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Säo Paulo med. j ; 140(1): 17-23, Jan.-Feb. 2022. tab, graf
Article in English | LILACS-Express | LILACS | ID: biblio-1357467


ABSTRACT BACKGROUND: Allergic rhinitis (AR) is a chronic inflammatory disease that affects almost 30% of the adult population. OBJECTIVE: To describe and compare the evolution of symptoms in patients diagnosed with AR and septal deviation prior to and following septoplasty (STP). DESIGN AND SETTING: Quasi-experimental study developed in A Coruña University Hospital. METHODS: Patients aged 18-65 years who had been diagnosed with AR and septal deviation were recruited. Obstruction airflow was evaluated before and after surgery, by means of anterior rhinomanometry (RNM). Severity symptoms and quality of life were assessed using a visual analogue scale (VAS) and the ESPRINT questionnaire, respectively. RESULTS: A total of 50 subjects underwent STP and 42 were included in this study. Their mean age at the time of surgery was 34.16 ± 9.74 years (range 18-64). Significant reductions in mean VAS and ESPRINT were observed after surgery (P < 0.01). These outcomes were considered to represent an overall improvement in quality of life. The RNM results also improved significantly, from mean values of 478.07 ± 165.4 cm3/s before STP to 826.4 ± 175.5 cm3/s afterwards (P < 0.01). CONCLUSIONS: The negative correlations of VAS and ESPRINT with RNM, from before and to after STP, demonstrate the efficacy of scales and questionnaires as objective methods for determining obstruction in the absence of rhinomanometry. Patients with allergic rhinitis and septal deviation showed improvements in obstruction severity and medication use after STP.

J. res. dent ; 9(2): 1-4, may-aug2021.
Article in English | LILACS-Express | LILACS | ID: biblio-1358581


Background. This cross-sectional study aimed to evaluate the impact of pain from dental urgencies on the oral health-related quality of life (OHRQoL). Methods. A sample of sixty-eight patients seeking urgent attention to a primary health unit were included. Clinical diagnosis and sociodemographic data were assessed, dental pain measured by visual analog scale (VAS) and numerical pain rating scale (NPRS). The Oral Health Impact Profile-14 (OHIP-14) instrument was used to measure the OHRQoL. Associations were analyzed using the Student t-test, except for types of urgencies, that were evaluated with one-way analysis of variance (ANOVA) test. Results. The most prevalent urgency type was of endodontic origin (81%). There was no difference between pain and other variables. The type of tooth showed significant differences in OHIP-14 scores. Conclusion. Dental urgencies were associated with a high level of pain and impacted negatively on the patients' OHRQoL. The type of tooth had a positive association the OHRQoL measures.

Rev. cuba. med. gen. integr ; 37(2): e1410, 2021. tab
Article in Spanish | LILACS, CUMED | ID: biblio-1352008


Introducción: La calidad de vida relacionada con la salud, como indicador positivo que evalúa el proceso salud-enfermedad, ha ido ganando en uso, a partir del cambio en los patrones de morbilidad, generado por el envejecimiento demográfico. Objetivo: Caracterizar la calidad de vida relacionada con la salud desde la perspectiva nomotética y su relación con variables de personas y tiempo. Métodos: Se realizó un estudio descriptivo-transversal en 200 adultos con diagnóstico de diabetes mellitus, hipertensión arterial o ambas, atendidos en el centro Daniel Álvarez, de Loja quienes cumplían varios criterios. Se calcularon medias y desviaciones típicas, porcentajes, y pruebas de significación como ANOVA, comparación de medias en muestras independientes y Análisis de Tablas de Contingencia, a través de la Razón de Verosimilitud, con un nivel de significación del 5 por ciento. Resultados: El puntaje promedio de la calidad de vida fue de 2,90, sin asociaciones significativas con las variables investigadas (p > 0,05). Las dimensiones física (3,30) y relaciones sociales (3,09) puntuaron por encima, mientras la psicológica (2,71) y el ambiente (2,70) lo hicieron por debajo. Solo la escolaridad, para la dimensión psicológica (p = 0,03) se asoció de manera significativa al puntaje alcanzado por esta. Conclusiones: La calidad de vida relacionada con la salud global, desde una perspectiva nomotética, en los adultos objeto de estudio, mostró un nivel aceptable, no asociada a ninguna de las variables en estudio. Los dominios psicológico y ambiente obtuvieron el peor puntaje; en tanto el físico y las relaciones sociales exhibieron niveles superiores al global(AU)

Introduction: Health-related quality of life, as a positive indicator that evaluates the health-disease process, has been gaining more use, due to the change in morbidity patterns, generated by demographic aging. Objective: To characterize health-related quality of life from the nomothetic perspective and its relationship with variables of people and time. Methods: A descriptive and cross-sectional study was carried out with 200 adults with a diagnosis of diabetes mellitus, hypertension, or both, cared for at Daniel Álvarez center, in Loja, who met several criteria. Means and standard deviations were calculated, together with percentages. Significance tests such as ANOVA, comparison of means in independent samples, and analysis of contingency tables were carried out, using likelihood ratio, with a significance level of 5 percent. Results: The average score for quality of life was 2.90, without significant associations with the variables investigated (0.05). The physical (3.30) and social relations (3.09) dimensions scored higher, while the psychological (2.71) and the environmental (2.70) scored lower. Only schooling, for the psychological dimension (P=0.03), was significantly associated with its achieved score. Conclusions: The global health-related quality of life in the adults under study, from a nomothetic perspective, showed an acceptable level, not associated with any of the variables analyzed. The psychological and environmental domains obtained the worst scores, while the physical and social relations dimensions exhibited levels higher than the global one(AU)

