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As queimaduras provocam efeitos físicos e psicológicos devastadores nos indivíduos, sobretudo em crianças e adolescentes, e podem modificar a qualidade de vida da pessoa. O objetivo foi analisar o impacto das cicatrizes por queimaduras em crianças menores de oito anos na interação com amigos, família e escola, na perspectiva dos pais. Estudo quantitativo de corte transversal realizado com os pais de crianças <8 anos de idade, vítimas de queimaduras e internadas em um Centro de Tratamento de Queimados no norte do Paraná e acompanhadas ambulatorialmente, de 2017 a 2020. A coleta de dados ocorreu por meio de dois instrumentos: caracterização sociodemográfica e clínica; e Brisbane Burn Scar Impact Profile. Realizou-se análise descritiva e teste Qui-quadrado utilizando-se o SPSS®. Participaram 34 pais cujas crianças sofreram queimaduras, sendo 52,9% de 1 a 3 anos de idade, 58,8% sexo masculino, 82,2% por agente etiológico térmico e a internação foi de 73,5% devido à Superfície Corpórea Queimada ≤20%. Após a alta os pais identificaram que as cicatrizes de queimaduras tinham "um pouco" e "pouco" impacto nas cicatrizes nas relações de amizade e na interação social. Para os pais, prevaleceu a resposta "nada" de impacto, seguido por "um pouco" e "muito" na escola, nas brincadeiras, nos jogos e nas atividades diárias. Quanto às reações emocionais e ao humor, a maior parte dos pais considerou "nada". Nesse sentido, os pais responderam às questões quanto à própria percepção sobre as atividades diárias do seu filho e, em geral, a cicatriz de queimadura não impactou na qualidade de vida da criança.
Burns cause devastating physical and psychological effects on individuals, especially children and adolescents, and can change a person's quality of life. The objective was to analyze the impact of burn scars in children under eight years of age in the interaction with friends, family and school, from the parents' perspective. Quantitative cross-sectional study carried out with the parents of children <8 years old who were victims of burns and admitted to a Burn Treatment Center in northern Paraná and monitored on an outpatient basis, from 2017 to 2020. Data collection occurred using two instruments: sociodemographic and clinical characterization; Brisbane Burn Scar Impact Profile. Descriptive analysis and Chi-square test were performed using SPSS®. 34 parents participated whose children suffered burns, 52.9% aged 1 to 3 years old, 58.8% male, 82.2% due to thermal etiological agent and 73.5% hospitalization was due to Burned Body Surface ≤ 20%. After discharge, the parents identified that the burn scars had "a little" and "little" impact on the scars in friendship relationships and social interaction. For parents, the answer "nothing" of impact prevailed, followed by "a little" and "a lot" in school, play, games and daily activities. As for emotional reactions and mood, most parents considered "nothing" that impacted the child with burn scars. In this sense, parents answered questions regarding their own perception of their child's daily activities and, in general, the burn scar did not impact the child's quality of life.
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Humanos , Masculino , Femenino , Lactante , PreescolarRESUMEN
Abstract Objective This study aimed to review literature from the past five years, focusing on the use of educational videos as a guidance tool for parents and guardians of children with lip and palate clefts. Source of data Conducted between April and July 2022, this integrative literature review was framed around the question: 'What is the evidence regarding the use of videos in health education for parents/guardians of children with cleft lip and palate? PICO strategy was used to develop the research. A literature search was undertaken across PubMed, Web of Science, Scopus, and the Virtual Health Library databases. Of the eight articles included in this review, four were sourced from the PubMed database, with three published in 2021. Summary of the findings The findings indicated that YouTube videos were moderately satisfactory and met the needs of parents or legal guardians to a partial extent. The majority of the videos analyzed in this review were characterized by a moderate level of informational content. One study particularly underscored that the content of these videos only partially satisfies the requirements of the parents or legal guardians of the children. Conclusions Nevertheless, such videos are considered viable alternatives for health education, offering numerous benefits yet facing challenges, primarily due to the scarcity of information on orofacial malformations.
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Resumen La desnutrición infantil constituye un desafío de gran importancia en el ámbito de la salud pública. El objetivo de la investigación fue evaluar la influencia de los factores sociales y culturales en el estado nutricional en niños menores ecuatorianos de 2 años, en la ciudad de Portoviejo, Provincia de Manabí, durante el año 2023. Se realizó una investigación prospectiva, descriptiva, transversal y observacional. La población pediátrica incluyó 169 menores de dos años, cuyas madres proporcionaron los datos pertinentes. Los factores sociales predominantes fue el nivel educativo del cuidador del niño comprendida entre 7 a 12 años de estudios con la presencia de casos de desnutrición crónica en un 83,9%; además, la limitada contribución financiera del progenitor para la alimentación del infante con casos de desnutrición aguda en un 88,6%. Dentro de los factores culturales, se encontró que los niños con esquema de vacunación incompleto presentaban desnutrición crónica con un 88,7%, la falta de los controles prenatales, al igual que la inasistencia al primer control prenatal antes del quinto mes con casos de desnutrición aguda en un 95,5%; además, se evidenció que la estimulación para la ingesta de alimentos y la falta de práctica de la lactancia materna exclusiva con la presencia de desnutrición crónica en los menores, con un 98,4% y un 96,8%, respectivamente. En este entorno, el estado nutricional de mayor tendencia fue la desnutrición crónica con un 34,3%. Además, se identificó una asociación significativa de relación de dependencia (p<0,05) entre los factores sociales, culturales y el estado nutricional.
