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Objective:To investigate the status of anticipatory grief among the main caregivers of maintenance hemodialysis patients, and to analyze its influencing factors.Methods:From April 2021 to July 2021, the main caregivers of 180 patients undergoing maintenance hemodialysis in Xiangdong Hospital Affiliated to Hunan Normal University and Liling Traditional Chinese Medicine Hospital in Hunan Province, were selected by convenience sampling method for the research object. The survey was carried out using the General Information Questionnaire, the Anticipatory Grief Scale and the Zarit Caregiver Burden Interview, multiple linear regression was used to analyze the influencing factors of anticipatory grief in the main caregivers of maintenance hemodialysis patients.Results:The total score of Anticipatory Grief Scale in the main caregivers of maintenance hemodialysis patients was 84.43±12.02, and the total score of Zarit Caregiver Burden Interview was 24.92 ± 7.98, which were positively correlated ( r = 0.557, P<0.01).In the multiple linear regression analysis, the caregiver ′s education level, age, gender, care burden and per capita monthly income and the patient ′s age were the influencing factors of anticipatory grief for the main caregivers of maintenance hemodialysis patients ( t values were -5.54-8.75, all P<0.05), which could explain 54.1% of the total variance. Conclusions:The anticipatory grief of the main caregivers of maintenance hemodialysis patients is at a relatively serious level. Medical care should pay more attention to the caregivers and their sadness in their communication, so as to detect problems in time, so as to take targeted measures to the current situation, which is effective to improve their level of grief and improve the quality of care.
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Objective:To explore the mediating effect of caring ability of family caregivers on dementia patients′ self-care ability and family caregiver burden.Methods:A total of 113 dementia caregivers of dementia patients recruited in Shandong Provincial Hospital Affiliated to Shandong First Medical University and Shandong Mental Health Center from September 2020 to January 2021 were selected, and the Barthel Index, Family Caregiver Task Inventory and Zarit Burden Interview were used to capture their responses on dementia patients′ self-care ability, caring ability, and caregiver burden.Results:The score of self-care ability of dementia patients was (75.19 ± 28.56), and scores of caring ability and care burden of caregivers were 9.00(4.00, 15.00) and (33.78 ± 16.53), respectively. The self-care ability of dementia patients was negatively associated with caring ability and care burden of caregivers ( r=-0.424, -0.420, both P<0.01), and the caring ability and care burden were positively correlated ( r=0.605, P<0.01). The intermediary effect of dementia caregivers' caring ability between patients' self-care ability and caregivers' care burden is significant. The indirect effect was -0.107 and the total effect was -0.187. The indirect effect accounted for 57.22% of the total effect. Conclusions:Caring ability of family caregivers mediates the relationship between self-care ability of dementia patients and caregivers' care burden.The caring ability may be used as an intervening target for future studies.
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@# Objective The structural equation model was used to analyze the influencing factors of mental health of family caregivers with schizophrenia, so as to provide scientific basis for targeted intervention measures. Methods On the basis of investigating the social dysfunction of schizophrenia patients and their family function, social support and mental health status, structural equation model was used to analyze the factors affecting mental health of caregivers and their effect indexes, the main fitting parameters included compare the fitted indices(CFI), goodness of fit index (GFI), the adjusted goodness of fit index(AGFI), normed fit index(NFI) and approximate error root mean square(RMSEA). Result The total score of psychological self-rating scale of carers was higher than that of normal people(all P<0.05). Only 19.0% of home care providers with schizophrenia felt no or little burden, 33.0% mild burden and 48.0% heavy burden. Structural equation model fitting index for: 2(58)=47.440, P=0.838, 2/df=0.818, the main fitting parameters GFI=0.968、AGFI=0.943, CFI=1.000, NFI=0.973, RMSEA=0.000, model fitting effect was good. The total effects of social support, family care, patient social function and care burden on the mental health of family caregivers were -0.016, -0.197, 0.114 and 0.118, respectively. Conclusions The family caregivers of schizophrenia have serious mental health problems, and the burden of care is heavy. improving social support, family care and social function of patients is an effective way to improve their care burden and mental health level.
