The experience of parental cancer from the parents' perspective: A qualitative study / La experiencia del cáncer parental desde la perspectiva de los padres: Un estudio cualitativo

INTRODUCTION: Parental cancer is the experience of cancer at an early age in adulthood in people with dependent children, leading to changes in parent-child interaction, family dynamics, the performance of the parental role and socio-economic difficulties. OBJECTIVE: To analyze parents' perspectives who are undergoing cancer treatment to understand the impact this has on their parental role. METHODOLOGY: Qualitative study. Data were collected through semi-structured interviews based on a structured script founded on the Betty Neuman Model. The sample consisted of cancer patients in the treatment phase, with different types of cancer, monitored in a Portuguese cancer hospital, with teenage children aged 14 to 19. Data analysis was carried out using content analysis according to Bardin. The ethical assumptions associated with the study were safeguarded. RESULTS: From the analysis of the 13 interviews carried out, the domain Experience of parental cancer emerged, with two categories "Everything changed in us: the cancer diagnosis" and "Life goes on: repercussions of parental cancer on parent-child interaction" and respective subcategories. CONCLUSION: This study demonstrated the implications of the diagnosis of cancer and the repercussions of parental cancer on parent-child interaction. The results will support the design of a nursing intervention program for the dyad experiencing parental cancer.

INTRODUCCIÓN: El cáncer parental comprende la vivencia del cáncer en edades tempranas de la vida adulta, en personas con hijos dependientes, provocando cambios en la interacción padres-hijos, dinámica familiar, desempeño del rol parental y dificultades socioeconómicas. OBJETIVO: Analizar la perspectiva de los padres sometidos a tratamiento contra el cáncer para comprender el impacto en el rol parental. METODOLOGÍA: Estudio cualitativo. La recolección de datos se realizó a través de entrevistas semiestructuradas, a partir de un guión estructurado, basado en el modelo de Betty Neuman. La muestra estuvo compuesta por pacientes oncológicos en fase de tratamiento, con diferentes tipos de cáncer, seguidos en un hospital oncológico portugués, con hijos adolescentes entre 14 y 19 años. El análisis de datos se realizó mediante análisis de contenido según Bardin. Se salvaguardaron los supuestos éticos inherentes a la realización del estudio. RESULTADOS: Del análisis de las 13 entrevistas realizadas surgió el dominio Experimentar el cáncer de los padres, con dos categorías "Todo ha cambiado en nosotros: el diagnóstico del cáncer" y "La vida continúa: repercusiones del cáncer de los padres en la interacción padres-hijos" y sus respectivas subcategorías. CONCLUSIÓN: Este estudio destacó las implicaciones que existen al diagnosticar una enfermedad oncológica y las repercusiones del cáncer de los padres en la interacción entre padres e hijos. Los resultados apoyarán la construcción del diseño de un programa de intervención de enfermería para la díada que experimenta cáncer parental.

Prácticas de crianza en alimentación, conducta alimentaria y riesgo de diabetes: Una revisión sistemática / Parenting practices in feeding, eating behavior and risk of diabetes: A systematic review

INTRODUCCIÓN: Las prácticas de crianza en alimentación y la conducta alimentaria han sido ampliamente estudiadas en niños, sin embargo, es necesario proporcionar información sobre su impacto en adultos. La evidencia sugiere que las prácticas de crianza en alimentación pueden tener un impacto en la conducta alimentarias emocional, descontrolada, restrictiva y desordenada, las cuales están asociadas con el incremento del Índice de masa corporal (IMC), el sobrepeso y la obesidad, mismos que se encuentran como principal factor de riesgo para el desarrollo de DT2. OBJETIVO: analizar través de una revisión sistemática la evidencia existente acerca de la relación entre las prácticas de crianza en alimentación, la conducta alimentaria y el riesgo de diabetes en adultos. METODOLOGÍA: Se realizó una búsqueda de literatura publicada de 2013 a 2023 en las bases de datos Pubmed, Scopus, EBSCOhost, Clarivate Science Citation Index Expanded y SpringerLink. Se identificaron 459 estudios, luego de aplicar los criterios de exclusión, se revisaron 15 estudios en total. RESULTADOS: Las subescalas de las prácticas de crianza en alimentación más empleadas fueron: preocupación, control, presión para comer y restricción. Se encontró asociación entre las prácticas de crianza en alimentación, la conducta alimentaria y el incremento del IMC. CONCLUSIÓN: Se consideran insuficientes las investigaciones que muestran el impacto de las prácticas de crianza en alimentación sobre la conducta alimentaria y si estas a su vez tienen efectos en el riesgo de diabetes en la etapa adulta.

INTRODUCTION: Parenting practices in feeding and eating behavior have been widely studied in children, however, it is necessary to provide information on their impact on adults. The evidence suggests that parenting practices in feeding can have an impact on emotional, uncontrolled, restrictive and disordered eating behavior, which are associated with an increase in BMI, overweight and obesity, which are found as the main factor of risk for the development of T2D. OBJECTIVE: To analyze, through a systematic review, the existing evidence about the relationship between parenting feeding practices, eating behavior and the risk of diabetes in adults. METHODOLOGY: A search of literature published from 2013 to 2023 was carried out in the Pubmed, Scopus, EBSCOhost, Clarivate Science Citation Index Expanded and SpringerLink databases. 459 studies were identified, after applying the exclusion criteria, 15 studies in total were reviewed. RESULTS: The subscales of the most frequently used parenting practices in feeding were: concern, control, pressure to eat and restriction. An association was found between parenting feeding practices, eating behavior and increased BMI. CONCLUSION: Research showing the impact of parenting feeding practices on eating behavior and whether these in turn have effects on the risk of diabetes in adulthood are considered insufficient.

