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Aims: To investigate whether there is an association between ethnicity and healthrelated quality of life in patients with type 2 diabetes and to analyze if the association remains after adjusting for possible confounders. Methodology: A 12-item Short-form Health Survey - SF-12 was used. The associations between health-related quality of life and ethnicity, sex, age, marital status, educational status, BMI and age of onset of diabetes, were evaluated using linear regression analyses (β-coefficient and 95% CI). Study Design: Cross-sectional. Place and Duration of Study: This study is based on health-survey conducted among patients with type 2 diabetes on four Primary Health Care Centers in town of Södertälje (Sweden) during 2006-2008. Results: Assyrians/Syrians reported significantly lower scores on six out of eight dimensions and two component summaries (physical and mental) of quality of life than Swedes (with exception of role limitation due to physical problems and vitality). After adjustment for sex, age, marital status, education, BMI and age of onset of diabetes Assyrians/Syrians scored statistically significant lower bodily pain dimension (β- coefficient = -16.0, 95 % CI = -24.7 – -7.2) and poorer mental health (β-coefficient = - 12.1, 95% CI = -18.5 – -5.7) than Swedes. Conclusions: The present study shows that Assyrian/Syrian patients reported significantly lower health-related quality of life than Swedish-born patients. Measurement of health-related quality of life in patients with type 2 diabetes should be included into investigation and could be useful in guiding and evaluation of treatment intervention. The knowledge on self-reported quality of life could prevent early diabetes complications.
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Objective: To evaluate and identify determinants of health related quality of life (HRQoL) during pregnancy. Methods: In this descriptive exploratory study in sixty-four nulliparous pregnant women, completed the questionnaire: HRQoL (Colombian standard version of the Medical Outcome Study Short-Form Health Survey -SF12v2-), and socio-demographic determinants (i.e., age, place of origin, education, marital status, and occupation) during the second trimester. Results: Mean age of patients included was 19.1±2.7 years old and gestational age was 17.6 ± 3.4 weeks. The participants reported higher HRQoL scores in the vitality domain (56±11), followed by mental health (5110), and general health (50±11). Moreover, the lowest score was demonstrated in the domains of emotional role (18±5) and physical role (25±4). Having a higher household socioeconomic level was significantly correlated with higher scores in the physical role, general health, social functioning, emotional role, and mental health. Being married or cohabiting was significantly correlated with all the SF-12v2 domains, with the exception of the Bodily pain domain. Conclusions: While we have included a comprehensive assessment of socioeconomic variables needed to assess and identify the factors determining the HRQoL during pregnancy, further studies are needed that can guide the expectations of women, their health care providers, and public policy.
Objetivo: Evaluar e identificar los factores determinantes de la calidad de vida relacionada con la salud (CVRS) durante el embarazo. Métodos: Estudio descriptivo exploratorio en 64 gestantes nulíparas. Las participantes completaron el cuestionario de CVRS SF-12v2 (versión colombiana estándar del Medical Outcome Study Short-Form Health Survey-SF12-), y encuesta de factores determinantes sociodemográficos (edad, procedencia, nivel de educación, estado civil y situación laboral) durante el segundo trimestre del embarazo. Resultados: La edad media de las participantes fue 19.1±2.7 años y la edad gestacional 17.6 ±3.4 semanas. Las puntuaciones más altas de la CVRS se presentaron en los dominios de vitalidad (56±11), seguido de salud mental (51±10) y salud general (50±11). Por otra parte, la puntuación de CVRS más baja fue acusada en los dominios rol emocional (18±5) y rol físico (25±4). Un mayor nivel socioeconómico se correlacionó significativamente con mejor puntuación en el Cuestionario de Salud SF-12v2 en los dominios función física, salud general, función social, rol emocional y salud mental. Estar casada o en unión libre se correlacionó significativamente con todos los dominios del SF-12v2, con excepción del dominio dolor corporal. Conclusiones: Si bien se ha incluido una evaluación exhaustiva de las variables socioeconómicas necesarias para evaluar e identificar los factores determinantes en la CVRS durante el embarazo, se necesitan más estudios que puedan guiar las expectativas de las mujeres, sus proveedores de atención de salud y políticas públicas.
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Introduction: Exploring the health quality of life in young adults with congenital or acquired physical limitations early in childhood, would redefine therapeutic interventions in the rehabilitation process and also promote a better family integration, working status and integration in the community after discharge from the Institution. Objective: To determine health quality of life, demographic characteristics, functionality and level of participation, and to identify variables that affect their health quality of life Teletón Santiago Institutes patients five years after discharge. Materials and Methods: 40 patients that met the inclusion criteria were surveyed using a structured form and SF-12. Results: In regards of demographic characteristics, we found predominantly male patients, a quarter of respondents had a partner and the majority lived with their parents; more than half had completed technical or university studies and 47.5 percent were occupationally active; 80 percent were functionally independent and had extra domiciliary gait. Social participation in community activities and sports was minimal. Quality of life in the physical and mental summary components of SF-12 was on average about 10 percent less than that seen in national results. We obtained a significant association between quality of life in the physical component and been employed. Conclusion: We can consider that the health quality of life is acceptable in this group of young patients interviewed five years after the Teletón Santiago Institute discharge, and that they achieve educational and working integration similar to the general Chilean population.
