Calidad visual y calidad de vida en pacientes operados de catarata mediante facoemulsificación / Visual quality and quality of life among patients undergoing phacoemulsification cataract surgery

RESUMEN Objetivo: Evaluar la repercusión de la cirugía de catarata por facoemulsificación en el mejoramiento de la discapacidad visual, la calidad de vida relativa a la visión y las actividades básicas de la vida diaria de adultos mayores. Métodos: Se realizó un estudio observacional, longitudinal y prospectivo en 108 pacientes intervenidos de catarata mediante la técnica facochop y el implante de lente intraocular, en el Instituto Cubano de Oftalmología Ramón Pando Ferrer, para determinar la calidad de vida relativa a la visión y la capacidad funcional antes y después de la cirugía. Se utilizaron los cuestionarios índice de función visual VisQoL-15 e índice de Katz. Se analizó la agudeza visual pre y posoperatoria con corrección, la calidad de vida relativa a la visión y el nivel de independencia para la realización de actividades de la vida diaria. Los resultados se volcaron en tablas de distribución de frecuencias absolutas, relativas y medias. La prueba de X2 determinó la relación entre las variables. Resultados: La agudeza visual mejor corregida posoperatoria mejoró 5 líneas en la cartilla de Snellen. El 99,7 por ciento de los pacientes consideró tener una muy buena y buena calidad de vida relativa a la visión luego de la cirugía. El incremento en la agudeza visual mejor corregida conllevó una mejoría en la calidad de vida relativa a la visión y el nivel de independencia. Conclusiones: La catarata provoca una considerable discapacidad visual y la facoemulsificación con implante de lente intraocular es un método efectivo y seguro para mejorar la calidad de vida relativa a la visión y la capacidad funcional en operados de catarata. El índice de función visual visqol-15 y el índice de Katz constituyen instrumentos útiles para determinar la calidad de vida relativa a la visión y la funcionalidad posterior a la cirugía de catarata(AU)

ABSTRACT Objective: To evaluated the impact of cataract surgery by phacoemulsification in the improvement of visual disability, quality of life relative to vision, quality of life and basic daily activities in senior adults. Methods: A longitudinal, prospective and observational study was made in 108 patients that underwent to cataract surgery with Faco-chop technique and IOL implantation in ICO Ramón Pando Ferrer to determinate the quality of life relative to vision (QLRV) and the functional capacity in patients before and after phacoemulsification. We evaluated by using the VisQol-15 questionnaire and Katz index. Visual acuity with and without correction, quality of life, and independence´s degree for daily life activities was taken and analyzed during the preoperative and postoperative. The results were overturned in graphics and tables of relative and absolutes frequencies. X2 test determined the relationship between variables. Results: The Best Corrected Visual Acuity (BCVA) gains 5 lines in Snellen chart. 99,7 percent of patients considered have a Good and Very Good QLRV after surgery. An increment of the independence´s degree for daily life activities and of QLRV was showed as well the BCVA increase. Conclusions: Cataract caused visual disability, phacoemulsification with IOL implant is an effective and safety method to improved QLRV and functional capacity in patients that underwent to cataract surgery. VisQol-15 and Katz index are useful instruments to determinate QLRV and functionality after phacoemulsification(AU)

Qualidade de vida e funcionalidade nos pacientes com desordens do manguito rotador / Quality of life and functionality in patients with rotator cuff disorders

