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Discussing the cognition, attitude and influencing factors of the family members of organ donors towards advance care planning (ACP) to provide a basis for the further promotion of ACP in the field of organ donation. Using qualitative research methods, 8 family members of organ donors were selected purposefully for semi-structured interviews, and the 7-step of Colaizzi was used to analyze and summarize the themes of the interview data. The results showed that the cognition status of the family members of organ donors of ACP could be summarized into 3 themes: problems faced by ACP implementation, positive recognition of the implementation of ACP, factors affecting the promotion of ACP. Organ donors’ family members are unfamiliar with the concept of ACP and have unclear cognition, but think that the implementation of ACP is of positive significance. It is suggested to further strengthen the publicity of ACP, medical autonomy, death education, so as to promote the development of ACP and improve the willing to donate organ.
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Purpose: To describe the phenotypic variations in family members of patients with retinitis pigmentosa (RP) with different modes of inheritance and to assess the ocular abnormalities in RP families. Methods: A descriptive analysis of three types of inheritance of RP was carried out, where 64 family members were examined at a tertiary eye care center, South India. They underwent comprehensive eye examination, fundus photography, fundus autofluorescence (FAF), full?field electroretinogram (FFERG), and spectral domain optical coherence tomography (SD?OCT). Analysis was performed between mild and severe forms of abnormalities to delineate retinal structural and functional defects in RP families. Results: The mean age was 38.55 ± 17.95 years. Males were 48.4%. In autosomal recessive and X?linked recessive groups, 74.2% and 77.3%, respectively, were asymptomatic, whereas in autosomal dominant group, 27.3% were asymptomatic. The proportion of the cases with abnormalities in all three groups was higher on ERG (59.6%), followed by OCT (57.5%), visual acuity (43.7%), peripheral FAF (23.5%), and macular FAF (11.8%). However, these abnormalities and the clinical pictures of the family members had no statistical difference across the three groups of inheritance. Conclusion: Structural and functional retinal alterations were noted in four out of five asymptomatic members, suggesting the need for careful screening of RP families and the pressing need for pre?test (genetic) counseling
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@#Apoptosis is an important means to regulate cell proliferation and maintain homeostasis. Recent researches have shown that the B-cell lymphoma-2 (BCL-2) family not only plays a dominant role in the regulation of normal cell apoptosis, but also plays a crucial role in the formation of tumor genesis, progression and subsequent drug resistance mediated by the escape mode of apoptosis. The phenomenon that BCL-2 family antagonized the apoptosis induced by antitumor drugs and then acquired drug resistance has been reported in the clinical treatment of hematologic lymphatic system tumors, breast cancer, lung cancer, gastric cancer and other diseases. Thus, specific inhibitors targeting anti-apoptotic members of the BCL-2 family have emerged with the development of research. In this paper, we systematically reviewed the regulation of apoptosis mediated by BCL-2 family and the drug resistance mediated by BCL-2 family. Meanwhile, we summarized the research advances of BCL-2 family specific inhibitors to provide new strategy for solving the problems on tumor therapeutic resistance and for finding new therapeutic targets in the future.
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【Objective:】 To study the emotional experience of family caregivers of patients with Pemphigus, and to provide reference for them to formulate targeted intervention and support. 【Methods:】 Using the phenomenological research method in qualitative research and purposive sampling method, in-depth semi-structured interviews were conducted with 13 family caregivers of patients with pemphigus from September 2021 to June 2022. Colaizzi analysis method was used for data analysis. 【Results:】 The emotional experience of family caregivers of inpatients with pemphigus was summarized into five themes: lack of cognition, high financial and psychological burden, more concerns about the use of hormone drugs in treatment, provide positive guidance and support for patients, negative effect on the quality of life. 【Conclusion:】 Nursing staff should pay attention to the emotional experience of family caregivers, enhance disease knowledge and medication explanation, conduct psychological counseling, and increase treatment confidence, so as to achieve the purpose of promoting the rehabilitation of patients.
