopharyngeal carcinoma undergoing radiotherapy was 28.44±18.16,in light level.The main influencing factors included the caregiver′s occupational status, physical health level, the patients of self-perceived burden level. Conclusion Nursing staff should pay attention to the self-perceived of caregivers and patients, and to provide caregivers professional and individualized care guidance and psychological counseling, so as to reduce the burden of care and improve the quality of care for patients.
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Objetivo: Describir la relación entre soporte social y nivel de carga percibido por cuidadores de personas con Enfermedades Crónicas no Trasmisibles que asisten a la Fundación Universitaria Clínica Colombia. Método: Estudio cuantitativo, descriptivo, correlacional, de corte transversal. Participaron 76 cuidadores de personas con enfermedad crónica no trasmisible, que asistieron en el periodo de tiempo de Junio - Agosto 2017 a una institución privada prestadora de servicios de salud. Se aplicaron los instrumentos "instrumento de soporte social en enfermedad crónica- Hilbert" "escala de valoración de sobrecarga del cuidador- Zarit" El análisis de asociación se realizó mediante la determinación de los coeficientes de correlación de Spearman, utilizando el programa SPSSS. Resultados: La familia es la fuente principal de soporte social con que cuenta el enfermo crónico y su cuidador para afrontar los problemas a que da lugar la enfermedad. El cuidador principal de la PECNT requiere múltiples cuidados, para no desfallecer y seguir desempeñando su papel. La percepción de soporte social del cuidador, depende de múltiples características de la red de personas que rodea al individuo y su interacción con esta red. El soporte social se relaciona con la carga del cuidado, teniendo una relación inversa, es decir cuando una crece la otra decrece, en este orden de ideas tener una buena red de soporte social, ayuda a mitigar la carga del cuidado. El nivel educativo sin duda es un factor protector para los cuidadores de PECNT, ya que a partir de este le es más fácil adquirí redes de ayuda, conformar un vínculo con personas cercanas que le ayuden al cuidado, es un factor predictor para mayor adherencia al tratamiento, más habilidad del cuidado en tareas asistenciales. El cuidado de un familiar no debe recaer en un solo individuo, debe ser compartico con la red de soporte social más cercana ya que la carga y los costos que producen son muy altos, que se puede sobrellevar con varios actores involucrados. El soporte social ofrecido en; interacción personal, guía, instrucción e información, retroalimenta con y ayuda tangible ayuda a mitigar en algunos casos la carga del cuidado en el impacto negativo de la prestación de los servicios del cuidado.
Objective: To describe the relationship between social support and level of burden perceived by caregivers of people with non-communicable Chronic Diseases who attend the Fundación Universitaria Clínica Colombia. Method: Quantitative, descriptive, correlational, cross-sectional study. Participants were 76 caregivers of people with chronic noncommunicable disease, who attended in the period of time from June - August 2017 to a private institution providing health services. The instruments "instrument of social support in chronic disease - Hilbert" "scale of assessment of caregiver burden - Zarit" were applied. The association analysis was carried out by determining the Spearman correlation coefficients, using the SPSSS program. Results: The family is the main source of social support for the chronically ill and their caregiver to deal with the problems caused by the disease. The main caregiver of the PECNT requires multiple care, so as not to falter and continue to play its role. The perception of social support of the caregiver depends on multiple characteristics of the network of people that surrounds the individual and their interaction with this network. Social support is related to the burden of care, having an inverse relationship, that is, when one grows the other decreases, in this order of ideas having a good social support network, helps to mitigate the burden of care. The level of education is undoubtedly a protective factor for PECNT caregivers, since it is easier for them to acquire help networks, form a bond with close people to help them care, it is a predictor for greater adherence to treatment, more care ability in care tasks. The care of a relative should not fall on a single individual, it should be shared with the closest social support network since the burden and the costs they produce are very high, which can be overcome with several actors involved. The social support offered in; Personal interaction, guidance, instruction and information, feedback with and tangible help helps mitigate in some cases the burden of care on the negative impact of providing care services.