OBJETIVO: Verificar se existe correlação entre os domínios da qualidade de vida e a funcionalidade nos pacientes com desordens do manguito rotador. MÉTODO: Estudo do tipo transversal com 109 pacientes avaliados entre outubro 2013 e fevereiro 2014. Para avaliar a qualidade de vida foi utilizado o questionário WORC, e as escalas UCLA e ASES para avaliação da funcionalidade. RESULTADO: Amostra de 73 mulheres e 36 homens (média de idade: 52,3 anos+12,8). O ombro avaliado foi o direito em 63 pacientes (57,8%). O WORC apresentou correlação positiva alta com as escalas UCLA (r= 0,73) e ASES (r= 0,77). Ao analisar o WORC verificou-se correlação mais forte com a UCLA no domínio "Trabalho" (r=0,74), e menor no domínio "Esporte/Recreação" (r= 0,67). Quando comparado o WORC com a ASES identificou-se a maior correlação com o domínio "Trabalho" (r= 0,79) e menor correlação com o domínio "Emoções" (r= 0,64). CONCLUSÃO: Alterações na funcionalidade, frequentes nestas desordens, impactam na qualidade de vida em especial no domínio "Trabalho".

OBJECTIVE: To evaluate the correlation between different domains of quality of life and functionality in patients with rotator cuff disorders. METHODS: Cross sectional study with 109 patients evaluated between October 2013 and February 2014. The WORC questionnaire was used to evaluate quality of life, and the UCLA and ASES scales to evaluate functionality. RESULTS: The sample included 73 female and 36 males (mean age 52,3+12,8 years). The right shoulder was evaluated in 63 patients (57,8%). There was a high positive correlation between the WORC results and the UCLA (r= 0,73) and ASES (r= 0,77) scales. There was a stronger correlation between the WORC and the UCLA in the "Work" domain (r= 0,74), and a weaker correlation in the "Sport/Recreation" domain (r= 0,67). When comparing the WORC with the ASES scale, a higher correlation was identified with the "Work" domain (r=0,79) and a lower correlation with the "Emotions" domain (r= 0,64). CONCLUSION: Alterations in functionality, frequent in RCD, have a considerable impact in the quality of life in special to the "Work" domain.

Translation and validation of a Filipino version of the children’s visual function questionnaire

Objective@#The objectives of this study were to translate into Filipino the Children’s Visual Function Questionnaire for children 3 years and above (CVFQ3plus), and to validate the translated CVFQ3plus to be used locally to assess the quality of life (QoL) of Filipino children aged 3 to 7 years old with visual impairment. @*Methods@#Study Design: The study was a single-center, non-randomized translation and validation study. Translation: The CVFQ3plus translation into Filipino involved translation, reconciliation, pretesting, and small group discussion, based on the KIDSCREEN Group Translation and Validation procedures. Participants and Sampling: Convenience sampling was done to select the participants of the study. Participants were included in the study if they were parents or primary caregivers of children aged 3-7 years old who were noncompliant with treatment and/or those with non-treatable visual impairment defined as mild, moderate, severe unilateral, and severe bilateral. Procedure: All patients underwent complete ophthalmologic examination, including determination of the visual acuity using either the LEA chart or HOTV chart, prior to the administration of both the Filipino and English versions of the CVFQ3plus to their parents or caregivers. Participants were also asked to do a self-rating of their English proficiency, and their preferred version of the CVFQ. Statistical Analysis: Chronbach’s Alpha with a 95% confidence interval was used to determine the validity and internal consistency of the Filipino version of the CVFQ3plus questionnaire.@*Results@#A total of 122 participants were included in the study. Chronbach’s Alpha score (α=0.86, CI=95%) for the translated Filipino version of the CVFQ3plus suggests high reliability and internal consistency, comparable to the original English version of the questionnaire.@*Conclusion@#This study was able to produce a highly reliable and internally consistent Filipino version of the CVFQ3plus.

