Câncer nasal e dos seios paranasais relacionados à saúde ocupacional / Nasal and paranasal sinus cancer related to occupational health

Resumo: Esta pesquisa, apresentada no formato de artigo, está inserida na linha de pesquisa Processo de Cuidar em Saúde e Enfermagem, do Programa de Pós-Graduação em Enfermagem, e integra o Grupo de Pesquisa Multiprofissional em Saúde do Adulto da Universidade Federal do Paraná. Introdução: o câncer nasal e dos seios paranasais corresponde a menos de 1% dos demais tipos de câncer, com fatores etiológicos decorrentes do meio ambiente, das atividades ocupacionais e dos hábitos de vida, com período de latência que pode variar até 20 anos para o aparecimento dos sintomas neoplásicos. Objetivos: caracterizar o perfil sociodemográfico, clínico e ocupacional dos brasileiros com câncer nasossinusal; traduzir, adaptar culturalmente e validar o Questionario Sulla Storia di Lavoro e Sulle Abitudini di Vita utilizado pelo Registro Tumori Seni Nasali e Paranasali da Lombardia, Itália, para o contexto cultural brasileiro; examinar o perfil sociodemográfico, clínico e ocupacional dos pacientes com câncer nasossinusal e relacionar a ocupação com a exposição ao pó de couro, lenha, cromo e níquel. Artigo 1: é um estudo observacional, descritivo e retrospectivo, utilizando os dados secundários do Integrador de Registro Hospitalar de Câncer no período de 2007 a 2019, com os CIDs: C30.0 e C31.0 a C31.9. Foram analisados 1.803 registros e destacou-se que 1.161 (64%) eram do sexo masculino, com faixa etária predominante entre 50 e 59 anos (26%; n=298), da raça/cor branca (46%; n=535), solteiros (55%; n=640) e com ensino fundamental incompleto (40%; n=461), que tinham incidência da neoplasia no seio maxilar (52%; n=943), com estadiamento clínico grau IV (32%; n=575). A ocupação foi registrada nos brasileiros com câncer nasossinusal no Grupo 6 (64,7%; n=701) - trabalhadores agropecuários, florestais e da pesca, e no Grupo 8 (26,7%; n=289) - trabalhadores da produção de bens e serviços industriais, principalmente no Estado da Bahia (11%; n=206) e Minas Gerais (18%; n=327). Artigo 2: descreve um estudo metodológico com as etapas de tradução, síntese, retrotradução, relatório de retrotradução, revisão, teste piloto e tradução final proposto pelo European Organisation for Research and Treatment of Cancer. O instrumento foi dividido em 11 domínios conforme a característica das perguntas do instrumento original. O pré-teste foi realizado num hospital de referência em oncologia do Estado do Paraná, Brasil, com 15 participantes que foram os pacientes com câncer nasal e dos seios paranasais e cinco familiares, entre julho e setembro de 2021. O instrumento obteve um índice de 94% de concordância entre os juízes, que fizeram sugestões de inclusão, manutenção semântica e substituição em 11 domínios. No pré-teste os participantes fizeram confirmação do entendimento sobre as perguntas e os domínios de 100% (n=15), entretanto, todos tiveram dificuldade de interpretação da palavra "popper", e 53% (n= 8) fizeram proposições de melhoria no questionário. Um participante solicitou a inclusão do narguilé nos hábitos de fumo. Artigo 3: consiste num relato de séries de casos de um hospital de oncologia do Estado do Paraná, no Sul do Brasil, no período de 2005 a 2021. Foram incluídos pacientes com idade acima de 18 anos, de ambos os sexos, com CID C30 e o grupo C31, que estavam em acompanhamento de saúde nos últimos 12 meses na instituição hospitalar, ou familiares (no caso de óbito do paciente) com idade superior ou igual a 18 anos. Os participantes foram entrevistados com o Questionário sobre o Histórico de Trabalho e os Hábitos de Vida, com os dados obtidos analisados por frequência simples e absoluta Resultados: O Artigo 3 teve 52 participantes eram do sexo masculino (56%; n= 29), casados (31%; n= 16), com ensino fundamental completo (23%; n= 12) e sem histórico de tabagismo (27%; n= 14), onde a localização prevalente foi C30.0 em homens (33%; n=17) com carcinoma de células escamosas (40,3%; n= 21). A exposição carcinogênica com poeira da madeira (29,8%; n=17), cromo e níquel (17,5%; n=10) e com couro e derivados (14%; n=8). Conclusão: a frequência do câncer nasal e dos seios paranasais foi maior no sexo masculino, com ensino fundamental, nos trabalhadores agropecuários e da indústria de transformação e tiveram exposição ao agente carcinogênico; o estudo poderá motivar as reflexões acerca do acometimento do câncer nasal e dos seios paranasais no contexto brasileiro, principalmente de origem ocupacional, conforme as monografias do International Agency for Research on Cancer, que enfatiza a importância de utilizar um instrumento de investigação com informações complexas e essenciais do histórico ocupacional e dos hábitos de vida direcionado para o câncer nasal e dos seios paranasais.