Subject(s)
Humans , Male , Female , Social Support , Caregiver Burden , Chronic Disease , Cross-Sectional Studies , Caregivers , Correlation of DataABSTRACT
Background: Caregivers of patient with schizophrenia face a lot of burden which hampers their quality of life as well as mental health. This study was conducted to evaluate perceived burden of care, quality of life, and mental health in caregivers of schizophrenia patients and to explore the correlation between above parameters and total duration of illness of the patient with schizophrenia. Methods: The study was conducted at a tertiary care center. Participants were 99 caregivers of the patient with schizophrenia that were screened to ascertain whether they met the selection criteria. Perceived burden was scored by Family burden scale which is a semi structured interview schedule. Quality of life scale (WHO QoL-BREF Hindi version), was used to assess Quality of life. Modified Mini International Neuropsychiatric Interview was used to examine mental health of caregivers. Results: In the present study, total duration of schizophrenia showed statistically significant negative correlation with quality of life of caregiver. In the study, though the correlation between perceived family burden and total duration of schizophrenia was positive but it was not statistically significant. The burden also had statistically significant negative correlation with socioeconomic status and quality of life of the caregiver. The caregivers with high likelihood of mental illness scored significantly higher burden than other two groups. Conclusions: Caregivers of persons with schizophrenia do perceive burden, on account of which and along with lower socioeconomic status they experience poor quality of life and compromised mental health.
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Objective:To analyze the level and related factors of burden of care,quality of life in family members of patients with schizophrenia.Methods:Totally 312 family members of patients with schizophrenia in 5 blocks of Jing'an District,Shanghai,who consented the investigation,were investigated.Burden of care were evaluated with the Zarit Caregiver Burden Interview (ZBI),and quality of life of the relatives by World Health Organization Quality of Life BREF (WHOQOL-BREF) and Chinese Residents SWB abridged (SWBS-CC20).ZBI score equal or higher than 39 indicated a heavy burden of care,while the score less than 39 indicated a low burden of care.Results:Totally 199 cases (63.8％) were in a heavy burden,whose ZBI score was (52.1 ± 10.8),and 113 cases (36.2％) were in a low burden with a mean score of (23.1 ± 10.4).Their WHOQOL-BREF score and SWBS-CC20 score were lower than normal model (Ps ＜ 0.001).The burden was heavy to those whose spouse was involved (β =-7.76).Patient's age was negatively correlated with quality of life (β3 =-0.18).Relationship with the patient,education level and monthly family income were positively correlated with quality of life (β =1.65,1.68,1.66).Conclusion:Those families of patients with schizophrenia,who are aged,low educated,low paid,or whose spouse have been diagnosed with schizophrenia,may have a heavy burden of care,and low quality of life.
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Objetivo: Analizar las relaciones de la carga de cuidado de la díada en situaciones de cáncer en Bogotá. Metodología: Estudio cuantitativo correlacional con diseño diádico estándar de tipo reciproco. La muestra se conformó de 80 díadas. Se usó una ficha de caracterización de la díada, cuidador persona con enfermedad crónica, la Escala de sobrecarga del cuidador de Zarit y el Instrumento de carga de la enfermedad crónica para el paciente. Se realizó un análisis a partir de estadística descriptiva y medidas de tendencia central, con el fin de conocer el perfil de las díadas participantes; se usaron pruebas de correlación de Spearman y correlación canónica; y pruebas no paramétricas para evaluar el comportamiento de las variables de los instrumentos de medición seleccionados. Resultados: Se corrobora que el género femenino es predominante en las díadas y en edad productiva. Las díadas del estudio se caracterizaron por llevar poco tiempo de cuidado. Los cuidadores familiares presentaron una sobrecarga baja y las personas con cáncer manifestaron sentir carga en aspectos de tipo emocional, laboral y físico. Se identificó una relación débil entre las cargas del cuidador y de la persona con cáncer a partir de pruebas de correlación de Spearman y coeficiente canónico. Se determinaron indicadores de la carga frente a la calidad de vida mediado por los bienestares medidos en la díada a través de la prueba de Kruskall Wallis, relacionados con factores culturales y económicos; y el bienestar físico y psico-emocional. Conclusiones: Las díadas se encuentran en un afrontamiento individualizado mediado por un vínculo de poco tiempo, presente en las primeras etapas de la enfermedad crónica; sin embargo, se presentan algunas características que ameritan nuevas investigaciones para profundizar en el fenómeno.