Humans , Male , Female , Quality of Life , Diabetes Mellitus/diagnosis , Noncommunicable Diseases/epidemiology , Hypertension/diagnosis , Epidemiology, Descriptive , Cross-Sectional Studies
Säo Paulo med. j ; 139(5): 443-451, May 2021. tab
Article in English | LILACS-Express | LILACS | ID: biblio-1290264


ABSTRACT BACKGROUND: Lifestyle is strongly involved in the pathogenesis and progression of non-communicable diseases, and has a great impact on quality of life. The goal of the present study was to analyze the lifestyle and body composition (BC) of young university students during the pandemic, and their relationship with health-related quality of life (HrQoL). DESIGN AND SETTING: Observational cross-sectional study conducted in the Universidad Europea de Madrid, Spain. METHODS: A total sample of 56 healthy university students was recruited. Activity, sitting time, adherence to Mediterranean diet and BC were measured. RESULTS: Regarding BC, only 5% and 10.7% of the subjects had health risk values for waist circumference and waist-to-height ratio, respectively. The mean daily sitting-time was 8.26 hours, while 19.64% of the subjects spent . 10 hours per day sitting. 92.86% of the subjects complied with the World Health Organization 2020 physical activity recommendations. The mean PREDIMED score was 7.41, while 51.8% of the subjects had low adherence to the Mediterranean diet. Regarding HrQoL, 22 subjects (39.2%) and 26 subjects (46.4%) were in the lowest quintile of physical component summary and mental component summary, respectively, according to the reference values for their age range. There was a negative correlation between physical function and sitting time (r = -0.38). CONCLUSIONS: There were high levels of sedentary behavior and low HrQoL values, with a negative moderate correlation between these variables. The findings from the present study especially highlight the importance of implementing public health programs targeting reduction of sitting time among university students.

Ciênc. Saúde Colet ; 26(4): 1489-1500, abr. 2021. tab, graf
Article in English | LILACS | ID: biblio-1285931


Abstract Food insecurity is a complex phenomenon that affects the health and wellbeing of vulnerable families. The aim of this study was to investigate the relationship between household food insecurity, dental caries, oral health-related quality of life, and social determinants of health among Indigenous adults. A cross-sectional study was conducted among Kaingang adults aged 35-44 years old from the Guarita Indigenous Land, Brazil. Food insecurity was assessed through the EBIA scale. Dental caries was assessed using the DMFT index. Participants answered the OHIP-14 questionnaire and a structured interview. Descriptive and multivariate analyzes using Poisson regression models were performed. The final sample included 107 adults from 97 households. Approximately 95% lived in food insecure families. Severe food insecurity was present in 58% of the households. The phenomenon was associated to the Bolsa Família benefit, household size, and greater perception of oral health impacts on quality of life. The high number of families affected by food insecurity reveals the social vulnerability of the Kaingang people. Food insecurity in Kaingangs adults is associated to oral health perception and social determinants of health.

Resumo Insegurança alimentar é um fenômeno complexo que afeta a saúde e o bem-estar de famílias vulneráveis. Este estudo objetivou investigar a relação entre insegurança alimentar domiciliar, cárie dentária, qualidade de vida relacionada à saúde bucal, e determinantes sociais de saúde entre indígenas adultos. Foi conduzido um estudo transversal com adultos Kaingang entre 35-44 anos da Terra Indígena Guarita, Brasil. Insegurança alimentar foi avaliada pela escala EBIA. Cárie dentária foi avaliada pelo índice CPOD. Participantes responderam o questionário OHIP-14 e uma entrevista estruturada. Foram realizadas análises descritivas e multivariadas usando modelos de regressão de Poisson. A amostra incluiu 107 adultos Kaingang de 97 domicílios. Aproximadamente 95% dos participantes viviam em famílias com insegurança alimentar. Insegurança alimentar grave esteve presente em 58% dos domicílios. O fenômeno foi associado ao Bolsa Família, densidade familiar e percepção dos impactos da saúde bucal na qualidade de vida. O alto número de famílias afetadas pela insegurança alimentar revela a vulnerabilidade social do povo Kaingang. Insegurança alimentar em adultos Kaingang está associada à percepção da saúde bucal e determinantes sociais da saúde.