Abstract: This study, presented in the form of an article, is part of the Care Process in Health and Nursing research line of the Postgraduate Program in Nursing, and the Multiprofessional Research Group in Adult Health at the Universidade Federal do Paraná. Introduction: nasal and paranasal sinus cancer corresponds to less than 1% of other types of cancer, has etiological factors resulting from the environment, occupational activities and lifestyle, and a latency period varying up to 20 years for the onset of neoplastic symptoms. Objectives: to characterize the sociodemographic, clinical and occupational profile of Brazilians with sinonasal cancer; translate, culturally adapt and validate the Questionario Sulla Storia di Lavoro e Sulle Abitudini di Vita used by the Registro Tumori Seni Nasali e Paranasali from Lombardy, Italy, for the Brazilian cultural context; to examine the sociodemographic, clinical and occupational profile of patients with sinonasal cancer, and relate the occupation to exposure to leather dust,wood dust, chromium and nickel. Article 1: is an observational, descriptive, retrospective study using secondary data from the Hospital Cancer Registry Integrator from 2007 to 2019 with ICDs: C30.0 and C31.0 to C31.9. Analysis of 1,803 records was performed, highlighting that 1,161 (64%) were male, predominant age group of 50-59 years (26%; n=298), white race/color (46%; n=535) , single (55%; n=640), incomplete primary education (40%; n=461), with incidence of neoplasia in the maxillary sinus (52%; n=943), and clinical staging grade IV (32%; n=575). The occupations registered in Brazilians with sinonasal cancer were in Group 6 (64.7%; n=701) - agricultural, forestry and fishing workers, and in Group 8 (26.7%; n=289) - workers in the production of industrial goods and services, mainly in the states of Bahia (11%; n=206) and Minas Gerais (18%; n=327). Article 2: describes a methodological study with the steps of translation, synthesis, back-translation, back-translation report, review, pilot test and final translation proposed by the European Organization for Research and Treatment of Cancer. The instrument was divided into 11 domains according to characteristics of the questions in the original instrument. The pre-test was carried out between July and September 2021 in a reference hospital in oncology in the state of Paraná, Brazil, with 15 participants that were patients with nasal and paranasal sinus cancer, and five family members. The instrument obtained an index of 94% agreement among judges, who made suggestions for inclusion, semantic maintenance and replacement in 11 domains. In the pre-test, although participants confirmed their 100% (n=15) understanding of questions and domains, all had difficulty interpreting the word "popper", and 53% (n=8) made suggestions for improvements in the questionnaire. One participant requested the inclusion of hookah in smoking habits. Article 3: consists of a case series report from an oncology hospital in the state of Paraná, southern Brazil, from 2005 to 2021. Patients of both sexes aged over 18 years, with ICD C30 and group C31, under healthcare in the last 12 months at the hospital, or family members (in the case of patient's death) aged 18 years or older were included. Participants were interviewed using the Work History and Lifestyle Questionnaire. The data obtained were analyzed by simple and absolute frequency. Results: Article 3 had 52 participants that were male (56%; n= 29), married (31%; n= 16), with complete primary education (23%; n= 12) and no history of smoking (27 %; n=14), and the prevalent location was C30.0 in men (33%; n=17) with squamous cell carcinoma (40.3%; n=21). Carcinogenic exposure to wood dust (29.8%; n=17), chromium and nickel (17.5%; n=10), and leather and leather products (14%; n=8). Conclusion: the frequency of nasal and paranasal sinus cancer was higher in males with primary education, in agricultural workers and in the manufacturing industry who were exposed to the carcinogenic agent; the study may motivate reflections on the involvement of nasal and paranasal sinus cancer in the Brazilian context, mainly of occupational origin, according to monographs of the International Agency for Research on Cancer, which emphasizes the importance of using a research instrument with complex and essential information of occupational history and lifestyle habits directed to nasal and paranasal sinus cancer.

