ABSTRACT
@#Introduction: The current era of the COVID-19 pandemic requires innovation in the provision of discharge planning by involving family members through the media safely and effectively. This study aimed to develop a discharge planning instrument based on patient family-centered care. Method: Research design Research and Development. The sampling technique used purposive sampling with a total sample of 110 medical record documents, 23 focus group discussion participants, and 2 experts (expert consultation). Data were collected through observation sheets, focus group discussions, and expert consultations. Data analysis using descriptive analysis, and validity test using I-CVI. Results: Development of a patient family centered care-based discharge planning instrument at the beginning of the patient’s admission (admission), namely sorting and adding assessment items to the level of knowledge of the disease, information and education needs, values, and beliefs, cultural background as well as physical and psychological. During treatment, namely arranging and sorting discharge planning items, providing information and education according to the assessment results using a media approach and the method according to the COVID-19 pandemic protocol. Towards home that is adding items; readiness or environmental conditions (environment), referral plans (Outpatient referral), and continued treatment while at home (Medication). Conclusion: The developed instrument tested is valid. As a result of this development, the new instrument can be tested and applied, and researched in the next stage on the outcomes of patient family-centered care.
ABSTRACT
Resumo Coparticipantes na atuação, planejamento e controle da execução de políticas públicas, os conselhos de saúde constituem espaços públicos que objetivam a participação e o controle social das ações em saúde que dizem respeito à coletividade. O acesso à informação é uma condição imprescindível para que não só conselheiros, mas a sociedade civil como um todo, possa propor, monitorar e avaliar as ações empreendidas na área da saúde. A partir desse entendimento e da orientação advinda da Lei 141/2012 sobre dar visibilidade aos instrumentos de gestão do SUS, o presente estudo buscou verificar como os portais das prefeituras das capitais brasileiras têm divulgado seus conselhos de saúde e os instrumentos necessários para a análise, o monitoramento e o acompanhamento da política de saúde. Apesar de recomendada por lei, a pesquisa mostrou que a publicidade é dada de distintas maneiras pelas capitais. Apenas 14% dos portais investigados disponibilizam nas páginas dos conselhos os instrumentos de gestão do SUS e 33% deles não divulgam nem informações sobre o conselho nem sobre os instrumentos de gestão. A ausência de tais conteúdos pode levar ao enfraquecimento da institucionalidade do conselho e, com isso, da própria democracia participativa.
Abstract Coparticipants in the performance, planning, and control of public policies' implementation, Health Councils are public spaces aiming at the participation and social control of health actions concerning the community. Access to information is a crucial condition so that not only advisers but also civil society can propose, monitor, and evaluate the actions taken in health. Based on this understanding and the guidance provided by Law N° 141/2012 on the visibility of SUS management instruments, this study aimed to verify how the municipal portals of Brazilian capitals have disseminated their Health Councils and the necessary instruments for analyzing, monitoring, and following-up on the health policy. While recommended by law, the research showed that dissemination occurs differently between capitals. Only 14% of the investigated portals make SUS management instruments available on the council pages, and 33% do not disclose information about the council or management instruments. The lack of such content can weaken the council's institutionality and, ultimately, participatory democracy itself.