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Objective To evaluate the effects of home visiting on care burden and positive experience in caregivers of cerebral apoplexy patients.Methods The recruited 80 caregivers of cerebral apoplexy patients were randomly divided into the experimental group and the control group,with 40 cases in each group;the experimental group received nursing intervention of home visiting,while the control group received routine nursing guidance.Zarit Caregiver Burden Interview (ZBI) and Positive Aspects of Caregiver (PAC) were used to evaluate the care burden and positive experience in caregivers of cerebral apoplexy patients after 24 weeks.Results After the intervention,the burden of care of caregivers in the experimental group was significantly lower and the positive experience in the experimental group was significantly higher than those in the control group,and the differences were both statistically significant (P＜0.01).Conclusion Nursing intervention of home visiting can decrease caregiver burden and increase positive experience of caregivers of cerebral apoplexy patients.
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With the development of transportation and construction, due to the increasing incidence of spinal cord injury, patients mainly rely on family caregivers.The paper reviewed the type of care burden and the influencing factors, and nursing intervention mode to decrease the caregivers' burden of spinal cord injury patients. We wish to provide suggestions for building nursing intervention model of Chinese spinal cord injury caregivers .
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Objective To investigate the caregivers' difficulty in taking care of the elderly and the related factors. Method A self-designed questionnaire was used to investigate the difficulties in care giving among 1,517 caregivers. Results The total score on the difficulties was (16.16 ±5.79). The preventive factors were good care-related knowledge and family income and the risk factors were advanced age, poor health condition of the patients ( all P<0.01). Conclusions The difficulty in caring the elderly are varied. We should attach importance to those caregivers of advanced age, with lower income and lack of care-related knowledge. Meanwhile, we should provide consultation, education and training for caregivers according to their different situation, and carry out targeted and multi-level support services so as to solve their problems in care to the patients.
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Objective To investigate the effect of solution-focused therapy on the care burden and negative emotions of the primary caregivers with elderly patients with hip fractures. Methods One hundred and sixty-eight elderly patients with hip fractures and caregivers were divided into intervention group and control group with 84 pairs by random digits table method, and the two groups were given continual nursing care. At the same time, the primary caregivers of intervention group accepted the solution-focused therapy. Caregiver Burden Inventory (CBI), Self-rating Anxiety Scale (SAS), and Self-rating Depression Scale (SDS) were used as the evaluation indexes. Results Before intervention, the score of CBI, SAS,SDS was (42.07 ± 4.24), (50.75 ± 11.21), (51.59 ± 13.18) points in control group and (42.10 ± 3.96), (50.48 ± 12.59), (52.96 ± 13.51) points in intervention group, and there was no significant differences between two groups (P>0.05). After intervention, the score of CBI, SAS, SDS was (40.49±3.17), (50.64±11.33), (50.14±10.25) points in control group and (28.95±2.87), (36.73±9.45), (41.60±8.23) points in intervention group, and there was significant differences between two groups (t=5.42, 8.73, 7.45, all P<0.05). Conclusions Solution-focused therapy can effectively reduce the care burden of the primary caregivers of elderly patients with hip fractures and alleviate their anxiety and depression.
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Objective To investigate the level of hope, personality characteristics and the care of burden of the primary caregivers of advanced cancer patients, and to analyze the correlation between the level of hope and personality characteristics and care of burden. Methods 201 primary caregivers of terminal cancer patients were selected from May to September in 2016. HHI, NEO-FFI and ZBI were used to investigate the participants. Results The hope of the participants were all in moderate to high levels. The level of hope of the participants was significantly positively correlated with the scores of extraversion and conscientiousness(r =0.165, 0.235, P<0.05). It was significantly negatively correlated with neuroticism, openness, agreeableness and burden care, r =-0.258--0.179, P<0.05. Conclusions The medical staff should give interventions timely according to the personality characteristics and care burden of the main caregivers of patients with advanced cancer, so that the level of hope could be improved in order to improve their psychological health.