Objective: To analyze the relationship of the care burden of the dyad in cancer situations in Bogotá. Methodology: Quantitative and correlation with standard dyadic design of reciprocal type. The sample consisted of 80 dyads: over 18 years old, with a bond and proximity, knowing how to read and write, for people with cancer with a confirmed diagnosis, not having a vital need. A characterization card of the dyad, caretaker - person with chronic illness, the Zarit burden Interview and the Instrument of burden of chronic illness for the patient were used. An analysis was made based on descriptive statistics and measures of central tendency, to know the profile of the participating dyads; Spearman correlation tests and canonical correlation were used; And non-parametric tests to evaluate the behavior of the variables of the selected measurement instruments. Results: It is corroborated that the female gender is predominant in the dyads and in productive age. The dyads of the study were characterized by taking little care. Family caregivers had a low overload and people with cancer expressed feelings of emotional, physical and occupational aspects. We identified a weak relationship between caregiver and person with cancer loads from Spearman correlation tests and canonical coefficient. Indicators of the burden on the quality of life mediated by the wells measured in the dyad through the Kruskall Wallis test, related to cultural and economic factors, were determined; And physical and psycho-emotional well-being. Conclusions: The dyads are in an individualized coping mediated by a short time link, present in the early stages of chronic disease; However, there are some characteristics that merit further research to deepen the phenomenon.
Subject(s)
Humans , Male , Female , Cost of Illness , Neoplasms , Quality of Life , Mental Health , Chronic Disease , Caregivers , Cultural Factors , Economic FactorsABSTRACT
Objetivo: Establecer la relación entre la carga del cuidado y la calidad de vida en cuidadores familiares de personas con enfermedades respiratorias crónicas Método: Estudio descriptivo, de correlación, abordaje cuantitativo y corte transversal. Participaron 55 cuidadores familiares que asisten a una institución de tercer nivel de atención en salud de la ciudad de Bucaramanga. Instrumentos, calidad de vida versión familiar y carga del cuidador. Análisis: se utilizó estadística descriptiva y el coeficiente de correlación lineal de Spearman. Resultados: los cuidadores familiares son en su mayoría mujeres, de estratos socioeconómicos bajos, ocupación hogar, una mediana de 18 horas día a la asistencia y cuidado, el estudio reportó una calidad de vida global percibida medio, con un promedio de 105.69, en cuanto a la carga del cuidado el 23,7% de los cuidadores presenta una sobrecarga severa, el 27,3% sobrecarga leve y el 49% no sobrecarga, de acuerdo con la clasificación establecida por Zarit. Se evidencia un coeficiente de correlación de Spearman de (-0,783) estadísticamente significativo con un valor de (P=0.00). Conclusión. Los hallazgos comprueban la existencia de una correlación positiva entre las variables descritas en los cuidadores familiares de personas con enfermedades respiratorias crónicas. (AU)
Objective: To establish the relationship between the burden of care and quality of life in family caregivers of people with chronic respiratory diseases Methods: Descriptive, correlational and cross-sectional quantitative approach. Attended by 55 family caregivers attending an institution of tertiary health care for the city of Bucaramanga. Instruments, quality of life and family version caregiver burden. Analysis: Descriptive statistics and correlation coefficient of Spearman was used. Results: Family caregivers are mostly women from low socioeconomic strata, home occupation, a median 18-hour assistance and day care, the study reported an average overall quality of life perceived, with an average of 105.69, as the burden of care for 23.7% of caregivers have severe overload, overload 27.3% mild and 49% do not overload, according to the classification established by Zarit. A correlation coefficient of Spearman (-0.783) with a value statistically significant (P = 0.00) is evident. Conclusion. The findings prove the existence of a positive correlation between the variables described in family caregivers of people with chronic respiratory diseases. (AU)
Subject(s)
Humans , Male , Female , Pulmonary Disease, Chronic Obstructive , Correlation of DataABSTRACT
Background: Alcohol misuse is a major cause of morbidity and mortality and an important health care burden, the Quality of Life (QoL) of alcohol abusing subjects has been little studied to date. Aims & Objective: To assess the burden of care and quality of life of alcohol and opioid dependent subjects. Material and Methods: A cross sectional hospital based study was done. The sample consisted of 37 patients of mixed sex and their family members. The subjects were examined using a semi structured socio demographic profile performa, the WHOQOL-BREF quality of life assessment, Family Burden Interview Schedule (FBIS). Results: The overall mean scores for WHOQOL-Bref were not statistically significant between the alcohol (p=0.93) and the opioid (p=0.99) dependent groups and also the individual domains showed no significant difference between groups. Conclusion: Our study was conducted to analyse the quality of life and burden of care in alcohol and opioid dependent patients. The report of many subjects of poor quality of life during early withdrawal periods stresses the need for implementing ways of improving quality of life during this stage, to reduce relapse, and have better compliance of the detoxification and management measures. Our study also shows that the quality of life of alcohol users is equally poor when compared to that of opioid dependent subjects.
