Conhecimento prático e sobrecarga na vida de cuidadores de idosos com demência / Practical knowledge and life overload of caregivers of elderly with dementia

OBJETIVOS: Analisar o nível de conhecimento e a sobrecarga na vida de cuidadores de idosos com demência, correlacionando essas variáveis com aspectos sociodemográficos e tipo de relação entre cuidador e idoso. MÉTODOS: Um estudo transversal foi realizado entre 2016 e 2017, com cuidadores de idosos com demência atendidos no ambulatório de Geriatria do Hospital das Clínicas da Faculdade de Medicina de Marília, em Marília/SP. Foram incluídos no estudo cuidadores que acompanhavam os idosos às consultas e participavam de forma importante nos seus cuidados, compreendendo cuidadores familiares e contratados sem vínculo de parentesco. Os dados foram coletados por meio de dois instrumentos: o questionário Caregiven Burden Scale, que avalia o impacto subjetivo de sobrecarga ao cuidador, cujo escore global pode variar de 01 (menor sobrecarga) até 04 (maior sobrecarga); e um questionário elaborado pelos próprios autores, que avaliou os conhecimentos usuais do cuidador sobre a prática do cuidado, cuja pontuação variou de zero (nenhum acerto) até 08 (todas as respostas corretas). A curva de distribuição das variáveis foi analisada pelo teste de Kolmogorov-Smirnov, as correlações foram analisadas pelo teste de Spearman e na comparação das médias utilizou-se a Análise de Variância. Os resultados foram considerados estatisticamente significativos quando p<0,05. RESULTADOS: Foram incluídos no estudo 52 cuidadores, cuja média de idade foi de 55,9±14,4 anos, sendo 85% do sexo feminino. Quarenta e quatro (84,6%) cuidadores possuíam algum grau de parentesco com o idoso. Em relação ao conhecimento sobre a prática do cuidado, a média de respostas corretas foi de 5,5±1,8. Houve correlação positiva com significância estatística entre o grau de escolaridade do cuidador e o conhecimento prático sobre o cuidado. Na avaliação da sobrecarga dos cuidadores encontrou-se a média geral de 1,83±0,16. A dimensão com maior média (2,06±0,37) foi a tensão geral, que faz menção às dificuldades de resolver problemas ao cuidar do idoso. Quanto ao tipo de relação entre cuidador e idoso, a maior sobrecarga (2,48±0,53) foi identificada nas esposas. CONCLUSÕES: O maior grau de escolaridade do cuidador foi associado à melhor qualidade do cuidado. A maior sobrecarga na vida dos cuidadores foi identificada nas esposas.

AIMS: To analyze the level of knowledge and the life overload of caregivers of elderly people with dementia, correlating these variables with sociodemographic aspects and type of relationship between caregiver and elderly. METHODS: A cross-sectional study was conducted between 2016 and 2017, with caregivers of elderly people with dementia seen at the Geriatrics outpatient clinic of the Hospital das Clínicas, Medical School of Marília, in Marília/SP, Brazil. The study included caregivers who accompanied the elderly to the consultations and participated in an important way in their care, comprising family caregivers and contractors without kinship ties. The data were collected through two instruments: the first was the Caregiven Burden Scale questionnaire, which evaluates the subjective impact of overload on the caregiver, and whose overall score can vary from 01 (lower overload) to 04 (higher overload). The second was a questionnaire prepared by the authors, which evaluated the caregiver's usual knowledge about the practice of care, whose scores ranged from zero (no correct answers) to 08 (all correct answers). The distribution curve of the variables was analyzed by the KolmogorovSmirnov test, the correlations were analyzed by the Spearman test and the comparison of the means used the Analysis of Variance. The results were considered statistically significant when p<0.05. RESULTS: Fifty-two caregivers were included in the study, with a mean age of 55.9±14.4 years, of which 85% were female. Forty-four (84.6%) caregivers had some degree of kinship with the elderly. Regarding knowledge about the practice of care, the mean number of correct answers was 5.5±1.8. There was a positive correlation with statistical significance between the caregiver's level of education and the practical knowledge about care. In the assessment of the caregivers overload, the overall mean was 1.83±0.16. The dimension with the highest mean (2.06±0.37) was the general tension, which refers to the difficulties of solving problems when caring for the elderly. Regarding the type of relationship between caregiver and elderly, the highest overload (2.48±0.53) was identified in the wives. CONCLUSIONS: The higher level of education of the caregiver was associated with better quality of care. The greatest caregiver life overload was identified in wives.