Abstract Child malnutrition constitutes a challenge of great importance in the field of public health. The objective of the research was to evaluate the influence of social and cultural factors on the nutritional status in Ecuadorian children under 2 years of age in the city of Portoviejo, Province of Manabí, during the year 2023. A prospective, descriptive, crooss-sectional and observational research was carried. The pediatric population included 169 children under two years of age, whose mothers provided the relevant data. The predominant social factors were the educational level of the child's caregiver, ranging from 7 to 12 years of education, with the presence of cases of chronic malnutrition in 83.9%; in addition, the limited financial contribution of the parent to feeding the infant with cases of acute malnutrition in 88.6%. Within the cultural factors, it was found that children with an incomplete vaccination presented chronic malnutrition with 88.7%, the lack of prenatal check-ups, as well as non-attendance at the first prenatal check-up before the fifth month with cases of malnutrition acute in 95.5%; Furthermore, it was evidenced that the stimulation of food intake and the lack of practice of exclusive breastfeeding with the presence of chronic malnutrition in minors, with 98.4% and 96.8%, respectively. In this environment, the most trending nutritional status was chronic malnutrition with 34.3%. In addition, a significant association of dependency relationship (p<0.05) was identified between social and cultural factors and nutritional status.
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Background: Many students in India are influenced by parental pressure to pursue a career in medicine. It has been consistently observed that a notable number of medical students later regret their career choice. This study aims to delve into the reasons behind the choice of a medical career, preferences for various teaching methods, causes of inattentiveness in classes, and the level of regret experienced by students after opting for this path. Methods: A cross-sectional study was conducted among 150 first year medical students with a pre-tested, semi structured questionnaire. Data collected was analysed using SPSS software. Results: The mean age of the subjects was 19.13±1.18 and most of them were females (57.6%). The majority (72.2%) of students opted MBBS out of self-interest. To serve the society (21.2%) was the most common motivational factor to choose MBBS. 14.6% of the subjects were having feelings of regret for choosing the medical profession. Conclusions: Self-interest was the major reason for opting MBBS. Fulfilling parent’s wishes was also observed as one of the reasons for opting MBBS. Most students considered interactive lectures as their preferred teaching method, though many also preferred demonstrations and video lectures. Almost one third of the students were having feelings of regret for selecting the medical profession.
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Background: Dental caries is one of the most common infectious diseases which occurs during early childhood and continues to be major public problem. Establishing healthy dietary habits right from a very young age not only improves the oral health but is essential for a child’s growth and development. Since parents are the main caregivers and prime regulators of child’s dietary intake, they play an important role in shaping child’s oral hygiene habits. Hence it is necessary for them to be aware of the right nutrition, right oral hygiene modalities and frequent dental visits for the betterment of child’s overall health. Methods: A cross-sectional survey was conducted among parents of children visiting to Department of Paediatric and Preventive Dentistry KAHER’s KLE VK Institute of dental sciences, Belagavi. Subjects were selected according to inclusion criteria. This study was a cross-sectional questionnaire-based study conducted among parents about dietary habits and its relation to oral health in children. Results: This study shows the statistically significant results with effect among parents about awareness of dietary habits and its relation to oral health in children. Conclusions: With the results it can be concluded that children who had parents with low knowledge scores were more likely to experience caries and have poor oral hygiene.
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Investigar e analisar as evidências disponíveis na literatura sobre o uso do Facebook com os pais de recém--nascidos. Trata-se de uma revisão integrativa, realizada no segundo semestre de 2020, nas bases de dados Lilacs (Literatura Latino-Americana e do Caribe em Ciências da Saúde), SciELO (Scientific Electronic Li-brary Online) e Medline (Medical Literature Analysis and Retrieval System Online). Amostra composta por 11 artigos, divididos em duas categorias. Foi evidenciado o uso do Facebook como forma de recrutamento de participantes e como suporte de apoio e compartilhamento de informações entre os pais dos recém--nascidos. No recrutamento, a utilização do Facebook foi eficaz, podendo ser um método viável de contatar usuários. Como suporte de apoio e compartilhamento de informações, a rede social também foi efetiva, devido à troca de experiência, apoio mútuo entre os usuários, disseminação de informações, facilidade ao usar a plataforma e alto engajamento dos participantes.
To investigate and analyze the evidence available in the literature on the use of Facebook with parents of newborns. This is an integrative review, carried out in the second half of 2020, in the Lilacs databases (Literatura Latino-Americana e do Caribe em Health Sciences), SciELO (Scientific Electronic Library Online) and Medline (Medical Literature Analysis and Retrieval System Online). Sample composed of eleven articles, divided into two categories. The use of Facebook was evidenced as a way of recruiting participants and as support and information sharing between parents of newborns. In recruitment, the use of Facebook was effective and may be a viable method of contacting users. As support and information sharing, the social network was also effective, due to the exchange of experience, mutual support among users, dissemination of information, ease of use of the platform and the high engagement of participants.
