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ABSTRACT Objective: To describe how smartphone applications can contribute to the management of epilepsy in children and adolescents. Data source: This is an integrative review conducted on the Medline, PubMed, and SciELO databases, based on the descriptors "epilepsy" and "smartphone." Original studies published between 2017-2023 in Portuguese or English that addressed the research question were included. Theses and dissertations, duplicate studies, literature reviews, and studies that did not answer the research question were excluded. Data synthesis: A total of 178 studies were located, of which six were selected for this review. The sample included 731 participants (631 children and adolescents with epilepsy and 100 caregivers). The applications allow for the collection of seizure frequency; timing and type of crisis; reminders for medication administration; and information about sleep quality. They can store these data for healthcare professionals, caregivers, and users to monitor the progress of the condition. Conclusions: The use of applications in managing seizures in children and adolescents with epilepsy shows promising results by promoting continuous and personalized monitoring. Further studies are needed to optimize beneficial outcomes and overcome challenges.
RESUMO Objetivo: Descrever como aplicativos de smartphone podem contribuir para o gerenciamento de quadros de epilepsia em crianças e adolescentes. Fontes de dados: Trata-se de uma revisão integrativa realizada nas bases de dados Medline; PubMed e SciELO, com base nos descritores "epilepsy" e "smartphone". Foram incluídos estudos originais publicados entre 2017-2023 em português ou inglês que respondessem à pergunta de investigação. Teses e dissertações, estudos duplicados, revisões de literatura e estudos que não responderam à questão de pesquisa foram excluídos. Síntese dos dados: Foram localizados 178 estudos, dos quais seis foram selecionados para compor esta revisão. A amostra incluiu 731 participantes (631 infantojuvenis com epilepsia e 100 cuidadores). Os aplicativos permitem a coleta da frequência de convulsões; momento e o tipo de crise; lembretes para a administração de medicamentos; e informações sobre a qualidade do sono, sendo capazes de armazenar esses dados para profissionais da saúde, cuidadores e usuários acompanharem a evolução do quadro. Conclusões: O uso de aplicativos no manejo das convulsões de crianças e adolescentes com epilepsia apresenta resultados promissores ao promoverem um monitoramento contínuo e personalizado. Novos estudos são necessários para otimizar os resultados benéficos e superar desafios.
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Este estudo objetivou avaliar o nível de aderência ao autocuidado no tratamento do DMII entre pacientes usuários de insulina atendidos em uma unidade de saúde da família em Palmas, Tocantins, em 2023. Trata-se de uma pesquisa com abordagem quantitativa com 24 portadores de DMII em uso de insulina que responderam a dois questionários, um com perguntas sociodemográficas e o outro sobre atividades de autocuidado relacionadas ao diabetes. Os resultados mostraram que os entrevistados demonstraram baixa adesão ao exercício e à atividade física, com uma média abaixo de 2, o que representou o pior resultado obtido no QAD. Em contrapartida, a adesão ao uso dos medicamentos orais e insulina foi satisfatória, com médias superiores a seis dias por semana. A maioria dos entrevistados apresentou melhor adesão ao tratamento medicamentoso, seja de forma isolada ou associada com cuidados específicos, como cuidado com os pés, ou baixa ingestão de doces. No entanto, a prática de exercício e a atividade física e a adesão às orientações alimentares foram as áreas de menor comprometimento. Diante disso, recomenda-se que os profissionais da saúde desenvolvam estratégias clínico-educativas direcionadas aos portadores de DMII, com o intuito de promover a saúde e incentivar o uso correto dos fármacos e a adesão aos autocuidados, objetivando prevenir complicações relacionadas a essa patologia, além de reforçar a importância do autocuidado para prevenir complicações associadas à doença.
This study aimed to evaluate the level of adherence to self-care in the treatment of DMII among insulin-using patients treated at a family health unit in Palmas, Tocantins, in 2023. This is a quantitative study with 24 DMII patients using insulin who answered two questionnaires, one with sociodemographic questions and the other about self-care activities related to diabetes. The results showed that the interviewees demonstrated low adherence to exercise and physical activity, with an average below 2, which represented the worst result obtained in the QAD. In contrast, adherence to the use of oral medications and insulin was satisfactory, with averages of more than six days per week. The majority of interviewees showed better adherence to medication treatment, whether alone or associated with specific care, such as foot care, or low intake of sweets. However, exercise and physical activity and adherence to dietary guidelines were the areas of least impairment. Therefore, it is recommended that health professionals develop clinical-educational strategies aimed at people with DMII, with the aim of promoting health and encouraging the correct use of drugs and adherence to self-care, aiming to prevent complications related to this pathology, and reinforces the importance of self-care to prevent complications associated with the disease.
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Objective. This study was conducted with the aim of the effect of team members teaching design (TMTD) vs. regular Lectures method on the self-efficacy of the multiple sclerosis patients. Methods. This research is a randomized controlled trial study. In this study, 48 multiple sclerosis persons of members of Jahrom MS Society participated. The persons were selected by simple random sampling and then divided into three groups of: TMTD (n=16), regular lecture method (n=16), and control (n=16), by random allocation method. In the intervention groups, six training sessions were held twice a week; control group did not receive education. Data was collected by the MS self-efficacy questionnaire of Rigby et al. in the before, immediately and one month after the intervention. Results. Patients in three intervention and control groups were similar in terms of demographic variables. The results of the repeated measurement test before, immediately and one month after the intervention showed that the mean of the all dimensions of self-efficacy in two intervention groups had increased significantly (p<0.05). While these changes were not significant in the control group (p ≥ 0.05). Also, there was a significant difference in the mean of the all dimensions of self-efficacy between the intervention groups of TMTD and regular lectures. Conclusion. Based on the findings, TMTD compared to regular lectures method had a more significant effect on improving the self-efficacy of multiple sclerosis patients. Therefore, it is recommended that nursing use this educational approach to increase patients' self-efficacy.
Objetivo. Determinar el efecto del diseño de la enseñanza colaborativa de los miembros del equipo (En inglés: Team Members Teaching Design -TMTD) frente al método de las clases regulares sobre la autoeficacia de los pacientes con esclerosis múltiple (EM).Métodos. Ensayo controlado aleatorizado realizado con la participación de 48 personas con esclerosis múltiple afiliados a la Sociedad de Esclerosis Múltiple de Jahrom (Iran), que fueron seleccionados por muestreo aleatorio simple y luego asignados en forma randomizada en tres grupos, dos de intervención: TMTD (n=16) y método de clases regulares (n=16), y un grupo control (n=16). En los grupos de intervención se impartieron seis sesiones educativas (dos por semana); mientras que el grupo control no recibió educación. Se empleó el cuestionario de autoeficacia en EM de Rigby et al. en los momentos: antes, inmediatamente después de terminada la intervención y un mes de finalizada la misma.Resultados. Los pacientes de los tres grupos de intervención y control eran similares en cuanto a variables demográficas. Los resultados de la prueba de medidas repetidas antes, inmediatamente y un mes después de la intervención mostraron que la media de todas las dimensiones de autoeficacia en los dos grupos de intervención había aumentado significativamente (p<0.05). Mientras que estos cambios no fueron significativos en el grupo de control (p ≥ 0.05). Además, hubo una diferencia significativa en la media de todas las dimensiones de autoeficacia entre los grupos de intervención de TMTD y clases regulares, siendo mayor en TMTD. Conclusión. El TMTD comparado con el método de clases regulares, tuvo un mejor efecto en el aumento de la autoeficacia de los pacientes con EM. Por lo tanto, se sugiere a enfermería utilizar este enfoque educativo para aumentar la autoeficacia de los pacientes.