Cuestionarios de calidad de vida en las mujeres con disfunciones del suelo pélvico / Quality of life questionnaires for women with pelvic floor dysfunction

Las disfunciones del suelo pélvico tienen un impacto significativo en la calidad de vida de la mujer que la padece. Ella no solo sufrirá de las manifestaciones físicas de algún grado de prolapso, sino de aquellas derivadas de las perturbaciones psíquicas, sexuales, laborales y sociales que estas originan. Los cuestionarios de calidad de vida proporcionan una amplia información sobre la repercusión de los síntomas y signos en la vida de la paciente lo cual permite entender estas condiciones de manera integral. El objetivo de esta revisión fue describir el impacto en la calidad de vida de las mujeres con disfunciones del suelo pélvico y los cuestionarios empleados para evaluarla, sin mediar intervenciones. Se realizó una búsqueda en las bases de datos de Pubmed, SciELO, Hinari, Cochrane y Clinical Key en junio y julio del 2015. Las disfunciones del suelo pélvico generan un impacto negativo en la calidad, que varía según la severidad de los síntomas. Las mujeres presentan limitaciones en la actividad física, actividades cotidianas, el sueño, la sexualidad y suelen estar angustiadas y deprimidas. La medición de la severidad de los síntomas y de los cambios en la calidad de vida en las pacientes con disfunciones del suelo pélvico es parte esencial de la evaluación para el diagnóstico y tratamiento de las mujeres(AU)

Pelvic floor dysfunction has a significant impact on the quality of life of its female sufferers. These women will not only be affected by the physical manifestations of the disease, such as some degree of prolapse, but also by the psychic, sexual, occupational and social disturbances it brings about. Quality of life questionnaires provide broad information about the effect of the signs and symptoms of the condition upon the patient's daily life, permitting a more comprehensive understanding of the condition. The purpose of the present review was to describe the impact of pelvic floor dysfunction upon the quality of life of sufferers, as well as the questionnaires used to evaluate it, without mediating interventions. A search was conducted in the databases Pubmed, SciELO, Hinari, Cochrane and Clinical Key in June and July 2015. Pelvic floor dysfunction has a negative impact on the quality of life, which varies in keeping with the severity of symptoms. Women patients are faced with limitations in their physical activity, their daily life, sleep and sexuality, and tend to be anguished and depressed. Measurement of the severity of symptoms and changes in the quality of life of patients with pelvic floor dysfunction is an essential part of the evaluation for the diagnosis and treatment of the disease(AU)

Adaptação transcultural brasileira do “Family caregiver-specific quality of life scale”: estudo metodológico / Adaptación transcultural brasileña del “Family caregiver-specific quality of life scale”: estudio metodológico / Brazilian transcultural adaptation of the “Family caregiver-specific quality of life scale”: a methodological study

To perform a transcultural adaptation of the Family Caregiver-Specific Quality of Life Scale to be used in Brazil. Method: A simple, easily applicable questionnaire was applied, composed of 16 questions, subdivided into the physical, psychological, social and spiritual domains, which was originally tested on a population composed of caregivers for heart failure patients. In this methodological study, the process of adaptation involved the translation, synthesis of translations, back translation and a committee of evaluators. Results: After the translation process, the committee of evaluators suggested some changes to the questionnaire that were authorized by its original author. Discussion: The questionnaire was considered pertinent to Brazilian culture, and to adequately represent the target-population, as well as presenting a good semantic equivalence between the final version in Portuguese and the original version. Conclusion: The instrument has proven to be sufficiently adequate to be used in the general population, and it has also been psychometrically validated...

Realizar adaptação transcultural do Family Caregiver-Specific Quality of Life Scale para uso no Brasil. Método: O questionário é simples, de fácil aplicação, composto por 16 questões subdivididas nos domínios físico, psicológico, social e espiritual, tendo sido validado originalmente em uma população de cuidadores de pacientes com insuficiência cardíaca. Neste estudo metodológico, o processo de adaptação envolveu a tradução, síntese das traduções, retrotradução e comitê de juízes. Resultados: Após as etapas de tradução, o comitê de juízes sugeriu modificações no questionário que foram autorizadas pela autora do questionário original Discussão: O questionário foi considerado pertinente à cultura brasileira e seus itens adequados quanto à sua capacidade de representar à população-alvo, além de apresentar boa equivalência semântica entre a versão final em português e a original. Conclusão: O instrumento mostrou-se adequado para ser utilizado na população e está sendo validado psicometricamente...

