ABSTRACT
Introduction: Cerebral Palsy (CP) is the most prevalent diagnosis in Teleton Institutes in Chile. The syndrome is characterized by a non progressive brain lesion that causes an impact in different areas of development. It is our interest to study how adolescents with CP symbolize this experience, given that identity formation and self representation are key aspects during this developmental stage. Objective: To describe meanings build in mild hemiplegic CP, from 12 to 16 years of age, attending Teleton Institute Temuco. Subjects and Method: Qualitative study, exploratory descriptive type, phenomenological. Data were gathered through semi-structured interviews applied to 10 adolescents, and a focus group with 4 of these, both experiences included patients from 12 to 16 years with mild hemiplegic CP and intellectual capacity to answer medium complexity questions. Results: Adolescents describe hemiplegia as a condition characterized by physical differences, as a disability and a challenge, they recognize its origins and the beliefs they perceive in others. It is not considered an illness and as implications they count experiences, needs and problems that are part of this condition, however, they are able to reformulate this experience, holding a positive and resilient view towards their condition. Conclusion: Adolescents express similitudes between the concept of hemiplegia and disability; they point it as a complex experience that brings negative consequences as well as learning experiences. They are finally able to reformulate it and experience it as a challenge.
Introducción: La parálisis cerebral (PC) es el diagnóstico con mayor incidencia en los Institutos Teletón (IT) del país. Este síndrome está determinado por una lesión cerebral de carácter no progresivo, que puede tener implicancias en los distintos ámbitos del desarrollo. El cómo simbolizan esta experiencia adolescentes con PC tipo hemiparesia, es de nuestro interés, considerando que la formación de la identidad y la representación de sí mismos en esta etapa son claves. Objetivo: Describir los significados construidos en torno a la PC tipo hemiparesia leve, de adolescentes de 12 a 16 años de ITTemuco. Usuarios y Método: Investigación cualitativa de tipo exploratorio descriptivo, fenomenológica. Recolección de datos a través de entrevista semi estructurada aplicada a 10 usuarios y un grupo focal realizado con 4 participantes, en ambas instancias con la participación de jóvenes de 12 a 16 años con PC de tipo hemiparesia leve y capacidad cognitiva para responder a preguntas de mediana complejidad. Resultados: Los jóvenes definen la hemiparesia como una condición caracterizada por diferencias físicas, como una discapacidad y un desafío, reconocen sus orígenes y las creencias que perciben en otros. No es considerada como enfermedad y como implicancias indican vivencias, experiencias, necesidades y problemas que conlleva esta condición, no obstante, logran re-significar esta experiencia manteniendo una mirada positiva y resiliente en relación a su condición. Conclusión: Los adolescentes expresan similitudes entre el concepto de hemiparesia y discapacidad, las significan como una experiencia compleja que trae consecuencias negativas así como aprendizajes, logrando re-significarla y vivenciarla finalmente como un desafío.
Subject(s)
Humans , Male , Adolescent , Female , Child , Quality of Life/psychology , Cerebral Palsy/psychology , Self Concept , Paresis/psychology , Qualitative ResearchABSTRACT
Introducción: Motor Activity Log (MAL) es una entrevista estructurada, que evalúa el uso del brazo parético en pacientes con Accidente Cerebro Vascular. MAL fue traducida al español y validada. Objetivo: Examinar la confiabilidad y validez de constructo entre MAL, Action Research Arm (ARA), edad, dolor y la escala Stroke Impact Scale 3.0 (SIS). Método: Fueron evaluados 40 pacientes del sistema público de salud. En la primera medición se aplicó una ficha clínica y demográfica, MAL-30 y ARA. Un mes después; en la segunda medición se aplicó MAL-30, ARA y SIS 3.0. Mediciones: la confiabilidad fue evaluada a través de la consistencia interna de los puntajes de cantidad y calidad de MAL-30, los puntajes de ARA y la subescala función de la mano de SIS 3.0. El grado de acuerdo entre las escalas de MAL se evaluó a través de r Pearson. La validez de constructo fue evaluada por correlación entre los puntajes de la primera y segunda medición de cantidad y calidad de MAL, ARA, edad, dolor y espasticidad. Así también, entre los puntajes de la segunda medición de MAL y función de la mano utilizando r Pearson y rho de Spearman. Resultados: MAL-30 mostró adecuada consistencia interna y estabilidad temporal. Además, de una apropiada validez de constructo correlacionando significativamente y en la dirección esperada con ARA, función de la mano, edad, dolor y espasticidad. Conclusiones: la evidencia indica que MAL-30 es un instrumento confiable y válido para evaluar el uso del brazo parético en pacientes de habla hispana.
Background: Motor Activity Log (MAL) a structured interview for stroke patients to assess the use of their paretic arm. MAL was translated and validated in Spanish. Objective: Examine the reliability and construct validity between MAL, Action Research Arm (ARA), age, pain and Stroke Impact Scale 3.0 (SIS). Methods: 40 patients from the Public Health System were evaluated. The first measurement in which clinical and socio demographic background, MAL-30 and ARA were applied. A month later; the second measurement was applied using MAL-30, ARA, and SIS 3.0. Outcome measures: The reliability was evaluated, as the internal consistency for scores of quantity and quality of movement, as well as for scores of ARA and hand function subscale SIS 3.0. The degree of agreement MAL scales, assessed through the Pearson r. Construct validity assessed by correlating scores of the first and second measurement of quantity and quality of MAL, ARA, age, pain and spasticity. As well as between the scores of the second measurement of MAL and hand function of SIS 3.0, using the Pearson r and Spearman rho. Results: The quantity and quality scores of MAL-30 showed adequate levels of both internal consistency and temporal stability. In addition to an appropriate construct validity by correlating, significantly and in the expected direction, with ARA and the hand function, as well as with age, pain and spasticity. Conclusions: The evidence indicates that MAL-30 is a reliable and valid instrument to evaluate the use of the paretic arm in Spanish language patients.
Subject(s)
Humans , Male , Adolescent , Adult , Female , Young Adult , Middle Aged , Aged, 80 and over , Stroke/psychology , Motor Activity , Paresis/psychology , Surveys and Questionnaires , Activities of Daily Living , Stroke/rehabilitation , Disability Evaluation , Longitudinal Studies , Psychometrics , Paresis/rehabilitation , Reproducibility of Results , Upper ExtremityABSTRACT
PURPOSE: To present the preliminary results of neuropsychological assessment for children with congenital and acquired hemiparesis with or not seizures. METHODS: Nine children at a age of 5 and 14 years old, were studied individually by one battery of test to neuropsychological assessment of cognitive function, language, gnosia, praxia visuo-motor and memory processing and emotional aspect. RESULTS: Children with hemiparesis demonstrated minimal or severe cognitive dysfuctions, impaired language abilities, poor visuo-motor and memory processing and alteration in emotional aspect. Acquired hemiparesis with seizures in childhood had a severe cognitive deficits, but congenital hemiparesis with or not seizures the neuropsychological assessment demonstrate minimal or moderate cortical deficits. CONCLUSIONS: Theses preliminary results demonstrated that congenital or acquired hemiparesis associated or not with seizures present cortical dysfuctions. The worst results was observed in acquired hemiparesis with epileptic seizures.