ABSTRACT
Resumo Objetivo O estudo foi realizado para revelar vivências de adolescentes e suas famílias a curto prazo após a cirurgia para correção de escoliose. Métodos Este estudo teve um delineamento descritivo qualitativo, e os dados foram coletados de adolescentes com história de cirurgia para correção de escoliose (n=17) e seus familiares (n=9), através de entrevistas em profundidade. Os dados assim obtidos foram analisados usando análise de conteúdo. Resultados Surgiram cinco temas principais: queixas físicas, ambiente desconhecido (centro cirúrgico e unidade de terapia intensiva), mudanças emocionais, querendo que seus pais fiquem com eles e preocupações com o futuro. Tanto os adolescentes como seus familiares relataram que os adolescentes experimentaram não só problemas físicos e emocionais mas também preocupações com o futuro após a cirurgia. Conclusão Os enfermeiros devem ficar junto com os adolescentes e suas famílias e permitir que eles expressem seus sentimentos antes da cirurgia. É importante informá-los antes da cirurgia para aliviar sua ansiedade e melhorar a adaptação. Criar um ambiente adequado em salas de recuperação e unidades de terapia intensiva, onde os adolescentes podem frequentemente ver seus pais, pode ajudá-los a ter um psiquismo melhor. Além disso, programas educacionais devem ser propostos para serem oferecidos no momento da alta e métodos interativos devem ser usados para permitir que eles compartilhem seus pensamentos sobre o futuro.
Resumen Objetivo Este estudio se realizó para revelar experiencias de adolescentes y sus familias a corto plazo después de la cirugía para la corrección de escoliosis. Métodos Este estudio tuvo un delineamiento descriptivo cualitativo y se recogieron datos de adolescentes con histórico de cirugía para la corrección de escoliosis (n = 17) y sus familiares (n = 9), a través de entrevistas en profundidad. Los datos obtenidos se analizaron utilizando el análisis de contenido. Resultados Surgieron cinco temas principales: quejas físicas, entorno desconocido (la sala de operaciones y la unidad de terapia intensiva), cambios emocionales, queriendo que sus padres se queden con ellos y preocupaciones por el futuro. Tanto los adolescentes como sus familiares relataron que los adolescentes experimentaron no solo problemas físicos y emocionales como también preocupaciones con el futuro después de la cirugía. Conclusión Los enfermeros deben acompañar a los adolescentes y sus familias y permitirles que expresen sus sentimientos antes de la cirugía. Es importante mantenerlos informados antes de la cirugía para aliviar su ansiedad y mejorar la adaptación. Crear un ambiente adecuado en salas de recuperación y unidades de terapia intensiva, donde los adolescentes puedan ver a sus padres a menudo, puede ayudarlos a tener una psique mejor. Además, los programas educativos deben ser propuestos para ser ofrecidos en el momento del alta y los métodos interactivos se deben utilizar para permitir que compartan sus pensamientos sobre el futuro.
Abstract Objective The study was performed to reveal experiences of adolescents and their families in the short-term after scoliosis surgery. Methods This study had a qualitative descriptive design, and data were collected from adolescents with scoliosis surgery (n=17) and their family members (n=9) at in-depth interviews. Obtained data were analysed with content analysis. Results Five main themes emerged: physical complaints, unfamiliar environment (operating room and intensive care unit), emotional changes, wanting their parents to stay with them and worries about future. Both the adolescents and their families reported that the adolescents experienced not only physical and emotional problems but also worries about their future after surgery. Conclusion Nurses should meet the adolescents and their families and allow them to express their feelings before surgery. Informing them before surgery is important in terms of relieving their anxiety and enhancing their adaptation. Creating an appropriate environment in recovery rooms and intensive care units where the adolescents can frequently see their parents may help them have better psychology. In addition, education programs that will be offered at discharge should be designed and interactive methods should be used to allow them to share their thoughts about their future.