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<p>Objective：The purpose of this study was to investigate whether guidance related to hard-pressed care burden in caregivers of patients with Unilateral Spatial Neglect（USN）improves the caregiver's care burden, quality of life（QOL), depression scores, and the patient's degree of USN, cognitive function, and activities of daily living（ADL). Methods：We provided guidance to 4 caregivers based on the results of a questionnaire filled out at baseline. Next, we compared the caregiver's scores on the Zarit caregiver burden interview（J-ZBI), MOS 36-item short-form health survey（SF-36), and the geriatric depression scale（GDS）before and after guidance. We also checked their scores on the behavioral inattention test（BIT), Catherine Bergego scale（CBS), mini-mental state examination（MMSE), and the functional independence measure（FIM）one month later. Results：Despite individual differences, the caregiver's scores on J-ZBI, SF-36 and the GDS were seen to improve after guidance. Moreover, it also improved the awareness for USN, as seen in the CBS anosognosia score. Further, the MMSE score revealed an improvement in cognitive function. Conclusion：We suggest improving the caregiver's care burden, QOL, depression symptoms, the awareness for USN, and the cognitive function of patients with USN, by providing guidance twice to each caregiver of patients with USN patients.</p>
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Objective To explore the relationship between care burden and social support among family caregivers of disabled elders in Beijing urban area.Methods A cross-sectional survey based on convenience sampling was conducted among 744 family caregivers in Dongcheng District in Beijing urban area.All subjects were interviewed by the Zarit Burden Interview (ZBI),Social Support Rating Scale (SSRS) and general social and demographical material lists.And then we analyzed the correlation between social support and care burden.Results The mean scores of ZBT and SSRS were (40.3 ± 15.2) and (31.1 ± 6.9)respectively.And a negative correlation existed between the level of caregiver burden and total social support.The care burden of disability elders was negatively associated with objective support,subjective support and social support availability (P ＜ 0.05).Conclusions There is a close relationship between care burden and social support among family caregivers of disabled elders.The more objective support,subjective support and social support availability the caregivers acquire,the less burden they bear.
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ObjectiveTo investigate the burdens on primary caregivers of children with congenital heart disease burden and to investigate the influencing factors.Methods Eighty-two primary caregivers of children with congenital heart disease were involved in the study with a general data questionnaire and Zarit Caregiver Burden Interview(ZBI). The influencing factors on the burden of caregiver were analyzed with linear stepwise regression.Results The burden score of 82 primary caregivers ranged from 41 to 78 points with an average of 56.93±8.13.The education level of primary caregivers,children age and time of day care were the main factors on the burdens on the primary caregivers(P<0.05).Conclusions The burden on the caregivers is very heavy.The nurses should give caregivers of children with congenital heart disease adequate care and love physiologically and psychologically so as to release their burdens.
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The negative experience such as burden and positive experience such as benefits may engender in caregivers in the process of caring for stroke patients,which present both mutual independence and coexistence.Negative experience was paid more attention,but positive experience received less.The article analyzed the current situation of assessment in care burden of stroke patients' caregivers,summarized the shortcomings,made suggestions.Based on these summaries,the care benefits were suggested to do research on three levels (individual,family and social).