Divorcio parental, apego a los padres y satisfacción con la vida en adolescentes chilenos: un estudio comparativo

Si bien existen una serie de avances en la comprensión de los efectos del divorcio sobre el bienestar y desarrollo de los adolescentes, un aspecto que requiere mayor exploración es si existen variaciones en la satisfacción con la vida y la calidad de los vínculos de apego entre adolescentes que han experimentado o no el divorcio de sus padres. El presente estudio tuvo por objetivo evaluar diferencias en la satisfacción con la vida y en la calidad del apego a la madre y al padre entre adolescentes provenientes de familias intactas y quienes han experimentado el divorcio de sus padres. Mediante un estudio de corte transversal, se evaluó una muestra de 421 adolescentes chilenos entre 12 y 17 años, siendo un 54,6% hijos de padres casados y un 45,4% hijos de padres divorciados. Los análisis de diferencias de medias mediante pruebas t permitieron identificar que la satisfacción con la vida es mayor en los hijos de familias intactas. Asimismo, se detectaron diferencias en la calidad del apego hacia el padre, pero no hacia la madre. En específico, los hijos de padres divorciados reportaron menor calidad de la comunicación, menor confianza mutua y mayor alienación con sus padres que los hijos de familias intactas. Estos resultados, discutidos desde una perspectiva clínica, avanzan en la comprensión de los efectos del divorcio en adolescentes chilenos.

While there have been several advances in understanding the effects of divorce on the well-being and development of adolescents, one aspect that requires further exploration is whether there are variations in life satisfaction and the quality of attachment relationships among adolescents who have experienced their parents' divorce and those who have not. The present study aimed to assess differences in life satisfaction and the quality of attachment to both mothers and fathers among adolescents from intact families and those who have experienced their parents' divorce. Through a cross-sectional study, a sample of 421 Chilean adolescents aged 12 to 17 was evaluated, with 54.6% being children of married parents and 45.4% being children of divorced parents. Mean difference analyses using t-tests revealed that life satisfaction is higher among children from intact families. Additionally, differences in the quality of attachment to the father, but not to the mother, were detected. Specifically, children of divorced parents reported lower quality of communication, less mutual trust, and greater alienation from their parents than children from intact families. These results, discussed from a clinical perspective, contribute to the understanding of the effects of divorce on Chilean adolescents.

Parental presence during invasive pediatric procedures: what does it depend on? / A presença dos pais durante procedimentos pediátricos invasivos: depende de quê? / Presencia de los padres durante procedimientos pediátricos invasivos: ¿De qué depende?

Abstract Objective: family-centered care during invasive procedures has been endorsed by many professional health care organizations. The aim of this study was to evaluate the health professionals' attitudes towards parental presence during their child's invasive procedure. Method: pediatric healthcare providers (divided in professional categories and range of ages) from one of the Spain's largest hospitals were asked to complete a questionnaire and write free-text comments. Results: 227 responded the survey. Most (72%) participants, in their answers, reported that parents are sometimes present during interventions, although there were differences between professional categories in this respect. The procedures in which the parents were present were those considered "less invasive" (96% of cases), while only 4% were present in those considered "more invasive". The older the professional, the less necessary parental presence was considered. Conclusion: the attitudes towards parental presence during pediatric invasive procedure are influenced by the professional category, the age of the healthcare provider and the invasiveness of the procedure.

Resumo Objetivo: o atendimento centrado na família durante procedimentos invasivos tem sido endossado por muitas organizações profissionais de saúde. O objetivo deste estudo foi avaliar as atitudes dos profissionais de saúde em relação à presença dos pais durante o procedimento invasivo realizado em seus filhos. Método: os prestadores de serviços de saúde pediátricos (divididos em categorias profissionais e faixa etária) de um dos maiores hospitais da Espanha foram solicitados a preencher um questionário e escrever comentários de texto livre. Resultados: a pesquisa foi respondida por 227 pessoas. A maioria (72%) dos participantes, em suas respostas, relatou que os pais algumas vezes estão presentes durante as intervenções, embora houvesse diferenças entre as categorias profissionais a esse respeito. Os procedimentos em que os pais estavam presentes eram aqueles considerados "menos invasivos" (96% dos casos), enquanto apenas 4% estavam presentes naqueles considerados "mais invasivos". Quanto mais velho o profissional, a presença dos pais foi considerada menos necessária. Conclusão: as atitudes em relação à presença dos pais durante o procedimento pediátrico invasivo são influenciadas pela categoria profissional, a idade do prestador de serviço de saúde e a invasividade do procedimento.

Resumen Objetivo: la atención centrada en la familia durante procedimientos invasivos ha sido respaldada por muchas organizaciones profesionales dedicadas al cuidado de la salud. El objetivo de este estudio fue evaluar las actitudes de los profesionales de la salud con respecto a la presencia de los padres durante los procedimientos invasivos realizados en niños. Método: a los prestadores de atención médica en Pediatría (divididos en categorías profesionales y rangos de edad) de uno de los hospitales más importantes de España se les solicitó que respondieran un cuestionario y redactaran comentarios de texto libre. Resultados: un total de 227 profesionales respondieron la encuesta. En sus respuestas, la mayoría (72%) de los participantes informó que, en ocasiones, los padres están presentes durante las intervenciones, aunque se registraron diferencias entre las distintas categorías profesionales al respecto. Los procedimientos en los que los padres estuvieron presentes se consideraron como "menos invasivos" (96% de los casos), mientras que solamente el 4% estuvo presente en los considerados "más invasivos". A mayor edad de los profesionales, menos necesaria se consideró la presencia de los padres. Conclusión: las actitudes con respecto a la presencia de los padres durante procedimientos pediátricos invasivos se vieron influenciadas por la categoría profesional, la edad del prestador de salud y la invasividad de los procedimientos.

Intervenciones para el desarrollo infantil basadas en el Modelo Touchpoints: revisión de alcance / Interventions for child development based on the Touchpoints Model: scoping review / Intervenções para o desenvolvimento infantil baseadas no Modelo Touchpoints: revisão de escopo

Objetivo: mapear las características de las intervenciones para promover el desarrollo infantil que utilizaron el Modelo Touchpoints. Método: se trata de una revisión de alcance, guiada por las recomendaciones del JBI Reviewer's Manual, realizada en nueve bases de datos, en la literatura gris y en la lista de referencias de los estudios seleccionados. La pregunta de investigación fue "¿cuáles son las características de las intervenciones con padres/cuidadores y niños para promover el desarrollo infantil, desde el embarazo hasta los seis años, con base en el Modelo Touchpoints?". Se utilizó el Rayyan para la selección de los estudios y un guión para la extracción de datos. El análisis se realizó de forma descriptiva. Resultados: se incluyeron doce publicaciones. Las intervenciones fueron heterogéneas; concentradas en el período comprendido entre el embarazo y los tres años de edad; priorizó la difusión del contenido de los Touchpoints según la edad y los aspectos de parentalidad; la mayoría fueron realizadas por enfermeros, en la Atención Primaria de Salud y durante las visitas domiciliarias. Las intervenciones se relacionaron con el desarrollo general, una mayor comprensión del desarrollo y una mayor interacción con el niño. Conclusión: los estudios han demostrado potencial para obtener resultados favorables para el desarrollo infantil y la parentalidad. La variabilidad de las intervenciones dificultó el mapeo de las características más efectivas."