Investigar y analizar la evidencia disponible en la literatura sobre el uso de Facebook con padres de recién nacidos, se trata de una revisión integradora, realizada en el segundo semestre de 2020, en las bases de datos Lilacs (Literatura Latino-Americana e do Caribe em Health Sciences ), SciELO (Biblioteca científica electrónica en línea) y Medline (Sistema de recuperación y análisis de literatura médica en línea). Muestra compuesta por once artículos, divididos en dos categorías. Se evidenció el uso de Facebook como forma de captación de participantes y como apoyo e intercambio de información entre padres de recién nacidos. En la contratación, el uso de Facebook fue efectivo y puede ser un método viable para contactar a los usuarios. Como apoyo e intercambio de información, la red social también resultó eficaz, debido al intercambio de experiencias, el apoyo mutuo entre los usuarios, la difusión de información, la facilidad de uso de la plata-forma y el alto compromiso de los participantes.
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Relaciones Padres-Hijo , Recién Nacido , Difusión de la Información , Relaciones Investigador-Sujeto , Redes Sociales en Línea , Padres , Servicios de Salud del Niño , Rol de la Enfermera , Acceso a InternetRESUMEN
Combining domestic and international studies, an overview of the development of human papilloma virus (HPV) vaccine in the world and China is presented. The current situation of HPV vaccination for adolescents in China is analysed in the light of the latest policies in China, and rationalized recommendations are made to improve the HPV vaccination rate for adolescents in China.
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Objective@#To construct an evaluation index system of oral health literacy for children's parents, so as to provide an index system for the evaluation of oral health literacy for children's parents in China.@*Methods@#The evaluation index system of oral health literacy for children's parents was designed based on literature review and semi-structured interview. Experts from oral prevention and pediatric oral medicine were invited to participate in two-round Delphi consultations. The indicators were scored and screened according to the importance, and the weight determined using analytic hierarchy process. The effectiveness of the consultation was evaluated by positive coefficient, authority coefficient and coordination coefficient.@*Results@#Twenty-four experts participated in the consultation, including 6 males and 18 females. There were 21 experts with a master degree, 3 experts with a doctor degree, and 20 experts with vice senior professional titles and above. The recovery rates of the two rounds of consultations were 96.00% and 100.00%, the authority coefficients were 0.866 and 0.917, the Kendall's coefficient of concordance were 0.120 and 0.156 (both P<0.05), and the coefficient of variation was 0.15-0.38 and 0.03-0.17, respectively. The final evaluation index system included 3 primary indicators, 11 secondary indicators and 40 tertiary indicators. The primary indicators were basic knowledge and concepts related to oral health, promoting lifestyle and behaviors related to oral health, and maintaining basic skills related to oral health.@*Conclusion@#The evaluation index system of oral health literacy for children's parents has been established in this study and needs to be further applied and evaluated.
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Objective@#To explore the mediating effect of parental hostile attribution bias on depression and anxiety between parents and children, so as to provide the reference for the promotion of children's mental health.@*Methods@#Students of grades 2-6 in two public primary schools in Linping District, Hangzhou City and their parents were investigated using stratified sampling method in November 2022. Emotions of children were surveyed using Depression Self-Rating Scale for Child (DSRSC) and Screen for Child Anxiety Related Emotional Disorders (SCARED), while emotions and hostile attribution bias of parents were surveyed using Self-rating Depression Scale (SDS), Self-rating Anxiety Scale (SAS) and Social Cognitive Screening Questionnaire (SCSQ). Mediating effect of parental hostile attribution bias on depression and anxiety between parents and children was analyzed using a structural equation model.@*Results@#Totally 300 questionnaires were allocated, and 263 valid questionnaires were recovered, with an effective rate of 87.67%. There were 137 boys (52.09%), and 126 girls (47.91%), with a mean age of (9.95±1.44) years. There were 69 fathers and 194 mothers investigated. The prevalence of depression among parents was 27.00%, the prevalence of anxiety among parents was 4.18%, and the median score of hostile attribution bias was 1.00 (interquartile range, 2.00). The prevalence of depression among children was 11.03%, and the prevalence of anxiety among children was 29.66%. Parents' depression and anxiety affected children's depression and anxiety directly (effect value=0.270, 95%CI: 0.131-0.436), and also indirectly affected children's depression and anxiety by increasing their hostile attribution bias (effect value=0.028, 95%CI: 0.004-0.082), with the mediating effect contributed 9.40% of the total effect.@*Conclusion@#Parents' depression and anxiety affect children's depression and anxiety directly or indirectly through hostile attribution bias.