Implementação de ciclo de melhoria nos registros em prontuários hospitalares: um estudo quase experimental

RESUMO Objetivo: Implantar e avaliar um programa de melhoria dos registros em prontuários do um hospital do município de Farias Brito, estado do Ceará, Brasil. Material e Método: Trata-se de um estudo com abordagem quantitativa, quase experimental do tipo antes e depois de avaliação de critérios de qualidade. A pesquisa foi realizada entre janeiro de 2017 e julho de 2018. Foram avaliados 87 registros em prontuários selecionados de forma aleatória, realizados pela equipe multiprofissional totalizando 35 profissionais. Foi realizado em seis etapas: 1) Identificação e priorização de um problema de qualidade, 2) Análise das causas do problema, 3) Desenvolvimento de critérios para avaliar o nível de qualidade, 4) Avaliação do nível de qualidade, 5) Intervenção de melhoria dirigida aos critérios mais problemáticos e 6) Reavaliação do nível de qualidade. Para avaliar a qualidade, antes e depois da intervenção, foi realizado cálculo da estimativa pontual e do intervalo de confiança (IC= 95%) do nível de cumprimento de oito critérios. Para avaliar o efeito da intervenção, foi estimada melhoria absoluta e relativa de cada teste de hipótese unilateral por meio do cálculo do valor de Z. No ciclo de melhoria, os dados foram analisados pelo Gráfico de Pareto. Resultados: Na medição inicial, foram obtidos índices de cumprimento de 36,30% em média, enquanto na segunda medição, notou-se um aumento na média de cumprimentos de todos os critérios em 19,45%. Conclusão: Percebe-se que o ciclo de melhoria é uma ferramenta efetiva para fortalecer a qualidade dos serviços desenvolvidos especialmente a qualidade dos registros em prontuários do hospital.

ABSTRACT Objective: To implement and evaluate a program to improve medical records in a hospital located in the municipality of Farias Brito, Ceará State, Brazil. Material and Method: Quasi-experimental study of the type before and after the evaluation of quality criteria, with a quantitative approach. The survey was conducted between January 2017 and July 2018. 87 records were evaluated in randomly selected medical records that had been performed by the multi-professional team consisting of 35 professionals. The research was carried out in six steps: 1) Identification and prioritization of a quality problem, 2) Analysis of the causes of the problem, 3) Development of criteria to evaluate the quality level, 4) Evaluation of the quality level, 5) Improvement intervention aimed at the most problematic criteria, and 6) Re-evaluation of the quality level. To assess quality before and after the intervention, point estimation and confidence interval (CI= 95%) of the level of compliance to eight criteria was calculated. To evaluate the effect of the intervention, absolute and relative improvement of each one-sided hypothesis test was estimated by calculating the Z-score. In the improvement cycle, data were analyzed using Pareto chart. Results: In the first measurement, compliance rates of 36.30% on average were obtained, while in the second measurement there was an increase in the average level of compliance of all criteria by 19.45%. Conclusion: It is clear that the improvement cycle is an effective tool to strengthen the quality of the hospital services, especially when related to quality of patient's medical records.

RESUMEN Objetivo: Implementar y evaluar un programa para mejorar los registros en la historia clínica de un hospital del município de Farias Brito, estado de Ceará, Brasil. Material y Método: Estudio con enfoque cuantitativo, cuasi-experimental del tipo antes y después de la evaluación de criterios de calidad. La encuesta se realizó entre enero de 2017 y julio de 2018. Se evaluaron 87 registros de historias clínicas, seleccionados al azar, realizados por el equipo multiprofesional, totalizando 35 profesionales. Se llevó a cabo en seis pasos: 1) Identificación y priorización de un problema de calidad, 2) Análisis de las causas del problema, 3) Desarrollo de criterios para evaluar el nivel de calidad, 4) Evaluación del nivel de calidad, 5 ) Intervención de mejora dirigida a los criterios más problemáticos y 6) Reevaluación del nivel de calidad. Para evaluar la calidad, antes y después de la intervención, se calculó la estimación puntual y el intervalo de confianza (IC = 95%) del nivel de cumplimiento de ocho criterios. Para evaluar el efecto de la intervención, se estimó la mejora absoluta y relativa de cada prueba de hipótesis unilateral mediante el cálculo del valor Z. En el ciclo de mejora, los datos se analizaron mediante el diagrama de Pareto. Resultados: En la medición inicial se obtuvieron tasas de cumplimiento de 36,30% en promedio, mientras que en la segunda medición hubo un aumento en el promedio de cumplimiento de todos los criterios en 19,45%. Conclusión: Se observa que el ciclo de mejora es una herramienta eficaz para fortalecer la calidad de los servicios desarrollados, especialmente la calidad de los registros en la Historia clínica de los pacientes.