Humans , Adult , Quality of Life , Dental Caries/epidemiology , Socioeconomic Factors , Brazil/epidemiology , Cross-Sectional Studies , Food Supply , Food Insecurity
Article in Chinese | WPRIM | ID: wpr-907811


Objective:To estimate and analyze the occurrence of post-thyroidectomy syndrome (PTS) following endoscopic thyroidectomy via areola approach (ETAA) vs open thyroidectomy (OT) .Methods:Data of 903 consecutive cases, aged from 20 to 66 with 231 males and 672 females, in Department of General Surgery, Ruijin Hospital, Shanghai Jiaotong University School of Medicine, from Jan. 2016 to Dec. 2017 were analyzed retrospectively. They were enrolled according to the same criteria. Based on different procedures, the cases were divided into ETAA group (n=162) and OT group (n=741) . Intraoperative procedure was according to unified principle. Drainage tube was removed if 24-hour drainage volume was less than 20 ml. Following-up was implemented by telephone or outpatient clinic. Data of 2 groups of 5 PTS items during 1 m, 3 m, 6 m and 1 y postoperatively and the scores of the medical outcomes study short form 36-item health survey (SF-36) V2 were analyzed by independent sample t test and repeated measures analysis of variance. Results:The patients of 2 groups were all followed up for more than 1 y with 43 cases censored (4.8%) . Demographic data of the rest of 2 groups were not different statistically ( P>0.05) . Median of every phase scores of the 5 items of PTS were 0 to 1. Scores of the 5 items were decreased gradually in accordance with time factor ( P=0.000) . The scores of peculiar feeling at the surgical site and discomfort in neck were different statistically during 1 m and 3 m postoperatively ( P=0.000) . Incidence of peculiar feeling at the surgical site in 1 m and 3 m postoperatively in ETAA group (54, 38.8% and 8, 5.8%) was higher than that in OT group (153, 21.2% and 20, 2.8%) . However, incidence of discomfort in neck in ETAA group (14, 10.1% and 0) was lower than in OT group (194, 26.9% and 53, 7.4%) . The other 3 items at all phases were not different statistically ( P>0.05) . The SF-36 V2 scores at 1 y postoperatively of 2 groups were not different statistically ( P=0.458) . Conclusions:PTS is a common symptom after OT or ETAA. It is frequent within early phase after thyroidectomy and is decreased significantly within 6 m. Peculiar feeling at the surgical site occurs less in OT than in ETAA in early postoperative phase and discomfort in neck occurs more, conversely.

Article in English | WPRIM | ID: wpr-922712


@#Introduction: The World Health Organisation (WHO) has estimated that 80% of people with osteoarthritis (OA) have movement limitations while 25% of them cannot perform their major daily activities, thus resulting in a decline of their nutritional status and quality of life (QOL). Therefore, this study aimed to compare the nutritional status and healthrelated quality of life (HRQOL) of OA patients between gender and age group. Material and methods: A cross-sectional study was conducted on 131 OA patients in Rehabilitation Health Organisation, Terengganu. Socio-demographic, clinical, lifestyle histories, 24-hour dietary intake and HRQOL were assessed using a structured questionnaire. Results: Knee and/or hip OA patients recruited consisted of 19.1% of men and 80.9 % of women collectively with a mean age of 61.81 (9.28) years ranging from 38 to 83 years. The percentages of underweight, normal, overweight, and obese patients were 1.5%, 12.2%, 36.7%, and 49.6%, respectively. Further assessment of HRQOL showed that the highest mean score was obtained by the social functioning (SF) domain of 41.25 (27.16), while the mental domain scored the least mean score of 21.15 (20.92). In terms of gender breakdown, the males had significantly greater weight and height but lower body fat (BF) compared to their female counterparts, as well as a significantly higher energy, carbohydrate and protein intake. According to the age group, patients aged < 60 years had significantly greater weight, height, and BF than those aged ≥ 60 years. Conclusion: This study is an important baseline reference for proper OA management and prevention by providing crucial nutritional status and HRQOL information.

Article in English | WPRIM | ID: wpr-880660


Idiopathic pulmonary fibrosis (IPF) is a chronic fatal pulmonary disease characterized by complex illness condition. There is no effective treatment at present except lung transplantation. The comprehensive evaluation is helpful for the management of patients with IPF in hierarchical stages. Therefore, it is very important to evaluate IPF by various independent factors. At present, the commonly used methods for clinical evaluation on IPF include assessment of health-related quality of life, assessment of physiological function, assessment of imaging, assessment of laboratory examination, and multi-dimensional assessment system. However, there are different advantages and disadvantages on diverse evaluation methods for the evaluation of IPF.

Humans , Idiopathic Pulmonary Fibrosis/diagnosis , Quality of Life
Rev. Soc. Bras. Med. Trop ; 54: e0759-2020, 2021. tab
Article in English | LILACS | ID: biblio-1155599