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【Objective】 To analyze the current situation of direct exemption of clinical blood fess for voluntary blood donors and their family members in Henan Province, in order to improve and fully implement the policy. 【Methods】 According to the policy on blood fees exemption issued by China and Henan Province in 2019,the data of hospitals in 18 prefecture-level cities in Henan from 2020 to 2021 were continuously collected from the system of clinical blood fees exemption,including the way of exemption,the number of people (times) of exemption,exemption amount, the proportion of blood fees exemption and the total exemption rate. The experience gained in the past two years after the implementation of the policy was summarized,and the existing problems and causes were analyzed. 【Results】 The rates of direct exemption of blood fees in Henan Province in 2020 and 2021 were 34.53% (8 709/25 221) and 71.68%(23 587/32 906) (P<0.05) ,respectively. In 2021, the direct exemption rate of blood fees in 18 cities was 6.20% (83/1 370) to 88.50% (1 332/1 505) [ (47.35±41.15)%],and increased month by month from 43.19% (1 183/2 507) in January to 83.15% (2 097/2 522) in August, then remained stable at a similar level to August from September to December, with 83.43% (2 744/3 289) in December as the highest for the year. 【Conclusion】 The implementation of the policy of blood fees exemption showed significant effectiveness, which has effectively promoted the development of voluntary blood donation in Henan. However, there is still room for improving the policy in some cities, which is expected to further increase the direct exemption rate of the city and the whole province.
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BACKGROUND@#The Covid-19 pandemic caused educational institutions to shift from traditional to distance learning. Higher educational institutions offering bachelor’s degrees in Physical Therapy (PT) adapted to the situation by employing various strategies to facilitate learning online. One of the strategies employed is inviting family members as simulated patients in various performance-based assessments (PBA). In the Philippines, the PT department at the University of Santo Tomas made similar changes in the delivery of its courses. Given that family members are one of the primary stakeholders of PT education, it is important to know their experience, insights, and knowledge gained about the profession of PT after playing as a simulated patient (SP) during online performance-based assessments.@*OBJECTIVES@#This study aims to explore how family members describe their experiences playing the role of patients in PT PBAs.@*METHODS@#This study will utilize a phenomenological explorative research design. Family members, including parents, siblings, grandparents, cousins, and household helpers who played the role of a patient in any PT PBAs such as case presentation, case discussion, and practical examination, will be invited to participate. Semi-structured one-on-one interviews will be used for data gathering. Qualitative data from interview transcriptions will be analyzed using thematic analysis using NVivo 12 plus program.@*EXPECTED RESULTS@#Family Members will offer experiences in role-playing as patients in PBAs. Main themes and findings will be generated from their sharing that will provide insights regarding the improvement of remote PT PBAs.
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The Covid-19 pandemic brought a disastrous threat to the mankind and shook the fundamental assumptions of life to the core. The study aimed to assess the impact of the Covid-19 pandemic on the family members of covid positive patients in the first wave of virus transmission in India and the common notion towards vaccination. A qualitative research design was used to obtain the lived experiences of family members during the hospitalisation of the patients. The most positive outcome was observed on the environment, adopting healthy habits, and strengthening of personal bonding among family members. The policymakers can harness concerted efforts with adequate plans and policies for aiding in strong psychological support for people to combat the after-effects of the deadly virus along with real-time patient management. Information, education, and communication can be used to eliminate misconceptions regarding vaccination. The study further recommends making some online education programmes for the family members to enable them to combat the subsequent waves and new strains of virus.