Mapeamento do uso da caderneta de saúde da criança por pais e profissionais: um estudo descritivo / Mapping the use of the child health handbook by parents and professionals: a descriptive study / Mapeo del uso del manual de salud infantil por padres y profesionales: un estudio descriptivo

Objetivo: Identificar o conhecimento dos pais acerca da Caderneta de Saúde da Criança, mapear o preenchimento da Caderneta pelos profissionais e correlacionar o preenchimento da caderneta com a orientação dos pais pelos profissionais de saúde. Métodos: pesquisa quantitativa descritiva, realizada num hospital universitário, através da aplicação de formulário com 22 pais ou responsáveis e análise através de tabelas, gráficos, estatística descritiva e inferencial. Resultados: (77,3%) dos entrevistados alegaram não ter recebido orientação sobre a Caderneta, a maioria das cadernetas não apresentava registro no item de Índice de Massa Corporal tanto como a maioria apresentava preenchimento completo no item de registro de vacinas do calendário básico e as correlações não foram significativas, apresentando independência na maioria. Conclusão: evidenciou-se uma necessidade de orientação dos familiares tanto como capacitação dos profissionais que trabalham com a população infantil e não se verificou dependência entre a maioria das variáveis correlacionadas neste estudo

Objective:To identify parents' knowledge about the Child Health Handbook, map the completion of the booklet by professionals and correlate the completion of the booklet with the guidance of parents by health professionals. Methods: descriptive quantitative research, conducted in a university hospital, through the application of a form with 22 parents or guardians and analysis through tables, graphs, descriptive and inferential statistics. Results: (77.3%) of respondents claimed not to receive guidance on the Passbook, the majority of the handbooks had no record in the Body Mass Index item as much as most completed in the basic calendar vaccine record item and correlations were not significant, presenting independence in the majority. Conclusion: there was a need for guidance from family members as well as training of professionals working with the child population and there was no dependence between most of the correlated variables in this study

Objetivo: Identificar el conocimiento de los padres sobre el Manual de Salud Infantil, mapear la finalización del folleto por profesionales y correlacionar la finalización del folleto con la orientación de los padres por parte de profesionales de la salud. Métodos: investigación cuantitativa descriptiva, realizada en un hospital universitario, mediante la aplicación de un formulario con 22 padres o tutores y análisis a través de tablas, gráficos, estadísticas descriptivas e inferenciales. Resultados: El (77.3%) de los encuestados afirmaron no haber recibido orientación sobre el Manual, la mayoría de los manuales no tenían registros en el ítem del Índice de Masa Corporal tanto como la mayoría había completado en el ítem y las correlaciones del registro básico de la vacuna del calendario no fueron significativas, presentando independencia en la mayoría. Conclusión: era necesaria la orientación de los miembros de la familia, así como la capacitación de profesionales que trabajan con la población infantil y no hubo dependencia entre la mayoría de las variables correlacionadas en este estudio

Implementation of improvement cycle in health records of mobile emergency prehospital care / Implementación del ciclo de mejora en los registros de salud de un servicio prehospitalario móvil de emergencia / Implantação de ciclo de melhoria nos registros de saúde de serviço pré-hospitalar móvel de urgência

ABSTRACT Objective: to evaluate the effect of the implementation of a quality improvement cycle in the completion of occurrence forms of a Mobile Emergency Service. Methods: this is a time series, quantitative, quasi-experimental study without control group, with three quality assessments in which was used an improvement cycle for adequacy of health records in Mobile Emergency Service Patos. Results: in 100% of the seven criteria, there was improvement between evaluations. Noncompliance with criteria reduced from 95 cases in the first evaluation to eight cases in the third evaluation. Conclusions: the representation of joint results between the three evaluations highlighted progressive improvement in the compliance with each criterion.

RESUMEN Objetivos: evaluar el efecto de la implantación de un ciclo de mejora de la calidad al completar los formularios de ocurrencias de un Servicio Móvil de Atención de Emergencia. Métodos: esta es una investigación de series de tiempo, cuantitativa, cuasi experimental, sin grupo de control, con tres evaluaciones de calidad, utilizando un ciclo de mejora en la adecuación de los registros de salud en Servicio Móvil de Atención de Emergencia Patos. Resultados: el 100% de los siete criterios mostraron una mejora entre las evaluaciones y se observó que el incumplimiento de estos criterios se redujo de 95 casos en la primera evaluación a ocho casos en la tercera evaluación. Conclusiones: la representación de los resultados conjuntos entre las tres evaluaciones pudo destacar una mejora progresiva en el cumplimiento de cada criterio.

RESUMO Objetivos: avaliar o efeito da implantação de um ciclo de melhoria da qualidade no preenchimento das fichas de ocorrências de um Serviço de Atendimento Móvel de Urgência. Métodos: estudo quase experimental de série temporal, quantitativo, sem grupo controle, com três avaliações da qualidade. Foi utilizado o ciclo de melhoria na adequação dos registros de saúde no Serviço de Atendimento Móvel de Urgência Patos. Resultados: houve melhorias em 100% dos sete critérios entre as avaliações e redução do não cumprimento desses critérios de 95 casos na primeira avaliação, para oito casos na terceira avaliação. Conclusões: a representação dos resultados conjuntos entre as três avaliações destacou a melhoria progressiva nos cumprimentos de cada critério.