Objective: to map the characteristics of interventions to promote child development that used the Touchpoints Model. Method: this is a scoping review, guided by the recommendations of the JBI Reviewer's Manual, carried out in nine databases, in the gray literature and in the reference list of the selected studies. The research question was "what are the characteristics of interventions with parents/caregivers and children to promote child development, from pregnancy to six years of age, based on the Touchpoints Model?". Rayyan was used for the selection of studies and a standard form for data extraction. The analysis was carried out descriptively. Results: twelve publications were included in the review. Interventions were heterogeneous; concentrated in the period from pregnancy to three years of age; prioritized the dissemination of Touchpoints content according to age, and parenting aspects; most were performed by nurses, in Primary Health Care, and during home visits. Interventions were related to overall development, greater understanding of development and greater interaction with the child. Conclusion: studies have shown potential for favorable outcomes for child development and parenting. The variability of interventions made it difficult to map more effective characteristics.

Objetivo: mapear as características das intervenções para a promoção do desenvolvimento infantil que utilizaram o Modelo Touchpoints. Método: revisão de escopo, guiada pelas recomendações do JBI Reviewer's Manual realizada em nove bases de dados, na literatura cinzenta e na lista de referências dos estudos selecionados. A questão de pesquisa foi: quais são as características das intervenções com pais/cuidadores e crianças para promoção do desenvolvimento infantil, da gestação até os seis anos de idade, baseadas no Modelo Touchpoints? Foram utilizados o Rayyan, para a seleção dos estudos, e um roteiro, para a extração de dados. A análise foi realizada de forma descritiva. Resultados: foram incluídas doze publicações. As intervenções eram heterogêneas; concentradas no período da gestação até os três anos de idade; priorizaram a disseminação de conteúdo dos Touchpoints segundo idade e aspectos de parentalidade; a maioria foi realizada por enfermeiros na Atenção Primária à Saúde e na visita domiciliar. As intervenções foram relacionadas ao desenvolvimento global, à maior compreensão sobre o desenvolvimento e à maior interação com a criança. Conclusão: os estudos evidenciaram potencial para resultados favoráveis ao desenvolvimento infantil e à parentalidade. A variabilidade das intervenções dificultou mapear características mais efetivas.

Relación de las metas de logro parental con el apoyo a la autonomía y el control psicológico percibido por los adolescentes / Relationship of Parental achievement goals in support of autonomy and psychological control perceived by adolescents

Resumen El objetivo del estudio fue identificar las metas de logro y prácticas parentales de apoyo a la autonomía y control psicológico, para determinar la relación entre estas medidas, según el nivel de estudios, el sexo de los progenitores y de los adolescentes de Cuenca, Ecuador. Para ello, se realizó un estudio cuantitativo, relacional de corte transversal con una muestra constituida por 713 madres (Meda d = 43, DT = 7), 543 padres (Medad = 46, DT = 8) y 1085 adolescentes (Medad = 16.1, DT = 1.1). Se aplicó el cuestionario Parental de Metas Orientadas al Logro, adaptado al español del instrumento Parental Achievement Goals AGQ y Autonomy Support Scale. La subteoría de contenido de metas de la teoría de la autodeterminación ha sido la base teórica para explicar que las metas de logro parental orientan el apoyo a la autonomía y el control psicológico. Se emplearon las pruebas .-Student, ANOVA, chi-Cuadrado de independencia para tablas de contingencia y el coeficiente de correlación . de Pearson para establecer la relación lineal de las variables de estudio. Los resultados revelan que las metas de logro dominio de la tarea y éxito en la tarea son predominantes, mientras que la evitación del fracaso en la tarea es baja. Por otro lado, la práctica de apoyo a la autonomía se percibe alta y significativamente mayor al control psicológico. Finalmente, se confirma la relación de las medidas parentales con el nivel de estudios y el sexo de los progenitores y de los adolescentes.

Abstract The importance of parental practices as one the most direct influences on the development of minors and adolescents has generated an increased relevance in recent decades of the study of parental expectations on the psychological adjustment of children. In this sense, the Goal Content Subtheory of Self-Determination Theory has been the theoretical basis to explain that the purpose of human behavior responds to an extrinsic or intrinsic motivation. That is why, extrinsic motivation guides parents towards parental goals: the success of the task and the avoidance of task failure and they adopt more parental control strategies with their progeny, while intrinsic motivation guides the mastery goals of the task which would explain parental support behaviors. The objective of the study was to identify the achievement goals and parenting practices, support for autonomy-psychological control, and to determine the relationship between these parenting measures, according to the sex and educational level of the parents from Cuenca, Ecuador. For this, a quantitative, relational, cross-sectional study was carried out with 713 mothers (Medad = 43, DT = 7), 543 fathers (Medad = 46, DT = 8) and 1 085 adolescents (Medad = 16.1, DT= 1.1). The participants were selected from within 18 educational institutions through a probabilistic sample calculated with a 95 % confidence level, and a 3 % margin of error. For data collection, the Parental Achievement-Oriented Goals questionnaire was applied, adapted to Spanish from the Parental Achievement Goals AGQ instrument; and Autonomy Support Scale. In the data analysis, the T-Student test, ANOVA, Chi-Square, test of independence for contingency tables and the Pearson r correlation coefficient, were used for the linear relationship of the study variables. The results reveal that the achievement goals: mastery of the task and success in the task predominate and the avoidance of failure in the task is low, in terms of the sex of the parents, the parents were oriented towards the mastery of the task while mothers toward goals focused on homework success. Likewise, parents with a low level of education orient themselves to success in the result of the task and the avoidance of failure in the task, while parents with a higher level of education orient their goals of parental achievement towards the mastery of the homework. The perception of support for autonomy is high and significantly upper than the psychological control of the parents, it was found that the manifestation of support "being aware of accepting and acknowledging the child's feelings" is the most valued statement in the mother in relation to the dad. On the other hand, adolescents perceive greater psychological control from mothers than from fathers, in the demonstrations "threatening to punish the child" and "induce guilt". Regarding the level of studies of the parents, the results indicate that the higher the level of studies, the greater the support for autonomy and when is lower the level of studies, there is greater psychological control. This research has confirmed the relationship between the level of education of the parents, the sex the adolescent and parents with the goals of parental achievement, support and psychological control; this shows that these characteristics affect parental practices. It is necessary for future research to attention on the educational level of the parents, as this is one of the most consistent family variables that can favor appropriate parental goals and practices for the psychosocial adjustment of the children.

