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1.
JOURNAL OF RARE DISEASES ; (4): 210-230, 2023.
Article in English | WPRIM | ID: wpr-1005076

ABSTRACT

@#Neurofibromatosis type 1(NF1) is an autosomal dominant hereditary neoplastic disease caused by mutations in the <i>NF1</i> gene. Features of disorder typically appear in early childhood. The clinical phenotypes of the patients are diverse but neurofibromas is the main feature. Patients with NF1 also suffer from multi-system involvement and have high risk of malignant tumor. NF1 poses significant challenges for diagnosis, treatment, follow-up and patients management. Therefore, it is imperative to develop a multidisciplinary collaborative diagnosis and treatment protocol. Under the leadership of China Alliance for Rare Diseases, a multidisciplinary diagnosis and treatment collaborative team for NF1 has been formed and worked out the guideline. This guideline intends to lift the diagnosis and treatment level for NF1 and to provide the guideline for standardized treatment for NF1 patients in China.

2.
Clinical Medicine of China ; (12): 361-365, 2022.
Article in Chinese | WPRIM | ID: wpr-956380

ABSTRACT

Anomalous aortic origin of a coronary artery is a rare abnormal coronary artery development disease, which affects myocardial blood perfusion in the absence of significant coronary artery stenosis. Such patients have a high risk of sudden death, and their disease progresses rapidly, and their clinical manifestations are easily confused with myocardial diseases. We report a case of a 13-year-old young patient whose diagnosis was confirmed, the condition was stabilized at an early stage, and the abnormal coronary structure was corrected by coronary decapitation through a multidisciplinary combination of cardiology, cardiac surgery, ICU, and imaging. This article focuses on the diagnosis and treatment of these patients.

3.
Chinese Medical Equipment Journal ; (6): 88-90,108, 2018.
Article in Chinese | WPRIM | ID: wpr-699950

ABSTRACT

Objective To study the teaching innovation of the scientific experiment exploration course in biomedical engineering specialty based on its characteristics involving in animal physiological parameters acquisition, circuit system design, signal processing and etc. Methods The course aimed to guide the student in observation learning, practice and inquiry with considerations on course significance,basic principles for designing the course,implementation scheme of course teaching, suggestions for course improvement, instances of practical teaching and etc. Results Four basic principles were proposed for course teaching. An implementation scheme was determined with emphases on teaching materials, theory, practice, discussion and exploration. The course had the rule being inquiry, and some suggestions were put forward about student feedback, scientific research progress, experiment platform renewal and etc. Conclusion Teaching practice proves that the improved course contributes to enhancing the student's understanding of experiment exploration of biomedical engineering specialty and to promoting multi-discipline fusion and cross-over personnel training, and thus is of great reference for other universities.

4.
Chinese Journal of Diabetes ; (12): 769-772, 2015.
Article in Chinese | WPRIM | ID: wpr-482414

ABSTRACT

[Summary] Clinical studies have confirmed that metabolic surgery is an effective method for the treatment of diabetes ,which can significantly relieve symptoms of type 2 diabetes ,improve various complications and reduce cardiovascular events. Currently ,major limitations of this technique in clinical practice in China include the lack of understanding on surgical benefits ,difficulty in selection of surgery indications and division‐based treatment modalities. Thus ,we should explore a cooperation model of multi‐discipline teams ,understand the mechanisms of type 2 diabetes remission by metabolic surgery and develop physician internist leading standard post‐operation management. These strategies will greatly promote the development of metabolic surgery for type 2 diabetes in China.

5.
Palliative Care Research ; : 134-140, 2015.
Article in Japanese | WPRIM | ID: wpr-375699

ABSTRACT

<b>Objective:</b>Care Cafe® aims to remove the barriers between medical treatment, nursing, and welfare, particularly with regard to actual practice. This study was conducted to investigate the changes in local integration using the Care Cafe®. <b>Method:</b>Participants in Care Cafe® filled out the questionnaire before and after attending. We used the Mixed Method to compare the results. This method provides analysis on changes in“quantify the quality of communication and cooperation among medical, nursing, and welfare services in a region”scale points, as well as content analysis on the free-opinion space. <b>Results:</b>The“quantify the quality of communication and cooperation”scale points increased significantly overall, as well as on the subscale. The effect size ranged form 0.32 to 0.36. We also had various successes in the content analysis of the free-opinion space, such as building face-to-face relationships in multiple occupations, that being one of the main purposes of Care Cafe®, as well as providing support, learning through discussion, and generating social capital. <b>Conclusion:</b>Care Cafe® may be a useful tool for improving local, multi-discipline cooperation involving medical treatment, nursing, and welfare.

6.
Palliative Care Research ; : 901-905, 2014.
Article in Japanese | WPRIM | ID: wpr-375195

ABSTRACT

<b>Aim</b>: Many methods aiming to achieve face-to-face, multi-discipline healthcare cooperation have been attempted in Japan in order to optimize the community care system. There are however, many obstacles to the commencement or successful coordination of meetings, seminars, and workshops for health care professionals, particularly longterm cooperation and financial constraints. We have developed methods to solve these problems. <b>Methods</b>: We invented a new method, called Care Café based on the philosophical and sociological ideals utilized by the World Café. Care Café is held on a regular basis to facilitate communication and cooperation between healthcare professionals with the aim of finding solutions to mutual problems. <b>Results</b>: Care Café has been held on a monthly basis in Asahikawa, where it started. There have been 9 Care Café events in Asahikawa so far, with the number of healthcare professionals in attendance totaling approximately 700. The concept of Care Café is earning greater recognition in Japan, and Care Café events have now been held in 16 different Japanese cities, for an aggregate total of 29 events nationwide. We have received Care Café reports from participating cities detailing successful multi-discipline healthcare cooperation in solving medical issues. <b>Conclusions</b>: Care Café started in Asahikawa. It has been spreading among healthcare professionals nationwide. We expect Care Café to establish and develop new face-toface, multi-discipline healthcare cooperation.

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