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ObjectiveTo investigate the quality of life and demands of family members of patients with mental disorders in hospice care， in order to create a better medical care environment for patients to meet their demands. MethodsA total of 205 family members of patients with mental disorders in hospice care were consecutively sampled from two special psychiatric hospitals in Deyang city with convenient sampling method. The Chinese version of WHO Quality of Life-BREF （WHOQOL-BREF） and Critical Care Family Needs Inventory （CCFNI） were used to assess the quality of life and demands of family members. ResultsAmong the patients' family members， WHOQOL-BREF scored （68.08±9.98） in the physiological field， （63.82±9.39） in the psychological field， （70.73±12.61） in the social relations field， and （64.24±11.87） in the environmental field. Compared with the domestic general population， there were significant differences in other fields except the physiological field （t=3.066， 9.845， 16.109， P<0.01）. In CCFNI， the score of condition assurance factor was （3.20±0.41）， information support was （2.86±0.50）， proximity to patients was （2.79±0.46）， self comfort was （2.35±0.47）， and medical staff support was （2.60±0.44）. ConclusionThe quality of life of the family members of patients with mental disorders in hospice care may be higher than that of the general population， and their demands mainly focus on the condition assurance and information support.
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@#Introduction: Breast cancer is a significant health problem that affects patients and their family members. Family members are often key to supporting the patient. However, there is an inadequate understanding of the role of female breast cancer patients’ family members in Malaysia. This study aimed to explore the roles of family members of female breast cancer patients from symptom appraisal until the patient treatment commences. Methods: Snowball sampling was applied and 14 participants were recruited through the nomination of the female breast cancer patients. The participants took part in in-depth, face-to-face, and audio-recorded one-time interviews. All of the interviews were subsequently transcribed verbatim and analysed using narrative analysis. Results: Five themes were identified with regard to the roles of family members: 1) confirming breast changes; 2) managing personal emotions; 3) seeking the information; 4) seeking alternative forms of treatment; and 5) advocating for conventional treatment. Conclusion: This study discovered that family members play an important role in the journey of women with breast cancer from the time an abnormality is discovered to the time the patient receives treatment. During this time, many of them suppressed their emotions in order to focus on the women suffering from breast cancer. Healthcare professionals working with breast cancer should recognise and support the key role of family members in supporting women to get treatment. It is important to take a proactive approach in recognising the early signs of stress for family members and, when appropriate, offering them additional sources of support.
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Objective: To clarify family members’ behaviors toward terminally ill cancer patients with communication difficulties and the related support provided by medical professionals. Method: Participants included 15 medical professionals engaged in palliative care (physicians, nurses, and psychologists) and 5 bereaved family members who had cared for terminally ill cancer patients at a hospital. Semi-structured interviews were conducted on the following: (1) family members’ behaviors toward the patient and (2) related support provided by medical professionals to family members. The interviews were qualitatively analyzed using category analysis. Results: We identified three categories of family members’ behaviors toward the patient such as behaviors that continue to communicate with the patient as usual, behaviors that assist patients to feel secure and relaxed, We also identified nine categories of the related support provided by medical professionals such as advising family members on how to behave with the patient and providing encouraging feedback to family members on their behaviors toward the patient. Discussion: Our results suggest that medical professionals encouraged family members to continue their behaviors to patients confidently. Support to family members included suggesting behaviors to make it easier for them to put into practice, encouraging the patient and family interaction, and giving feedback on the family member’s behaviors.
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To analyze the mediating role of anxiety and depression in perceived social support and fatigue in ICU patients′ families, and to provide a theoretical evidence for alleviating their fatigue status. A total of 223 family members of ICU patients who received treatment at the Affiliated Hospital of Jiangnan University from October 2020 to April 2021 were selected as the study subjects. The general data questionnaire, perceived social support scale (PSSS), generalized anxiety disorder scale (GAD-7), patient health questionnaire (PHQ-9) and fatigue assessment instrument (FAI) were used to conduct a survey. Among 223 family members of ICU patients, 155(69.51%) had fatigue problems. There were statistically significant differences in total fatigue scores of ICU patients′ family members in terms of gender, age, education level, relationship with patients, residence, payment method and per capita monthly income ( P<0.05). Anxiety, depression and fatigue were negatively correlated with perceived social support ( r are -0.353, -0.276 and -0.416, respectively, all P<0.01). Depression and fatigue were positively correlated with anxiety ( r are 0.808 and 0.703, respectively, all P<0.01), and fatigue was also positively correlated with depression ( r= 0.665, P<0.01). Anxiety and depression had a partial mediating effect on perceived social support and fatigue, and the total indirect effect size was 52.64%. Comprehensive intervention on the level of social support, anxiety and depression is helpful to improve the fatigue status of ICU patients′ family members.
