Quality Of Life Among Patients Undergoing Haemodialysis In Jakarta, Indonesia

@#Haemodialysis is a continuous treatment provided to patients with chronic kidney disease as a replacement for renal function. It is important to assess the quality of life among these patients. The aim of this study was to evaluate quality of life among patients on haemodialysis using an Indonesian version of the KDQoL-SF24 questionnaire. This is a cohort observational study that included 145 haemodialysis patients in a haemodialysis centre in Jakarta, Indonesia. A translated and validated version of the KDQoL-SF24 was used in this survey. The participants in this study had lower mean scores than the standard form in the following 6 components: burden of kidney disease (44.22±33.23), cognitive function (74.94±20.32), sleep (57.07±24.15), patient satisfaction (60.11±18.56), role-physical (26.21±44.01), emotional well-being (69.19±24.25) and role-emotional (40.69±49.18). A significant relationship was found between sexual function, physical functioning, role emotional and age among haemodialysis patients (P <0.05). Based on the overall health rating from the KDQoL-SF24, the mean and standard deviation for the 21- to 30-year-old age group was lower than the standard form. The burden of kidney disease, cognitive function, sleep, patient satisfaction, role-physical, emotional well-being and role-emotional component scores were low for haemodialysis patients in Indonesia compared to the standard form. Additionally, age significantly affected sexual function, physical functioning and role-emotional.

Quality of Life in Patients with Chronic Kidney Disease: A Cross-sectional Study Comparing Patients on Hemodialysis, Peritoneal Dialysis and with Kidney Transplantation.

Aims: The methods of renal replacement therapy influence highly the quality of life (QOL) of patients with chronic kidney disease. The present study aimed to evaluate and compare the QOL in patients undergoing hemodialysis (HD), peritoneal dialysis (PD) and kidney transplantation (KT). Methodology: The sample consisted of 186 patients attending Nicosia General Hospital in 2012, 118 HD patients, 23 PD patients and 45 KT patients. QOL was assessed by the Greek Kidney Disease Quality of Life-Short Form (KDQOL-SF 36). Results: Patients on HD had worse scores in all components. All three patient groups showed highest scores in mental health (HD: 57.7; PD: 70.3; KT: 75.6), whereas the lowest scores were observed in the component role physical (HD 33.1; PD 54.4 and KT 56.7) and general health (HD 32.5; PD 44.1 and KT 60.4). KT patients achieved highest scores in the physical component summary and mental component summary, as well as in the component summary of renal disease, followed by peritoneal dialysis patients. Male gender was significantly associated with higher score. Conclusion: The study demonstrate that among the three groups the patients on hemodialysis had the worst scores, whereas the best scores are seen in KT patients. Lower scores are reported in the physical health component and here especially in the general health. Physicians as well as nursing personnel should be aware of the effects of dialysis and could improve both physical and mental health implementing empowerment programs in departments of HD and PD, to support patients in managing their health-related conditions.

Adaptación tranccultural del cuestionario kdqolsf 36 para evaluar calidad de vvida en pacientes con enfermedad renal crónica en Colombia / Adaptaton transccultura kdqol questionnaire sf 36 to assess quality off life in patients with chronic kidney disease in Colombia / Adaptaço transcuultural do questionário kdqol sf 36 para avaliar qualidade de vida em pacientes com doença renal crônica na Colômbia

El objetivo de este trabajo es adaptar transculturalmente, para el uso en Colombia, el cuestionario para calidad de vida en pacientes con enfermedad renal crónica terminal, KDQOL-SF-36 Kidney Disease Quality of Life (instrumento mixto). Al realizar esta adaptación, se busca que el significado y semántica de las preguntas sean consistentes para ser aplicados en población Colombiana. Método: para la realización de todo el proceso de adaptación se tomaron en cuenta las recomendaciones dadas por la Organización Europea para la Investigación y el Tratamiento del Cáncer (EORTC), la aplicación del cuestionario en los grupos pilotos se llevo a cabo mediante entrevista, autoadministración y entrevista en grupos focales. Resultados: durante el proceso de adaptación se realizaron diversos cambios en el cuestionario, la mayoría de ellos en la fase de traducción desde los lineamientos seguidos en la metodología. Conclusiones: en este momento en Colombia se cuenta con la versión adaptada de la escala KDQOL-SF-36, para pacientes con enfermedad renal crónica terminal.