Objetivo. Determinar o efeito do desenho de ensino colaborativo dos membros da equipe (em inglês: Team Members Teaching Design -TMTD) comparado ao método de aulas regulares na autoeficácia de pacientes com esclerose múltipla (EM). Métodos. Ensaio controlado randomizado realizado com a participação de 48 pessoas com esclerose múltipla afiliadas à Sociedade de Esclerose Múltipla de Jahrom (Irã), que foram selecionadas por amostragem aleatória simples e depois distribuídas aleatoriamente em três grupos, dois grupos de intervenção: TMTD (n=16 ) e método de aula regular (n=16), e um grupo controle (n=16). Foram ministradas seis sessões educativas nos grupos de intervenção (duas por semana); enquanto o grupo de controle não recebeu educação. Foi utilizado o questionário de autoeficácia em SM de Rigby et al. nos momentos: antes, imediatamente após o término da intervenção e um mês após seu término. Resultados. Os pacientes dos três grupos intervenção e controle foram semelhantes em termos de variáveis demográficas. Os resultados do teste de medidas repetidas antes, imediatamente e um mês após a intervenção mostraram que a média de todas as dimensões da autoeficácia nos dois grupos de intervenção aumentou significativamente (p<0.05). Embora essas alterações não tenham sido significativas no grupo controle (p ≥ 0.05). Além disso, houve diferença significativa na média de todas as dimensões de autoeficácia entre os grupos de intervenção TMTD e aulas regulares, sendo maior no TMTD. Conclusão. O TMTD comparado ao método de aula regular teve melhor efeito no aumento da autoeficácia dos pacientes com EM. Portanto, sugere-se que a enfermagem utilize essa abordagem educativa para aumentar a autoeficácia dos pacientes.
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Humanos , Masculino , Femenino , Lectura , Autoeficacia , Esclerosis Múltiple , Autocuidado , Educación , ExtremidadesRESUMEN
Resumen Objetivo: determinar la relación de los factores socioeconómicos, los inherentes al paciente, los servicios de salud, los tratamientos y el uso de tecnologías de la información y la comunicación (TIC) con la adherencia al tratamiento en pacientes con hipertensión arterial que asisten a una institución de salud en Duitama, Boyacá. Metodología: Se desarrolló un estudio cuantitativo, correlacional descriptivo de corte transversal; en el cual se buscó establecer relaciones entre los factores asociados a la adherencia al tratamiento y la adherencia al tratamiento; en un universo de pacientes con la hipertensión arterial que asisten a una institución de salud en Duitama, Boyacá de enero a agosto de 2021, a partir del cual, teniendo en cuenta los criterios de inclusión, se seleccionaron 200 participantes por muestreo aleatorio sistemático. Resultados: Se encontró alto grado de correlación entre los factores socioeconómicos y el nivel de usabilidad de TIC, con la adherencia al tratamiento y correlación significativa entre los factores relacionados con el proveedor, relacionados con la terapia y con el paciente, con la adherencia al tratamiento en el grupo de participantes, siendo relevante la vinculación entre los conceptos de adherencia al tratamiento y autocuidado. Conclusión: los factores que logran explicar el comportamiento de adherencia del grupo de estudio son los factores socioeconómicos, factores relacionados con la terapia, factores relacionados con el paciente y el nivel de usabilidad de tecnologías de la información y la comunicación.
Abstract Objective: To determine the relationship of socioeconomic factors, those inherent to the patient, services during health, treatments and the use of ICT, with adherence to treatment in patients with arterial hypertension who attend a health institution in Duitama, Boyacá. Methodology: A quantitative, descriptive correlational cross-sectional study was developed; in which it was sought to establish relationships between the factors associated with adherence to treatment and adherence to treatment; in a universe of patients with hypertension who attend a health institution in Duitama, Boyacá during January to August 2021, from which and taking into account the inclusion criteria, 200 participants were selected by systematic random sampling. Results: A high degree of correlation was found between socioeconomic factors and the level of ICT usability, with adherence to treatment, and a significant correlation between provider-related, therapy-related, and patient-related factors, with adherence to treatment. Treatment in the group of participants, the link between the concepts of adherence to treatment and self-care being relevant. Conclusion: The factors that manage to explain the behavior of adherence of the study group are socioeconomic factors, factors related to therapy, factors related to the patient and the level of usability of Technology of the information and communication.
Resumo Objectivo: Determinar a relação de fatores socioeconômicos, inerentes ao paciente, serviços durante a saúde, tratamentos e uso de TIC, com a adesão ao tratamento em pacientes com hipertensão arterial que frequentam uma instituição de saúde em Duitama. Materiais e métodos: Foi desenvolvido um estudo quantitativo e descritivo correlacional de corte transversal, no qual se buscaram relações entre os fatores associados à adesão ao tratamento e a adesão ao tratamento, em um universo de pacientes hipertensos atendidos em uma unidade de saúde em Duitama, Boyacá, durante janeiro a agosto de 2021, dos quais e levando em conta os critérios de inclusão, foram selecionados 200 participantes por amostragem aleatória sistemática. Resultados: Foi encontrado um alto grau de correlação entre os fatores socioeconômicos e o nível de usabilidade das TICs com a adesão ao tratamento, e uma correlação significativa entre os fatores relacionados ao provedor, à terapia e ao paciente com a adesão ao tratamento. No grupo de participantes, a ligação entre as noções de adesão ao tratamento e autogestão é relevante. Conclusão: Os fatores que explicam o comportamento de adesão do grupo de estudo são fatores socioeconômicos, fatores relacionados à terapia, fatores relacionados ao paciente e o nível de usabilidade da tecnologia da informação e comunicação.