Conductas prosostenibilidad y percepciones del estudiantado adolescente sobre prácticas parentales y valores familiares / Pro-sustainability behaviors and perceptions of adolescent students about parenting practices and family values

Resumen La familia juega un papel fundamental tanto en la socialización como en la configuración de valores en menores y adolescentes. Esta investigación estudia las percepciones del estudiantado adolescente sobre prácticas parentales y valores familiares e identifica las conductas prosostenibilidad de dicho estudiantado en una triple perspectiva: reducir, reutilizar y reciclar (3R). La población diana es el estudiantado de bachillerato de la ciudad de Cuenca (Ecuador). El análisis de datos incluye: comparación de medias, coeficiente de correlación r de Pearson y regresión lineal simple. Los resultados señalan que las mujeres y los varones adolescentes del estudio perciben un elevado apoyo parental a su autonomía y que las madres conceden mayor importancia al valor de ayuda a los demás. Adicionalmente, un alto porcentaje de los sujetos realizan al menos una acción de las 3R. Se concluye que la muestra percibe a la familia como un agente impulsor de su desarrollo como sujetos autónomos, un factor prometedor para la integración de valores y el desarrollo de competencias para la sostenibilidad; sin embargo, reconoce que la escuela es donde se fragua su compromiso con un futuro sostenible con más intensidad.

Abstract The family plays a fundamental role both in socialization and in the configuration of values in minors and adolescents; including those related to environmental care. In keeping with this premise, Unicef (2018) announced that the sustainable development of the planet requires counting on families; it pointed them out as essential collaborators of governments for the quality of life of future generations. Considered a natural and elemental unit of all modern societies and an educational agent of the first order for the development and psychosocial adjustment of its members, the family is also a primary socialization agent (Fontana-Abad, Gil y Reyero, 2013). It plays a key role in the internalization of prosocial values, such as self-transcendence (care and universalism) and conservation (conformity, safety, and tradition); values ​​closely related to pro-environmental behaviors (Barrera-Hernández, Sotelo, Echeverría y Tapia, 2020). Following this line, this research studies the perceptions that adolescents have about family values, parental support for autonomy, and environmental care practices, according to the 3R rule, in a triple perspective: reduce, reuse, and recycle. It uses a quantitative, descriptive, and relational methodology. The target population was high school adolescents from the city of Cuenca (Ecuador). The sample was made up of 122 adolescents which attended three schools: one private educational unit (36.1 %) and two public (27.9 % and 36.1 %). Of the respondents, 38.8 % were female and 61.2 % were male, and they all were between 15 and 19 years old (M = 16.4; SD = 1.2); 27 % were in their first year of high school (15-17 years), 44.3 % were in their second year of high school (16-18 years) and the 28.7 % were in their third year (17-19 years). Data analysis includes comparison of means, Pearson's r correlation coefficient and simple linear regression. The results indicate that a high percentage of the adolescents in the study carry out at least one of the following environmental care actions (these are organized from highest to lowest frequency): saving water and electricity consumption, using garbage cans, reusing bottles, separating garbage, and participating in actions in favor of environment. Likewise, it is detected that they perceive family as a driving agent for their development as autonomous subjects, and a promising factor for the process of integration of values ​​and the development of competencies for caring for the environment; however, they still recognize the school as the place where their commitment to a sustainable future is most intensely forged. Additionally, the adolescents in the study perceive a high parental support for their autonomy and, likewise, that mothers attach greater importance to the value of helping others, a central axis in the ethics of care that characterizes the paradigm of sustainability. This research corroborated, once again, the ONU's (2015) position when it indicates that the family is a main agent of change for sustainability, with a decisive influence on the preservation of life and ecosystems. It endorses the relevance of promoting educational strategies that promote family-school relations in order to enhance the role of the former in the acquisition of pro-environmental values ​​and, ultimately, its collaboration in the quality of formal education aimed at sustainability. With these results, a path is opened to improve the knowledge on the parental role in relation to the promotion of behaviors of environmental care (pro-sustainability), within the framework of adolescents' and young people's formal education.

Parental Skills and Academic Competences in School Children: The Mediator Role of Executive Functions

Abstract The role of parenting in the development of children's learning constitutes, at present, part of the discussion in the psychoeducational field. Although parental competences (PC) and executive functions (EF) have been investigated by psychology and neuropsychology, their relationship with academic competences remains to be fully studied. The aim of this investigation was to analyze the effect of PC perceived by parents on behavioral EF and performance-based measures of reading and mathematical competences in children. We worked with 131 school children of both sexes, between 9 and 11 years old, and their respective parents. Multivariate Analysis of Variance (MANOVA) and structural equation model (SEM) were used. The results indicate that parental skills from the parents' perspective have a significant effect on EF, reading, and mathematical skills. However, the best fit model indicates that EFs mediate the relationship between parenting skills and reading and math skills.

Resumen El rol parental en el desarrollo del aprendizaje de los niños constituye, en el presente, una parte de la discusión en el campo psicoeducativo. Aunque las competencias parentales (PC) y las funciones ejecutivas (EF) han sido investigadas por la psicología y la neuropsicología, su relación con las competencias académicas permanece abierta para ser estudiada a profundidad. El objetivo de esta investigación es analizar el efecto de los PC percibidos por los padres en EF comportamentales y las mediciones basadas en el desempeño de las competencias lectoras y matemáticas en niños. Trabajamos con 131 niños y niñas de colegio, entre 9 y 11 años, y sus padres. Se hizo uso del Análisis Multivarial de Variación (MANOVA) y el modelo de ecuación estructural (SEM). Los resultados indican que las habilidades parentales desde la perspectiva de los padres poseen un efecto significativo en las EF, la lectura y las habilidades matemáticas. De forma que los modelos mejor ajustados indican que las EFs median la relación entre las habilidades parentales, lectoras y matemáticas.