The aim of this work is to obtain a Colombian transcultural adaptation version of the instrument 'kidney disease quality of life' KDQOL - SF - 36 (mixed instrument) in subjects with end stage renal disease. By doing this work it is intended that the meaning and context of the questions be consistent to be applied in Colombian population. Method: For the accomplishment of the whole process of adjustment, the recommendations given by the European Organization for Research and Treatment of Cancer (EORTC) were taken in account; the application of the questionnaire in the pilot groups was carried out by interview, self administration and focal group interviews. Results: during the process of adjustment, several changes were made to the questionnaire, most of them in the translation phase from the standards followed in the methodology. Conclusions: Currently in Colombia the adapted version of the KDQOL-SF-36 scale is being used for subjects with end stage renal disease.

O objetivo destetrabalho é adaptar transculturalmente para o uso na Colômbia o questionário para qualidade de vida em pacientes com doença renal crônica terminal KDQOL-SF-36 KidneyDisease- QualityofLife (instrumento misto). Ao realizar esta adaptação procura-se que o significado e semântica das perguntas sejam consistentes para ser aplicados em população Colombiana. Método: para a realização de todo o processo de adaptação se tiveram em conta as recomendações dadas pela Organização Europeia para a Pesquisae o Tratamento do Câncer (EORTC), a aplicação do questionário nos grupos pilotos, se levou a cabo mediante entrevista, autoadministração e entrevista em grupos focais. Resultados: durante o processo de adaptação se realizaram diversos câmbios ao questionário a maioria de eles na fase de tradução desde os lineamentos seguidos na metodologia. Conclusões: em este momento na Colômbia se conta com a versão adaptada da escala KDQOL-SF-36 para pacientes com doença renal crônica terminal.

Avaliação da qualidade de vida dos pacientes submetidos à hemodiálise / Assessment of quality of life in patients undergoing hemodialysis

JUSTIFICATIVA E OBJETIVOS: A insuficiência renal crônica (IRC) é uma doença que acomete grande parcela da população, provoca graves consequências na vida do paciente, inclusive quando este precisa ser submetido ao tratamento, que, por sua vez, também compromete as dimensões física, psíquica e social, as quais podem influenciar diretamente na qualidade de vida (QV). Portanto, o objetivo deste estudo foi avaliar a QV dos pacientes submetidos à hemodiálise. MÉTODO: Estudo descritivo transversal, realizado com uma amostra de conveniência. Foi utilizado o Kidney Disease and Quality of Life Short Form (KDQOL SF-36). Os voluntários eram portadores de IRC, submetidos ao tratamento de hemodiálise em uma clínica de terapia renal substitutiva, no período de junho a julho de 2006. Para análise dos dados, foi aplicada estatística descritiva. RESULTADOS: Dos 62 pacientes que atendiam aos critérios de inclusão e exclusão, apenas 37 responderam ao questionário. Destes, 16 eram homens (43,24%) e 21 mulheres (56,76%). Das dimensões analisadas, a de papel profissional e função física foram as que apresentaram menor média de escore, enquanto que a maior média foi observada no estímulo por parte da equipe de diálise. CONCLUSÃO: A pontuação média encontrada nas diferentes dimensões indicou boa QV nesta população, uma vez quea maioria das dimensões avaliadas apresentaram escores nas 4ª e 5ª faixas. A identificação desses indicadores qualitativos poderá auxiliar na terapêutica, bem como influenciar na perspectiva de vida desses pacientes.

BACKGROUND AND OBJECTIVES: Chronic renal failure (CRF) is a disease which affects a large part of the population, causes serious consequences in the patient's life, inclusively when he/she needs to undergo a treatment that, in turn, also compromises the physical, mental and social dimensions, which can directly influence these patient's quality of life (QOL). Therefore, the aim of this study was to evaluated the quality of life of patients undergo hemodialysis. METHOD: This is a descriptive cross-sectional study, conducted with a convenience sample, which used the questionnaire of Kidney Disease and Quality of Life - Short Form (KDQOL SF-36). The volunteers were patients diagnosed with CRF and undergoing a hemodialysis treatment at a clinic for renal replacement therapy in the period from June to July 2006. For data analysis, was applied descriptive statistics. RESULTS: From the 62 patients who met the inclusion and exclusion criteria, only 37 answered the questionaire. From these, 16 men (43.24%) and 21 women (56.76%). Among the analyzed dimensions, those of professional role and physical function were the ones with the lower score average, whereas the highest average was observed in the incentive on the part of the dialysis team. CONCLUSION: The average score found in the different dimensions indicates a good quality of life in this population, since most of the assessed dimensions presented score in the 4th and 5th ranges. The identification of these qualitative indicators may help in the treatment, as well how influencing in life expectancy of these patients.