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Objective: To describe the process of construction and validation of Nurseostomy, a nursing assessment instrument for individuals with intestinal ostomy in a hospital setting. Method: This is a methodological study developed following the recommendations of the Brazilian Consensus on Care for Adults with Elimination Ostomies to support the construction of the assistive technology and the validation of content, structure, and appearance with experts. The tool was developed using Microsoft Word®. The study participants were 17 stoma care nurse experts. Data collection took place between October and November 2022 using a Google Forms questionnaire. For data analysis, the Content Validity Index (CVI) was used, with a minimum agreement value of 0.8. Results: An instrument consisting of seven domains was developed according to the Wanda de Aguiar Horta theoretical framework. The global CVI was 0.91. Conclusion: The instrument was considered validated in all three axes (content, structure, and relevance) and shows potential for external validation and the development of clinical research. (AU)
Objetivo: Descrever o processo de construção e validação do Nurseostomy, instrumento de Enfermagem para avaliação da pessoa com estomia intestinal em ambiente hospitalar. Método: Trata-se de um estudo metodológico desenvolvido por meio das recomendações do Consenso Brasileiro de Cuidados às Pessoas Adultas com Estomias de Eliminação, para embasar a construção da tecnologia assistencial e a validação de conteúdo, estrutura e aparência com juízes. A ferramenta foi desenvolvida com o programa Microsoft Word®. Os participantes do estudo foram 17 juízes estomaterapeutas com expertise na área em estudo. A coleta de dados ocorreu entre outubro e novembro de 2022 mediante formulário do Google Forms. Para análise dos dados, utilizou-se o Índice de Validação de Conteúdo (IVC), com valor de concordância mínimo de 0,8. Resultados: Foi elaborado instrumento composto de sete domínios, de acordo com o referencial teórico Wanda de Aguiar Horta. O IVC global foi de 0,91. Conclusão: O instrumento foi considerado validado nos três eixos (conteúdo, estrutura e relevância), e apresenta potencial para validação externa e desenvolvimento de pesquisas clínicas. (AU)
Objetivo: Describir el proceso de construcción y validación del Nurseostomy, un instrumento de enfermería para la evaluación de personas con estomía intestinal en ambiente hospitalario. Método: Se trata de un estudio metodológico desarrollado a través de las recomendaciones del Consenso Brasileño de Cuidados a Personas Adultas con Estomías de Eliminación, para apoyar la construcción de la tecnología de atención y la validación de contenido, estructura y apariencia con los jueces. La herramienta se desarrolló a través del programa Microsoft Word®. Los participantes del estudio fueron 17 jueces estomaterapeutas expertos en el área estudiada. La recogida de datos se realizó entre octubre y noviembre de 2022 mediante un formulario de Google Forms. Para el análisis de los datos, se utilizó un índice de validez de contenido (IVC), con un valor mínimo de acuerdo de 0,8. Resultados: Se elaboró un instrumento compuesto por siete dominios, de acuerdo con la referencia teórica de Wanda Aguiar Horta. El IVC global fue de 0,91. Conclusión: Se concluye que el instrumento fue considerado valido en los tres ejes (contenido, estructura y relevancia), y presenta potencial para la validación externa y el desarrollo de la investigación clínica. (AU)
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Humanos , Autocuidado , Estomaterapia , Atención de EnfermeríaRESUMEN
Background: Menstrual health, crucial for women's well-being, often remains obscured by misconceptions, stigma, and limited awareness. This study aimed to assess menstrual disorder prevalence and self-care practices among female undergraduates.Methods: Using a descriptive cross-sectional design, we surveyed 216 female undergraduates through a structured questionnaire, employing multistage sampling. Data underwent Chi-square and logistic regression analysis (5% CI).Results: Dysmenorrhea (81.9%), amenorrhea (41.7%), menorrhagia (30.6%), and irregular cycles (30.5%) were predominant menstrual disorders. Self-care was practiced by many during menstruation, including pain medication (50%), heat application (38.9%), and exercise (29.2%). Nonetheless, 59.7% lacked awareness about self-care practices. Age (p<0.05, OR=7.07, CI: 0.75–66.90), educational level (p<0.05, OR=2.75, CI: 0.76–10.01), knowledge level (p<0.05, OR=0.67, CI: 0.22–2.02), and education sponsor (p<0.05, OR=3.44, CI: 0.56–21.22) were linked to menstrual disorders, highlighting the need for menstrual hygiene product access.Conclusions: This study identified high menstrual disorder prevalence and urges awareness and education for proper self-care. Tailored interventions by policymakers, educators and healthcare providers can empower women, enhancing menstrual health outcomes.
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Introducción: Educación y autocuidado son pilares en el tratamiento de la Diabetes Mellitus (DM) y prevención de complicaciones como la enfermedad del pie relacionada a la diabetes (EPRD). Objetivo: Determinar el nivel de conocimiento de DM y el autocuidado de los pies en pacientes con DM tipo 2. Materiales y métodos: Estudio observacional descriptivo, prospectivo, corte transversal; realizado en pacientes adultos con DM tipo 2, que acudieron a consulta endocrinológica y podológica en Hospital Central del Instituto de Previsión Social, en un periodo de 9 meses, desde setiembre 2022 a junio 2023. Tras al menos 2 consultas en cada especialidad, se solicitó el llenado de los cuestionarios DKQ24 y APD-UMA para evaluar conocimiento sobre DM y autocuidado de los pies respectivamente. Resultados: Se incluyó a 103 pacientes, 57% mujeres, 63±11 años de Diabetes, 14±8,45; 29% educación primaria, índice de masa corporal 30,56±5,31, hipertensión arterial 83,5%, 11,6% tabaquistas, retinopatía 35,9%, pérdida de la sensibilidad protectora (PSP) en pies 53,4%, enfermedad arterial periférica 20,4%, deformidades 49,5% y lesiones previas 27,2% en pies; amputación menor 2,9%, amputación mayor 1 %. HBA1c media 8% (±1,3), clearence de creatininia 78,2 mg/dL/m2 (±21,42). Niveles de conocimiento: bueno 68 (66%), regular 34 (33%) y escasos 1(1%). Autocuidado de los pies: promedio de respuestas entre muy adecuadas y adecuadas: 87,4 (84,8%), regular: 9,4 (9,2%); entre inadecuadas y muy inadecuadas 7 (6,8%). Conclusión: Los pacientes con DM2 que acuden a consulta multidisciplinaria tienen un alto conocimiento sobre su patología y autocuidado de los pies, lo que ayudaría a la prevención de complicaciones, teniendo en cuenta que son un grupo de riesgo para EPRD.