Caderneta de saúde da criança: coordenação do cuidado e acesso à saúde / Cuaderno de salud infantil: coordinación del cuidado y acceso a la salud / Child health booklet: care coordination and access to health care

RESUMO OBJETIVO: analisar fatores associados ao preenchimento da caderneta de saúde da criança para fomentar a coordenação do cuidado e acesso à saúde. MÉTODO: estudo quantitativo, realizado entre janeiro e junho de 2016, em município paulista. Entrevistadas 284 mães e observadas as cadernetas de seus filhos; considerados significativos resultados com p< 0,05. RESULTADOS: identificou-se baixo preenchimento para pré-natal (5%), dados do recém-nascido (40%), exames de triagem neonatal (10%) e alta hospitalar (6%). Escolaridade materna (p=0,006) foi fator associado ao correto preenchimento de dados do recém-nascido. CONCLUSÃO: a caderneta não tem sido fonte de dados para seguimento da atenção ao recém-nascido no município investigado. Favorecer continuidade da atenção após o nascimento e a execução de registros adequados potencializa a coordenação do cuidado. O preenchimento desse instrumento, incorporado às práticas dos serviços e dos profissionais de saúde em todos os pontos da rede de atenção à criança, traz contribuições ao acesso à saúde.

RESUMEN OBJETIVO: analizar factores asociados al hecho de completar el cuaderno de salud infantil para fomentar la coordinación del cuidado y el acceso a la salud. MÉTODO: estudio cuantitativo que se realizó entre enero y junio de 2016, en municipio de São Paulo. Se entrevistaron 284 madres y se observaron los cuadernos de sus hijos; considerándose significativos resultados con p< 0,05. RESULTADOS: se identificó bajo índice de relleno para prenatal (5%), datos del recién nacido (40%), exámenes de selección neonatal (10%) y alta hospitalaria (6%). Escolaridad materna (p=0,006) fue factor asociado al hecho de completar correctamente los datos del recién nacido. CONCLUSIÓN: el cuaderno no viene siendo fuente de datos para la atención al recién nacido en el municipio investigado. Favorecer la continuidad de la atención tras el nacimiento y la realización de registros adecuados potencializa la coordinación del cuidado. Completar el cuaderno de salud infantil, además de las prácticas de los servicios y de los profesionales de salud en todos los puntos de la red de atención al niño trae contribuciones importantes al acceso a la salud.

ABSTRACT OBJECTIVE: analyze factors associated with filling in child health booklets to promote care coordination and access to health care. METHOD: quantitative study conducted between January and June 2016, in a city in the state of São Paulo. A total of 284 mothers were interviewed and the booklets of their children were examined; results with p< 0.05 were considered significant. RESULTS: low completion was identified for prenatal (5%), newborn data (40%), newborn screening (10%) and discharge (6%). Maternal education (p=0.006) was a factor associated with proper filling in of newborn data. Conclusion: the booklets were not a source of data for continued newborn care in the city investigated. Care coordination is strengthened by continued post-birth care and keeping adequate records. Filling in this instrument, incorporated into the practices of health services and professionals at every point in the childcare network enhances healthcare access.

O registro em prontuário coletivo no trabalho do psicólogo na Estratégia Saúde da Família / The record on collective electronic chart in the context of the psychologist's work in Family Health Strategy / El registro en la historia clínica colectiva en el trabajo del psicólogo en la Estrategia de Salud de la Familia

Este artigo constitui um relato de experiência, o qual aborda e problematiza o registro de informações nos prontuários coletivos em equipes de Saúde da Família pelos profissionais de Psicologia vinculados a um Programa de Residência Multiprofissional. O Conselho Federal de Psicologia destaca que o psicólogo, em serviço multiprofissional, deve fazer uso do prontuário único, registrando apenas as informações necessárias aos objetivos do trabalho. Essa questão é complexa uma vez que envolve aspectos éticos e de sigilo profissional. Entretanto, entende-se que tal temática precisa ser discutida pelos profissionais de Psicologia e no cotidiano das equipes, para qualificar o cuidado em saúde.

This study is an experience report that approaches and problematizes the act of recording information on collective charts in the context of Family Health teams carried out by Psychology professionals of a Multiprofessional Residency Program. The Federal Council of Psychology highlights the psychologist that works in a public service should register the information on the chart that the other professionals have access to, recording only information related to the aim of his task. This is a complex subject, once it involves ethical and professional secrecy aspects. Such aspects must be discussed by Psychology professionals in the context of health teams, so as to improve health care.

Este artículo se constituye en un relato de experiencia, el cual aborda y problematiza el registro de informaciones en las historias clínicas colectivas, en equipos de Salud de la Familia, por los profesionales de Psicología vinculados a un Programa de Residencia Multiprofesional. El Consejo Federal de Psicología destaca que el psicólogo en servicio multiprofesional, debe hacer uso de una historia clínica única, registrando solamente las informaciones necesarias para los objetivos del trabajo. Esta cuestión es compleja, una vez que implica aspectos éticos y de secreto profesional. Sin embargo, se entiende que esta temática debe ser discutida por los profesionales de la Psicología y en el cotidiano de los equipos, para calificar el cuidado de la salud.

