Factibilidad, eficacia y satisfacción lograda por la intervención transdisciplinaria de un comité de ética clínico-hospitalario. Un estudio cualicuantitativo / Feasibility, effectiveness, and satisfaction achieved by the transdisciplinary intervention of a clinical-hospital ethics committee. A qualitative and quantitative study

Introducción. Las funciones del Comité de Ética Clínica (CEC) son educativas, normativas, consultivas, mediadoras y reflexivas. Como cualquier servicio de salud, las consultas de casos a un CEC deben ser sujetas a revisión y mejora de la calidad. Los objetivos fueron evaluar la factibilidad, la efectividad y la satisfacción de las recomendaciones ético-asistenciales dadas por el CEC, y evaluar su impacto en el equipo tratante y en la familia. Población y métodos. Estudio descriptivo, retrospectivo, cualicuantitativo, de casos clínicos presentados en el Comité de Ética Clínica del hospital desde el 1 de enero de 2013 hasta el 31 de diciembre de 2017, según datos del libro de actas, historias clínicas, registros de la Oficina de Comunicación a Distancia y entrevistas semiestructuradas al equipo de salud. Resultados. Se analizaron 108 casos (106 pacientes), 73 casos con encuesta y registros, y 35 solamente con registros. Los motivos principales más frecuentes de consulta fueron los siguientes: adecuación del esfuerzo terapéutico (46/42,6 %), compromiso neurológico grave (15/13,9 %), calidad de vida del paciente (11/10,2 %), conflictos entre el paciente, la familia y el sistema de salud (7/6,5 %), y rechazo del tratamiento por la familia (6/5,6 %). Se hallaron niveles altos de satisfacción (> 95 %) y niveles moderados de factibilidad (> 74 %) y efectividad (> 85 %). Solo en 50/108 casos (46,3 %) quedó registro en la historia clínica de la consulta al CEC y el 44 % de los profesionales opinó que la consulta tuvo un impacto positivo en la familia y en el paciente. Conclusiones. Los resultados contribuyeron a descubrir oportunidades de mejora, especialmente en la documentación y en la comunicación en el proceso de consulta.

Introduction. A clinical ethics committee (CEC) has educational, regulatory, advisory, mediation, and reflexive functions. As any health care service, the consults with the CEC should be subjected to review and quality improvement. The study objectives were to assess the feasibility, effectiveness, and satisfaction with the bioethical recommendations made by the CEC and assess their impact on the treating team and the patient's family. Population and methods. Descriptive, retrospective, qualitative, and quantitative study of clinical cases submitted to the hospital's CEC between January 1 st, 2013 and December 31, 2017 using data from the CEC minute book, medical records, registries from the Office for Remote Communication, and semi-structured interviews with health care team members. Results. A total of 108 cases (106 patients) were analyzed: 73 cases with survey and registries and 35 with registries only. The main most frequent reasons for consultation were adequacy of therapeutic effort (46/42.6%), severe neurological involvement (15/13.9%), patient's quality of life (11/10.2%), patient-family-health system conflict (7/6.5%), and family's refusal of treatment (6/5.6%). High levels of satisfaction (> 95%) and moderate levels of feasibility (> 74%) and effectiveness (> 85%) were observed. In only 50/108 cases (46.3%), the consultation with the CEC was registered in the medical record, 44% of health care providers stated that the consultation had a positive impact on the patient and their family. Conclusions. Results helped to establish improvement opportunities, especially in terms of documentation and communication in the consultation process.

Perfil das consultorias de bioética clínica envolvendo famílias que dificultaram a resolução de problemas / Profile of clinical bioethics consultancies involving families which hindered the resolution of problems

Este estudo avaliou 116 consultorias de bioética clínica nas quais as famílias dos pacientes dificultaram a resolução do problema ou do conflito ético. Foram observados os seguintes aspectos: solicitantes; especialidades; registros nos prontuários eletrônicos; pacientes e relações familiares. A maior parte das consultorias (71 por cento) foi gerada pelas solicitações dos médicos. Os serviços de Medicina Interna, Pediatria e Psiquiatria demandaram 56 por cento das consultorias. Foram encontrados registros de pedidos de consultoria nos prontuários de 79 por cento dos pacientes, dos quais 71 por cento foram respondidos no mesmo dia ou no seguinte. O número de consultorias por sexo do paciente foi semelhante e a idade média, de 28 anos. Em relação à procedência, 54 por cento eram de Porto Alegre. As relações familiares naturalmente impostas (71 por cento) foram mais identificadas. É importante que outros estudos sejam realizados com vistas a permitir um adequado entendimento dos problemas éticos e de suas possíveis resoluções.

This study evaluated 116 records of clinical bioethics consultation in which the patients’ family made difficultthe resolution of the problem or ethical conflict. The following aspects were evaluated: Applicants, MedicalSpecialties, Electronic Health Records, Patients and Family Relationships. Physicians requested 71% of the Bioethics consultation. The Internal Medicine, Pediatrics and Psychiatry Services demanded the majority numberof consultations (56%). The patients who had their consultations registered in electronic medical records were 79%. As for response, 71% of consultations were seen on the same day or the day after requested. Thepercentages of male and female patients were, respectively, 48% and 52% with a mean age of 28 years, 54%of the patients were from Porto Alegre. The naturally imposed family relationships (71%) were the more prevalent. It is very import that other studies be performed in order to generate adequate comprehension aboutethical problems and their possible solutions.