Subject(s)
Humans , Male , Female , Adolescent , Adult , Young Adult , Pain , Scoliosis/surgery , Scoliosis/psychology , Adaptation, Psychological , Family , Postoperative Period , Epidemiology, Descriptive , Interviews as Topic , Evaluation Studies as TopicABSTRACT
OBJECTIVES: The objective of this study was to evaluate whether the severity of deformities in patients with adolescent idiopathic scoliosis contributes to patients’ decision regarding whether to undergo an operation. METHODS: We evaluated body image factors in adolescent idiopathic scoliosis patients. We evaluated the magnitude of the main scoliotic curve, gibbosity (magnitude and location), shoulder height asymmetry and patient’s age. We analyzed the correlation of these data with the number of years the patient was willing to trade for surgery, as measured by the time-trade-off method. RESULTS: A total of 52 patients were studied. We did not find a correlation between any of the parameters that were studied and the number of years that the patient would trade for the surgery. CONCLUSIONS: The magnitude of body deformities in patients with adolescent idiopathic scoliosis does not interfere with the decision to undertake surgical treatment.
Subject(s)
Humans , Male , Female , Adolescent , Body Image , Patient Participation , Scoliosis/surgery , Age Factors , Decision Making , Diagnostic Self Evaluation , Quality of Life , Scoliosis/pathology , Scoliosis/psychology , Severity of Illness Index , Statistics, NonparametricABSTRACT
OBJECTIVE: There are few data on patient satisfaction with surgery for the correction of neuromuscular scoliosis or on the correlation between patient satisfaction and the degree of curve correction achieved by surgery. Our aim was to determine the correlations between both patient satisfaction and perception of quality of life and the degree of curve correction. METHODS: We interviewed 18 patients and administered a questionnaire that collected social and economic data and information about functional ability, comorbidities and satisfaction. Statistical analysis was performed using chi-square tests, Pearson correlation and paired t-tests. RESULTS: The mean correction achieved was 42.8%, i.e., 34.17 degrees. Early and late complication rates were low (11.1% each). Almost all of the patients (94.4%) were satisfied with the surgery, and expectations were met for 61.1% of them. Quality of life and aesthetics were improved in 83.4% and 94.4% of cases, respectively. No correlation was found between satisfaction and degree of correction. CONCLUSION: Our surgical results are similar to those of other studies with respect to the degree of correction and patient satisfaction. The disparity between satisfaction and fulfillment of expectations may be due to unrealistic initial expectations or misunderstanding of the objective of surgery. Our findings corroborate the hypothesis that satisfaction is multifactorial and not restricted to a quantitative goal. The satisfaction of patients who undergo operation for neuromuscular scoliosis does not depend directly on the degree of deformity correction. The relationship between satisfaction and the success of the correction procedure is complex and multifactorial.
Subject(s)
Humans , Male , Female , Adolescent , Adult , Young Adult , Patient Satisfaction , Quality of Life , Scoliosis/psychology , Scoliosis/surgery , Postoperative Complications/epidemiology , Scoliosis/diagnostic imaging , Surveys and Questionnaires , Treatment OutcomeABSTRACT
Objective: To learn about the experiences of adolescents diagnosed with idiopathic scoliosis. Method: Integrative review of the literature published within a specified time frame. Results: For both sexes, the predominant clinical symptom of this condition appears to be the negative effect that the deformity exerts on perceived self-image. Quantitative studies used numerical scores to assess perceptions of body image but did not analyse emotional aspects. Patients treated surgically were found to have a better self-image than patients treated with a brace. Quality of life was improved by a reduction in the magnitude of the curve. Conclusion: Spinal deformity exerts a psychological effect on adolescent girls. .
Objetivo: Conhecer as experiências vividas por adolescentes com diagnóstico de escoliose idiopática. Método: Revisão integrativa da literatura, estabelecendo limites no ano de publicação dos documentos. Resultados: Para ambos os sexos, o efeito negativo da deformidade na percepção da própria imagem é o sintoma clínico predominante; os estudos quantitativos apresentam uma classificação numérica para avaliar a percepção da imagem corporal, porém sem recolher os aspectos emocionais; a autoimagem é melhor em pacientes tratados cirurgicamente e pior em pacientes tratados com cinta e a diminuição da magnitude da curva proporciona uma melhor qualidade de vida. Conclusão: A deformidade da coluna vertebral afeta psicologicamente os adolescentes. .