Introduction: Education and self-care are pillars in the treatment of Diabetes Mellitus (DM) and prevention of complications such as diabetes-related foot disease (DPERD). Objetive: Determine the level of knowledge of DM and foot self-care in patients with type 2 DM. Materials and methods: Descriptive, prospective, cross-sectional observational study; performed in adult patients with type 2 DM, who attended an endocrinological and podiatric consultation at the Central Hospital of the Institute of Social Security, in a period of 9 months, from September 2022 to June 2023. After at least 2 consultations in each specialty, a filling out the DKQ24 and APD-UMA questionnaires to evaluate knowledge about DM and foot self-care respectively. Results: 103 patients were included, 57% women, 63±11 years of Diabetes, 14±8.45; 29% primary education, body mass index 30.56±5.31, high blood pressure 83.5%, 11.6% smokers, retinopathy 35.9%, loss of protective sensitivity (PSP) in feet 53.4%, peripheral arterial disease 20.4%, deformities 49.5% and previous injuries 27.2% in the feet; minor amputation 2.9%, major amputation 1%. HBA1c mean 8% (±1.3), creatinine clearance 78.2 mg/dL/m2 (±21.42). Knowledge levels: good 68 (66%), regular 34 (33%) and poor 1 (1%). Foot self-care: average of responses between very adequate and adequate: 87.4 (84.8%), regular: 9.4 (9.2%); between inadequate and very inadequate 7 (6.8%). Conclusion: Patients with DM2 who attend multidisciplinary consultation have an elevated level of knowledge about their foot pathology and self-care, which would help prevent complications, considering that they are a risk group for EPRD.
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Objective: to evaluate the association of Orem self-care model improvement of symptoms and quality of life in patients with diabetes. Methods. A scoping review was carried on bibliographic databases: PubMed-Medline, Scopus, SID and Magiran. The inclusion criteria encompassed studies examining the impact of the Orem self-care model on diabetic patients. Studies considered for inclusion needed to have full-text availability and be written in either English or Persian, with key words including "Models", "Nursing", "Quality of Life", and "Diabetes Mellitus". CONSORT checklist and STROBE statement were selected for quality assessment. Results. A total of 9 studies were included, all using quantitative methodology and focusing on adults or older adults. The majority of articles focused on quality of life and diabetic symptoms. 8 studies showed positive outcomes after implementation of the model. The findings indicate that this model led to an enhanced level of self-efficacy, improved quality of life, and better self-care practices among diabetic patients.Conclusion.Orem self-care model can reduce the diabetic symptoms and improve the quality of life, self-efficacy and self-care in these patients.
Objetivo. Evaluar la asociación del modelo de autocuidado de Orem en el mejoramiento de los síntomas y en la calidad de vida en pacientes con diabetes. Método. Se realizó una revisión de alcance empleando las bases bibliográficas PubMed-Medline, Scopus, SID y Magiran. Los criterios de inclusión abarcaron estudios que examinaran el impacto del modelo de autocuidado de Orem en pacientes diabéticos. Los estudios considerados para su inclusión debían tener disponibilidad de texto completo y estar escritos en inglés o persa, con palabras clave como: "Models", "Nursing", "Quality of Life" y "Diabetes Mellitus". Se utilizaron para la evaluación de la calidad de los estudios la lista de comprobación CONSORT y la declaración STROBE. Resultados. Se incluyeron un total de 9 estudios, todos ellos con metodología cuantitativa y centrados en adultos y en ancianos. La mayoría de los artículos se estudiaron la calidad de vida y los síntomas diabéticos. 8 estudios mostraron resultados positivos tras la aplicación del modelo de Orem. Los hallazgos indican que este modelo condujo a un mayor nivel de autoeficacia, mejor calidad de vida y mejores prácticas de autocuidado entre los pacientes diabéticos. Conclusión.El modelo de autocuidado de Orem puede ayudar a disminuir los síntomas diabéticos y mejorar la calidad de vida, la autoeficacia y el autocuidado en estos pacientes.
Objetivo. Avaliar a associação do modelo de autocuidado de Orem na melhora dos sintomas e na qualidade de vida de pacientes com diabetes. Métodos. Foi realizada uma revisão de escopo usando os bancos de dados PubMed-Medline, Scopus, SID e Magiran. Os critérios de inclusão incluíram estudos que examinaram o impacto do modelo de autocuidado de Orem em pacientes diabéticos. Os estudos considerados para inclusão tinham que estar disponíveis em texto completo e escritos em inglês ou persa, com palavras-chave como: "Models", "Nursing", "Quality of Life" e "Diabetes Mellitus". A lista de verificação CONSORT e a declaração STROBE foram usadas para avaliar a qualidade dos estudos. Resultados. Foram incluídos 9 estudos, todos com metodologia quantitativa e com foco em adultos e idosos. A maioria dos artigos estudou a qualidade de vida e os sintomas diabéticos. Oito estudos mostraram resultados positivos após a aplicação do modelo de Orem. Os achados indicam que esse modelo levou a um nível mais alto de autoeficácia, melhor qualidade de vida e melhores práticas de autocuidado entre os pacientes diabéticos. Conclusão. O modelo de autocuidado de Orem pode ajudar a diminuir os sintomas da diabetes e melhorar a qualidade de vida, a autoeficácia e o autocuidado desses pacientes.
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Humanos , Modelos de Enfermería , Diabetes MellitusRESUMEN
Introducción. A nivel mundial, la obesidad es considerada como un problema de salud pública debido a que afecta a la población de todas las edades, incluso al mismo personal que trabaja en instituciones de salud, situación que repercute en su ámbito personal, familiar, pero sobre todo laboral, causando en el trabajador dificultad para realizar algunos procedimientos, ausentismo laboral, discapacidad parcial o total y/o necesidad de cuidado, entre otros. Objetivo. Evaluar el efecto de una intervención de autocuidado en hábitos de vida saludable con relación a la obesidad en personal de salud de una institución de tercer nivel. Metodología. Estudio cuasi experimental, muestra 30 trabajadores con sobrepeso o algún grado de obesidad de una institución de salud de tercer nivel. Se impartieron 10 temas con relación a la obesidad, para cambiar hábitos deficientes por hábitos saludables, además de 10 sesiones de actividad física. Resultados. Al final de la intervención, dos personas bajaron el nivel de su índice de masa corporal, una persona con obesidad grado III y una de grado II bajaron a peso normal. En cuanto a las medidas antropométricas posterior a la intervención, hubo reducción en cada uno de los parámetros, referente a la evaluación del cuestionario hábitos de vida saludable, relacionados con la obesidad posterior a la intervención, se encontraron cambios positivos en cada una de las dimensiones. Sin embargo, tanto en la reducción de IMC, así como en las dimensiones del cuestionario, la diferencia encontrada, no fue estadísticamente significativa. Conclusiones. Los resultados sugieren que una intervención educativa en hábitos de vida saludable vinculados con la obesidad en personal de salud, son eficaces para contribuir al autocuidado de los trabajadores en el ámbito laboral