Abstract INTRODUCTION: Human immunodeficiency virus (HIV) and human T-cell leukemia virus-1 (HTLV-1) viruses are associated with a high global burden of disease, and coinfection is a frequently reported event. We aimed to compare the functioning and health-related quality of life (HRQoL) of patients infected with HTLV-1, HIV, and HIV-HTLV-1. METHODS: We conducted a cross-sectional study of patients older than 18 years who had an HTLV-1 infection (Group A), HIV infection (Group B), or HIV-HTLV-1 coinfection (Group C). The functioning profiles were evaluated using handgrip strength, Berg balance scale (BBS), timed "up and go" (TUG) test, and 5-m walk test (m/s). We used the World Health Organization Disability Assessment Schedule (WHODAS 2.0) questionnaire to measure disability. The HRQoL was evaluated using a 36-item short-form health survey. For data with parametric and non-parametric distribution, we used analysis of variance with Bonferroni correction and the Kruskal-Wallis test, followed by Dunn's pairwise tests with Bonferroni correction. RESULTS: We enrolled 68 patients in Group A, 39 in Group B, and 29 in Group C. The scores for handgrip strength, BBS, TUG test, all the WHODAS domains, and HRQoL were poorer for Groups A and C than for Group B. CONCLUSIONS: Compared to patients with HIV infection, those with HIV-HTLV-1 coinfection and HTLV-1 infection had poor functioning and HRQoL scores. HTLV-1 infection was associated with reduced functioning and HRQoL in patients with a single HTLV-1 infection and HIV-HTLV-1 coinfection.

Humans , Human T-lymphotropic virus 1 , HTLV-I Infections/complications , HIV Infections/complications , Coinfection , Quality of Life , Cross-Sectional Studies , Hand Strength
Rev. latinoam. enferm. (Online) ; 29: e3423, 2021. tab
Article in English | LILACS, BDENF | ID: biblio-1251889


Objective: to analyze the effect of parental mutuality on the quality of life related to the health of mothers who care for children with special health needs. Method: an observational, analytical and cross-sectional study with a quantitative approach. The following instruments were applied to 181 caregiving mothers: The Medical Outcomes Study 36-Item Short Form and Family Management Measure (Parental Mutuality subscale). In the statistical analysis, Spearman's correlation and univariate and multivariate linear regression were used. Results: the total score of parental mutuality was 30.8, indicating a satisfactory perception of the caregiving mother about the way the couple shares decisions regarding the care of the child. In the multivariate regression analysis, parental mutuality maintained a statistically significant association with the domains of pain, social aspects and emotional limitations of quality of life related to health (p=<0.001, 0.003, 0.002), respectively. Conclusion: parental mutuality has a positive effect on some domains of quality of life related to health. It is recommended to plan actions aimed at strengthening the complicity and connection between the couple, especially in matters related to the care of the child with special health needs.

Objetivo: analisar o efeito da mutualidade parental na qualidade de vida relacionada à saúde das mães cuidadoras de crianças com necessidades especiais de saúde. Método: estudo observacional, analítico, transversal e de abordagem quantitativa. Foram aplicados em 181 mães cuidadoras os seguintes instrumentos: The Medical Outcomes Study 36-Item Short Form e Family Management Measure (subescala Mutualidade parental). Na análise estatística, utilizou-se correlação de Spearman e regressão linear univariada e multivariada. Resultados: o escore total da mutualidade parental foi 30,8, indicando uma percepção satisfatória da mãe cuidadora sobre a forma como o casal compartilha as decisões com relação ao cuidado do filho. Na análise de regressão multivariada, a mutualidade parental manteve associação estatisticamente significante com os domínios dor, aspectos sociais e limitações emocionais da qualidade de vida relacionada à saúde (p=<0,001, 0,003, 0,002), respectivamente. Conclusão: a mutualidade parental exerce efeito positivo sob alguns domínios da qualidade de vida relacionada à saúde. Recomenda-se o planejamento de ações direcionadas ao fortalecimento da cumplicidade e conexão entre o casal, sobretudo nas questões relacionadas ao cuidado do filho com necessidades especiais de saúde.

Objetivo: analizar el efecto de la mutualidad parental en la calidad de vida en lo que respecta a la salud de las madres cuidadoras de niños con necesidades especiales de salud. Método: estudio observacional, analítico, transversal y de abordaje cuantitativo. Fueron aplicados, a 181 madres cuidadoras, los siguientes instrumentos: The Medical Outcomes Study 36-Item Short Form y Family Management Measure (subescala Mutualidad parental). En el análisis estadístico, se utilizó correlación de Spearman y regresión lineal univariada y multivariada. Resultados: la puntuación total de la mutualidad parental fue de 30,8, indicando una percepción satisfactoria de la madre cuidadora sobre la forma en la que la pareja comparte las decisiones respecto del cuidado de los hijos. En el análisis de regresión multivariada, la mutualidad parental tiene una asociación estadísticamente significativa con los dominios: dolor, aspectos sociales y limitaciones emocionales de la calidad de vida relacionada con la salud (p=<0,001, 0,003, 0,002), respectivamente. Conclusión: la mutualidad parental tiene un efecto positivo sobre algunos dominios de la calidad de vida relacionada con la salud. Se recomienda la planificación de acciones orientadas al fortalecimiento de la complicidad y la conexión en la pareja, fundamentalmente, en cuestiones relacionadas con el cuidado del hijo con necesidades especiales de salud.

