ABSTRACT
Aims: The methods of renal replacement therapy influence highly the quality of life (QOL) of patients with chronic kidney disease. The present study aimed to evaluate and compare the QOL in patients undergoing hemodialysis (HD), peritoneal dialysis (PD) and kidney transplantation (KT). Methodology: The sample consisted of 186 patients attending Nicosia General Hospital in 2012, 118 HD patients, 23 PD patients and 45 KT patients. QOL was assessed by the Greek Kidney Disease Quality of Life-Short Form (KDQOL-SF 36). Results: Patients on HD had worse scores in all components. All three patient groups showed highest scores in mental health (HD: 57.7; PD: 70.3; KT: 75.6), whereas the lowest scores were observed in the component role physical (HD 33.1; PD 54.4 and KT 56.7) and general health (HD 32.5; PD 44.1 and KT 60.4). KT patients achieved highest scores in the physical component summary and mental component summary, as well as in the component summary of renal disease, followed by peritoneal dialysis patients. Male gender was significantly associated with higher score. Conclusion: The study demonstrate that among the three groups the patients on hemodialysis had the worst scores, whereas the best scores are seen in KT patients. Lower scores are reported in the physical health component and here especially in the general health. Physicians as well as nursing personnel should be aware of the effects of dialysis and could improve both physical and mental health implementing empowerment programs in departments of HD and PD, to support patients in managing their health-related conditions.
ABSTRACT
El objetivo de este trabajo es adaptar transculturalmente, para el uso en Colombia, el cuestionario para calidad de vida en pacientes con enfermedad renal crónica terminal, KDQOL-SF-36 Kidney Disease Quality of Life (instrumento mixto). Al realizar esta adaptación, se busca que el significado y semántica de las preguntas sean consistentes para ser aplicados en población Colombiana. Método: para la realización de todo el proceso de adaptación se tomaron en cuenta las recomendaciones dadas por la Organización Europea para la Investigación y el Tratamiento del Cáncer (EORTC), la aplicación del cuestionario en los grupos pilotos se llevo a cabo mediante entrevista, autoadministración y entrevista en grupos focales. Resultados: durante el proceso de adaptación se realizaron diversos cambios en el cuestionario, la mayoría de ellos en la fase de traducción desde los lineamientos seguidos en la metodología. Conclusiones: en este momento en Colombia se cuenta con la versión adaptada de la escala KDQOL-SF-36, para pacientes con enfermedad renal crónica terminal.
The aim of this work is to obtain a Colombian transcultural adaptation version of the instrument 'kidney disease quality of life' KDQOL - SF - 36 (mixed instrument) in subjects with end stage renal disease. By doing this work it is intended that the meaning and context of the questions be consistent to be applied in Colombian population. Method: For the accomplishment of the whole process of adjustment, the recommendations given by the European Organization for Research and Treatment of Cancer (EORTC) were taken in account; the application of the questionnaire in the pilot groups was carried out by interview, self administration and focal group interviews. Results: during the process of adjustment, several changes were made to the questionnaire, most of them in the translation phase from the standards followed in the methodology. Conclusions: Currently in Colombia the adapted version of the KDQOL-SF-36 scale is being used for subjects with end stage renal disease.
O objetivo destetrabalho é adaptar transculturalmente para o uso na Colômbia o questionário para qualidade de vida em pacientes com doença renal crônica terminal KDQOL-SF-36 KidneyDisease- QualityofLife (instrumento misto). Ao realizar esta adaptação procura-se que o significado e semântica das perguntas sejam consistentes para ser aplicados em população Colombiana. Método: para a realização de todo o processo de adaptação se tiveram em conta as recomendações dadas pela Organização Europeia para a Pesquisae o Tratamento do Câncer (EORTC), a aplicação do questionário nos grupos pilotos, se levou a cabo mediante entrevista, autoadministração e entrevista em grupos focais. Resultados: durante o processo de adaptação se realizaram diversos câmbios ao questionário a maioria de eles na fase de tradução desde os lineamentos seguidos na metodologia. Conclusões: em este momento na Colômbia se conta com a versão adaptada da escala KDQOL-SF-36 para pacientes com doença renal crônica terminal.
Subject(s)
Humans , Kidney Failure, Chronic , Quality of Life , Surveys and Questionnaires , Renal DialysisABSTRACT
JUSTIFICATIVA E OBJETIVOS: A insuficiência renal crônica (IRC) é uma doença que acomete grande parcela da população, provoca graves consequências na vida do paciente, inclusive quando este precisa ser submetido ao tratamento, que, por sua vez, também compromete as dimensões física, psíquica e social, as quais podem influenciar diretamente na qualidade de vida (QV). Portanto, o objetivo deste estudo foi avaliar a QV dos pacientes submetidos à hemodiálise. MÉTODO: Estudo descritivo transversal, realizado com uma amostra de conveniência. Foi utilizado o Kidney Disease and Quality of Life Short Form (KDQOL SF-36). Os voluntários eram portadores de IRC, submetidos ao tratamento de hemodiálise em uma clínica de terapia renal substitutiva, no período de junho a julho de 2006. Para análise dos dados, foi aplicada estatística descritiva. RESULTADOS: Dos 62 pacientes que atendiam aos critérios de inclusão e exclusão, apenas 37 responderam ao questionário. Destes, 16 eram homens (43,24%) e 21 mulheres (56,76%). Das dimensões analisadas, a de papel profissional e função física foram as que apresentaram menor média de escore, enquanto que a maior média foi observada no estímulo por parte da equipe de diálise. CONCLUSÃO: A pontuação média encontrada nas diferentes dimensões indicou boa QV nesta população, uma vez quea maioria das dimensões avaliadas apresentaram escores nas 4ª e 5ª faixas. A identificação desses indicadores qualitativos poderá auxiliar na terapêutica, bem como influenciar na perspectiva de vida desses pacientes.
BACKGROUND AND OBJECTIVES: Chronic renal failure (CRF) is a disease which affects a large part of the population, causes serious consequences in the patient's life, inclusively when he/she needs to undergo a treatment that, in turn, also compromises the physical, mental and social dimensions, which can directly influence these patient's quality of life (QOL). Therefore, the aim of this study was to evaluated the quality of life of patients undergo hemodialysis. METHOD: This is a descriptive cross-sectional study, conducted with a convenience sample, which used the questionnaire of Kidney Disease and Quality of Life - Short Form (KDQOL SF-36). The volunteers were patients diagnosed with CRF and undergoing a hemodialysis treatment at a clinic for renal replacement therapy in the period from June to July 2006. For data analysis, was applied descriptive statistics. RESULTS: From the 62 patients who met the inclusion and exclusion criteria, only 37 answered the questionaire. From these, 16 men (43.24%) and 21 women (56.76%). Among the analyzed dimensions, those of professional role and physical function were the ones with the lower score average, whereas the highest average was observed in the incentive on the part of the dialysis team. CONCLUSION: The average score found in the different dimensions indicates a good quality of life in this population, since most of the assessed dimensions presented score in the 4th and 5th ranges. The identification of these qualitative indicators may help in the treatment, as well how influencing in life expectancy of these patients.