Introduction. Worldwide, obesity is considered a public health problem because it affects the population of all ages, including the same personnel who work in health institutions, a situation that has repercussions in their personal and family environment, but above all at work, causing the worker difficulty in performing some procedures, absenteeism, partial or total disability and/or need for care, among others. Objective. To evaluate the effect of a self-care intervention on healthy life habits in relation to obesity in health personnel of a third level institution. Methodology. Quasi-experimental study, sample of 30 workers with overweight or some degree of obesity in a tertiary health institution. Ten topics related to obesity were taught in order to change deficient habits for healthy habits, in addition to 10 sessions of physical activity. Results. At the end of the intervention, two people lowered their body mass index level, one person with grade III obesity and one with grade II obesity lowered to normal weight. Regarding the anthropometric measures after the intervention, there was a reduction in each one of the parameters, regarding the evaluation of the healthy life habits questionnaire, related to obesity after the intervention, positive changes were found in each one of the dimensions. However, both in the reduction of BMI and in the dimensions of the questionnaire, the difference found was not statistically significant. Conclusions. The results suggest that an educational intervention on healthy lifestyle habits related to obesity in health personnel is effective in contributing to the self-care of workers in the workplace
Introdução. A nível mundial, a obesidade é considerada um problema de saúde pública porque afecta a população de todas as idades, incluindo o próprio pessoal que trabalha nas instituições de saúde, situação que tem repercussões no seu ambiente pessoal e familiar, mas sobretudo no trabalho, causando ao trabalhador dificuldade na realização de alguns procedimentos, absentismo, incapacidade parcial ou total e/ou necessidade de cuidados, entre outros. Objectivos. Avaliar o efeito de uma intervenção de autocuidado sobre hábitos de vida saudáveis em relação à obesidade em profissionais de saúde de uma instituição de cuidados terciários. Metodologia. Estudo quase-experimental, amostra de 30 trabalhadores com excesso de peso ou algum grau de obesidade numa instituição de saúde terciária. Foram ensinados dez temas relacionados com a obesidade, com o objetivo de mudar hábitos deficientes por hábitos saudáveis, além de 10 sessões de atividade física. Resultados. No final da intervenção, duas pessoas baixaram o índice de massa corporal, uma pessoa com obesidade de grau III e uma com obesidade de grau II passaram para o peso normal. Relativamente às medidas antropométricas após a intervenção, verificou-se uma redução em cada um dos parâmetros, e relativamente à avaliação do questionário de hábitos de vida saudáveis relacionados com a obesidade após a intervenção, verificaram-se alterações positivas em cada uma das dimensões. No entanto, tanto na redução do IMC como nas dimensões do questionário, a diferença encontrada não foi estatisticamente significativa. Conclusões. Os resultados sugerem que uma intervenção educativa sobre hábitos de vida saudáveis ligados à obesidade no pessoal de saúde é eficaz para contribuir para o autocuidado dos trabalhadores no local de trabalho
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Humanos , Autocuidado/efectos adversosRESUMEN
Resumen Antecedentes: La educación médica puede dificultar que los estudiantes realicen acciones para mejorar su salud. Objetivo: Evaluar la influencia del contexto universitario en los comportamientos de autocuidado y la calidad de vida. Material y métodos: Se empleó un enfoque de métodos mixtos, combinando encuestas para evaluar el autocuidado y la calidad de vida, con entrevistas en profundidad para explorar influencias culturales y percepciones. Se llevaron a cabo análisis estadísticos y codificación de datos cualitativos; los métodos se integraron a través del análisis de redes. Resultados: Las puntuaciones de autocuidado superaron los 50 puntos y las de calidad de vida, los 60 puntos. El contexto de los estudiantes de medicina está moldeado por motivaciones, expectativas, habilidades y metas que influyen en la formación de la identidad y contribuyen a la profesión médica. Conclusiones: Existe una conexión positiva entre prácticas de autocuidado y la calidad de vida; sin embargo, el estrés académico pueden interrumpir potencialmente las rutinas de autocuidado. Además, se destaca la asociación entre la obesidad y la afectación en la calidad de vida, lo que enfatiza la necesidad de acciones de promoción de la salud.
Abstract Background: Medical education can make it difficult for students to take actions to improve their health. Objective: To evaluate the influence of the university context on self-care behaviors and quality of life. Material and methods: A mixed-methods approach was used, with surveys being combined to assess self-care and quality of life, with in-depth interviews to explore cultural influences and perceptions. Statistical analysis and qualitative data coding were carried out, with methods being integrated through network analysis. Results: Self-care scores exceeded 50 points, and quality of life scores exceeded 60 points. Medical students context is shaped by motivations, expectations, skills, and goals that influence identity formation and contribute to the medical profession. Conclusions: There is a positive connection between self-care practices and quality of life. However, academic stress can potentially disrupt self-care routines. Furthermore, an association between obesity and a decrease in quality of life stands out, which emphasizes the need for health promotion actions.
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Objective:To investigate the self-care contribution and binary coping level of spouse caregivers for middle-aged and young stroke patients and explore the relationship between the two, in order to improve the quality of self-care contribution of spouse caregivers to middle-aged and young stroke patients.Methods:A cross-sectional survey was conducted among 200 middle-aged and young stroke patients ′ spouse caregivers in the People ′s Hospital of Xinjiang Uygur Autonomous Region from January to June 2023 by the general data questionnaire, the Caregiver Contribution to Self-care of Stroke Patient Scale, the Dyadic Coping Inventory. The correlation between self-care contributions and binary coping strategies of spousal caregivers was analyzed, and the factors that affect their self-care contributions were screened. Results:Finally, 192 middle-aged and young stroke patients ′ spouse caregivers were included, including 70 males and 122 females, aged 18-59 years old. The total score of self-care contribution of spousal caregivers of middle-aged and young stroke patients was (75.43 ± 6.80) points, and the total score of binary coping was (117.12 ± 9.59) points, both of which were positively correlated ( r=0.691, P<0.05). Hierarchical regression analysis showed that after controlling for the influence of general data, binary coping could explain 28.4% variation in the self-care contribution of spouse caregivers of middle-aged and young stroke patients ( P<0.05). Conclusions:The duality coping level positively predicts the quality of spouse caregivers ′ self-care contribution to middle-aged and young stroke patients. Medical staff should assess the dual coping level of middle-aged and young stroke patients and their spouses, and carry out targeted dual intervention measures to improve the quality of caregivers' contribution to stroke patients ′ self-care.