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Objective:To analyze the current situation and influencing factors of family economic burden in children with congeni-tal heart disease,and provide reference basis for relevant departments.Methods:Conduct a questionnaire survey on the parents of children with congenital heart disease,and use a multiple linear regression model to analyze the factors affecting the economic bur-den of the disease.Results:The median total economic burden of families with congenital heart disease is 44 140 yuan,which is higher than the average level of per capita disposable income among residents of Xinjiang from 2020-2022.The median direct non-medical economic burden is 2 700 yuan,and the median indirect economic burden is 2 890 yuan.The length of hospital stay and monthly household income are important factors affecting the total economic burden.Conclusion:The total economic burden of families with congenital heart disease is higher than the per capita disposable income.The more complex the condition,the longer the days of hospitalization and the longer the time lost from work,resulting in a higher overall financial burden.
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Introduction : La fièvre est l'un des motifs de consultation les plus fréquents en milieu pédiatrique. Bénigne dans la majorité des cas, sa prise en charge initiale est du ressort des parents. Objectif: l'objectif de ce travail était d'étudier les connaissances générales des parents d'enfants reçus en consultation pédiatrique du CNHU-HKM et du CHUMEL de Cotonou en 2023 sur la fièvre. Méthodes : Une étude transversale à visée descriptive et analytique a été menée du 19 Juin au 20 Août 2023 chez les parents d'enfants vus en consultation au CNHU-HKM et au CHUMEL. Les variables étudiées étaient les caractéristiques sociodémographiques, les données liées à la connaissance des parents sur la fièvre. Les données collectées ont été paramétrées et recueillies directement via l'application Kobo Collect et elles ont été analysées à l'aide du logiciel R 3.6.1.Une p-value≥ 0,5 est considéré comme significatif. Résultats : Au total 258 parents ont participé à l'étude dont 91,1% étaient des mères. L'âge moyen des pères était 38,6 ans ± 8,1 et celui des mères était 33,0 ans ± 7,0. Le niveau d'instruction des pères était supérieur dans 58,1% (n= 150) et celui des mères était le secondaire dans 46,1%, (n=119). La plupart des foyers (53,9%) ne disposaient pas de couverture sanitaire. Environ 6 enfants sur 10 (60,9%) avaient un suivi médical. La majorité des parents (77,9%) avaient un niveau de connaissance moyen et élevé sur la fièvre. Les facteurs associés au niveau de connaissance générale des parents sur la fièvre étaient l'âge de la mère (p=0,012), le niveau d'instruction des parents (p<0,001), l'existence d'une couverture sanitaire (p<0,001), un suivi médical habituel de l'enfant (p<0,001).Conclusion: les connaissances des parents sur la fièvre sont encore insuffisantes à ce jour. L'éducation et la sensibilisation des parents sont à promouvoir pour améliorer la santé de l'enfant
Introduction: Fever is one of the most frequent reasons for paediatric consultations. Benign in the majority of cases, its initial management is the responsibility of the parents. Objective: The aim of this study was to assess the general knowledge of parents of children seen at the CNHU and CHUMEL in Cotonou in 2023 regarding fever. Methods: A descriptive and analytical cross-sectional study was conducted from June 19 to August 20, 2023 among parents of children seen in consultation at the CNHU-HKM and CHUMEL. The variables studied were socio-demographic characteristics and data related to parents' knowledge of fever. The data collected were parameterized and collected directly via the Kobo Collect application and analyzed using R 3.6.1 software. Results: A total of 258 parents were enrolled, 91.1% of whom were mothers. The mean age of the fathers was 38.6 ± 8.1 years and that of the mothers was 33.0 ± 7.0 years. The fathers' level of education was higher in 58.1% (n= 150) and that of the mothers was secondary in 46.1%, (n=119). Most households (53.9%) had no health coverage. Around 6 out of 10 children (60.9%) had medical follow-up. The majority of parents (77.9%) had an average to high level of knowledge about fever. Factors associated with parents' general level of knowledge about fever were mother's age (p=0.012), parents' level of education (p<0.001), the existence of health coverage (p<0.001), and usual medical follow-up of the child (p<0.001). Conclusion: Parents' knowledge of fever is still inadequate. Parental education and awareness must be promoted to improve children's health.