Development of an integrated telerehabilitation model in children with cerebral visual impairment in South India during the COVID-19 pandemic – A pilot study

Purpose: Coronavirus disease 2019 (COVID?19) pandemic affected the in?person rehabilitation/habilitation services in families with children with cerebral visual impairment (CVI) in India. This study aimed to develop a structured and family?centered telerehabilitation model alongside conventional in?person intervention in children with CVI to observe its feasibility in the Indian population. Methods: This pilot study included 22 participants with a median age of 2.5 years (range: 1–6) who underwent a detailed comprehensive eye examination followed by functional vision assessment. The visual function classification system (VFCS) was administered to the children and the structured clinical question inventory (SCQI) to the parents. Every participant underwent 3 months of telerehabilitation including planning, training, and monitoring by experts. At 1 month, the parental care and ability (PCA) rubric was administered to the parents. After 3 months, in an in?person follow?up, all the measures were reassessed for 15 children. Results: After 3 months of Tele?rehabilitation there were significant improvements noted in PCA rubric scores (P<0.05). Also, statistically significant improvements were noted in functional vision measured using SCQI and VFCS scores (P<0.05) compared to baseline. Conclusion: The outcomes of the study provide the first steps towards understanding the use of a novel tele?rehabilitation model in childhood CVI along?side conventional face?to?face intervention. The added role of parental involvement in such a model is highly essential.

Comentario del caso clínico "Un barril sin fondo" / Clinical case comment "A bottomless barrel" / Commentaire de cas clinique "Un tonneau sans fond" / Comentário de caso clínico "Um barril sem fundo"

Niño de 10 años por el que consultan a causa de mentiras, "actitudes manipuladoras" y trastornos alimenticios, manifestaciones vivenciadas como "inmanejables" por su entorno familiar, a su vez caracterizado por confusión de roles, escasa posibilidad de regulación de lo pulsional y modos de vinculación violentos e ineficaces en cuanto a la puesta de límites. Concebido desde la fantasmática materna para empoderarla frente a su propia madre, él mismo, identificado con lo demoníaco, manifiesta desear que "le cambien las cosas que hace mal". Fue un tratamiento llevado a cabo en el contexto del primer año de pandemia (ASPO) en el que la analista, ofertó un espacio de virtualidad que posibilitó un vínculo transferencial en el cual el niño armó juego, y le fue posible ir abandonando las identificaciones que lo enlazaban a lo demoníaco, para poder comenzar a vivir con deseos propios AU

A 10-year old boy is being consultedfor his lying, "manipulative behaviors," and eating disorders, which are experienced as "unmanageable" by his family environment. His family is characterized by role confusion, a lack of ability to regulate impulses, and violent and ineffective modes ofsetting limits.The boy was conceived from his mother's fantasy to empower her against her own mother. He himself, identified with the demonic, expresses a desire to "change the things he does wrong."The treatment was carried out during the first year of the pandemic (ASPO), in which the analyst offered a virtual space that enabled a transference relationship in which the boy played games and was able to gradually abandon the identifications that linked him to the demonic, in order to begin to live with hisown desires AU

Je reÒ«ois en consultation un enfant de dix ans à cause de ses mensonges, ses "attitudes manipulatrices" et ses troubles alimentaires, des manifestations vécues comme "ingérables" par son entourage, qui se caractérise à la fois par une confusion des rôles, une faible possibilité de régulation de la force pulsionnelle, et des modes violents pour établir des liens et inefficaces pour mettre des límites.ConÒ«u dans la perspective fanstasmatique maternelle pour devenir puissante face à sa propre mère, l'enfant, identifié à ce qui est démoniaque, exprime lui-même son désir qu'"on lui changeles choses qu'il fait mal".Ce traitement a été réalisé dans le contexte de la première année de la pandémie (ASPOI/Isolement social préventif obligatoire), où l'analyste a proposé un espace de virtualité rendant possible un lien tranférentiel, dans lequel l'enfant s'est livré au jeu et a pu abandonner peu à peu les identifications qui le reliaient aux idées démoniaques, pour pouvoir commencer à vivre avec ses désirs à lui AU

Criança de 10 años que é levada à consulta devido a mentiras, "atitudes manipuladoras" e distúrbios alimentares, manifestações vivenciadas como "incontroláveis" por seu ambiente familiar, por sua vez caracterizado por confusão de papéis, escassa possibilidade de regulação do pulsional e modos de vinculação violentos e ineficazes quanto à imposição de límites. Concebido a partir da fantasmática materna para empoderá-la diante de sua própria mãe, ele próprio, identificado com o demoníaco, manifesta desejar que "as coisas que faz mal sejam mudadas". Foi um tratamento realizado no contexto do primeiro ano de pandemia (ASPO) no qual a analista ofereceu um espaço virtual que possibilitou um vínculo transferencial no qual a criança montou um jogo e lhe foi possível ir abandonando as identificações que o ligavam ao demoníaco, para poder começar a viver com desejos próprios AU

Estilos parentais como fator de proteção ou risco ao consumo de álcool

Esta pesquisa teve como objetivo analisar os estilos parentais (autoritativo, autoritário, negligente e indulgente) como fator de proteção ou risco ao consumo de álcool em estudantes de uma universidade pública localizada no estado XX, Brasil. Participaram do estudo 392 universitários com idade entre 18 e 58 anos (M = 23, 23; DP = 5,78), a maioria do sexo feminino (70,7%), solteiros (58,4%), que responderam ao Alcohol Use Disorders Identification Test (AUDIT), a Escala de Responsividade e Exigência e a questões sociodemográficas. Foram realizadas análises descritivas e análise multivariada de variância (MANOVA). Os resultados da MANOVA indicaram, de modo geral, os estilos de socialização parental autoritativo e indulgente como fatores de proteção ao consumo de álcool; enquanto a parentalidade autoritária e negligente constituíram risco ao uso da substância. Os dados da contribuição de cada estilo parental no consumo de bebidas etílicas favorece o desenvolvimento de estratégias de prevenção, além de permitir identificar o impacto das práticas parentais na educação dos filhos, promovendo comportamentos mais saudáveis e adaptativos.