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Objective To investigate the effect of cognitive-behavioral intervention under the family-centered care(FCC)model on continuing care of patients after aortic dissection surgery.Methods One hundred and six patients undergoing aortic dissection in the Department of Cardiac Surgery of the hospital from January 2021 to December 2022 were evenly divided into control group and observation group by using random number table method,with 53 cases in each group.The control group was given routine continuing care,and the observation group was treated with continuing care with the cognitive behavior intervention under the FCC mode based on the control group,and both groups intervened for 8 weeks.The control group was treated with routine continuity care,while the observation group received continuity care with cognitive-behavioral intervention based on the FCC model in addition to routine continuing care,with a intervention duration of 8 weeks for both groups.The two groups were compared in terms of blood pressure,body mass index(BMI),self-care ability(measured using the Self-Care Ability Scale-ESCA),quality of life(measured using the Short Form-36 Health Survey-SF-36),and levels of depression and anxiety(measured using the Hospital Anxiety and Depression Scale-HADS)before and after the intervention.Results The level of blood pressure,BMI,and level of depression and anxiety after the intervention were all significantly lower than before the intervention(P<0.05)and the scores by ESCA and SF-36 were signifi-cantly higher than before intervention(P<0.05).The blood pressure and BMI in the observation group were both significantly better than in the control group[(116.47±28.23)mmHg vs.(124.48±29.81)mmHg and(25.33±1.11)kg/m2 vs.26.18±1.35)kg/m2,t = 7.193,2.454,P<0.01,respectively].The scores of self-care ability and quality of life in the observation group were higher than in the control group[(121.15±29.69)vs.(106.68±24.71)and(67.92±13.69)vs.(60.81±10.77),t = 8.243,7.436,P<0.01,respectively].The scores of depression and anxiety in the observation group were significantly lower than in the control group[(11.07±4.00)vs.(12.20±4.28)and(12.39±3.59)vs.(13.45±4.15),t = 3.873,2.852,P<0.01,respectively].Conclusion The cognitive-behavioral intervention under the FCC mode can significantly improve blood pressure,BMI,and psychological condition,as well as enhance patients'self-care ability and quality of life,when applied in the continuity of care for patients after aortic dissection.Therefore,it is worth promoting and applying in clinical practice.
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Objective To develop a self-care scale for patients with lymphedema after breast cancer surgery and verify its reliability and validity.Methods Based on the model of knowledge,belief and practice,a questionnaire item pool was constructed after literature reviews and qualitative interviews.A questionnaire-based scale was drafted based on the established item pool by carrying out two rounds of consultation with 15 clinical nursing specialists,nursing administrators and nursing educators from 8 provinces or cities in China.Reliability and validity of the scale were tested using convenience sampling,involving 444 patients with breast cancer surgery related lymphedema from 7 general hospitals in Hubei and Henan provinces,China,between May and July 2023.Results The response rates for the two rounds of expert consultation were 93.75%and 93.33%,respectively.The authority coefficients of the two rounds were 0.86 and 0.89,respectively,and the coordination coefficients for the 2 rounds were 0.130 and 0.379,respectively.In the first round,the average importance rating was from 4.33 to 4.93 with the coefficient of variation from 0.05 to 0.19,and the full score ratio from 53.33%to 93.33%.In the second round,the average importance rating ranged from 2.86 to 4.93 with the coefficient of variation from 0.05 to 0.36,and the full score ratios from 7.14%to 92.86%.A total of 421 patients completed the survey.The overall Cronbach's α coefficient of the scale was 0.943,the overall split-half reliability was 0.824,the scale-level content validity index(S-CVI)was 0.912,and the item-level content validity index(I-CVI)of the total scale ranged from 0.857 to 1.000.The KMO value of exploratory factor analysis was 0.919,the Bartrett spherical test value was 4671.724(P<0.001),and the cumulative variance contribution rate was 64.155%.Confirmatory factor analysis showed a good model fit.After the reliability and validity tests,the scale was finalised and determined to consist of three dimensions with 33 items:knowledge(9 items),attitude(6 items)and behaviour(18 items).Conclusion The self-care scale for the patients with lymphedema after breast cancer surgery has demonstrated good reliability and validity,and makes it an effective assessment tool for the patients with lymphedema after breast cancer surgery.
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@#<p style="text-align: justify;" data-mce-style="text-align: justify;">Caring for ourselves mirrors our caring for others. This mirrored care theory serves as the embodiment of a nurse possessing a selfcare nursing competency capable of mirroring competent patient care. The key concept of the theory is self-care nursing competency. Nursing has been established within this theory to help nurses achieve patient care competencies and impact the nursing profession. Self-care nursing competency contains three domains: self-awareness, self-regarding behavior, and self love. Moreover, Hawthorne nurses are the nurse managers and leaders who must integrate and apply the self-care nursing competency and the concept of the mirrored care theory in the nursing curricula, policies, and programs. These managers and leaders should constantly monitor and appraise the system. Consequently, the mirrored care theory shall rationalize the inclusion of self-care nursing competency in the nursing scope and standards of practice. When nurses possess self-care nursing competency, they are more competent in caring for others since they develop a sense of purpose, decrease experiences of burnout and dissatisfaction, and increase their morale. With this, the quality of care given by the nurses to themselves reflects the quality of care given to their clients. Hence, the mirrored care theory shall serve as a basis of caring not only for the patients but for the nurses as well.<br></p>
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Enfermeras y EnfermerosRESUMEN
Introduction@#Patients with diabetes require regular follow-ups to achieve optimal glycemic targets. The coronavirus- 19 (COVID-19) pandemic resulted in interruptions in healthcare delivery placing greater importance on patient’s self-management of their condition. Telemedicine bridged the gap between the physician and patient that was created by community quarantines. @*Objective@#To determine if there is a difference in patient’s self-care activities before and after using telemedicine using the Diabetes Self-Management Questionnaire (DSMQ). @*Methodology@#A descriptive repeated cross-sectional study of patients with type 2 diabetes mellitus at the University of Santo Tomas Hospital who consulted via telemedicine using different available platforms were included. Self-care was measured using the DSMQ. Patient satisfaction with telemedicine was also assessed using a patient satisfaction survey. @*Results@#An improvement in self-care practices was seen as significantly higher mean DSMQ scores after telemedicine consultations (6.79 ± 1.33 to 7.32 ± 1.21, p = 0.0015), with the highest scores on dietary control and physical activity. There was a statistically significant reduction in HbA1c on follow up (8.37 ± 2.31 to 7.31 ± 1.36; p<0.00001). Those with well-controlled diabetes (n = 14) at baseline remained to have good control while the proportion of those with poorly controlled diabetes (n = 34) showed improved glycemic control on follow up (p = 0.0045). Most patients were highly satisfied with telemedicine. @*Conclusion@#The use of telemedicine by patients with diabetes showed numerical improvement in both self-care practices and glycemic control. These findings imply that telemedicine may be mainstreamed as part of diabetes care among Filipinos.