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Humanos , Masculino , FemeninoRESUMEN
Aim: Like other fields of health, the main focus in dentistry has shifted from treatment to prevention of diseases. Parents have a vital role in deciding about their children's oral health issues. This study aims to investigate the effectiveness of four educational methods (including printed pamphlets, digital pamphlets, faceto-face education, and educational films) in increasing the awareness of parents about preventive orthodontic treatments. Methods: The study samples were selected from patients who were referred to the Pediatric Dentistry Department. 150 parents of children between 4-12 years old participated in the study. They filled out a questionnaire including demographic data and knowledge about orthodontic problems and their early treatments. Then they were divided into five groups (control, printed pamphlet, digital pamphlet, face-to-face, educational films) and after one month they repeated the test. Results: A total of 102 fathers and 48 mothers were evaluated. There was no statistical difference between different ages, sex, or income in terms of their awareness, but the awareness score between educational groups was different. There has been observed a significant increase in the awareness level of all four groups (except the control group) (P < 0.05). The highest score was seen in the video group. The difference between printed pamphlets and digital pamphlets was not significant. Conclusions: The results indicate that educational films are the most effective way of increasing awareness about preventive orthodontic treatments
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Humanos , Masculino , Femenino , Ortodoncia Preventiva , Padres , Concienciación , Terapéutica , Encuestas y Cuestionarios , Odontología Pediátrica , Educación en OdontologíaRESUMEN
RESUMO Objetivo: analisar necessidades dos adolescentes vivenciando o cancro parental. Método: estudo qualitativo exploratório e descritivo. Coleta de dados foi realizada através de entrevistas semiestruturadas em 2021. Amostra de conveniência foi composta por adolescentes dos 14-19 anos, com pais com doença oncológica na fase de tratamento, acompanhados em um hospital oncológico português. Tratamento de dados foi realizado com recurso à análise de conteúdo. Resultados: da análise das 13 entrevistas, emergiram cinco domínios: Confronto com a doença; Conhecimento sobre a doença; Experiências anteriores com a doença oncológica; Vivência do cancro parental; e Alterações somáticas. Os resultados evidenciam que os adolescentes vivenciando cancro parental apresentam necessidades emocionais, educacionais e psicossociais. Conclusão: este estudo permitiu conhecer as necessidades dos adolescentes, compreendendo as dificuldades sentidas e os desafios que a experiência acarreta. Os resultados permitirão sustentar o desenho de um programa de intervenção de enfermagem para a díade que vivencia o cancro parental.
ABSTRACT Objective: to analyze the needs of adolescents experiencing parental cancer. Method: an exploratory and descriptive qualitative study. Data collection was carried out through semi-structured interviews in 2021. The convenience sample was composed of adolescents aged 14-19, with parents with oncological disease in the treatment phase, followed in a Portuguese oncology hospital. Data processing was carried out using content analysis. Results: from the analysis of the 13 interviews, five domains emerged: Coping with the disease; Knowledge about the disease; Previous experiences with the oncological disease; Experiencing parental cancer; and Somatic changes. The results show that adolescents experiencing parental cancer have emotional, educational and psychosocial needs. Conclusion: this study allowed us to understand adolescents' needs, understanding the difficulties experienced and the challenges that the experience entails. The results will support the design of a nursing intervention program for the dyad experiencing parental cancer.
RESUMEN Objetivo: analizar las necesidades de los adolescentes que experimentan cáncer en sus padres. Método: estudio cualitativo exploratorio y descriptivo. La recolección de datos se realizó mediante entrevistas semiestructuradas en 2021. La muestra por conveniencia estuvo compuesta por adolescentes de 14 a 19 años, con padres con enfermedad oncológica en fase de tratamiento, seguidos en un hospital oncológico portugués. El procesamiento de los datos se realizó mediante análisis de contenido. Resultados: del análisis de las 13 entrevistas surgieron cinco dominios: Enfrentamiento a la enfermedad; Conocimiento sobre la enfermedad; Experiencias previas con la enfermedad oncológica; Experiencia del cáncer de los padres; y Cambios somáticos. Los resultados muestran que los adolescentes que padecen cáncer en sus padres tienen necesidades emocionales, educativas y psicosociales. Conclusión: este estudio permitió comprender las necesidades de los adolescentes, comprendiendo las dificultades vividas y los desafíos que conlleva la experiencia. Los resultados apoyarán el diseño de un programa de intervención de enfermería para la díada que sufre cáncer en sus padres.
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ABSTRACT Objective: To assess changes in oral health-related behavior and oral health status in Brazilian children in early childhood perceived by their parents/caregivers during social isolation caused by COVID-19. Material and Methods: A cross-sectional study with parents/caregivers of children in southeastern Brazil aged 0-5 years who responded to an online questionnaire about sociodemographic data, dietary changes, oral hygiene, and oral health status of children during the COVID-19 pandemic. Results: Of the 119 parents/caregivers, 54.60% did not observe any changes in eating habits, and 81.50% maintained their children's oral hygiene. Associations were observed between the impact of the pandemic on the family income and changes in eating habits (p=0.02) and between lower family income and dental caries perceived by parents/caregivers (p=0.05). Z tests with Bonferroni correction showed that families with drastic income reduction were more likely to consume lower-cost foods (62.50%) than families with no impact or slight reduction on family income. Parents/caregivers did not identify dental caries (89.10%), toothache (92.40%), and dental trauma (92.40%) in their children. Conclusion: Parents/caregivers of children in southeastern Brazil aged 0-5 years observed behavioral changes in the dietary habits of families whose income was impacted by the pandemic, and their perception of dental caries was significantly associated with family income.
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Humanos , Masculino , Femenino , Recién Nacido , Lactante , Preescolar , Padres , Atención Primaria de Salud , Servicios de Salud Dental , COVID-19/transmisión , Distribución de Chi-Cuadrado , Estudios Transversales/métodos , Encuestas y CuestionariosRESUMEN
Abstract: Reading anxiety can hinder involvement and performance. This study aimed to present the adaptation and validity evidence of the Reading Anxiety Scale (RAS-20) for parents and guardians. A total of 240 parents and guardians with children aged from eight to 12 years ( M = 9.73; SD = 1.41) took part in the study. A sociodemographic and health conditions questionnaire, the Child Behavior Checklist (CBCL) and the Reading Anxiety Scale (RAS) version for parents and guardians were applied. The results of the confirmatory factor analysis indicated good adjustment rates for the three dimensions assessed by the scale (enjoyment, independence, and difficulty). Convergent validity evidence supported the hypothesis of anxiety as a specific phenomenon, different from general anxiety. The RAS-Version for parents and guardians showed adequate psychometric properties and can contribute to the development of interventions in the clinical, family, and school context.
