ABSTRACT
<p>Purpose: To clarify the factors that affect the family caregiver’s quality of life (QOL) of cancer patients. Methods: We conducted an internet survey including 21 items of the Japanese version CQOLC for 400 families of cancer patients in March 2012. Results: Factors that increased psychological burden were that caregivers were women, other family needed long-term care, and the patient had higher need for care. Factors that increased the family caregiver’s difficulty in their daily activities due to long-term care were caregivers are women, other family needed long-term care, caregivers did not think they had a good relationship with the patient, and the patient had higher need for care. Factors that increased financial burden were that the age of caregivers was less than 60 years, decreased of income after the patient’s diagnosis, and patients were men. Factors that increase the positive feeling for caregiving were that caregivers thought they had good relationship with the patient, and the patient’s need for care was higher. Conclusions: To reduce the burden in family caregiver of cancer patients without losing the positive feeling for caregiving would be important for both improving the family caregiver’s QOL, and to continue the care for patient in long term. </p>
ABSTRACT
<p>The modified Richmond Agitation-Sedation Scale (RASS) seems to be one of the best monitoring indicators for palliative sedation. We translated the modified RASS into Japanese according to the standard methods of conducting linguistic validation. The modified RASS revised two points from the original RASS for use in palliative care setting: deleted the description about the ventilator, and added some descriptions to clarify the meaning of RASS+1. In addition, we have deleted the description “rubbing sternum” in the procedure for RASS assessment, and then translated the modified RASS into Japanese. The translators and our research team members repeatedly discussed the linguistic validity until we agreed that the translated Japanese version is equivalent to the English one. The use of the Japanese version of the modified RASS to monitor palliative sedation may help to perform appropriate, and safe palliative sedation.</p>
ABSTRACT
Objectives: The present study was aimed at constructing the Japanese version of the Brief Illness Perception Questionnaire for breast cancer (Brief IPQ-JBC), for use with Japanese middle- and early old-aged women who had not previously undergone mammography. We also examined the psychometric properties of the translated instrument. Methods: Patients were 824 middle- and early old-aged women living in all parts of Japan, who completed surveys on the Internet in January 2014. Of these, 282 had not previously undergone mammography and were included in this study, completing the Internet survey again, six months later, in July 2014.The participants were evaluated on the basis of a battery of questionnaires comprising demographic details, the tentative version of the Brief IPQ-JBC, the Japanese version of the Illness Perception Questionnaire (J-IPQ), Self-Directedness subscale from the Japanese version of the Temperament and Character Inventory-125 items, perceived breast cancer risk, and anticipated worry about breast cancer. Results: The Brief IPQ-JBC was found to have good long-term test-retest reliability, as well as concurrent validity with the J-IPQ. The scale also showed good construct validity, based on the results of a path model using structural equation modeling, thus supporting the theoretical perspective of the common-sense model of self-regulation. Conclusion: We have validated the Brief-JBC in a sample of Japanese middle- and earlyold-aged women and believe our results will be useful for subsequent research.