Humans , Male , Female , Child, Preschool , Child , Adolescent , Adult , Quality of Life , Surveys and Questionnaires , Caregivers/psychology , Disabled Persons , Mother-Child Relations , Mothers/psychology
West Indian med. j ; 69(2): 121-128, 2021. tab, graf
Article in English | LILACS-Express | LILACS | ID: biblio-1341877


ABSTRACT Objective: To examine the effect of body awareness therapy on pain, fatigue and quality of life in women with tension-type headaches (TTH) and migraine. Methods: Socio-demographic features of patients who are included in the study were recorded. Visual analogue scale was used for pain and fatigue severity scale was used for fatigue, Nottingham health profile (NHP) was used for life quality related to health. Following the first evaluation, body awareness therapy (BAT) was applied to patients for six weeks per 60 minutes in three sessions. Results: Among patients with TTH, there was statistical difference between visual analogue scale, fatigue severity scale and total NHP score before and after BAT (p < 0.05). Among patients with migraine, there was statistical difference between total NHP score before and after BAT (p < 0.05). Conclusion: Body awareness therapy is an effective method that can be used in order to increase life quality related to health among female patients with TTH and migraine.

Rev. Fac. Nac. Salud Pública ; 38(3): e339336, sep.-dic. 2020. tab, graf
Article in Spanish | LILACS-Express | LILACS | ID: biblio-1288003


Resumen Objetivo: Determinar la calidad de vida relacionada con la salud (cvrs) en niñas, niños y adolescentes entre 8 y 18 años, vinculados a la modalidad hogar sustituto-vulneración, en los municipios de El Líbano y Honda, del departamento de Tolima. Metodología: Estudio de corte, en una muestra no aleatoria de 77 niñas, niños y adolescentes, de 35 hogares sustitutos, a quienes se les aplicó el kidscreen-52, constituido por ocho dimensiones que puntúan en sentido positivo (autopercepción, autonomía, relación con los padres y vida familiar, sentimientos, recursos económicos, actividad física y salud, amigos y apoyo social, y entorno escolar) y dos con sentido negativo (estado de ánimo y aceptación social). Para la estimación del índice global de cvrs (igcvrs), se utilizó el kidscreen-10. Resultados: La media del igcvrs fue de 69,9 puntos (desviación estándar = 18,2). Cuando se cotejó el puntaje promedio del igcvrs con el de las dimensiones, la "aceptación social", los "sentimientos", el "entorno escolar" y la "autopercepción" alcanzaron, como mínimo, el puntaje promedio del igcvrs, en contraste con los puntajes de las dimensiones "actividad física y salud", "vida familiar", "estado de ánimo", "amigos", "autonomía" y "dinero". El 46,8 % valoró excelente su estado de salud, y el 9,1 %, regular. Conclusión: Es útil implementar una valoración basada en el perfil de vulnerabilidad-generatividad familiar y elaborar un perfil de la niña, del niño o de la o el adolescente, teniendo en cuenta sus dificultades y problemáticas psicosociales, lo que mejorará los procesos de autonomía, estado de ánimo, vida familiar, autopercepción y apoyo social.

Abstract Objective: To determine the quality of life related to health (CVRS) in girls, boys and adolescents between 8 and 18 years old, linked to home substitution-violation, in the municipalities of El Líbano and Honda in the department of Tolima. Methodology: A cross-sectional study in a non-random sample of 77 girls, boys and adolescents from 35 foster homes, to whom KIDSCREEN-52 was applied, consisting of eight dimensions that score positively (self-perception, autonomy, relationship with parents and family life, feelings, financial resources, physical activity and health, friends and social support, and school environment) and two negatively (mood and social acceptance). The KIDSCREEN-10 was used for the estimation of the overall CVRS index (IGCVRS). Results: The mean of the IGCVRS was 69.9 points (standard deviation = 18.2). When the average IGCVRS score was compared with that of the dimensions, "social acceptance", "feelings", "school environment" and "self-perception" reached, as a minimum, the average IGCVRS score, in contrast to the scores of the "physical activity and health", "family life", "state of mind", "friends", "autonomy" and "money" dimensions. 46.8% rated their health status as excellent, and 9.1%, fair. Conclusion: It is useful to implement assessment based on the family vulnerability-generativity profile and create a profile for the girl, boy or adolescent, taking into account their psychosocial difficulties and problems, which will improve the processes of autonomy, state of encouragement, family life, self-perception and social support.

Resumo Objetivo: Determinar a qualidade de vida relacionada com a saúde (CVRS) em crianças e adolescentes entre 8 e 18 anos, vinculados à modalidade lar substituto-vulnerabilidade, nos municípios de El Líbano e Honda, no estado de Tolima. Metodologia: Estudo de corte, numa amostra não aleatória de 77 crianças e adolescentes de 35 lares substitutos, a qual foi aplicada o KIDSCREEN-52, constituído por oito dimensões que marcam em sentido positivo (autopercepção, autonomia, relação com os pais e a vida familiar, sentimentos, recursos econômicos, atividade física e saúde, amigos e apoio social e ambiente escolar) e duas com sentido negativo (estado de ânimo e aceitação social). Para a estimativa do índice global de CRVS (IGCVRS) utilizou-se o KIDSCREEN-10. Resultados: A média do IGCVRS foi de 69,9% pontos (desvio padrão = 18,2). Quando a pontuação média do IGCVRS foi verificada com a pontuação das dimensões, (aceitação social, sentimentos, ambiente escolar e autopercepção), atingiram como mínimo a pontuação média do IGCVRS, contrastando com as pontuações das dimensões (atividade física e saúde, vida familiar, estado de ânimo, amigos, autonomia e dinheiro). Um total de 46,8% avaliou como excelente seu estado de saúde e 9,1% como regular. Conclusão: É útil programar uma avaliação baseada no perfil de vulnerabilidade-geratividade familiar e elaborar um perfil da criança ou do adolescente, considerando suas dificuldades e problemas psicossociais, o que pode melhorar os processos de autonomia, estado de ânimo, vida familiar, autopercepção e apoio social.