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ObjectiveTo understand the status of stigma and subjective well-being of patients with mental disorders and co-resident family members， to analyze the correlation between them， and to compare the impact of stigma upon the subjective well-being of patients and family members of the same household. MethodsPatients with mental disorders （n=154） and their families （n=154） who visited the outpatient department of a tertiary psychiatric hospital in Chengdu from October to November 2019 were selected， and four instruments were used for collecting the data， including self-designed demographic information questionnaire， self-designed disease-related information questionnaire， brief version of Internalized Stigma of Mental Illness Scale （ISMI-10） and Index of Well-Being Scale （IWB）. ResultsA total of 118 （76.62%） patients with mental disorders and 151 （98.05%） family members experienced stigma. The total score and each factors score in ISMI-10 of family members were higher than those of patients （P<0.01）， and the total score and each dimension score in IWB were lower than those of patients （P<0.01）. Pearson correlation analysis showed that ISMI-10 total score of patients and family members was negatively correlated with IWB total score （r=-0.600，-0.202， P<0.05 or 0.01）. After controlling demographic and disease-related variables， multiple linear regression analysis showed that the regression model of mental disorder patients achieved good fit effect （adjusted R2=0.457）， with statistical significance （F=26.746， P<0.01）， while the regression model of co-living family members was lack of fit （adjusted R2=0.035）. After controlling for family demographic variables， the model was at the statistical level （F=3.769， P<0.01）. ConclusionMental disorder patients have low illness stigma and high subjective well-being， whereas the opposite is true for family members. Moreover， there is a negative relationship between stigma and subjective well-being for both patients and family members， stigma is a significant factor affecting subjective well-being for people with mental disorders.
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O suicídio é um grave problema de saúde pública e envolve uma associação de fatores biológicos, psicológicos, sociais e culturais. Por se tratar de uma morte violenta, causada pelo próprio indivíduo, gera impactos emocionais e sociais significativos na dinâmica familiar. Por essa razão, os familiares enlutados apresentam dificuldades em desenvolver estratégias de enfrentamento para lidar com o sofrimento psíquico derivado do suicídio de um de seus membros. O enfrentamento ou coping são os esforços cognitivos ou comportamentais que um indivíduo utiliza para administrar situações consideradas estressoras. É classificado em: coping focalizado na emoção e coping focalizado no problema. O presente artigo visa levantar as estratégias de enfrentamento mais utilizadas pelos familiares no processo de luto por suicídio. Trata-se de uma revisão integrativa da literatura realizada nas bases de dados on-line: SCIELO, MEDLINE e PUBMED, nas quais foram selecionadas 10 publicações, artigos nos idiomas inglês e português, no período de 2011 a 2020. Foram incluídos artigos disponíveis na íntegra acerca da temática aqui proposta, excluindo dissertações de mestrado, teses de doutorado e monografias. Os resultados demonstraram que as estratégias de enfrentamento mais adotadas pelos familiares enlutados por suicídio foram: evitamento, isolamento, afastamento, auto culpa, reavaliação positiva, religiosidade, resolução planejada, apoio e suporte social, adaptação à perda e autocontrole. Concluiu-se que é necessária a realização de novas pesquisas acerca dessa temática, visando expandir a discussão e ampliar as estratégias de cuidado aos familiares enlutados por suicídio.