Realizar la adaptación transcultural del Family Caregiver-Specific Quality of Life Scale para usarlo en Brasil. Método: El cuestionario es simple, de fácil aplicación, compuesto por 16 cuestiones subdivididas en los temas físicos, psicológicos, social y espiritual habiendo sido validado originalmente en una población de cuidadores de pacientes con insuficiencia cardíaca. En este estudio metodológico, el proceso de adaptación involucró la traducción, síntesis de traducciones, retro traducción y un comité de jueces. Resultados: Después de las etapas de traducción, el comité de jueces sugirió modificaciones en el cuestionario que fueron autorizadas por la autora del cuestionario original. Discusión: El cuestionario se consideró pertinente a la cultura brasileña y sus elementos adecuados en relación a su capacidad de representar la población a la cual está destinado, además de presentar buena equivalencia semántica entre la versión final en portugués y la original. Conclusión: El instrumento resultó adecuado para ser utilizado en la población y se está validando psicométricamente...

Influência do perfil clínico e sociodemográfico na qualidade de vida de cardiopatas submetidos à reabilitação cardíaca / Influence of socio-demographic and clinical profiles in quality of life of cardiac patients undergoing cardiac rehabilitation

Introdução: Programas de reabilitação cardiovascular são fundamentais para garantir uma melhor qualidade de vida (QV) em pacientes cardiopatas. Objetivos: Avaliar a QV de pacientes submetidos à reabilitação cardíaca (RC) e investigar se aspectos sociodemográficos, tipo de diagnóstico e tempo de tratamento são variáveis que influenciam a QV desses pacientes. Métodos: Realizou-se um estudo transversal com 82 pacientes, 64,52 ± 9,04 anos, que responderam dois questionários, para avaliação da QV (questionário SF-36) e para classificação do nível socioeconômico, e tiveram seu nível sociodemográfico determinado. Resultados: Maiores valores dos escores do questionário SF-36 que avaliam aspectos emocionais foram observados em todas as associações realizadas. Os aspectos do perfil da amostra abordados neste estudo não repercutiram de forma representativa na QV. Conclusão: Pacientes cardiopatas submetidos à RC apresentaram maiores valores em escores de qualidade de vida que avaliam aspectos emocionais. Os fatores estudados não influenciaram a QV desses participantes.

Introduction: Cardiovascular rehabilitation programs are fundamental to ensure a better quality of life (QL) in cardiac patients. Objective: Evaluate the QL of patients undergoing cardiac rehabilitation (CR) and investigate if demographic aspects, diagnosis and treatment time are variables that influence on these patients QL. Methods: It was conducted a cross-sectional study with 82 patients, 64,52 ± 9,04 years old, who answered two questionnaires, for QL assessment (questionnaire SF-36) and for socioeconomic level classification, and their socio-demographie profile determined. Results: Higher values of scores of SF-36 questionnaire that assess emotional aspects were observed in all associations held. The sample profile aspects addressed in this study did not represent echo in QL. Conclusion: Cardiac patients submitted to RC showed greater benefits on emotional aspects and factors studied did not influence on these patients QL.

A Preliminary Study on the Reliability of the Malay Version of PedsQL™ Family Impact Module among Caregivers of Children with Disabilities in Kelantan, Malaysia

Background: No previous study has assessed the impact of childhood disability on parents and family in the context of Malaysia, and no instrument to measure this impact has previously been available. The objective of this cross-sectional study was to determine the reliability of a Malay version of the PedsQL™ Family Impact Module that measures the impact of children with disabilities (CWD) on their parents and family in a Malaysian context. Methods: The study was conducted in 2009. The questionnaire was translated forward and backward before it was administered to 44 caregivers of CWD to determine the internal consistency reliability. The test for Cronbach’s alpha was performed. Results: The internal consistency reliability was good. The Cronbach’s alpha for all domains was above 0.7, ranging from 0.73 to 0.895. Conclusion: The Malay version of the PedsQL™ Family Impact Module showed evidence of good internal consistency reliability. However, future studies with a larger sample size are necessary before the module can be recommended as a tool to measure the impact of disability on Malay-speaking Malaysian families.