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COVID-19 , TelemedicinaRESUMEN
Resumo Objetivo Analisar o conceito de "autogestão ineficaz do linfedema" em mulheres mastectomizadas. Métodos Trata-se de uma análise do conceito proposto por Walker e Avant operacionalizada por meio de uma revisão integrativa da literatura, organizada em oito etapas e baseada nas seguintes questões norteadoras: Qual é a definição de autogestão ineficaz em mulheres mastectomizadas? Quais os antecedentes, atributos e consequências da autogestão ineficaz em mulheres mastectomizadas? Como a autogestão ineficaz de linfedema tem sido definida no contexto de mulheres que passaram por mastectomia? A busca de artigos foi realizada em cinco bases de dados eletrônicas, sem limite de data, no período de julho de 2022 a fevereiro de 2023. Resultados Foram identificados 30 antecedentes e 19 consequentes; os mais frequentes entre eles foram respectivamente os seguintes: falta de apoio familiar/social e diminuição da qualidade de vida. Os atributos definidores mais frequentemente identificados foram os seguintes: edema, inchaço no braço, sensação de peso no membro, dor, dormência e diminuição da função do membro. Foram ainda elaborados os casos modelo e contrário para auxiliar na decisão sobre o uso do conceito. Conclusão Os conceitos resultantes da análise contribuem para clarificar os termos e o desenvolvimento da linguagem na enfermagem, devendo ser validados por juízes e prática clínica para melhor aplicação na oncologia clínica.
Resumen Objetivo Analizar el concepto de "autogestión ineficaz de linfedema" en mujeres mastectomizadas. Métodos Se trata de un análisis del concepto propuesto por Walker y Avant, realizado mediante una revisión integradora de la literatura, organizado en ocho etapas y basado en las siguientes preguntas orientadoras: ¿Cuál es la definición de autogestión ineficaz en mujeres mastectomizadas? ¿Cuáles son los antecedentes, atributos y consecuencias de la autogestión ineficaz en mujeres mastectomizadas? ¿Cómo se define la autogestión ineficaz de linfedema en el contexto de mujeres que pasaron por una mastectomía? La búsqueda de artículos fue realizada en cinco bases de datos electrónicas, sin límite de fecha, en el período de julio de 2022 a febrero de 2023. Resultados Se identificaron 30 antecedentes y 19 consecuentes. El antecedente más frecuente fue falta de apoyo familiar/social y el consecuente, reducción de la calidad de vida. Los atributos definidores identificados más frecuentemente fueron los siguientes: edema, hinchazón en el brazo, sensación de peso en el miembro, dolor, adormecimiento y reducción de la función del miembro. Además, se elaboraron los casos modelo y contrarios para ayudar en la decisión sobre el uso del concepto. Conclusión Los conceptos resultantes del análisis contribuyen a clarificar los términos y el desarrollo del lenguaje en enfermería y deben ser validados por jueces y práctica clínica para una mejor aplicación en la oncología clínica.
Abstract Objective To analyze the concept of "ineffective self-management of lymphedema" in mastectomized women. Methods This is an analysis of the concept proposed by Walker and Avant, operationalized through an integrative literature review, organized into eight stages, and based on the following guiding questions: What is the definition of ineffective self-management in mastectomized women? What are the antecedents, attributes, and consequences of ineffective self-management in mastectomized women? How has ineffective self-management of lymphedema been defined in the context of women who have undergone mastectomy? The search for articles was carried out in five electronic databases, with no date limit, from July 2022 to February 2023. Results Antecedents (30) and consequents (19) were identified. Among them, the most frequent were the following, respectively: lack of family and/or social support and decreased quality of life. The most frequently identified defining attributes were the following: edema, swelling in the arm, feeling of heaviness in the limb, pain, numbness, and reduced function of the limb. Model and contrary cases were also designed to help decide on the use of the concept. Conclusion The concepts resulting from the analysis contribute to clarifying the terms and development of language in nursing, and should be validated by judges and clinical practice for better application in clinical oncology.
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Abstract Background Knowledge of patients about Rheumatoid Arthritis (RA) is a necessary aspect to better approach self-management support in a patient-centered manner. The research instrument known as the Rheumatoid Arthritis Knowledge Assessment Scale (RAKAS), consisting of 13 items, is simple, reliable and reproducible, and can be applied in both clinical practice and research protocols. Objectives This study aimed to translate and culturally adapt the RAKAS vocabulary into Brazilian Portuguese and to evaluate its concurrent validity. Methods The RAKAS was translated into Brazilian Portuguese and administered to 52 elderly women with RA recruited between May 2021 and May 2022. Concurrent validity was assessed using the Spearman's correlation coefficient between RAKAS and Patient Knowledge Questionnaire (PKQ). Results The participants considered RAKAS-13/BRAZIL easy to understand and did not report any doubts in answering the final version. Concurrent validity of the RAKAS-13/BRAZIL was low compared to the PKQ (ρ = 0.283, p = 0.038). Conclusion The Brazilian Portuguese version of the RAKAS (RAKAS-13/BRASIL) proved to be a questionnaire that was easy and quick to administer to assess patient knowledge about Rheumatoid Arthritis, despite its low correlation with the PKQ in the present study.
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ABSTRACT Objective: To evaluate the usability of the "Quali+" mobile application prototype for people with high blood pressure. Method: Descriptive, cross-sectional study of heuristic evaluation of a mobile application prototype carried out between June and July 2021, in a university hospital. Participants were 22 people with arterial hypertension in the city of Campina Grande, PB, Brazil. To measure usability, the Smartphone Usability questionnaiRE instrument was applied. Levels (70 points have good usability. Descriptive statistics were used. Results: The overall usability average was 105.8(7.44 points, with the lowest score being 83 and the highest being 113. Usability was at the highest level(80 points). Conclusion: The usability evaluation showed that, although it is a prototype, the application has good usability and can be considered for routine use in health self-management. Future research is needed to verify its effectiveness.
RESUMEN Objetivo: Evaluar la usabilidad del prototipo de aplicación móvil "Quali+" para personas con hipertensión arterial. Método: Estudio descriptivo, transversal, de evaluación heurística de un prototipo de aplicación móvil realizado entre junio y julio de 2021, en un hospital universitario. Los participantes fueron 22 personas con hipertensión arterial en la ciudad de Campina Grande, PB, Brasil. Para medir la usabilidad se aplicó el instrumento Smartphone Usability QuestionnaiRE. Los niveles ( 70 puntos tienen buena usabilidad. Se utilizó estadística descriptiva. Resultados: Los principales hallazgos del estudio deben presentarse de manera concisa y clara, sin excesivos detalles. Los resultados deben estar alineados con la sección de resultados del artículo completo, proporcionando información más detallada sobre los análisis estadísticos realizados y los principales resultados encontrados. Conclusión: La evaluación de la usabilidad mostró que, aunque se trata de un prototipo, la aplicación tiene una buena usabilidad y puede considerarse para uso rutinario en la autogestión de la salud. Se necesita investigación futura para verificar su eficacia.