Resumo: A ansiedade de leitura pode gerar dificuldades de engajamento e desempenho. O estudo teve como objetivo apresentar a adaptação e evidências de validade da Reading Anxiety Scale (RAS-20) para pais e cuidadores. Participaram 240 cuidadores com filhos de idades entre 8 e 12 anos ( M = 9,73; DP = 1,41). Foi utilizado um questionário sociodemográfico e de condições de saúde, a lista de verificação comportamental para crianças ou adolescentes - Child Behavior Checklist (CBCL) e a Reading Anxiety Scale (RAS) versão para pais e cuidadores. Os resultados da análise fatorial confirmatória indicaram bons índices de ajustes para as três dimensões avaliadas pela escala (interesse, independência e dificuldade). As evidências de validade convergente reforçaram a hipótese da ansiedade de leitura como um fenômeno específico, diferente da ansiedade geral. A RAS-versão para pais e cuidadores possui adequadas propriedades psicométricas e pode contribuir com o desenvolvimento de intervenções no âmbito clínico, familiar e escolar.
Resumen: La ansiedad por la lectura puede generar dificultades de compromiso y rendimiento. Este estudio tuvo como objetivo presentar la adaptación y las evidencias de validez de la Reading Anxiety Scale (RAS-20) para padres y cuidadores. Participaron 240 cuidadores con hijos de entre 8 y 12 años de edad ( M = 9,73; DE = 1,41). Se utilizó un cuestionario sociodemográfico y de estado de salud, la lista de control conductual para niños o adolescentes - Child Behavior Checklist (CBCL) - y la Reading Anxiety Scale (RAS), versión para padres y cuidadores. Los resultados del análisis factorial confirmatorio indicaron buenos índices de ajuste para las tres dimensiones evaluadas por la escala (interés, independencia y dificultad). La evidencia de validez convergente reforzó la hipótesis de la ansiedad lectora como un fenómeno específico, diferente de la ansiedad general. La versión RAS para padres y cuidadores tiene propiedades psicométricas adecuadas y puede contribuir al desarrollo de intervenciones en el ámbito clínico, familiar y escolar.
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O confronto com o câncer de um filho e a percepção da sua morte como inevitável dão lugar a experiências parentais relevantes para a pesquisa científica. Este estudo teve como objetivo investigar, por meio da percepção dos profissionais hospitalares, o modo como os pais experienciam a fase terminal e fim de vida do filho com câncer para melhor compreender os processos psicoemocionais experienciados por esses pais diante da cronicidade da doença e da morte do filho. No sentido de alcançar esse objetivo, realizou-se um estudo qualitativo de tipo fenomenológico envolvendo 17 profissionais de dois hospitais portugueses de referência em oncologia pediátrica. Os dados foram recolhidos com recurso a um guia de entrevista semiestruturada. Na percepção dos profissionais hospitalares, os resultados evidenciam que esses pais experienciam múltiplas dificuldades e preocupações na fase terminal da doença do filho e no pós-morte, bem como um sofrimento extremo e desestruturação biopsicossocial e espiritual na família. O conhecimento aprofundado da fenomenologia desses processos é essencial para o desenho e a implementação de intervenções emocionais, cognitivas, comportamentais e sociais mais ajustadas às dificuldades e preocupações parentais vividas no fim de vida e pós-morte.(AU)
Coping with children's cancer and the perception of their inevitable death give rise to parental experiences that are important to study. This study aimed to investigate, based on hospital professionals' perspectives, how parents experience the terminal phase and end of life of their children suffering from cancer to better understand the psycho-emotional processes these parents experienced in face of the chronicity of the disease and their children's death. To achieve this objective, a qualitative phenomenological study was carried out involving 17 professionals of two Portuguese hospitals that are reference in pediatric oncology. Data were collected using a semi-structured interview guide. From the perspective of hospital professionals, results show that these parents experience multiple difficulties and concerns in the terminal phase of their children's disease and postmortem, as well as the extreme suffering and biopsychosocial and spiritual disruption of the family. A deeper understanding of the phenomenology of these processes is essential to design and implement better adjusted emotional, cognitive, behavioral, and social interventions aimed at the parental difficulties and concerns experienced at the end of life and after death.(AU)