Introducción: La exploración de la calidad de vida en salud de adultos jóvenes con limitaciones físicas congénitas o adquiridas precozmente en la infancia, permitiría replantear intervenciones terapéuticas en el proceso de rehabilitación y de esta manera, promocionar una mejor integración familiar, laboral y comunitaria después del alta institucional. Objetivo: Determinar calidad de vida en salud, características demográficas, funcionalidad y grado de participación e identificar variables que afecten la calidad de vida en salud en egresados cinco años después del Instituto Teletón Santiago. Materiales y Método: Se encuestaron 40 pacientes que cumplieron criterios de inclusión, mediante formulario estructurado y encuesta SF-12. Resultados: Entre las características demográficas, predomina el género masculino; la cuarta parte de los encuestados tenía pareja y mayoritariamente vivían con sus padres; más de la mitad había cursado estudios técnicos o universitarios y 47,5 por ciento se encontraba laboralmente activo; 80 por ciento eran funcionalmente independientes y tenían deambulación extradomiciliaria. La participación social en actividades comunitarias y deportivas era mínima. Calidad de vida en sus componentes resumen físico y mental de SF-12, en promedio estuvieron alrededor de 10 por ciento inferior a lo observado a nivel nacional. Se obtuvo asociación significativa entre calidad de vida en su componente físico y estar empleado. Conclusión: Se puede considerar que la calidad de vida en salud es aceptable en el grupo entrevistado de jóvenes egresados cinco años después del Instituto Teletón Santiago, logrando una integración educacional y laboral similar a la población chilena general.
Subject(s)
Humans , Male , Adolescent , Female , Young Adult , Patient Discharge , Disabled Persons/psychology , Quality of Life , Health Status , Interpersonal Relations , Mental Health , Disabled Persons/rehabilitation , Retrospective Studies , Social Adjustment , Surveys and QuestionnairesABSTRACT
OBJETIVOS: Avaliar o impacto da artrite reumatoide (AR) sobre a capacidade funcional para o trabalho e a qualidade de vida relacionada com a saúde (CVRS), de pacientes portadores desta afecção. MÉTODO: Realizou-se um estudo descritivo transversal com uma amostra de 53 pacientes de um centro de reumatologia público de Montevidéu. Utilizando-se uma série de instrumentos foram avaliados a dor, a repercussão funcional, a CVRS e os níveis de atividade: EVA-D (Escala Visual Analógica-Dor), EVA-G (Escala Visual Analógica - Estado Geral), HAQ (Health Assessment Questionnaire), SF-12 (Medical Outcomes Study Short Form 12), DAS 28 (Disease Activity Score). A análise estatística foi feita empregando coeficientes de remitência linear, teste t e ANOVA, buscando estudar a associação entre as variáveis independentes e a CVRS. O intraclass correlation coefficient (ICC) foi utilizado para verificar a correspondência entre a informação prestada pelo paciente e a observação do médico com relação ao bem-estar geral. RESULTADOS: Foram constatados níveis altos de atividade (41,5 por cento atividade grave, 26,5 por cento baixa atividade ou remitência), dor grave (60 por cento) e uma repercussão importante sobre o estado geral (média EVA-G 40, intervalo 0-100). Mais de 70 por cento dos pacientes apresentaram níveis de HAQ de moderado a grave. A média do PCS (Physical Component Summary) do SF-12 foi de 31,5 pontos (intervalo 15,2 - 59,5; DP= 10,1) e o MCS (Mental Component Summary) foi de 37,9 pontos (intervalo 15,7 - 66,4; DP = 14,6). Foram fatores determinantes das medidas de CVRS a evolução acima de um ano e o nível de atividade. CONCLUSÕES: Este estudo demonstra o grande transtorno que a AR representa para os pacientes em razão da dor, do comprometimento do estado geral, da capacidade funcional, da situação de trabalho e CVRS física e emocional. Destaca-se a necessidade de implementar mudanças na abordagem terapêutica dessa população especialmente vulnerável.
OBJECTIVES: To assess the impact of Rheumatoid Arthritis (RA) on functional working status, and health-related quality of life (HRQL) of patients. METHODS: This is a descriptive study with 53 patients from a public rheumatology center in Montevideo, Uruguay. A series of instruments were used to assess pain, functional impairment, HRQL, and activity level: P-VAS (Pain Visual Analogue Scale), G-VAS (Global Status Visual Analogue Scale), HAQ (Health Assessment Questionnaire), SF-12 (Medical Outcomes Study Short Form 12), and DAS 28 (Disease Activity Score). Linear regression coeficients, t test, and ANOVA were used to investigate the associations among several independent parameters and the HRQL. Correlations between the assessments of general well-being made by physicians and patients were studied using the intraclass correlation coefficients (ICC). RESULTS: High levels of disease activity (41.5 percent, severe activity; 26.5 percent, low activity or remission), severe pain (60 percent), and impact on global health status (median G-VAS 40, range: 0-100) were observed. More than 70 percent of the patients had HAQ rates indicating moderate to severe disability. The SF-12 PCS (Physical component Summary) had mean scores of 31.5 points (range 15.2- 59.5; SD=10.1) while those of the MCS (Mental Component Summary) were 37.9 points (range: 15.7 - 66.4; SD=14.6). One or more years of disease evolution and the level of activity were determining factors of HRQL scores. CONCLUSIONS: The study showed that RA is associated with higher disease burden, reflected on pain, impact on global health, and functional and working status, as well as the physical and emotional dimensions of the HRQL. The need for changes in the treatment of this psychologically vulnerable group of patients is paramount.