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Objetivo: explorar el nivel de producción y contenido de la información disponible a nivel mundial sobre la carga del cuidado en cuidadores de niños con enfermedad crónica. Métodos: análisis y categorización de la literatura reportada en las bases de datos CINAHL, Ovid, Scielo, Medline y PsycInfo, bajo los descriptores carga, costo de la enfermedad, cuidador familiar, niñez y enfermedad crónica cruzado con valoración, medición, intervención, atención, modelos y programas, con su traducción al inglés. Resultados: la producción científica sobre carga del cuidado en cuidadores de niños con enfermedad crónica es limitada, con 23 estudios reportados. Se reconoce en los estudios el impacto sobre la calidad de vida en los cuidadores familiares de niños con enfermedad crónica que afecta especialmente los aspectos psicosociales y socioeconómicos. Las mediciones de esta carga son diversas e incluyen entre otros, la situación financiera, la interacción social, la resistencia familiar, la calidad de vida y la satisfacción con el cuidado. Aunque se identifican algunas intervenciones para disminuir la ansiedad, y el estrés de los cuidadores familiares de niños con enfermedad crónica, estas son muy escasas y carecen de un modelo orientador y una medición sistemática. Conclusiones: la carga del cuidado en cuidadores de niños con enfermedad crónica es descrita en la literatura por su impacto en los cuidadores familiares. Esta carga se mide con diversas herramientas que señalan la necesidad de establecer intervenciones integrales. Se requiere avanzar en el desarrollo e implementación de un modelo integral de atención que alivie la carga del cuidado de los cuidadores de niños con enfermedad crónica(AU)
Objetive: to explore the world wide literature advances and content on care burden in caregivers of children with chronic disease (EC). Methods: analysis and categorization of the results of a systematic review on data bases CINAHL, Ovid, Scielo, Medline y PsycInfo, under the key words burden, care cost, disease cost, family caregiver, children, childhood, chronic disease and chronic illness match with the key words assessment, measurement, intervention, care and application. Results: the scientific production about care burden in caregivers of children with chronic disease is limited. Only 23 studies were reported. The studies recognized the impact on the quality of life in the family caregivers of children with chronic disease that affect specially their psychosocial and socioeconomic aspects. Measurements of burden of care are diverse and they include among others the financial situation, the social interaction, the family resistance, the quality of life and the level of satisfaction with the care. Although some interventions devoted to diminish anxiety and stress in children with chronic disease caregivers, these are few in number and they do not have a conceptual framework, nor a systematic measurement. Conclusion: care burden in family caregiving of children with chronic disease has been described in the literature because of its impact in the caregivers. This burden is measure with different tools that point to the importance of establishing holistic interventions. It is required to continue in the development and implementation of a care holistic model that can relief care burden of family caregivers of children with chronic disease(AU)
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Humans , Child, Preschool , Child , Quality of Life , Chronic Disease/epidemiology , Caregivers/psychology , Cost of Illness , Home Nursing/methods , Review Literature as Topic , Databases, BibliographicABSTRACT
Objective To investigate the real situation of the burden of the caregivers who take care of patients with spinal cord injury.Methods Using phenomenological research methods of qualitative study,information of 15 family caregivers of patients with spinal cord injury were collected through semi-structured interviews in Jiangxi province,and data were analyzed with Colaizzi 7-step analysis method.Results Four themes were summarized:weak social support system,heavy economic burden,insufficient care ability,mental and physical exhaustion; mental and physical exhaustion concluded three sub-themes:burnout,lifestyle changes,sad/helplessness.Conclusions Care burden of caregivers of patients with spinal cord injury includes four aspects:social,physical,psychological,and less caring capacity.Care workers should be concerned about the health status of the caregivers,give targeted care intervention,so that caregivers can be adapted to the caregivers' role,maintain and promote a high level of health of the patients and their families.
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Objective To investigate the level of care burden and self efficacy of caregivers of patients with spinal cord injury,and analyze their correlation.Methods By convenience sampling method,150 cases of spinal cord injury patients and their caregivers were investigated with Zarit Caregiver Burden Scale and general self-efficacy scale.Results The score of care burden of caregivers with spinal cord injury was (52.91 ± 11.56) points,self-efficacy score of caregivers was (19.63 ± 4.85) points.The score of care burden of caregivers and self-efficacy was highly negatively correlated.Conclusions We should pay more attention to improve the self-efficacy of caregivers of patients with spinal cord injury (SCI),in order to mitigate the care burden,improve care ability and health level of the patients' families.