Prevalence of Sharing Access Credentials in Electronic Medical Records / 대한의료정보학회지

OBJECTIVES: Confidentiality of health information is an important aspect of the physician patient relationship. The use of digital medical records has made data much more accessible. To prevent data leakage, many countries have created regulations regarding medical data accessibility. These regulations require a unique user ID for each medical staff member, and this must be protected by a password, which should be kept undisclosed by all means. METHODS: We performed a four-question Google Forms-based survey of medical staff. In the survey, each participant was asked if he/she ever obtained the password of another medical staff member. Then, we asked how many times such an episode occurred and the reason for it. RESULTS: A total of 299 surveys were gathered. The responses showed that 220 (73.6%) participants reported that they had obtained the password of another medical staff member. Only 171 (57.2%) estimated how many time it happened, with an average estimation of 4.75 episodes. All the residents that took part in the study (45, 15%) had obtained the password of another medical staff member, while only 57.5% (38/66) of the nurses reported this. CONCLUSIONS: The use of unique user IDs and passwords to defend the privacy of medical data is a common requirement in medical organizations. Unfortunately, the use of passwords is doomed because medical staff members share their passwords with one another. Strict regulations requiring each staff member to have it's a unique user ID might lead to password sharing and to a decrease in data safety.

Blogs as Channels for Disseminating Health Technology Innovations / 대한의료정보학회지

OBJECTIVES: The objective of this study was to describe the features of health informatics blogs on the Internet. METHODS: A search was conducted in August, 2016 using the search engine, Google, and key words: ‘mobile health blog,’‘telehealth/telemedicine blog,’‘Electronic Health Record blog,’‘personalized health record blog,’‘population health decision support system blog,’ and ‘public/population health dashboard blog.’ The first 24 blogs resulting from each key word search were recorded, generating 144 blogs. A total of 109 unique blogs resulted after removing duplicates and non-functional sites. RESULTS: Blogs with ‘.com’ extensions were most prevalent (72%, n = 79). More than half of the blogs (79%, n = 86) were created by industries. Mobile health (88%, n = 96), telehealth (82%, n = 89), and health IT (78%, n = 85) were the predominant topics covered. Health providers (44%, n = 48), industries (33%, n = 36), patients/consumers (25%, n = 27) and payers/insurance providers (19%, n = 21) constituted the most common target audience. Blogs catering to payers commonly used ‘.org’ extension (n = 10 out of 21), compared to ‘.com’ (n = 7) or ‘.gov’ (n = 2) (p < 0.0001). Significant differences were also observed by topics covered health IT (p = 0.007), subscription (p = 0.048) and LinkedIn social media (p = 0.019) across the website extensions. CONCLUSIONS: Further research is needed to examine the use of blogs as channels of communication of best evidence in health informatics research among diverse stakeholders. The role of blogs as policy informatics tools need to be evaluated in order for stakeholders to collaborate, coordinate and share opportunities and challenges of various public health programs and policies.

Establishing a Personal Health Record System in an Academic Hospital: One Year's Experience / 가정의학회지

BACKGROUND: Personal health records (PHRs) are web based tools that help people to access and manage their personalized medical information. Although needs for PHR are increasing, current serviced PHRs are unsatisfactory and researches on them remain limited. The purpose of this study is to show the process of developing Seoul National University Bundang Hospital (SNUBH)'s own PHR system and to analyze consumer's use pattern after providing PHR service. METHODS: Task force team was organized to decide service range and set the program. They made the system available on both mobile application and internet web page. The study enrolled PHR consumers who assessed PHR system between June 2013 and June 2014. We analyzed the total number of users on a monthly basis and the using pattern according to each component. RESULTS: The PHR service named Health4U has been provided from June 2013. Every patient who visited SNUBH could register Health4U service and view their medical data. The PHR user has been increasing, especially they tend to approach via one way of either web page or mobile application. The most frequently used service is to check laboratory test result. CONCLUSION: For paradigm shift toward patient-centered care, there is a growing interest in PHR. This study about experience of establishing and servicing the Health4U would contribute to development of interconnected PHR.