Suicide is a serious public health problem and involves the association of biological, psychological, social, and cultural factors. Since it is a violent death, caused by the individual, it generates significant emotional and social impacts on the family dynamics. Thus, bereaved family members have difficulties in developing coping strategies to deal with the psychological suffering that result from the suicide of one of their members. Coping is related to cognitive or behavioral efforts that an individual uses to manage situations considered stressful. They are classified into emotion-focused coping and problem-focused coping. This article aims to raise the coping strategies most used by family members in the process of bereavement by suicide. This is an integrative literature review carried out on the online databases: SCIELO, MEDLINE and PUBMED, in articles in English and Portuguese. Ten publications, from 2011 to 2020, were selected. Master's dissertations, doctoral theses, and final papers were excluded. The results showed that the coping strategies most adopted by family members bereaved by suicide were avoidance, isolation, withdrawal, self-blame, positive reappraisal, religiosity, planned resolution, support and social support, adaptation to loss, and self-control. It was possible to conclude that it is necessary to carry out further research on this topic, aiming to expand the discussion and expand care strategies for family members bereaved by suicide.
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Emotional Adjustment , Suicide , Bereavement , Adaptation, PsychologicalABSTRACT
No Brasil, crianças com deficiência têm comumente seus direitos à educação violados. Ao serem impedidas de frequentar a escola regular, lhes é negada a participação em espaços formativos no âmbito pessoal, cognitivo, relacional e político, o que reforça, inclusive para a própria criança, uma lógica segregacionista. Aqui apresentam-se resultados parciais de uma pesquisa qualitativa exploratória analítica, que teve por campo uma escola regular do Município de São Paulo. Teve como objetivo compreender quais os impactos da entrada na escola regular de crianças com deficiência sobre o cotidiano destas crianças e sua família, detectando os sentidos do processo de escolarização. Os dados foram coletados utilizando-se: 1) entrevistas semiestruturadas com pais e educadores de duas crianças com deficiência escolhidos intencionalmente; 2) genogramas e ecomapas das crianças para compreender sua rede de relações. A análise dos dados ocorreu segundo método abordagem da estrutura. Apesar de existirem entraves à efetivação da inclusão escolar, como preconceitos e vivências de uma inclusão perversa, estar na escola regular trouxe ganhos relacionais às crianças com deficiência, organizou seus cotidianos, e possibilitou novos horizontes para as crianças e suas famílias
In Brazil the educational rights of children with disabilities still have been denied. By being prevented from attending regular school, they are denied participation in formative spaces in the personal, cognitive, relational and political spheres, which reinforces, even for the children themselves, a segregationist logic. Here we present partial results of an exploratory analytical qualitative research, which was conducted in a regular school in the city of São Paulo. The objective was to understand the impacts of the entry of children with disabilities into regular school on the daily lives of these children and their families, detecting the meanings of the schooling process. Data were collected using: 1) semi-structured interviews with parents and educators of two children with disabilities chosen intentionally; 2) genograms and ecomaps of the children to understand their network of relationships. The Data analysis took place according to the structure approach method. Although there are obstacles to the effectiveness of school inclusion, such as prejudices, stereotypes and the experience of a perverse inclusion, being in a regular school brought relational gains to children with disabilities, organizing their daily lives, and allowing new horizons for children and their families.KEYWORDS: Inclusion in education; School inclusion; School; People with disabilities; Family members; Occupational therapy.
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Purpose: We investigated into the effect of religious involvement in nursing homes on users, facility staff, and families to explore the clinical significance of the religious involvement from the viewpoint of nursing care workers. Method: A questionnaire survey and a semi-structured interviews were conducted with 12 nursing care staff at a special nursing home for the elderly. Result: Eight factors such as “extraordinariness” caused five effects such as “positive changes in mental state in everyday situations” for the users. Two factors such as “development of awareness of religion” had two effects such as “changes in personal view of religion” for the care staff. Also, a factor of “caring for the users on their deathbeds” had an effect of the “opportunity of mental care” for the families of the users. Conclusion: These findings suggest that the religious involvement may be beneficial not only to users but also to facility staff and families of the users.