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<b>Purpose</b>: This study was to examine both the reliability and validity of the Japanese version of the Caregiver Quality of Life Index-Cancer (CQOLC), which was developed to measure the quality of life of family caregivers of cancer patients. <b>Methods & Results</b>: Study subjects comprised 400 family caregivers who were registered at an Internet research company. The explanatory factor analysis yielded the following 4 domains: psychological burden (8 items); positive emotions (5 items); and financial burden (3 items); disruption of daily living (5 items). The Cronbach's alpha coefficients of the total score and each domain were 0.85 and 0.75 to 0.88, respectively. The total score and each domain were moderately correlated with mental health, vitality, social functioning, general health, role emotinal scores from the SF-36. The intraclass correlation coefficients of the total score and each domain were 0.78 and 0.67 to 0.74, respectively. <b>Conclusion</b>: These results suggest that the Japanese version of the CQOLC has sufficient reliability and validity.
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La diabetes es una enfermedad crónica con alto impacto sociosanitario, no solo por su alta prevalencia, sino también por sus complicaciones crónicas y su elevada tasa de mortalidad. Según la OMS, la diabetes tipo 1, que afecta predominantemente a la juventud, está aumentando alarmantemente en todo el mundo a un ritmo del 3% anual. Unos 70.000 niños menores de 14 años desarrollan cada año diabetes tipo 1. Se ha documentado una prevalencia de depresión entre los jóvenes con diabetes tipo 1 entre dos a tres veces mayor que en la población general. La combinación de depresión y diabetes tiene graves consecuencias, entre las que se destacan mal control metabólico, dificultades en la adherencia al tratamiento, mayor frecuencia de tentativas de suicidio, mayor duración de cuadros depresivos, con mas recaídas. El objetivo del trabajo es: evaluar la presencia de depresión en púberes y adolescentes con DBT tipo 1 derivados al Servicio de Salud Mental del Hospital Garrahan, con dificultades en la adherencia al tratamiento, en el periodo 2/2011 al 12/2012. Resultados: el 68% de los pacientes evaluados presentaron depresión. Fueron 34 pacientes, 27 de ellos mujeres y varones. El 92% de los pacientes estudiados presentaba al menos 1 comorbilidad. Un 42% tenía asociado TCA, encontrando que la proporción de pacientes con TCA como comorbilidad fue significativamente mayor entre los que tenían depresión. 46 pacientes presentaron comorbilidades, el 92% de la población, TCA: 42% trastorno de...
Diabetes is a chronic disease with a high social and health care burden not only due to its high prevalence, but also because of its chronic complications and high death rate. According to the WHO, type 1 diabetes( DBT1), which mostly affects children and young adults, is alarmingly increasing at 3% rate a year throughout the world. Around 70,000 children under the age of 14 years develop DBT1 each year. It has been documented that depression among youth with DBT1 is three-fold that found in the general population. The association of depression and diabetes has severe consequences, such as poor metabolic control, difficulties with treatment compliance, increased rate of suicide intent, and longer duration of epi-sodes of depression with more relapses. The aim of this study was to assess the presence of depression in pubertal children and adolescents with DBT1 and poor treatment compliance referred to the department of Mental Health of the Garrahan Hospital in the period from 2/2011 to 12/2011. Results: Of all patients evaluated, 34 (68%) presented with depression, of whom 27 were girls and 7 boys. Of all the patients studied, 92% had at least one comorbidity. DBT1 was associated with eating disorders (ED) in 42%. The number of patients who had ED as a comorbidity was significantly higher among those who suffered from depression than among those who did not (94.4% vs. 53.6%, p= 0. 003). Comorbidities...