Esta investigación tuvo como objetivo analizar los estilos parentales (autoritativo, autoritario, negligente e indulgente) como un factor de protección o de riesgo para el consumo de alcohol en estudiantes de una universidad pública ubicada en el estado XX, Brasil. Participaron 392 estudiantes universitarios de 18 a 58 años (M = 23, 23; SD = 5.78), en su mayoría mujeres (70.7%), solteros (58.4%), los cuales respondieron el Alcohol Use Disorders Identification Test (AUDIT), la Escala de Responsividad y Exigencia, y las cuestiones sociodemográficas. Se realizaron análisis descriptivos y análisis multivariante de la varianza (MANOVA). Los resultados de MANOVA indicaron, en general, los estilos de socialización parental autoritativos e indulgentes como factores de protección para el consumo de alcohol; mientras que la parentalidad autoritaria y negligente constituyeron un riesgo para el uso de sustancias. Los datos sobre la contribución de cada estilo parental al consumo de bebidas etílicas favorecen el desarrollo de estrategias de prevención, además de permitir la identificación del impacto de las prácticas parentales en la educación de los hijos, promoviendo comportamientos más saludables y más adaptativos.

This research aimed to analyze parenting styles (authoritative, authoritarian, indulgent and neglectful) as a protective factor or risk alcohol consumption in students of a public university in the state XX, Brazil. The study included 392 university aged 18 to 58 years (M = 23, 23; SD = 5.78), most females (70.7%), single (58.4%), who answered the Alcohol Use Disorders Identification Test (AUDIT), the Responsiveness and Requirement Scale, and sociodemographic questions. Descriptive analysis and multivariate analysis of variance (MANOVA) were performed. MANOVA results generally indicated authoritative and indulgent parental socialization styles as protective factors for alcohol consumption; while the authoritarian and neglectful parenting constituted risk of substance use. The data of the contribution of each parental style in the consumption of beverages ethylic favoring the development of prevention strategies, and allows identify of the impact of parenting practices in the education of children by promoting healthier behaviors and adaptive.

mHealth Apps Delivering Early Intervention to Support Parents of Children With Autism Spectrum Disorder: A Scoping Review

Context: Early intervention, and parent-mediated intervention are effective in achieving early childhood development goals for children with autism spectrum disorder. There is a surge in mHealth technologies delivering such interventions. This review aims to explore the concept, context and methodology of implementation of such mHealth apps. Evidence Acquisition: A search was conducted using NICE (National Institute of Clinical Excellence) healthcare database, including keyword ‘early intervention,’ ‘mHealth,’ ‘parent support,’ ‘apps,’ and ‘autism.’ The quantitative, qualitative, mixed-methods, case reports, grey literature, systematic reviews, clinical trials, and feasibility studies of children between 2 to 6 years with ASD were included from inception of database to December, 2021. Web/ Internet-based or computer-dependent programs were excluded. The initial search yielded 3786 studies; 17 were finally included based on the inclusion and exclusion criteria. Result: Studies on a total of mhealth apps were reviewed. Nine apps, apart from TOBY (Therapy outcome by you), lacked a holistic approach and instead targeted a specific difficulty in autism. The provision of support to parents using apps was equally beneficial as in-person support, reduced costs, and improved outcomes in children. Conclusion: The review revealed limited evidence-based mHealth apps available currently in a community setting. This also underscores an opportunity for clinicians to re-direct parents towards evidence-based information and interventions.

Parental perception of facilitators and barriers to activity and participation in an integrated tele-rehabilitation model for children with cerebral visual impairment in South India – A virtual focus group discussion study

Purpose: This study utilized virtual focus group discussions to document the facilitators and barriers reported by the parents as part of the tele?rehabilitation service delivery model in India. Methods: This study included 17 participants who were enrolled into the Tele?rehabilitation program (16 mothers, 1 father) and the virtual focus group discussion (V?FGD) were conducted through a WhatsApp video call. Three V?FGDs were conducted involving two moderators and a note taker. The V?FGD, focused at extracting the perceptions of parents pertaining to facilitators, barriers and coping mechanisms to barriers related to the tele?rehabilitation model. Results: Thematic analysis resulted in four themes for barriers that included: family and support, time, parent and care taker, child and place of living related; facilitators reported included: continuous monitoring, accessibility to professional services, provision of resource materials and parental empowerment. Themes “family and support” and “child” were most reported by parents with children >3 years and ?3 years respectively. Finally, the barriers and facilitators were aligned with the chapters and codes of International Classification of Functioning, children and youth version (ICF?CY) environment and personal factors. Conclusion: This V?FGD highlights the importance of parental?centred and structured Tele?rehabilitation among children with CVI in India. The outcome of this study opens avenues for creating effective intervention.

Parental body mass index and maternal gestational weight gain associations with offspring body composition in young women from the Nutritionists' Health Study

ABSTRACT Objective: Intrauterine environment can induce fetal metabolic programming that predisposes to adiposity-related chronic diseases in its lifespan. We examined the associations of parental nutritional status and gestational weight gain with offspring body composition in early adulthood. Materials and methods: This is cross-sectional analysis of female participants of the NutriHS who were submitted to questionnaires, clinical examinations and body composition assessed by DXA. Association of pre-conception parental BMI and maternal gestational weight gain (exposures) with body composition measurements (outcomes) were analyzed using multiple linear models adjusted for Directed Acyclic Graphs-based covariables (maternal and paternal educational level, maternal age, and tobacco, alcohol and/or drugs use). The sample included 124 women (median 28 (24-31) years) with a mean BMI of 25.4 ± 4.7 kg/m2. Results: No association between previous paternal BMI and offspring's body composition was detected. In the fully adjusted linear regression model, maternal BMI was associated with offspring's total lean mass (β = 0.66, p = 0.001), appendicular skeletal muscle mass index (ASMI) (β = 0.11, p = 0.003) and fat mass index (FMI) (β = 0.03, p = 0.039). Gestational weight gain was associated with increased offspring's BMI (OR 1.12 [95% CI 1.02-1.20], p = 0.01). The linear regression model adjusted for maternal age and maternal and paternal education levels showed associations of gestational weight gain with offspring's ASMI (β = 0.42, p = 0.046), FMI (β = 0.22, p = 0.005) and android-to-gynoid fat ratio (β = 0.09, p = 0.035). Conclusion: Our findings suggest that preconception maternal BMI could influence lean mass and general adiposity of young adult female offspring and that gestational weight gain could be useful for predicting centrally distributed adiposity.