A comparative study of pelvic floor muscle training in women with multiple sclerosis: its impact on lower urinary tract symptoms and quality of life

OBJECTIVE: To compare pelvic floor muscle training and a sham procedure for the treatment of lower urinary tract symptoms and quality of life in women with multiple sclerosis. METHODS: Thirty-five female patients with multiple sclerosis were randomized into two groups: a treatment group (n = 18) and a sham group (n = 17). The evaluation included use of the Overactive Bladder Questionnaire, Medical Outcomes Study Short Form 36, International Consultation on Incontinence Questionnaire Short Form, and Qualiveen questionnaire. The intervention was performed twice per week for 12 weeks in both groups. The treatment group underwent pelvic floor muscle training with assistance from a vaginal perineometer and instructions to practice the exercises daily at home. The sham group received a treatment consisting of introducing a perineometer inside the vagina with no exercises required. Pre- and post-intervention data were recorded. RESULTS: The evaluation results of the two groups were similar at baseline. At the end of the treatment, the treatment group reported fewer storage and voiding symptoms than the sham group. Furthermore, the differences found between the groups were significant improvements in the following scores in the treatment group: Overactive Bladder Questionnaire, International Consultation on Incontinence Questionnaire Short Form, and the General Quality of Life, and Specific Impact of Urinary Problems domains of the Qualiveen questionnaire. CONCLUSIONS: The improvement of lower urinary tract symptoms had a positive effect on the quality of life of women with multiple sclerosis who underwent pelvic floor muscle training, as the disease-specific of quality of life questionnaires demonstrated. This study reinforces the importance of assessing quality of life to judge the effectiveness of a treatment intervention.

Development of Thai quality-of-life questionnaires for patients with chronic renal failure.

Chronic renal failure (CRF) is one of a number of major diseases that seriously affects quality-of-life (QOL). In this study, we developed a disease-specific QOL questionnaire in Thai for CRF. A list of items important to QOL of CRF patients was created by interviewing five patients, four nephrologists, and four nephrology nurses to identity items that affect patients’ QOL. Additional items were sought from English questionnaires. Another 50 CRF patients were then interviewed to determine the importance of each item by rating then on a scale of 1 (minimally important) to 5 (extremely important). Patients were also encouraged to add items which were not on the list. For each potential item, a frequency-importance score was calculated by adding each patient’s score. A combination of factor analysis and clinical judgment was then used to develop the final questionnaire, with questions scored on the 5-point Likert scale (ranging from “none of the time” to “all of the time”). Psychometric properties were subsequently evaluated in CRF patients at Siriraj Hospital. The validity of the questionnaire was assessed using the relationship between QOL questionnaire scores and the severity chronic renal failure assessed by the adequacy of dialysis diochemical parameters such as serum albumin, urea and creatinine and nurses’ or patients’ global assessment. Reproducibility and internal consistency were examined twice by interviewing 40 hemodialysis patients who came to hemodialysis clinic and had follow-up one week later. The final questionnaire consisted of 24 questions in five domains (physical symptoms, fatigue, psychological, social and emotional). The scores for all corrected strongly with nurses’ and patients’ assessment scores. The reproducibility of the questionnaire was high (intraclass correlation coefficient between 0.60 and 1.00 for the five domains except for the social domain). A high internal consistency in the questionnaire was found using the o-coefficient of Cronbach (ranging between 0.50-0.86 for the two tests). This questionnaire appears to be valid and reliable for assessing CRF patients.