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Humans , Male , Female , Child , Adolescent , Adolescent , Depression/diagnosis , Depression/etiology , Diabetes Mellitus, Type 1/complications , Puberty , Anxiety Disorders/diagnosis , Anxiety Disorders/etiology , Argentina , Medication AdherenceABSTRACT
The poverty families, who take care of the demented elderly, can suffer from the deficiency of social services for dementia and the condition and nature the families have. Therefore, This study examines the burden of the poverty caring for the demented elderly. This study focused on the three points : the level of care burden of the families, who take care of the demented elderly ; the needs of welfare services ; the differences of care burden and service demand on trait of the families and the demented elderly. In order to achieve them, the 250 families, who take care of the demented elderly at home, were sampled and the primary caregivers of family member interviewed. Then, the statistics of the 226 people were analyzed by SPSSWIN. The major findings of the study were as follows : First, the level of the care burden the families of the demented elderly have, participated in this research, is higher than 'a little yes'. In a type of the care burden, the social & personal restriction is higher than the other types, including physical restriction, economical restriction, and reciprocal restriction. Second, some families had used service and had a low satisfaction, because of no various and adequate services. It shows that the services for the demented elderly and their families is not enough to use, that the services is not various for the families having many problem related the demented elderly. Third, there are many services needed by the families caring for the demented elderly : residential care facilities for the demented elderly ; day care service center ; short-term care services ; family counseling service ; services at home ; nursing services at home ; night care services ; family meeting. Fourth, the most difficult thing of caring is the economic burden of the families. The families are willing to take care of the demented elderly at home, if the government supports economically them and serves proper services to them. Finally, the lower income of the families is, the more time of caring the demented elderly in a day is, the lower vital functions of the demented elderly are, and the lower level of academic achievement, the higher level of care burden of the families is. According to the result, the level of the care burden can be affected by the family's economic capacity, the vital function of the demented elderly, and the existence of service for the demented elderly. For the elderly welfare especially, the demented elderly and their poverty families, three opinions may be suggested. First, the service programs based on community should be developed to reduce the burdens-economic, psychological, medical burden, etc. - of the poverty families caring for the demented elderly. These programs may include preventive service, education programs of dementia, diagnosis services, family counseling, and medical service. Second, the national government and the local government must try to make policies to solve the temporary problems of the family having the demented elderly.
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Aged , Humans , Caregivers , Counseling , Day Care, Medical , Dementia , Diagnosis , Education , Federal Government , Local Government , Night Care , Nursing Services , Poverty , Social WorkABSTRACT
OBJECTIVES: The purpose of this study was to examine the determinants of care burden of caregivers in patients with dementia. METHODS: 128 dementia patients and patients' caregivers participated in this study. Care burden using the BI ; cognition using the K-MMSE ; dementia severity using the CDR ; activities of daily living using the S-ADL and the S-IADL ; behaviour problems using NPI were measured. RESULTS: The results showed that care burden was related significantly with the K-MMSE, the CDR, the S-ADL, the SIADL and the NPI total score. Of the behavior problems, agitation/aggression, anxiety, disinhibition, irritability, and aberrant behavior correlated positively with care burden of caregivers. Regression analysis indicated that agitation/aggression, anxiety, the CDR contributed to care burden. CONCLUSION: Agitation/aggression, anxiety and dementia severity contributed to care burden of caregivers. The identified determinants of care burden and the stress of caregivers suggest areas of therapeutic intervention to reduce caregiver's burden so that the institutionalization can be delayed.
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Humans , Activities of Daily Living , Anxiety , Caregivers , Cognition , Dementia , InstitutionalizationABSTRACT
OBJECTIVE: This study was done to explore the determinants of care burden of Korean caregiver in patients with dementia. METHODS: For the seventy-nine patients with dementia and their caregivers, data on Caregiver Burden Inventory Korean version, and various patient- and caregiver related factors potentially related to care burden were investigated. Uni- or bi-variate analyses were performed to measure the relationships between individual factors and care burden, and then stepwise multiple linear regression tests were used to determine the independent risk factors. RESULTS: Two determinants of care burden were identified: 'severer depressive symptoms in patient' and 'lower spontaneous care motivation in caregiver'. Of the patient related factors, 'shorter disease duration', 'severer behavioral and psychotic symptoms' and'severer anxiety symptoms', and of the caregiver related factors,'women','having household responsibility', 'shorter free time' and'worse subjective health state' were related to care burden, although these were not identified as independent risk factors. CONCLUSION: To mitigate the care burden of Korean caregivers in patients with dementia, therapeutic interventions focused on the behavioral and psychological symptoms of patients would be essential in terms of patient related factors. With respect to caregiver related factors, in addition to the succession of the philosophy of filial piety, establishment of multi-modal services and facilities suitable for the caregivers vulnerable to care burden would be needed.