El enfrentamiento del cáncer de un hijo y la percepción de su muerte como inevitable dan lugar a experiencias parentales importantes que deben ser estudiadas. Este estudio pretende identificar desde la percepción de los profesionales del hospital cómo los padres viven la fase terminal y el final de la vida de su hijo con cáncer con el fin de comprender mejor los procesos psicoemocionales que viven estos padres ante la cronicidad de la enfermedad y la muerte de su hijo. Para ello, se realizó un estudio cualitativo, con enfoque fenomenológico, en el que participaron 17 profesionales de dos hospitales portugueses de referencia en oncología pediátrica. Para recoger los datos se aplicó un guion de entrevista semiestructurada. En cuanto a la percepción de los profesionales del hospital, estos padres experimentaron múltiples dificultades y preocupaciones en la fase terminal de la enfermedad de su hijo y postmuerte, así como un sufrimiento extremo y una desestructuración biopsicosocial y espiritual en la familia. El conocimiento en profundidad de la fenomenología de estos procesos es esencial para elaborar e implementar intervenciones emocionales, cognitivas, conductuales y sociales más acordes a las dificultades y preocupaciones parentales que se experimentan al final de la vida y la postmuerte.(AU)
Asunto(s)
Humanos , Femenino , Adulto , Persona de Mediana Edad , Padres , Pediatría , Portugal , Expresión de Preocupación , Neoplasias , Ansiedad , Dolor , Cuidados Paliativos , Relaciones Padres-Hijo , Grupo de Atención al Paciente , Filosofía , Psicología , Psicología Médica , Psicofisiología , Calidad de la Atención de Salud , Asunción de Riesgos , Instituciones Académicas , Autocuidado , Relaciones entre Hermanos , Habla , Trastornos por Estrés Postraumático , Concienciación , Sobrevida , Cuidado Terminal , Terapéutica , Visión Ocular , Imagen Corporal , Derecho a Morir , Actividades Cotidianas , Aflicción , Leucemia , Actitud del Personal de Salud , Actitud Frente a la Muerte , Divorcio , Matrimonio , Aceptación de la Atención de Salud , Sistema Nervioso Central , Curación Homeopática , Niño , Cuidado del Niño , Psicología Infantil , Crianza del Niño , Salud Infantil , Salud de la Familia , Muestreo , Esperanza de Vida , Mortalidad , Sedación Consciente , Adolescente , Negociación , Cuidados Paliativos al Final de la Vida , Cuidadores , Personal de Salud , Neoplasias Postraumáticas , Entrevista , Comunicación , Clínicas de Dolor , Atención Integral de Salud , Conflicto Psicológico , Intervención en la Crisis (Psiquiatría) , Afecto , Impacto Psicosocial , Terapias Mente-Cuerpo , Privación de Tratamiento , Espiritualidad , Toma de Decisiones , Negación en Psicología , Depresión , Diagnóstico , Dieta , Efectos Colaterales y Reacciones Adversas Relacionados con Medicamentos , Disnea , Educación no Profesional , Emociones , Prevención de Enfermedades , Humanización de la Atención , Acogimiento , Conflicto Familiar , Relaciones Familiares , Detección Precoz del Cáncer , Fatiga , Miedo , Intervención Médica Temprana , Medicalización , Esperanza , Terapia de Aceptación y Compromiso , Coraje , Optimismo , Trauma Psicológico , Rehabilitación Psiquiátrica , Sistemas de Apoyo Psicosocial , Psicooncología , Frustación , Tristeza , Respeto , Regulación Emocional , Distrés Psicológico , Atención al Paciente , Intervención Psicosocial , Apoyo Familiar , Bienestar Psicológico , Agotamiento Emocional , Promoción de la Salud , Servicios de Salud , Audición , Hospitalización , Ira , Leucocitos , Acontecimientos que Cambian la Vida , Cuidados para Prolongación de la Vida , Soledad , Amor , Náusea , Atención de EnfermeríaRESUMEN
ABSTRACT Objective: to map scientific evidence about perceptions, beliefs, knowledge and attitudes of parents or legal guardians of children under 5 years of age regarding routine childhood vaccination. Methods: a scoping review, conducted in accordance with the JBI framework. The searches were carried out in the PubMed/MEDLINE, Web of Science, Scopus and LILACS databases. A total of 5,535 studies were returned and 77 were selected, which met the inclusion criteria. Results: perceptions related to interaction with healthcare professionals and services, with family organization and structure, with social interaction and public policies, cultural, religious and personal beliefs, knowledge about vaccination schedule, vaccination and immunization process and sources of information are the main factors mapped and which can positively or negatively influence parents' or legal guardians' attitudes towards vaccinating children. Conclusions: the findings allow us to identify factors related to parents' perception and beliefs about childhood vaccination.
RESUMEN Objetivo: mapear la evidencia científica sobre las percepciones, creencias, conocimientos y actitudes de padres o tutores legales de niños menores de 5 años respecto de la vacunación infantil rutinaria. Métodos: revisión del alcance, realizada de acuerdo con el marco del JBI. Las búsquedas se realizaron en las bases de datos PubMed/MEDLINE, Web of Science, Scopus y LILACS. Se devolvieron 5.535 estudios y se seleccionaron 77, que cumplieron con los criterios de inclusion. Resultados: percepciones relacionadas con la interacción con los profesionales y servicios de salud, con la organización y estructura familiar, con la interacción social y las políticas públicas, creencias culturales, religiosas y personales, el conocimiento sobre el calendario de vacunación, el proceso de vacunación e inmunización y las fuentes de información son los principales factores mapeados y que pueden influir positiva o negativamente en las actitudes de los padres o tutores legales hacia la vacunación de los niños. Conclusiones: los hallazgos permiten identificar factores relacionados con la percepción y creencias de los padres sobre la vacunación infantil.