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Caregiver interventions have been shown to reduce caregiver depression, burden of care, and improve their health and quality of life. Caregiver support also benefits the person with dementia (PWD). It is important to recognise that caregivers too need care. Caregivers of PWD are usually middle-aged daughters and sons followed by spouses. Foreign domestic helpers also play a pivotal role in Singapore. Stressors arising from caregiving change at different stages of the disease. As the disease progresses into the advanced stages, stress from having to deal with behavioural problems can lessen as the burden from coping with functional impairments increases. For this reason, caregiver interventions should be stage appropriate. There is a need to work towards creating a positive experience in the GP consultation with the important elements of early diagnosis, providing stage specific information and interventions, and up-to-date information on dementia resources available in the community.
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Objective To investigate the correlation between burdens of main caregivers of patients undergoing enterostomy and social supports.Method Fifty eight caregivers of patients with enterostomy involved the investigation by using questionnaires of Zarit Caregiver Burden Interview and Social Support Rating Scale.Results The mean score of burdens was(21.10±14.17).The total score of social supports was(43.69±8.61),higher than the national norm(34.56±3.73)(P<0.05).The total score of burdens, personal burdens and responsibility burdens were all negatively correlated with social support(P<0.01 for all).Conclusion The higher social support,the lower care burdens.The doctors and nurses should help the patients and their families to establish more accesses to the social supports so that the caregivers relieved and stress and reduce the burdens.
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OBJECTIVES: Familial caregivers of demented patients suffer from high levels of burden of care, but the literature is sparse regarding the prevalence and predictors of burnout in this group. Burnout is composed of three dimensions: emotional exhaustion (EE), depersonalization (DP) and reduced personal accomplishment (RPA). We aimed to investigate the associations between burnout dimensions and the caregivers' and patients' sociodemographic and clinical characteristics. METHODS: This study is cross-sectional in design. Caregivers (N = 145) answered the Maslach Burnout Inventory, Beck Depression Inventory, Beck Anxiety Inventory and a Sociodemographic Questionnaire. Patients (N = 145) were assessed with the Mini Mental State Examination, Functional Activities Questionnaire, Neuropsychiatric Inventory, and Clinical Dementia Rating Scale. RESULTS: High levels of EE were present in 42.1% of our sample, and DP was found in 22.8%. RPA was present in 38.6% of the caregivers. The caregivers' depression and the patients' delusions remained the significant predictors of EE. CONCLUSIONS: The presence of caregiver depression and patient delusions should always be part of the multidisciplinary evaluation of dementia cases.
OBJETIVOS: Os cuidadores familiares de pacientes com demência sofrem de altos níveis de sobrecarga de cuidados, mas a literatura referente a prevalência e os fatores preditores de burnout neste grupo é escassa. O burnout é composto por três dimensões: exaustão emocional (EE), despersonalização (DP) e reduzida realização pessoal (RRP). Nós temos como objetivo investigar as associações existentes entre as dimensões do burnout e as características clínicas e sóciodemográficas dos cuidadores e dos pacientes com demência. MÉTODOS: O estudo possui um delineamento transversal. Os cuidadores (N = 145) responderam ao Inventário de Burnout de Maslach, Inventário de Depressão de Beck, Inventário de Ansiedade de Beck, e um Questionário Sócio-Demográfico. Os pacientes (N = 145) foram avaliados através do Mini Exame do Estado Mental, Questionário de Atividades Funcionais, Inventário Neuropsiquiátrico e a Escala de Estadiamento Clínico das Demências. RESULTADOS: Altos níveis de EE foram encontrados em 42,1%, e de DP em 22,8% da amostra. RRP esteve presente em 38,6% dos cuidadores. A depressão dos cuidadores, e os delírios dos pacientes foram os principais fatores preditores de EE. CONCLUSÕES: A presença de depressão nos cuidadores, e de delírios nos pacientes devem sempre fazer parte da avaliação multidisciplinar da demência.