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RESUMEN Fundamento: develar las representaciones sociales del cáncer mamario puede acercar a profesionales de las ciencias psicológicas a comprender actitudes, conductas y las influencias que ejercen en pacientes, familiares y especialistas. Objetivo: determinar la estructura de las representaciones sociales (actitud, información, campo representacional) del cáncer mamario en los sujetos del estudio. Métodos: estudio exploratorio, transversal, de metodología mixta, en el período comprendido entre mayo 2014 a diciembre de 2015. Se aplicaron como técnicas: formulario datos sociodemográficos y clínicos, entrevista semiestructurada, composición, asociación libre. Las variables analizadas fueron: direccionabilidad de la actitud hacia el diagnóstico del cáncer mamario, direccionabilidad de la actitud hacia los tratamientos, en la dimensión información: conocimientos sobre conceptualización de la enfermedad, conocimientos de los síntomas, conocimientos sobre tratamientos, creencias sobre factores de riesgo, opiniones sobre las consecuencias del cáncer mamario, opiniones sobre necesidad de brindar conocimientos de la enfermedad a pacientes, familiares. Se efectuó análisis estadístico descriptivo de frecuencias. Se procesó la información de las variables en la base de datos del paquete estadístico SPSS 15.0 para Windows. Los resultados se expresaron en frecuencias absolutas y relativas. Resultados: pacientes, familiares mostraron direccionabilidad de la actitud negativa hacia el diagnóstico y tratamientos. Prevalencia de respuestas ajustadas en las áreas exploradas de la dimensión información, aunque con nivel de profundidad homogéneo los familiares. El campo representacional del cáncer mamario dio cuenta de modelos mayoritariamente de desafío a la enfermedad en los sujetos del estudio. Conclusiones: cómo se comportaron el conocimiento de la estructura de las representaciones sociales del cáncer mamario en los sujetos del estudio, contribuye al análisis del marco de referencia de la actuación sanitaria, desde un abordaje integral, holístico, por coexistir sentido común y ciencia.
ABSTRACT Background: unveiling the social representations of breast cancer can bring professionals in the psychological sciences to understand attitudes, behaviors and the influences they exert on patients, family members and specialists. Objective: to determine the structure of the social representations (attitude, information, representational field) of breast cancer in the study subjects. Methods: exploratory, cross-sectional study, of mixed methodology, in the period from May 2014 to December 2015. Applied as techniques: sociodemographic and clinical data form, semi-structured interview, composition, free association. The variables analyzed were: addressability of the attitude towards the diagnosis of breast cancer, addressability of the attitude towards treatments, in the information dimension: knowledge about disease conceptualization, knowledge of symptoms, knowledge about treatments, beliefs about risk factors , opinions on the consequences of breast cancer, opinions on the need to provide knowledge of the disease to patients, relatives. Descriptive statistical analysis of frequencies was performed. The information of the variables in the database of the statistical package SPSS 15.0 for Windows was processed. The results were expressed in absolute and relative frequencies. Results: patients, relatives showed addressability of the negative attitude towards diagnosis and treatment. There was a prevalence of adjusted responses in the explored areas of the information dimension, although with a homogeneous level of depth, in family members. The representative field of breast cancer accounted for mostly models of disease challenge in the study subjects. Conclusions: the subjects of the study in relation to breast cancer showed a negative attitude, there was a predominance of adjusted answers about the pathology information and mostly models of disease challenges.
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Objective To get some knowledge of the quality of life among the pediatric patients who received the liver transplantation for one year, and analyze the impact factors. Methods The patients who received the liver transplantation within January to December 2016 were investigated by the questionnaire. The patients′demographics was investigated by the questionnaire. The patients′ quality of life was got by the scale, and then discuss the demographics′impact on the quality of life. Results The total score of quality of life was (68.37±13.90) points. The score of "About My Medicines I" was (76.74± 17.26) points, and the score of "About My Medicines II" was (77.90±16.41) points, and the score of My Transplant and Others was (65.92±20.06) points, and the score of Pain and Hurt was (79.43±13.52) points, and the score of "worry" was (54.07 ± 25.59) points, and the score of "Treatment Anxiety" was (54.07 ± 25.59) points, and the score of How I Look was (58.85±28.09) points, and the score of "Communication was (84.67±15.86) points. And the type of insurance and blood type of donors were the impact factors, and the difference was significant (t=2.101, 3.201, P＜0.05). Conclusions The quality of life of pediatric patients who received the liver transplantation for one year was relatively low. Whether or not having bought the insurance and the blood type of donors may be the impact factors of the quality of life.