DialysisNet: Application for Integrating and Management Data Sources of Hemodialysis Information by Continuity of Care Record / 대한의료정보학회지

OBJECTIVES: Health Avatar Beans was for the management of chronic kidney disease and end-stage renal disease (ESRD). This article is about the DialysisNet system in Health Avatar Beans for the seamless management of ESRD based on the personal health record. METHODS: For hemodialysis data modeling, we identified common data elements for hemodialysis information (CDEHI). We used ASTM continuity of care record (CCR) and ISO/IEC 11179 for the compliance method with a standard model for the CDEHI. According to the contents of the ASTM CCR, we mapped the CDHEI to the contents and created the metadata from that. It was transformed and parsed into the database and verified according to the ASTM CCR/XML schema definition (XSD). DialysisNet was created as an iPad application. The contents of the CDEHI were categorized for effective management. For the evaluation of information transfer, we used CarePlatform, which was developed for data access. The metadata of CDEHI in DialysisNet was exchanged by the CarePlatform with semantic interoperability. RESULTS: The CDEHI was separated into a content list for individual patient data, a contents list for hemodialysis center data, consultation and transfer form, and clinical decision support data. After matching to the CCR, the CDEHI was transformed to metadata, and it was transformed to XML and proven according to the ASTM CCR/XSD. DialysisNet has specific consideration of visualization, graphics, images, statistics, and database. CONCLUSIONS: We created the DialysisNet application, which can integrate and manage data sources for hemodialysis information based on CCR standards.

Healthcare Decision Support System for Administration of Chronic Diseases / 대한의료정보학회지

OBJECTIVES: A healthcare decision-making support model and rule management system is proposed based on a personalized rule-based intelligent concept, to effectively manage chronic diseases. METHODS: A Web service was built using a standard message transfer protocol for interoperability of personal health records among healthcare institutions. An intelligent decision service is provided that analyzes data using a service-oriented healthcare rule inference function and machine-learning platform; the rules are extensively compiled by physicians through a developmental user interface that enables knowledge base construction, modification, and integration. Further, screening results are visualized for the self-intuitive understanding of personal health status by patients. RESULTS: A recommendation message is output through the Web service by receiving patient information from the hospital information recording system and object attribute values as input factors. The proposed system can verify patient behavior by acting as an intellectualized backbone of chronic diseases management; further, it supports self-management and scheduling of screening. CONCLUSIONS: Chronic patients can continuously receive active recommendations related to their healthcare through the rule management system, and they can model the system by acting as decision makers in diseases management; secondary diseases can be prevented and health management can be performed by reference to patient-specific lifestyle guidelines.

Registro para la localización y caracterización de la discapacidad, en relación a los marcos de referencia / Local de inscrição e caracterização de deficiência em conexão com quadros de referencia / Registration for location and characterization of disability in connection with frames of reference

Objetivo: Analizar el Registro para la Localización y la Caracterización de las personas con discapacidad, en relación a los marcos de referencia. Metodología: Investigación de tipo descriptiva transversal, desarrollada entre los años 2009-2010 en la Universidad de Boyacá, que contempla la aplicación del registro en los municipios del departamento y posterior interpretación de la información, con análisis de contenido y estadístico descriptivo; este último, realizado con base en los datos suministrados por el Departamento Nacional de Estadísticas y por el Ministerio de Salud y Protección Social, de los 123 municipios de Boyacá (42.705 registros), denominado “Análisis del Registro para la Localización y la Caracterización de las personas con discapacidad, en relación con los marcos de referencia en el departamento de Boyacá”. Resultados: La distribución de las preguntas del registro, se focalizan en detectar las características correspondientes al marco de protección social básica con el 58,42%, el cual se centra en la subsistencia, protección y afecto; con un 38,20% y en segunda instancia, se ubica el marco de compensación y cohesión social y finalmente, se encuentra el marco de equiparación y desarrollo local con un 3,37%. De igual forma, se observa que el predominio de las personas con discapacidad, es del sexo femenino mayor de 60 años, ubicada en el área rural dispersa, con bajos niveles de escolaridad y escasa participación laboral y social. Conclusiones: Se evidenció que la mayor cantidad de preguntas que contiene el registro, corresponden al marco denominado de protección social básica, que busca conocer las características sociodemográficas, funcionales y de salud de la población...

Nursing Informatics: Decades of Contribution to Health Informatics / 대한의료정보학회지

OBJECTIVES: In this paper we present a contemporary understanding of "nursing informatics" and relate it to applications in three specific contexts, hospitals, community health, and home dwelling, to illustrate achievements that contribute to the overall schema of health informatics. METHODS: We identified literature through database searches in MEDLINE, EMBASE, CINAHL, and the Cochrane Library. Database searching was complemented by one author search and hand searches in six relevant journals. The literature review helped in conceptual clarification and elaborate on use that are supported by applications in different settings. RESULTS: Conceptual clarification of nursing data, information and knowledge has been expanded to include wisdom. Information systems and support for nursing practice benefits from conceptual clarification of nursing data, information, knowledge, and wisdom. We introduce three examples of information systems and point out core issues for information integration and practice development. CONCLUSIONS: Exploring interplays of data, information, knowledge, and wisdom, nursing informatics takes a practice turn, accommodating to processes of application design and deployment for purposeful use by nurses in different settings. Collaborative efforts will be key to further achievements that support task shifting, mobility, and ubiquitous health care.