Arch. endocrinol. metab. (Online) ; 64(6): 710-719, Nov.-Dec. 2020. tab, graf
Article in English | LILACS-Express | LILACS | ID: biblio-1142208


ABSTRACT Objective The aim of this study was to translate and cross-culturally adapt the Insulin Delivery System Rating Questionnaire (IDSRQ) for Brazilian users. Validation and reliability analysis of measures were also performed. Materials and methods Methodological study comprising the following stages: forward translation, synthesis, back-translation, assessment by Expert Committee, pre-test and validation. International guidelines for translation and cross-cultural adaptation of measurement tools were followed. Validation data provided information about reliability (internal consistency, test-retest) and construct validity of the IDSRQ. Results Content validation by Experts' assessment was successful, with a mean Content Validity Index of 0.87 (±0.2). The IDSRQ validation study involved 113 T1DM patients, 46% male, mean age 32.61 (±12.59) years and mean age at diagnosis of diabetes of 17.51 (±12.41). The scale presented good internal consistency (Cronbach's alpha =0.786). The reliability analysis of the instrument was conducted by calculating the Intra-class Correlation Coefficient 0.885 (0.834-0.921), which indicated adequate concordance in all measures. Conclusion The translated and cross-culturally adapted Brazilian Portuguese version of the IDSRQ may be used to assess health-related quality of life (HRQOL) and treatment preferences for insulin delivery systems in T1DM Brazilian patients.

Biosci. j. (Online) ; 36(6): 2330-2343, 01-11-2020. tab, ilust
Article in English | LILACS | ID: biblio-1148396


To evaluate the quality of life and the influence of sociodemographic and clinical variables in patients undergoing treatment for head and neck cancer. Method: Quantitative, cross-sectional study. Two instruments were used: sociodemographic and clinical questionnaire and the Functional Assessment Cancer Therapy Head Neck (FACT-HN). Results: 170 respondents, 60.6% male, 51.2% married, with laryngeal cancer being the most found (34.7%) of the total sample, 78.8% underwent surgical procedures. In FACT-HN, the variables that showed significance were: educational level, professional activity and salary income. Only in the subscale additional head and neck cancer specific concerns (HNSC) were significant: type of cancer, staging, chemotherapy and surgical treatment. Conclusions: The research contributes by showing that predictive factors of quality of life are also socioeconomic issues and not just clinical issues related to the therapeutic approach. Assistance planning is essential to provide support for rehabilitation and reintegration into society.

Objetivo: Avaliar a qualidade de vida e a influência de variáveis sociodemográficas e clínicas, nos pacientes submetidos ao tratamento de câncer de cabeça e de pescoço. Método: Estudo quantitativo, transversal. Foram utilizados dois instrumentos: questionário sociodemográfico e clínico e o instrumento Functional Assessment Cancer Therapy Head Neck (FACT-HN). Resultados: 170 entrevistados, 60,6% do sexo masculino, 51,2% casados, sendo o câncer de laringe o mais encontrado (34,7%) do total da amostra, 78,8% realizaram procedimento cirúrgico. No FACT-HN, as variáveis que apresentaram significância foram: nível educacional, atividade profissional e renda salarial. Apenas na subescala preocupações adicionais específicas do câncer de cabeça e pescoço (PACP) foram significativos: tipo de câncer, estadiamento, tratamento quimioterápico e cirúrgico. Conclusões: A pesquisa contribui ao evidenciar que fatores preditores de qualidade de vida são também questões socioeconômicas e não apenas questões clínicas relacionadas a abordagem terapêutica. O planejamento da assistência é fundamental para fornecer um suporte com vistas a reabilitação e reinserção na sociedade.

Oncology Nursing , Quality of Life , Head and Neck Neoplasms
Arch. endocrinol. metab. (Online) ; 64(5): 575-583, Sept.-Oct. 2020. tab, graf
Article in English | LILACS-Express | LILACS | ID: biblio-1131130


ABSTRACT Objective This study aimed to establish the utility values of different health states associated with diabetic retinopathy in a Brazilian sample to provide input to model-based economic evaluations. Subjects and methods This cross-sectional study was performed in a sample of patients with type 2 diabetes mellitus (T2D) who underwent teleophthalmology screening at a primary care service from 2014 to 2016. Five diabetic retinopathy health states were defined: absent, non-sight-threatening, sight-threatening, and bilateral blindness. Utility values were estimated using the Brazilian EuroQol five dimensions (EQ-5D) tariffs. Descriptive statistics were calculated. Analysis of covariance was performed to adjust the utility values for potential confounders. Results The study included 206 patients. The mean (± standard deviation [SD]) utility value was 0.765 ± 0.19 (95% confidence interval [CI], 0.740-0.790). The adjusted mean utility value was 0.748 (95% CI, 0.698-0.798) in patients without diabetic retinopathy, 0.752 (95% CI, 0.679-0.825) in those with non-sight-threatening state, 0.628 (95% CI, 0.521-0.736) in those with sight-threatening state, and 0.355 (95% CI, 0.105-0.606) in those with bilateral blindness. A significant utility decrement was found between patients without diabetic retinopathy and those with a sight-threatening health state (0.748 vs. 0.628, respectively, p = 0.04). Conclusions The findings suggest that a later diabetic retinopathy health state is associated with a decrement in utility value compared with the absence of retinopathy in patients with T2D. The results may be useful as preliminary input to model-based economic evaluations. Further research is needed to investigate the impact of diabetic retinopathy on health-related quality of life in a sample more representative of the Brazilian population.