A família faz parte da equipe: ampliando o diálogo sobre a presença dos pais no esporte / The family is part of the team: expanding the dialogue about the presence of parents in sports / La familia forma parte del equipo: ampliar el diálogo so-bre la presencia de los padres en el deporte

A presença dos pais em ambientes esportivos é apontada como de grande influência na participação esportiva dos filhos. Contudo, mais do que intervir na trajetória dos filhos, os pais precisam lidar com demandas específicas do esporte que, ao mesmo tempo, influenciam diretamente a maneira como genitores oferecem suporte. Embora a agenda investigativa internacional ofereça contribuições sobre o envolvimento parental, as evidências ainda são pouco sistematizadas no cenário de investigação esportiva nacional. Diante do exposto, o objetivo foi apresentar o papel da família e dos pais como parte de um sistema esportivo integrado baseados na mútua influência dos indivíduos.

The presence of parents in sporting environments is pointed out as having a significant influence on the sport participation of their children. However, more than influencing the trajectory of their children, parents need to deal with specific demands of sports that, at the same time, directly affect how they offer support. Although the international research agenda contributes to parental development, the evidence is still little systematized in the national sports research scenario. Given the above, the aim was to present the role of family and parents as part of an integrated sport system based on the mutual influence of individuals.

Se señala que la presencia de los padres en entornos deportivos tiene una gran influencia en la participación deportiva de sus hijos. Sin embargo, más que influir en la trayectoria de sus hijos, los padres necesitan lidiar con demandas específicas del deporte que, al mismo tiempo, influyen directamente en la forma en que ofrecen apoyo. Aunque la agenda investigativa internacional ofrezca contribuciones sobre el desarrollo parental, las evidencias aún están poco sistematizadas en el escenario de la investigación deportiva nacional. Teniendo en cuenta lo anterior, el objetivo fue presentar el papel de la familia y los padres como parte de un sistema deportivo integrado basado en la influencia mutua de los individuos.

A Study on Sleep-Pattern and Sleep Hygiene Behaviors Among School Going Adolescents in Semi Urban Coimbatore

Background: Sleep plays an important role in our life. Adolescents undergo several changes with puberty and have a preference for later bedtimes due to internet usage. Evidence shows that many adolescents are not ob-taining the required amounts of sleep (8-10 hours) due to inadequate sleep practices. The objectives of this research were tostudy sleep-pattern among adolescents in Semi urban Coimbatore and also to determine the sleep hygiene practices among the adolescents Methodology: This study is a school based cross-sectional study. A total of 300 adolescents from class VIII to XIIth were selected using simple random sampling. Data was collected from February to May 2018. A struc-tured questionnaire for sleep pattern and Sleep Hygiene Index was used. Results: The adolescents’ mean sleep duration was 7.49 ± 1.12 hours on weekdays and 9.32 ± 1.55 hours on weekends. Mean Sleep Pattern Index (SPI) score was 22.48±6.9 and Mean Sleep Hygiene Index (SHI) score was 17.51±6.3 in our study. Conclusions: Majority of the adolescents had moderate scores of sleep pattern and sleep hygiene practices. Interventions directed towards promoting good sleep hygiene strategies are required to improve the physical and emotional health of adolescents.

A Study on Assessment of Impact of Home Confinement and Associated Risk Factors During COVID-19 Lockdown Among Disabled Children in Chennai District, Tamil Nadu- A Cross-Sectional Study

Background: Sleep plays an important role in our life. Adolescents undergo several changes with puberty and have a preference for later bedtimes due to internet usage. Evidence shows that many adolescents are not ob-taining the required amounts of sleep (8-10 hours) due to inadequate sleep practices. The objectives of this research were tostudy sleep-pattern among adolescents in Semi urban Coimbatore and also to determine the sleep hygiene practices among the adolescents Methodology: This study is a school based cross-sectional study. A total of 300 adolescents from class VIII to XIIth were selected using simple random sampling. Data was collected from February to May 2018. A struc-tured questionnaire for sleep pattern and Sleep Hygiene Index was used. Results: The adolescents’ mean sleep duration was 7.49 ± 1.12 hours on weekdays and 9.32 ± 1.55 hours on weekends. Mean Sleep Pattern Index (SPI) score was 22.48±6.9 and Mean Sleep Hygiene Index (SHI) score was 17.51±6.3 in our study. Conclusions: Majority of the adolescents had moderate scores of sleep pattern and sleep hygiene practices. Interventions directed towards promoting good sleep hygiene strategies are required to improve the physical and emotional health of adolescents.

Falsa acusação de abuso sexual na alienação parental: luto ou melancolia? / False accusation of sexual abuse in parental alienation: mourning or melancholia? / Falsa acusación de abuso sexual en la alienación parental: ¿luto o melancolía?

Este artigo apresenta como principal objeto de estudo a falsa acusação de abuso sexual no contexto da alienação parental para, diante dela, estabelecer a seguinte problemática: será possível propor uma eventual correlação entre si e os processos psíquicos do luto e da melancolia? Neste sentido, a partir do recurso teórico ao referencial psicanalítico de Freud e de Laplanche, debate as circunstâncias que norteiam o discurso levado ao Judiciário pelo genitor alienante valorizando em tal movimento não apenas a realidade material da prova, tão importante no campo jurídico, mas também a realidade psíquica ditada pelo inconsciente, a qual se pauta em uma noção de verdade que, na sua vinculação direta com a particularidade de cada sujeito e com o dinamismo das relações específicas que ele estabelece consigo mesmo e com os outros, coloca em xeque as certezas positivistas da norma. Em termos conclusivos, destaca o quanto, a despeito da atual literatura existente sobre alienação parental no Brasil a correlacionar, em regra, a um luto mal elaborado por parte do alienante, é possível e mesmo desejável cogitar também a presença da melancolia - ou, mais especificamente, de traços melancólicos intermediários - na formação e desenvolvimento desse fenômeno.(AU)

This article presents as the main object of study the false accusation of sexual abuse in the context of parental alienation, to establish the following problem: would it be possible to propose a probable correlation between parental alienation and the psychic processes of mourning and melancholia? In this sense, based on the psychoanalytic theoretical framework of Freud and Laplanche, the article discusses the circumstances that guide the discourse taken to the judiciary branch by the alienating parent, valuing in such action not only the material reality of the evidence, which is very important in the legal field, but also the psychic reality dictated by the unconscious, which is guided by a notion of truth that, in its direct connection with the particularity of each subject and with the dynamism of the specific relations that they establish with themselves and others, threatens the positivist certainties of the norm. In conclusive terms, it highlights how, despite the current existing literature on parental alienation in Brazil generally correlates it to a poorly elaborated mourning by the alienating person, it is possible and even desirable to also consider the presence of melancholia-or, more specifically, of intermediate melancholic traits-in the formation and development of this phenomenon.(AU)