RESUMO Objetivo: Avaliar a usabilidade do protótipo de aplicativo móvel "Quali+" para pessoas com hipertensão arterial. Método: Estudo descritivo, transversal, de avaliação heurística de um protótipo de aplicativo móvel realizado entre junho e julho de 2021, em hospital universitário. Participaram 22 pessoas com hipertensão arterial, na cidade de Campina Grande, PB, Brasil. Para mensuração da usabilidade, aplicou-se o instrumento Smartphone Usability questionnaiRE. Níveis (70 pontos apresentam boa usabilidade. Utilizou-se da estatística descritiva. Resultados: A média geral de usabilidade foi 105,8(7,44 pontos, obtiveram-se como menor escore 83 e, maior 113. A usabilidade se enquadrou no nível mais elevado (80 pontos). Conclusão: A avaliação da usabilidade constatou que, ainda que se trate de um protótipo, o aplicativo apresenta boa usabilidade, podendo ser considerado para o uso rotineiro na autogestão em saúde. Pesquisas futuras são necessárias para verificar a eficácia.
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Objective: to understand how the Covid-19 pandemic has interfered with the self-care and lifestyle of university students. Method: exploratory descriptive research carried out with nursing students from four higher education institutions in the state of Paraná. Data were collected using an electronic form available on Google Forms; those of a quantitative nature were subjected to descriptive and inferential analysis, and the answers to open questions analyzed using the Iramuteq Software. Results: 58 nursing students participated in the study, the majority of whom were female (82.76%), with an average age of 22 years, the majority lived with their family. Statistically significant association was observed between Age and "Made friends during remote classes"; Sex and "substance use"; and Year of graduation with eating habits and "Made friends during remote classes". Conclusion: the pandemic especially influenced eating habits, self-care, sleep quality and alcohol and tobacco use among nursing students.
Objetivos:comprender cómo la pandemia de Covid-19 ha interferido en el autocuidado y estilo de vida de los estudiantes universitarios. Método: investigación descriptiva exploratoria realizada con estudiantes de enfermería de cuatro instituciones de educación superior del estado de Paraná. Los datos fueron recopilados mediante un formulario electrónico disponible en Google Forms; los de carácter cuantitativo fueron sometidos a análisis descriptivo e inferencial, y las respuestas a preguntas abiertas analizadas mediante el Software Iramuteq. Resultados: Participaron del estudio 58 estudiantes de enfermería, la mayoría del sexo femenino (82,76%), con una edad promedio de 22 años, la mayoría vivía con su familia. Se observó asociación estadísticamente significativa entre Edad y "Hizo amigos durante las clases remotas"; Sexo y "consumo de sustancias"; y Año de graduación con hábitos alimentarios y "Hice amigos durante clases remotas". Conclusión: la pandemia influyó especialmente en los hábitos alimentarios, el autocuidado, la calidad del sueño y el consumo de alcohol y tabaco entre los estudiantes de enfermería.
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Humanos , Masculino , Femenino , Adulto , Adulto Joven , Conocimientos, Actitudes y Práctica en Salud , COVID-19 , Estilo de VidaRESUMEN
Resumo Objetivo Identificar os fatores que facilitam ou dificultam a construção da autonomia na adolescência através da experiência de jovens adultos com diabetes tipo 1 e seus pais. Métodos Estudo de natureza qualitativa, descritiva e exploratória. Foram realizadas duas entrevistas de grupo focal, uma com nove jovens adultos peritos na gestão de sua doença e outra com sete pais. Para análise dos dados, foram usados análise de conteúdo temática e categorial, com particularidades de entrevista de grupo focal, e recurso ao software NVIVO 12. Resultados Emergiram duas grandes categorias e dez subcategorias relativas aos fatores que facilitaram (sistemas de suporte, conhecimentos, alimentação, bomba de insulina, responsabilização precoce pela gestão da terapêutica, características dos jovens), e dificultaram (regime terapêutico, estigma, atitude dos profissionais de saúde, características dos jovens, conhecimento) o desenvolvimento da autonomia na gestão da doença. Conclusão A autonomia na gestão do diabetes envolve vários desafios aos adolescentes, o que requer adequação de atitudes e intervenções de profissionais. Além da gestão tradicional da condição de saúde, é essencial abordar temas relacionados com a socialização dos adolescentes, procurando estratégias inovadoras que promovam o coping e a qualidade de vida. Os resultados deste estudo possibilitam refletir sobre a relação terapêutica com os adolescentes, salientando a importância de individualizar cuidados e respostas inovadoras às suas necessidades específicas.
Resumen Objetivo Identificar los factores que facilitan o dificultan la construcción de la autonomía en la adolescencia a través de la experiencia de jóvenes adultos con diabetes tipo 1 y sus padres. Métodos: Estudio de naturaleza cualitativa, descriptiva y exploratoria. Se realizaron dos entrevistas de grupo focal, una con nueve jóvenes adultos expertos en la gestión de su enfermedad y otra con siete padres. Para el análisis de datos se utilizó el análisis de contenido temático y categorial, con particularidades de entrevista de grupo focal y recurso del software NVIVO 12. Resultados Surgieron dos grandes categorías y diez subcategorías relativas a los factores que facilitaron el desarrollo de la autonomía en la gestión de la enfermedad (sistemas de apoyo, conocimientos, alimentación, bomba de insulina, responsabilización temprana de la gestión de la terapéutica, características de los jóvenes) y los que la dificultaron (régimen terapéutico, estigma, actitudes de los profesionales de la salud, características de los jóvenes, conocimientos). Conclusión La autonomía en la gestión de la diabetes incluye muchos desafíos para los adolescentes, lo que requiere adaptación de actitudes e intervenciones de profesionales. Además de la gestión tradicional del estado de salud, es esencial abordar temas relacionados con la socialización de los adolescentes y buscar estrategias innovadoras que promuevan el coping y la calidad de vida. Los resultados de este estudio permiten reflexionar sobre la relación terapéutica con los adolescentes y destacar la importancia de individualizar los cuidados y las respuestas innovadoras para sus necesidades específicas.
Abstract Objective To identify the factors that facilitate or hinder the construction of autonomy in adolescence through the experience of young adults with type-1 diabetes and their parents. Methods This was a qualitative, descriptive, and exploratory study. Two focus group interviews were conducted: one with nine young adults who were experts in managing their illness and the other with seven parents. Thematic and categorical content analysis was used for data analysis, with particularities of a focus group interview and the use of the NVIVO 12 software. Results Two major categories and ten subcategories related to factors that facilitated (support systems, knowledge, diet, insulin pump, early responsibility for managing therapy, and characteristics of young people) and hindered (therapeutic regimen, stigma, attitude of health professionals, characteristics of young people, and knowledge) the development of autonomy in disease management emerged. Conclusion Autonomy in the management of diabetes involves several challenges for adolescents, which requires adaptation of attitudes and interventions by professionals. In addition to the traditional management of the health condition, addressing issues related to the socialization of adolescents is essential, looking for innovative strategies that promote coping and quality of life. The results of this study make it possible to reflect on the therapeutic relationship with adolescents, emphasizing the importance of individualizing care and innovative responses to their specific needs.