Lower Residual Renal Function is a Risk Factor for Depression and Impaired Health-Related Quality of Life in Korean Peritoneal Dialysis Patients

We retrospectively evaluated demographic and biochemical parameters associated with depression and health-related quality of life (HRQOL) in maintenance peritoneal dialysis (PD) patients. This study included 105 patients maintaining PD at Seoul National University Hospital. Data were collected from electronic medical record. Korean Beck's Depression Inventory and Korean version of Kidney Disease Quality of Life short form, version 1.3 were used to evaluate depression and HRQOL, respectively. Moderate to severe depression was found in 24.8% of patients. Patients with lower normalized protein equivalent of nitrogen appearance (nPNA) (< 1.2 g/kg/day), lower weekly renal Kt/V(urea) (< 0.2), and lower serum albumin level (< or = 4.0 g/dL) were associated with depression (P < 0.05). Among them, lower weekly renal Kt/V(urea) was the only independent risk factor associated with depression (OR = 3.1, P = 0.007). Depressed patients showed significantly lower scores in every dimension of HRQOL (P < 0.001). Lower weekly renal Kt/V(urea) (beta = 0.24, P = 0.005) and lower nPNA (beta = 0.15, P = 0.03) were the independent risk factors associated with lower kidney dialysis component summary, whereas lower plasma hemoglobin level was the consistent risk factor for lower physical component summary (beta = 0.22, P = 0.03) and mental component summary (beta = 0.22, P = 0.01). Depression is a prevalent psychological problem in PD population. Residual renal function is the most important factor associated with depression and impaired HRQOL in PD patients.

Qualidade de vida: pacientes com insuficiência renal crônica no município de Caruaru, PE / Life quality: patients with chronic renal failure in the city of Caruaru, PE

Introdução: Qualidade de vida é uma dimensão que tem sido amplamente investigada na saúde da população, independente da faixa etária. Uma condição crônica é um fator que interfere na realização das atividades da vida diária e na percepção de bem-estar individual, como é o caso dos pacientes em tratamento por hemodiálise. Objetivo: Descrever as características e analisar as possíveis associações entre a Insuficiência Renal Crônica (IRC) e a qualidade de vida em uma amostra representativa de pacientes como agravo no município de Caruaru, PE. Método: A pesquisa foi realizada nos centros de tratamentos dialíticos na cidade de Caruaru, onde toda a população com IRC é atendida (n = 192), sendo 82 pacientes do Centro Regional de Hemodiálise do Agreste (CRHA) e 110 da clínica SOS Rim – Clínica Nefrológica de Caruaru. Para a composição da amostra foi realizado um censo e todos os pacientes cadastrados foram pré-selecionados inicialmente para o estudo. Resultados: Verificou-se que a maioria dos participantes relatou algum grau de incômodo: dores musculares (69,4), cãibras (89,8), coceiras (67,3), fraqueza muscular (73,5), diminuição de líquido (91,8), diminuição alimentar (85,7) e capacidade de trabalhar(75,5). Já quando questionados se o esforço físico interfere na sua qualidade de vida, este estudo revelou que 70,3 afirmam que sim. Em relação à saúde, 80,6 das pessoas dizem que a doença renal crônica interfere de forma negativa na qualidade de vida. Conclusão: Os dados indicam que pacientes com IRC apresentam diminuição na qualidade de vida graças a repercussões musculoesqueléticas, tais como cãibras, fraqueza muscular e esforço físico.

Life quality has been a subject of growing research in studies of population health, in all times of ages. A chronic condition is a factor that interferes with the conduct of activities of daily living and the perception of individual well-being, as is the case of patients being treated by hemodialysis. Objective: To describe the characteristics and to analyze the possible associations between the CRF and life quality related to health in a representative sample of patients which was worsted in the city of Caruaru, PE. Method: The survey was conducted in dialysis treatment centers in Caruaru city, where all population with CRF is attended (n = 192), being 82 patients of the Regional Hemodialysis Center (Centro Regional de Hemodiálise do Agreste - CRHA) and 110 patients of the SOS Rim Clinic - Caruaru's Nephrological Clinical. For the composition of the sample was accomplished a census and all patients enrolled were initially preselected first for study. Results: It was verified that the majority of study participants reported some degree of discomfort: muscle pain (69.4 percent), cramps (89.8 percent), itching (67.3 percent), weakness (73.5 percent), reduced net (91.8 percent), decreased food (85.7 percent) and ability to work (75.5 percent). When asked if the physical effort interferes with their quality of life, this study revealed that 70.3 percent say so. In relation to health, 80.6 percent of people say that kidney disease interferes in a negative way on the quality of life. Conclusion: The data in this study indicate that patients with CRF have decreased in life quality due to musculoskeletal repercussions such as cramps, muscle weakness and physical effort.