Article | IMSEAR | ID: sea-212579


Background: Psoriasis affects nearly 1% of the world population. It can be a source of significant morbidity and psychological stress to the patient but is not lethal under ordinary circumstances. Patients suffering from the disease feel a lack of empathy on part of care-givers, family members, healthcare professionals as well as society in general. Dermatology life quality index (DLQI) is a questionnaire-based assessment of health related quality of life in patients suffering from skin disorders and has been seen to correlate well with the impact of the disease on a patient. This study was done to understand the impact of psoriasis on the overall well-being of patients using DLQI as the tool of assessment.Methods: The study included 40 cases of psoriasis that were assessed for the severity of the disease based on percentage body surface area involvement. The impact of disease severity and other factors on the quality of life of the patient was assessed using DLQI.Results: Out of 35 patients with BSA involvement <50% (mild and moderate disease), 28.6% (n=10/35) showed a very large or extremely large effect on the quality of life while no patient with a BSA involvement >50% (severe and very severe disease) reported the same. A small, moderate or no effect on the DLQI was seen in 71.4% (n=25/35) of cases from the mild and moderate disease group while 100% (n=5/5) of cases from severe and very severe disease group reported a similar effect. Thus, DLQI was not directly related to the extent of BSA involvement and was dependent on other factors as well.Conclusion: Age had a correlation with the effect of the disease on the quality of life of psoriasis cases. Patients who were younger were more likely to report stress and anxiety related to the recurrences seen with the disease. Patients with lesions on sites that are socially exposed like face, hands, scalp, etc. were more likely to feel embarrassed about their condition. Younger age, female gender, lesions on exposed sites and recently diagnosed patients (<12 months) were factors which had a significant impact on the health-related quality of life of patients. The severity of disease and extent of involvement were not always directly related to extent of impact on the quality of life.

Int. arch. otorhinolaryngol. (Impr.) ; 24(3): 338-346, July-Sept. 2020. tab, graf
Article in English | LILACS-Express | LILACS | ID: biblio-1134147


Abstract Introduction Hearing impairment is a common disease worldwide, with a comprehensive impact, and cochlear implantation (CI) is an intervention for profound hearing impairment. Objective To study the outcome one and three years after unilateral CI on hearing, health-related quality of life and level of depression and anxiety, and the correlation between the outcomes. Second, to study whether age, gender, etiology, operated side, residual hearing or cognitive performance can predict the outcome. Methods A prospective longitudinal study including adults with profound postlingual hearing impairment, with respect to hearing (speech recognition), health-related quality of life (Health Utilities Index 3) and level of depression and anxiety (Hospital Anxiety and Depression scale), pre-CI, and one and three years post-CI. The total sample was composed of 40 participants (40% of men), with a mean age of 71 years. Results Speech recognition and the overall health-related quality of life improved one year post-CI (p= 0.000), without correlation (ρ= 0.27), and with no difference three years post-CI. The hearing attribute (in the health-related quality of life instrument) improved one and three years post-CI (p= 0.000). The level of anxiety did not change one and three years post-CI. The level of depression improved one year post-CI (p= 0.036), and deteriorated three years post-CI (p= 0.031). Age, etiology, operated side, residual hearing and cognitive performance did not predict the outcome, but the female gender did significantly improve speech recognition compared with men (p= 0.009). Conclusion The CI significantly improved speech recognition, health-related quality of life and level of depression one year post-CI without mutual correlation, and women performed significantly better than men. There were no further improvements three years post-CI, apart from the hearing attribute.

Article | IMSEAR | ID: sea-212511


Background: Lithium is considered first line drug effective in treating manic and mixed episodes of bipolar affective disorders throughout the globe. But the chronic and heterogenous nature of disease, along with toxicity of lithium often make patients non-adherent to medication as well as diminished health related quality of life. Present study was done to find out the prospect of regular supervision and follow up with therapeutic drug monitoring in optimization of lithium therapy based on health-related quality of life outcomes.Methods: It was a prospective, non-randomized, observational study of a cohort of subjects who are suffering from bipolar affective disorders and on lithium therapy. Patients were regularly followed up with therapeutic drug monitoring and personalized interview with questionnaires like WHO Quality of Life Score (QOL-Bref), Montgomery-Asberg Depression Scale (MADRS) and Medication Adherence Rating Scale (MARS).Results: Results revealed there was significant improvement in health-related quality of life of patients who were monitored with therapeutic drug monitoring and prescribed lithium therapy.Conclusions: Hence to maintain patients’ quality of life improved throughout the cycle of bipolar disorder spectrum, regular follow-up visits with monitoring of serum levels of lithium is needed, so that adverse effects would be minimal and adherence to medication become optimal. These optimal dosing resulting in optimal benefit to patients can be achieved with the involvement of clinical pharmacological consultation.

