ABSTRACT
Resumen Introducción: El vitiligo es incurable, lentamente progresivo, su prevalencia varía de 0.4 a 2.0 %. La calidad de vida relacionada con la salud (CVRS) se refiere al bienestar autopercibido asociado a la presencia de una enfermedad y su tratamiento. Métodos: Estudio transversal en un centro dermatológico. Se incluyeron adultos con vitiligo no segmentario (VNS), en tanto que se excluyeron pacientes con otros trastornos pigmentarios y otros tipos de vitiligo. Se aplicó el cuestionario VitiQoL (0 = sin afectación, 90 = máxima afectación), el Vitiligo Extent Score (VES) y el Vitiligo Area Scoring Index (VASI). Resultados: Participaron 492 pacientes, 63 % mujeres. Se obtuvieron 32.6 puntos de promedio en el VitiQoL (IC 95 % = 30.6-34.5). La autopercepción de gravedad y la CVRS se correlacionaron (r = 0.568, p < 0.001). La edad, el sexo femenino, la menor educación y la mayor gravedad autopercibida se asociaron a peor CVRS. La proporción de personas que reportaron una adicción fue similar en los grupos con peor y mejor CVRS (28 % versus 32 %, p = 0.23). Conclusión: La peor CVRS se explica por la autopercepción de gravedad, preocupación por la progresión de la enfermedad, aspecto de la piel y acciones necesarias para evitar la exposición al sol durante la recreación.
Abstract Introduction: Vitiligo is an incurable, slowly progressive skin condition, the prevalence of which ranges from 0.4 to 2.0%. Health-related quality of life (HRQoL) refers to self-perceived well-being associated with the presence of a disease and its treatment. Methods: Cross-sectional study at a dermatological center. Adults with non-segmental vitiligo (NSV) were included, while patients with other pigmentary disorders and other types of vitiligo were excluded. The VitiQoL questionnaire (0 = no skin involvement, 90 = maximum skin involvement), the Vitiligo Extent Score (VES) and the Vitiligo Area Scoring Index (VASI) were applied. Results: 492 patients did participate; 63% were women. An average score of 32.6 was obtained on VitiQoL (95% CI = 30.6-34.5). Self-perception of severity and HRQoL were correlated (r = 0.568, p < 0.001). Age, the female gender, lower education and higher self-perceived severity were associated with poorer HRQoL. The proportion of subjects who reported an addiction was similar in the worst and best HRQoL groups (28% vs. 32%, p = 0.23). Conclusion: Poorer HRQoL is explained by severity self-perception, concern about disease progression, appearance of the skin and necessary actions to avoid sun exposure during recreation.
ABSTRACT
Resumo Investigaram-se os benefícios percebidos pelos idosos e monitores participantes do programa intergeracional de manutenção, estimulação e/ou reabilitação cognitiva, mediado pelo uso de computadores e prática de atividades físicas "Oficina da Lembrança". Realizou-se uma pesquisa qualitativa descritiva, com dez idosos e seis monitores participantes da Oficina da Lembrança. Aplicou-se entrevista semiestruturada, interpretada pela análise de conteúdo. Os idosos relataram: aprendizagem do uso de computadores, melhora da memória, sociabilização, ter atividade de lazer, emagrecimento, melhora da qualidade de vida, saúde e sociabilização. Monitores: contato com idosos, melhora da relação com pessoas/pacientes, preparação para situações diversas e conhecimentos sobre idosos. Conclui-se que a Oficina da Lembrança pode proporcionar vários benefícios para seus praticantes e para seus monitores, principalmente a intergeracionalidade.
Abstract We investigated the benefits perceived by older people and monitors participants of the intergenerational program intergenerational of maintenance, stimulation/rehabilitation cognitive, mediated by the use of computers and physical activity "Oficina da Lembrança". We performed a descriptive qualitative research with ten elderly and six monitors participants of Oficina da Lembrança. We applied semi-structured interviews, which were interpreted by content analysis. The elderly related: learning the use of computers, improved memory, socialization, having leisure activity, weight loss, improved quality of life, health and socialization. Monitors: contact with elderly, improvement of the relationship with people and patients, preparation for different situations and acquiring more knowledge about the elderly. In conclusion, Oficina da Lembrança can provide several benefits to its practitioners and monitors, especially the intergenerationality.