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Objective@#To get some knowledge of the quality of life among the pediatric patients who received the liver transplantation for one year, and analyze the impact factors.@*Methods@#The patients who received the liver transplantation within January to December 2016 were investigated by the questionnaire. The patients′ demographics was investigated by the questionnaire. The patients′ quality of life was got by the scale, and then discuss the demographics′ impact on the quality of life.@*Results@#The total score of quality of life was (68.37±13.90) points. The score of "About My Medicines I" was (76.74±17.26) points, and the score of "About My Medicines II" was (77.90±16.41) points, and the score of My Transplant and Others was (65.92±20.06) points, and the score of Pain and Hurt was (79.43±13.52) points, and the score of "worry" was (54.07±25.59) points, and the score of "Treatment Anxiety" was (54.07±25.59) points, and the score of How I Look was (58.85±28.09) points, and the score of "Communication was (84.67±15.86) points. And the type of insurance and blood type of donors were the impact factors, and the difference was significant (t=2.101, 3.201, P<0.05).@*Conclusions@#The quality of life of pediatric patients who received the liver transplantation for one year was relatively low. Whether or not having bought the insurance and the blood type of donors may be the impact factors of the quality of life.
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Objective To explore the effect of family support service intervention on improving the rehabilitation of patients with severe mental disorders in community and the mental health status and family burden of family members. Methods Using multi-stage random sampling method, 100 patients who met the diagnostic criteria of severe mental disorders were randomly selected from two communities, and then 100 patients who met the diagnostic criteria of severe mental disorders were randomly matched according to gender, age and diagnosis in other communities into the control group. The control group and intervention group were set up strictly according to the inclusion criteria of patients and their families. Results The average age of the 200 groups was (48.27±12.67) years, and the average age of the family members was (63.61±13.19) years. After intervention, the activity dailyliving scale (ADL) scores of the control group were higher than those of the intervention group at all time points (all P0.05). After intervention, the SCL-90(self-reporting inventory) scores of the mental health of the family members in the control group were higher than those in the intervention group at all times (all P<0.05). After intervention, the family burden scale of diseases (FBS) scores of the control group were higher than those of the intervention group at all time points (all P<0.05). Conclusions The intervention measures did improve the rehabilitation effect of severe mental disorder patients in community and the psychological and family burden of family members. A professional family support service team should be established.
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BACKGROUND@#The number of patients with depressive symptoms worldwide is increasing steadily, and the prevalence of depression among caregivers is high. Therefore, the present study aimed to identify the effects of individuals' caregiving status with respect to their family members requiring activities of daily living (ADLs) assistance on depressive symptoms among those aged 45 or over.@*METHODS@#Data were collected from the 2006-2016 using the Korean Longitudinal Study of Aging surveys. Participants were categorized into three groups based on their caregiving status with respect to family members requiring ADL assistance: whether they provided the assistance themselves, whether the assistance was provided by other caregivers, or whether no assistance was required. We analyzed the generalized estimating equation model and subgroups.@*RESULTS@#A total of 3744 men and 4386 women were included for the analysis. Men who cared for family members requiring ADL assistance had higher depressive symptoms than those with family members who did not require ADL assistance. Among women, participants who had family members requiring ADL assistance that they themselves or others were providing had higher depressive symptoms than those without family members requiring ADL assistance. Subgroup analysis was conducted based on age, job status, regular physical activities, participation status in social activities, and the number of cohabiting generations.@*CONCLUSIONS@#The study results indicated higher depressive symptoms among those with family members requiring ADL assistance and those who care for such family members themselves. This suggests that an alternative to family caregiving is necessary, especially for the elderly, regardless of caregiver sex.