Registros personales de salud y su posible implementación en el contexto cubano. Una primera aproximación / Personal health records and its possible implementation in the cuban context. A first approximation

La salud es una esfera cuya proyección actual se ha orientando hacia una incorporación progresiva de las tecnologías. Actualmente existe un cambio de paradigma, impulsándose el concepto de informática orientada al paciente, con el fin de que estos participen activamente en el cuidado de su salud. Los cambios en la modalidad de atención y avances tecnológicos permitieron el nacimiento de una nueva forma de comunicación entre médicos y pacientes: los Registros Personales de Salud. El presente trabajo tiene como objetivo explorar las distintas formas de abordar la implementación de los Registros Personales de Salud para evaluar la posibilidad de su utilización en Cuba, contribuyendo a la utilización de las nuevas tecnologías para brindarles a los pacientes un rol más importante en el cuidado de su salud. Cuba a pesar de sus limitaciones, apuesta por la informatización de la sociedad. La adopción de los Registros Personales de Salud trae aparejado un grupo de facilidades y barreras a considerar para obtener el éxito(AU)

Health is a field whose current projection has been moving towards a progressive incorporation of technology. Currently there is a paradigm change, pushing the concept of patient-oriented informatics, in order that the patients are actively involved in the care of their health. Changes in treatment approaches and technological advances enabled the birth of a new form of communication between doctors and patients: Personal Health Records. This study aims to explore ways to address the implementation of Personal Health Records to assess the possibility of its use in Cuba. It will help with the use of new technologies to offer patients a greater role in their health care. Cuba, despite its limitations, bet on the computerization of society. Adoption of Personal Health Records brings up a group of facilities and barriers to consider for success(AU)

Leveraging Devices, Data and Discovery for Smarter Healthcare in Japan / 대한의료정보학회지

OBJECTIVES: Over the past decade, hospitals and clinics have gradually adopted hospital information systems, including provider order entries and electronic health records. Although these systems have helped to improve patient safety and efficiency of healthcare providers, not all healthcare providers and patients are satisfied with the current situation. Healthcare should be smarter. Thus, there is a need for state-of-the-art medical and healthcare devices that can handle massive amounts of data with the help of sophisticated information processing and discovery technologies. METHODS: This article compares hospital information systems with the information systems of other social infrastructures. It also explores the possibilities of smarter healthcare, including personal health devices and personal health records with interoperability. RESULTS: The main traits of the iEHR at Teikyo University Hospital in Tokyo include IT governance, unification, and workflow efficiency. CONCLUSIONS: Smarter healthcare can be achieved by leveraging the full capabilities of devices, data, and sophisticated algorithms.

The Consumers' Perceptions and Requirements for Personal Health Records in Korea / 대한의료정보학회지

OBJECTIVE: The aim of the study was to identify factors influencing the willingness of healthcare consumers to use personal health records (PHR) and to investigate the requirements for PHR services. METHODS: A face-to-face interview was conducted with 400 healthcare consumers from the 3rd-18th of July 2008 using a structured questionnaire. To identity factors affecting the willingness to use PHR and to pay for PHR services, logistic regression analysis was performed. To investigate the requirements for PHR services according to the willingness of the consumers to use PHR and to pay for PHR services, t-test analysis was conducted. RESULTS: Of the 400 healthcare consumers, 239 (59.8%) were willing to use PHR and 111 (27.8%) were willing to pay for PHR services. The willingness to use PHR was higher in the elderly, those with a disease, and those with experience to use health information on the Internet, and the willingness to pay for PHR services was higher in those with a relatively high income (p6,000,000 won and 4,500,000-6,000,000 won, respectively, than in those earning <1,500,000 won, and approximately 1.96 times (95% CI=1.18-3.27) higher in those with experience using health information on the Internet than in those without experience. The willingness to pay for PHR services was approximately 5.9 times (95% CI=1.84-19.06) higher in those with an income of 4,500,000-6,000,000 won than in those with an income <1,500,000 won (p<0.05). Demands for test results, medication history, family history, problem list, genetic information, clinical trial information, and social history were significantly higher in those with a willingness to use PHR and those with a willingness to pay for PHR services than in those without willingness to use PHR and those without a willingness to pay for PHR services (p<0.05). Compared to those without a willingness to pay for PHR services, those with a willingness to pay for PHR services showed a significantly higher demand for all the functions (p<0.01). CONCLUSION: The results of this study suggest that healthcare consumers potentially have a considerable demand for PHR services, and although it is not recognized and used widely yet, PHR is an essential service. In order to enhance people's awareness of PHR and to promote people to use PHR services, we need efforts and initiatives to execute campaigns and education for people to ease access to the service, and to reduce the gap in service utilization skills.