Objetivo: Conocer las experiencias vividas por adolescentes diagnosticados con escoliosis idiopática. Método: Revisión integrativa de la literatura, estableciendo los límites de búsqueda en el año de publicación de los documentos. Resultados: El síntoma clínico predominante para ambos sexos es el efecto negativo de la deformidad en la percepción de la propia imagen; los estudios cuantitativos presentan una clasificación numérica para evaluar la percepción de la imagen corporal sin recoger los aspectos emocionales; la autoimagen es mejor en pacientes tratados quirúrgicamente y peor en pacientes tratados con corsé y la disminución de la magnitud de la curva proporciona una mejor calidad de vida. Conclusión: La deformidad de columna vertebral afecta psicológicamente a los adolescentes. .
Subject(s)
Adolescent , Female , Humans , Male , Scoliosis/psychology , Self ConceptABSTRACT
El presente artículo presenta un proyecto piloto de Psicoprofilaxis Quirúrgica en el Departamento de Traumatología, Unidad de Escoliosis, Hospital de niños Dr. Luis Calvo Mackenna. La Psicoprofilaxis Quirúrgica, enmarcada dentro de la psicología de la salud, tiene por objetivo apoyar al paciente que será sometido a cirugía, en el manejo de emociones, actitudes y comportamientos que se derivan de la situación quirúrgica, a través de una intervención psicoterapéutica preventiva, breve y focalizada. Se planteó una intervención psicológica para pacientes que debían ser sometidos a cirugía correctiva de escoliosis. Esta constó de 3 instancias: (a) entrevista inicial y evaluación de ansiedad, (b) intervención intrahospitalaria y (c) control postquirúrgico. En todas ellas se midió Nivel Anímico, Nivel de Actividad, Calidad del Sueño y Calidad de la Alimentación. Los resultados sugieren que si los pacientes tienen un adecuado conocimiento del proceso al cual se enfrentarán, aumentaría su sensación de control de la situación y por ende, disminuiría su ansiedad pre-quirúrgica. No obstante, no basta informar, sino que además es necesario adecuarse a las características de cada paciente al hacer entrega de la información, siendo este factor el que permitiría el cambio en los niveles de ansiedad pre-quirúrgica.
This article presents a trial scheme of surgical psychoprophylaxis in the Scoliosis Unit of the Traumatology department at Doctor Luis Calvo Mackenna childrens Hospital. This project arises from The surgical psychoprophylaxis is to an area within Health Psychology that aims to support the patient that will undergo surgery, by performing a brief preventive psychotherapeutic intervention that helps him/her to handle possible emotions, attitudes and behaviors that may appear as a result of the surgical experience. The intervention had three stages: (a) Initial interview and anxiety assessment (b) intra- hospital intervention (c) post surgical control. In each stage mood level was measured as well as activity level, sleep quality and feeding behavior quality. The results suggest that, if patients have adequate knowledge of the process they are going to face their feeling of control over the situation would increase and thus reduce preoperative anxiety. Nevertheless, informing is not enough but it is also necessary to adapt the delivery of information to each patients characteristics, for this would be the main factor that would allow changes in preoperative anxiety levels.
Subject(s)
Humans , Child , Anxiety/prevention & control , Scoliosis/surgery , Child, Hospitalized/psychology , Orthopedic Procedures/psychology , Patient Education as Topic/methods , Scoliosis/psychology , Interviews as Topic , Mental Health , Pediatrics , Pilot Projects , Postoperative Care , Preoperative Care , Psychotherapy/methodsABSTRACT
Apresentaçäo de caso de paciente com 68 anos de idade que tem intensa escoliose, com grande rotaçäo, e que nunca se queixou de dor na coluna. Na anamnese e nos testes psicológicos realizados, constatam-se vários distúrbios emocionais, sexuais e sociais. Chama a atençäo o fato de a paciente, apesar do componente físico e do componente psíquico, näo ter desenvolvido, mesmo fazendo trabalho pesado, afecçäo psicossomática, acompanhada de dor na coluna