Qualitative study on experience of spouse caregivers of elderly and disable patients with stroke / 现代临床护理

Objective To explore the experience and feelings of spouse caregivers of elderly and disable patients with stroke in the process of care. Method Totally 8 spouse caregivers of elderly and disable patients with stroke were selected and investigated by semi structural in-depth interviews. Result Five major themes were found, e.g. responsibility and obligation of husband and wife, mental stress and physical stress, economic pressure, lack of effective information, positive feelings and countermeasures in the predicament. Conclusions The spouse caregivers suffer from psychological, physiological, economical and less information, but they are engaged with responsibility, obligation, positive feelings and coping. It is suggested that health care workers should take full attention to the elderly spouse caregivers and help them to reduce the pressure in the process of care, strive to tap their positive feelings and promote personal growth.

A Study on the Burden, Health Status and Well-being in Spouse Caregivers of Patients with Stroke / 성인간호학회지

PURPOSE: The purpose of the study is to investigate the correlation between burden, health status and well-being in spouse caregivers of patients with stroke. METHOD: The subjects of this study were 160 spouse caregivers registered at general hospital in Seoul and Seongnam. The data were collected from July 2th to October 30th, 2003. The Suh & Oh's burden scale, Yang's health status scale and Park's well-being scale were employed to measure burden, health status and wellbeing respectively. Collected data were analyzed using SPSS 12 version to obtain summary statistics for the descriptive analysis, Pearson Correlation, and Stepwise Multiple Regression. RESULTS: 1. The mean score of the degree of burden, health status and well-being were 3.52, 5.92 and 3.64 points. 2. The burden of the subjects were significantly negative correlated with psycho- logical health status(r=-.482. p<.01) and wellbeing(r=-.455, p<.01). 3. With the result of stepwise multiple regression, psychological health status and wellbeing were the main variables which could explain burden by 27.1%. CONCLUSION: The findings of this study will provide practical guidelines for developing emotional nursing interventions for the spouses taking care of CVA patients who would experience a heavy burden and distress.

A Study on the Burden, Health Status and Well-being in Spouse Caregivers of Patients with Stroke / 성인간호학회지

PURPOSE: The purpose of the study is to investigate the correlation between burden, health status and well-being in spouse caregivers of patients with stroke. METHOD: The subjects of this study were 160 spouse caregivers registered at general hospital in Seoul and Seongnam. The data were collected from July 2th to October 30th, 2003. The Suh & Oh's burden scale, Yang's health status scale and Park's well-being scale were employed to measure burden, health status and wellbeing respectively. Collected data were analyzed using SPSS 12 version to obtain summary statistics for the descriptive analysis, Pearson Correlation, and Stepwise Multiple Regression. RESULTS: 1. The mean score of the degree of burden, health status and well-being were 3.52, 5.92 and 3.64 points. 2. The burden of the subjects were significantly negative correlated with psycho- logical health status(r=-.482. p<.01) and wellbeing(r=-.455, p<.01). 3. With the result of stepwise multiple regression, psychological health status and wellbeing were the main variables which could explain burden by 27.1%. CONCLUSION: The findings of this study will provide practical guidelines for developing emotional nursing interventions for the spouses taking care of CVA patients who would experience a heavy burden and distress.