Arch. argent. pediatr ; 118(4): 252-: I-257, I, agosto 2020. tab, ilus
Article in English, Spanish | LILACS, BINACIS | ID: biblio-1118488


Introducción. La calidad de vida relacionada con la salud (CVRS) es una medida de resultado de salud. Evalúa el impacto subjetivo y global de las enfermedades en la vida cotidiana. Brinda información multidimensional sobre el bienestar físico, relación familiar y sus pares. Los estudios de CVRS de hermanos son limitados.Objetivo. Comparar CVRS de los hermanos de pacientes pediátricos con patologías reumáticas crónicas, trasplante renal o hepático con la de niños sanos con hermanos sin enfermedades crónicas.Resultados. Se compararon hermanos de niños con trasplante renal (n: 65), trasplante hepático (n: 35) y patologías reumáticas crónicas (n: 36) con el grupo control de niños sanos (n: 51). El grupo total de hermanos tuvieron puntuación más baja, estadísticamente significativa, en las dimensiones bienestar físico, amigos-apoyo social y recursos económicos. Los hermanos de trasplante renal tuvieron baja puntuación en las dimensiones de bienestar físico (p < 0,02; tamaño del efecto ­TE­: 0,66) y recursos económicos (p < 0,01; TE: 0,66). Los hermanos de trasplante hepático percibieron menor bienestar físico (p = 0,04), tenían menos amigos y apoyo social (p < 0,01), dificultades en el entorno escolar (p < 0,02) y recursos económicos (p < 0,01). Los hermanos de patologías reumáticas crónicas tuvieron menor bienestar físico (p < 0,05; TE: 0,44) y apoyo social-amigos (p < 0,01; TE: 0,58).Conclusión. La CVRS de niños/as sanos de hermanos con patologías crónicas es menor en bienestar físico, amigos-apoyo social y recursos económicos comparada con el grupo de niños sanos.

Introduction. Health-related quality of life (HRQoL) is a measure of health outcomes. It assesses the subjective and overall impact of diseases on daily life. It also provides multidimensional data about physical well-being, family and peers relations. HRQoL studies on siblings are limited.Objective. To compare HRQoL among siblings of pediatric patients with chronic rheumatic diseases, kidney or liver transplant and healthy children whose siblings had no chronic conditions.Results. The siblings of children with kidney transplant (n: 65), liver transplant (n: 35), and chronic rheumatic diseases (n: 36) were compared to the healthy children group (n: 51). The total siblings group had a lower, statistically significant score in the physical well-being, social support and peers, and financial resources dimensions. The siblings of kidney transplant patients had a low score in the physical well-being (p < 0.02; effect size [ES]: 0.66) and financial resources (p < 0.01; ES: 0.66) dimensions. The siblings of liver transplant patients perceived a lower physical well-being (p = 0.04), less social support and peers(p < 0.01), and difficulties in relation to school environment (p < 0.02) and financial resources (p < 0.01). The siblings of those with chronic rheumatic diseases had a lower score in the physical well-being (p < 0.05; ES: 0.44) and social support and peers (p < 0.01; ES: 0.58) dimensions.Conclusion. HRQoL among healthy children whose siblings have a chronic disease was lower in the physical well-being, social support and peers, and financial resources dimensions compared to the healthy children group.

Humans , Male , Female , Child, Preschool , Child , Adolescent , Quality of Life , Chronic Disease , Patients , Social Support , Case-Control Studies , Cross-Sectional Studies , Siblings , Family Relations
Article | IMSEAR | ID: sea-206205


Background: In the rehabilitative management of persons with stroke, more efforts are emphasized to improve motor and cognitive impairments. However, assessment and health promotion of the fitness of stroke patients in a community set up and Quality of life have so far received limited attention. The goal was to determine the efficacy of community based FAME program in patients with chronic stroke. Objectives: To examine the effects of a community-based group exercise program in improving the health related quality of life in subjects with chronic stroke. Design: Randomized control group trial Participants: Fifty eight chronic stroke individuals (aged 45-65 years) who were living in the community. Intervention: Participants were randomized into experimental group (n =29) and control group (n=29). The experimental group underwent a fitness and mobility exercise (FAME) program along with strengthening exercises designed to improve fitness, mobility and quality of life (1-hour sessions, three sessions/week, for 14 weeks). The control group underwent strengthening program. Measurements: The health related quality of life was assessed by SS-QoL (Stroke Specific Quality of Life) in day zero, 8th week and end of 14th week. Results: The experimental group had showed significantly more gains in Quality of Life when compared to control Group. (p<0.001) Conclusion: The FAME program is feasible and beneficial in improving the quality of life and may prevent some of the secondary complications resulting from physical inactivity in older adults living with stroke. It serves as a good model of a community-based fitness program for preventing secondary diseases in older adults living with chronic conditions.