Subject(s)
Adult , Aged , Aged, 80 and over , Female , Humans , Male , Middle Aged , Caregivers/psychology , Dementia/nursing , Family/psychology , Stress, Psychological/epidemiology , Age Distribution , Epidemiologic Methods , Sex Distribution , Sex Factors , Socioeconomic Factors , Time FactorsABSTRACT
A sobrecarga de familiares cuidadores de pacientes psiquiátricos tem sido amplamente estudada por pesquisas internacionais, usando escalas validadas, mas raramente no Brasil, talvez devido à carência de escalas validadas deste construto. OBJETIVO: Esta pesquisa avaliou a validade da versão brasileira da escala Family Burden Interview Schedule (FBIS-BR). MÉTODO: Participaram cem familiares de pacientes psiquiátricos de três instituições psiquiátricas de Minas Gerais, entrevistados com aplicação de um questionário sociodemográfico e três escalas de medida: FBIS-BR, BI e SRQ-20. RESULTADOS: A validade de critério da escala FBIS-BR foi analisada pela sua correlação com a escala BI, já validada para o Brasil e que avalia o mesmo construto, obtendo-se correlações significativas, entre 0,23 e 0,69 (p < 0,01). A validade de construto da escala FBIS-BR foi analisada pela sua correlação com a SRQ-20, que avalia um construto diferente, de transtornos psicológicos, porém teoricamente relacionado ao de sobrecarga, tendo-se obtido correlações significativas (p < 0,01) entre 0,31 e 0,49. CONCLUSÃO: A escala FBIS-BR constitui um instrumento de medida válido para avaliar a sobrecarga dos familiares cuidadores de pacientes psiquiátricos, podendo ser utilizada em serviços de saúde mental para identificar as dificuldades e as necessidades destes familiares e para direcionar novas intervenções de orientação e suporte.
Family caregivers burden has been frequently reported in international researches using validated scales, but rarely in Brazil, perhaps due to the restrict availability of burden scales. OBJECTIVE: The present study examined the validity of the Brazilian version of the Family Burden Interview Schedule (FBIS-BR). METHOD: A sample of 100 family caregivers of psychiatric patients attending three public outpatient services were interviewed with the application of three scales: FBIS-BR, BI and SRQ-20. Socio-demographic data were collected with a standardized form. RESULTS: Criterion validity of the FBIS-BR scale was investigated analyzing its correlation with the BI scale, which evaluates the same construct of family burden and the significant scores obtained varied between 0.23 e 0.69 (p<0.01). The construct validity of the FBIS-BR scale was evaluated analyzing its correlation with the SRQ-20 scale, which evaluates a different but related construct of psychological disturbance, and the significant scores obtained varied between 0.31 e 0.49. CONCLUSION: The FBIS-BR scale has good criterion and construct validity indicators to evaluate family burden of caregivers of psychiatric patients. This scale therefore can be used in mental health services, to evaluate the difficulties and needs presented by the family and to elaborated new support and orientation interventions.
Subject(s)
Humans , Male , Female , Adolescent , Adult , Middle Aged , Cost of Illness , Caregivers/psychology , Deinstitutionalization , Family/psychology , Health Expenditures , Mental Disorders/therapy , Workload , Brazil , Mental Status Schedule , Psychiatric Status Rating ScalesABSTRACT
Objective To study the burden of care and mental health status of family caregivers of patients with Alzheimers disease (AD). Methods 216 family caregivers of patients with AD were assessed by the self-designed common questionnaire, burden of care scale (BCS), questionnaire of the changes of caregivers living and symptom checklist 90 (SCL-90). Results BCS and the changes of caregivers living revealed that the burden of care for patients with AD from high to low was as follows: economic burden (2.52?2.40), mental health (2.11?2.2), family living (2.02?2.11), family relationship (1.62?0.68), body health (1.12?0.33) and family activity (0.92? 0.95). The scores of SCL-90 factors, such as anxiety, depression, somatization and compulsion symptom, were higher in the study than in the norm model (P
ABSTRACT
OBJECTIVE: To analyze the factors affecting on the level of the quality of life of stroke patients and their family caregivers. METHOD: Among the stroke patients receiving rehabilitation treatment at forty three out patient clinic in university hospitals, 289 stroke patients who scored over 24 out of 30 points in MMSE-K and their family caregivers were interviewed using questionnaires. RESULTS: The main contributory variable on the quality of life (QOL) of caregivers was the socio-demographic factor and QOL of caregivers was improved with decreasing age, the higher level of education, the less burden of care and the better condition of patient. High correlation coefficients were showed between QOL of stroke patients and ADL, QOL of caregivers and burden of care, and the burden of care and the neurological impairment. The main contributory variable on the QOL of stroke patients was clinical characteristics factor and QOL of stroke patients was improved with increasing the levels of cognitive function and ADL performance, decreasing the level of neurological impairment, the more social support from friends and the less burden of caregivers. CONCLUSION: In order to improve the QOL of stroke patients, not only patients' physical factors, but psychological factors, socio-demographic factors and QOL of caregivers should also be considered.