Este artículo presenta como principal objeto de estudio la falsa acusación de abuso sexual en el contexto de alienación parental, con el fin de responder al siguiente planteamiento: ¿Es posible proponer una posible correlación entre la alienación parental y los procesos psíquicos de duelo y melancolía? Para ello, desde el marco psicoanalítico de Freud y de Laplanche, se discuten las circunstancias del discurso llevado al Poder Judicial por el padre alienante, que valora en tal movimiento no solo la realidad material de la prueba, tan importante en el campo jurídico, sino también la realidad psíquica dictada por el inconsciente, el cual se guía por una noción de verdad que, en su conexión directa con la particularidad de cada sujeto y con el dinamismo de las relaciones específicas que establece consigo mismo y con otros, pone en jaque las certezas positivistas de la norma. En la conclusión, destaca cómo, a pesar de la literatura actual existente sobre la alienación parental en Brasil, en general, la correlaciona con un duelo mal diseñado por parte de la persona alienante, es posible e incluso deseable considerar la presencia de la melancolía -más específicamente, de rasgos melancólicos intermediarios- en la formación y desarrollo de este fenómeno.(AU)

Expectativas de mães e cuidadoras sobre participação em um programa de prevenção à violência / Expectations of mothers/caregivers regarding the participation in a violence prevention program / Expectativas de madres/cuidadoras sobre la participación en un programa de prevención de la violencia

O presente estudo qualitativo objetivou compreender as expectativas de mães e cuidadoras sobre a sua participação no Programa ACT para Educar Crianças em Ambientes Seguros na versão remota, no período da pandemia de covid-19. Também visou identificar a percepção das participantes sobre educar uma criança em um ambiente seguro. Foram realizadas entrevistas semiestruturadas on-line com doze mães e cuidadoras, antes da participação no Programa ACT. Os resultados indicaram diferentes expectativas sobre a participação no Programa ACT, entre elas: adquirir novos conhecimentos, aprimorar as habilidades parentais, trocar experiências, receber auxílio no momento da pandemia de covid-19 e possibilitar para a criança um desenvolvimento saudável. Na percepção das mães e cuidadoras, a versão remota do Programa ACT apresenta aspectos positivos; entre eles, a participação de pais e cuidadores que não residem na cidade em que é oferecida a intervenção. No entanto, apontaram como fatores negativos a ausência do contato físico e as interrupções que podem acontecer a partir das falhas de internet. Para as mães e cuidadoras, educar a criança em um ambiente seguro estava relacionado a promover os direitos estabelecidos no Estatuto da Criança e do Adolescente (ECA), como educação, saúde, lazer, cuidado, afeto, assim como protegê-la de situações de violência. Considera-se que as expectativas das participantes estavam alinhadas aos objetivos do Programa ACT. Torna-se prioritário oferecer programas de prevenção à violência aos pais e cuidadores, em especial em momentos adversos como o da pandemia de covid-19, a fim de promover o desenvolvimento e a saúde das crianças, assim como prevenir situações de violação de direitos.(AU)

This qualitative study aims to understand the expectations of mothers and caregivers about participating in the ACT Raising Safe Kids Program in its remote version, during the COVID-19 pandemic period. It also aims to identify the participants' perception of raising a child in a safe environment. Semi-structured on-line interviews were conducted with 12 mothers/caregivers, prior to participation in the ACT Program. The results indicated different expectations regarding the participation in the ACT Program, for example: acquiring new knowledge, improving parenting skills, exchanging experiences, receiving support during the COVID-19 pandemic, and enabling the child to have a healthy development. In the perception of mothers and caregivers, the remote version of the ACT Program has positive aspects, such as the participation of parents and caregivers who do not live in the city where the intervention is offered. However, they pointed out as negative factors absence of physical contact and interruptions due to internet failures. For the mothers/caregivers, educating children in a safe environment was related to promoting the rights established by the Brazilian Child and Adolescent Statute, namely education, health, leisure, care, affection, as well as protecting them from situations of violence. The expectations of the participants were aligned with the objectives of the ACT Program. Offering violence prevention programs to parents and caregivers is a priority, especially in adverse moments such as the COVID-19 pandemic, in order to promote the development and health of children, as well as prevent situations of violation of rights.(AU)

Este estudio cualitativo pretendió comprender las expectativas de madres y cuidadoras sobre la participación en el Programa de ACT para Educar a Niños en Ambientes Seguros en la versión remota, en el periodo de la pandemia de la COVID-19. También se propuso identificar la percepción de las participantes sobre educar a un niño en un ambiente seguro. Se llevaron a cabo entrevistas semiestructuradas en línea con 12 madres/cuidadoras, antes de la participación en el Programa ACT. Los resultados señalaron diferentes expectativas con la participación del Programa de ACT, entre ellas: adquirir nuevos conocimientos, perfeccionar las habilidades parentales, intercambiar experiencias, recibir auxilio en el momento de la pandemia de la COVID-19 y posibilitar al niño un desarrollo saludable. En la percepción de las madres y cuidadoras, la versión remota del Programa de ACT presenta aspectos positivos, como la participación de padres y cuidadores que no residen en la ciudad donde es ofrecida la intervención. Sin embargo, señalaron como factores negativos la ausencia del contacto físico y las interrupciones, que pueden ocurrir por fallas en Internet. Para las madres/cuidadoras, educar al niño en un ambiente seguro estaba relacionado a promover los derechos establecidos en el Estatuto del Niño y del Adolescente de Brasil, como educación, salud, ocio, cuidado, afecto, así como protegerlo de situaciones de violencia. Se considera que las expectativas de las participantes estaban alineadas con los objetivos del Programa de ACT. Es prioritario ofrecer programas de prevención a la violencia a los padres y cuidadores, en especial en momentos adversos como el de la pandemia de la COVID-19, con el fin de promover el desarrollo y la salud de los niños, así como prevenir situaciones de vulneración de derechos.(AU)