ABSTRACT
El movimiento social Bengala Verde surgió en Brasil con el fin de incentivar la presencia social de las personas con baja visión. El uso y la apropiación del ámbito digital por parte de este movimiento demuestra que la difusión de la información en salud es un recurso discursivo fundamental, y se desarrolla condicionado por (auto) concepciones sobre los modos característicos de pensar, sentir y reaccionar de la persona con baja visión. El objetivo de este estudio fue explorar el discurso de estas personas respecto a su propia identidad social en medios y redes sociales. Desde el enfoque de la comunicación interactiva en salud, se analizaron vídeos de YouTube y publicaciones en Facebook y en Instagram del Grupo Virtual Stargardt (GVS), una comunidad virtual vinculada al movimiento Bengala Verde y compuesta por personas de baja visión que padecen la enfermedad de Stargardt. A partir de la selección de fragmentos de esos discursos y de su codificación, se identificaron 42 rasgos identificadores, agrupados en un modelo conceptual de 8 categorías sintéticas. Estos rasgos se construyen de forma interactiva, por medio de una elaboración pautada en momentos de acuerdo, discordancia y sentido del humor. Los discursos contribuyen a la consolidación de una identidad propia, distinta a la de la persona invidente pero similar en cuanto al marco legal de la persona con discapacidad visual(AU)
The social movement Bengala Verde (Green Signal Flare) emerged in Brazil with the purpose of fostering the social involvement of people with low vision. The use and appropriation of the digital environment by this movement shows that dissemination of health information is a fundamental discourse resource conditioned by (self-) conceptions about characteristic modes of thinking, feeling and reacting of people with low vision. The purpose of the study was to explore the discourse of these people with respect to their own social identity on social media and networks. Based on a interactive health communication perspective, an analysis was performed of YouTube videos and publications on Facebook and Instagram by the Stargardt Virtual Group, a virtual community linked to the Bengala Verde movement and made up of people with low vision suffering from Stargardt's disease. Starting from a selection of fragments of these discourse excerpts and their coding, 42 distinguishing traits were identified, grouped into a conceptual model of eight synthetic categories. These traits are constructed interactively through a process of development patterned at moments of agreement, disagreement and sense of humor. Discourse resources contribute to consolidate a unique identity, different from that of blind people, but similar as to the legal framework of people with visual disabilities(AU)
Subject(s)
Humans , Male , Female , Social Identification , Vision, Low , Health Communication/methods , Social Media , BrazilABSTRACT
@#<p> OBJECTIVE:</b> To develop a locally adapted patient decision aid (PtDA) on treatment intensification among Filipino patients with Type 2 Diabetes Mellitus and to test the feasibility of using PtDAs in a low middle-income country.</p><p><strong>METHODOLOGY:</strong> A qualitative approach and an iterative process of development of a PtDA were employed for this study. We describe the process of developing a Filipino version of the Diabetes Medication Decision Aid. This PtDA was designed to help the patient choose the appropriate treatment intensification based on his own values and preferences, in consultation with his physician. The process involved decisional needs assessment through focus group discussions and key informant interviews, systematic literature review, iterative process of the development of a PtDA with clinical encounters (pilot testing), and preliminary field testing.</p><p><strong>RESULTS:</strong> Decisional needs assessment revealed that Filipino patients are open to participate in shared decision-making if given the opportunity, including those with low socioeconomic status who likely have low health literacy. Physicians prefer to have visual aid tools to help them support their patient's decision-making. A PtDA prototype of a set of flash cards in Filipino was created and revised in an iterative method. We developed a more visually appealing tool after inputs from the expert panel and patient advisory group. Its use during clinical encounters provided additional insights from patients and clinicians on how to improve the PtDA. Preliminary field testing showed that its use is feasible in the target patient population.</p><p><strong>CONCLUSION:</strong> Filipino patients, clinicians, and diabetes nurse educators have contributed to the creation of the first Filipino PtDA for diabetes treatment intensification.</p>