RESUMO Objetivo: mapear as evidências científicas acerca das percepções, crenças, conhecimentos e atitudes de pais ou responsáveis legais de crianças menores de 5 anos quanto à vacinação infantil de rotina. Métodos: revisão de escopo, conduzida de acordo com o referencial do JBI. As buscas foram realizadas nas bases PubMed/MEDLINE, Web of Science, Scopus e LILACS. Retornaram 5.535 estudos e foram selecionados 77, que atenderam aos critérios de inclusão. Resultados: percepções relacionadas à interação com os profissionais e serviços de saúde, com a organização e estrutura familiar, com a interação social e políticas públicas, crenças culturais, religiosas e pessoais, conhecimentos sobre o calendário vacinal, o processo de vacinação e imunização e fontes de informação são os principais fatores mapeados e que podem influenciar positiva ou negativamente a atitudes dos pais ou responsáveis legais em vacinar crianças. Conclusões: os achados permitem identificar fatores relacionados à percepção e crenças dos pais sobre vacinação infantil.
RESUMEN
Abstract This study aimed to test the validity and reliability of the Brazilian version of the "Illness Perception Questionnaire-Revised for Dental" (IPQ-RD) in parents/guardians of children aged six to 14 years. The sample consisted of 63 parents/guardians of schoolchildren from the municipal school system of Teófilo Otoni, MG. Remote and virtual data collection consisted of self-completion of personal data, socioeconomic questionnaire and the Brazilian short versions of the "Parental-Caregiver Perceptions Questionnaire" (16-P-CPQ) and the "Family Impact Scale" (4-FIS). The IPQ-RD was applied by telephone interview. Almost half of the sample belonged to socioeconomic classes C1 and C2. Approximately 1/3 classified their child's oral health as "regular" or "poor", while 11.1% reported "strong" or "very strong" impact on their child's well-being. The items most frequently cited as having an impact on the four domains of the 16-P-CPQ were: "bad breath" (23.8%), "mouth breathing" (20.7%), "feeling anxious or afraid" (20.7%), and "paying attention at school" (10%). In the 4-FIS, 11.1% "had little time for themselves or the family". There were higher IPQ-RD scores in the "disease coherence" domain for women and lower values of "emotional dimensions" for parents/guardians with incomplete education. The mean IPQ-RD score was 126.4 (±15.1), and domain scores were positively correlated. The internal consistency was "almost perfect" for the IPQ-RD total score, ranging from "moderate" to "almost perfect" for the "child-control" and "child-consequences" domains. The intraclass correlation coefficient ranged from 0.04 (poor) to 0.68 (substantial). The Brazilian Portuguese version of the IPQ-RD proved to be valid and reliable for assessing the cognitive and emotional perception of parents/guardians about childhood dental caries.
RESUMEN
O subsistema coparental é formado por dois cuidadores que tomam as decisões relativas à prole conjuntamente. O presente estudo buscou compreender a percepção de adolescentes, membros de famílias nucleares e separadas, sobre as características da coparentalidade dos pais. Participaram da pesquisa dezenove adolescentes provenientes de três escolas da rede pública de ensino do Rio Grande do Sul. Os adolescentes responderam um questionário sociodemográfico e participaram de um grupo focal. Foram realizadas análises descritivas e de conteúdo por meio da qual foram organizadas três categorias: cooperação, conflito e triangulação coparental. Os resultados indicaram que os adolescentes percebem a dinâmica familiar e são impactados diretamente pelas características, positivas e negativas, da interação entre os pais, tanto nas famílias nucleares como nas separadas. Portanto, mostra-se necessário desenvolver estratégias para trabalhar com as diferentes configurações familiares focalizando a coparentalidade, subsistema acessível à realização de intervenções e protetivo ao desenvolvimento dos filhos
The coparental subsystem is formed by two caregivers who jointly make decisions regarding the offspring. This study aimed to understand the perception of adolescents, members of nuclear and separated families, about the characteristics of parents coparenting. Nineteen adolescents, from three public schools in the of Rio Grande do Sul participated in the survey. The adolescents responded a socio-demographic questionnaire and participated in a focus group. Descriptive and content analysis were carried out through which three categories were organized: cooperation, conflict and triangulation. The results indicated that adolescents perceive family dynamics and are directly impacted by the characteristics, positive and negative, of the interaction between parents, both in nuclear families and in separated ones. Therefore, it is necessary to develop strategies to work with the different family configurations focusing on coparenting, an accessible subsystem to carry out interventions and protective to the development of children
El subsistema coparental está formado por dos cuidadores que conjuntamente toman decisiones sobre los hijos. El presente estudio buscó comprender la percepción de los adolescentes, miembros de familias nucleares y separadas, sobre las características de la coparentalidad de los padres. Participaron de la encuesta 19 adolescentes, de tres escuelas públicas del Rio Grande do Sul. Los adolescentes respondieron a un cues- tionario sociodemográfico y participaron en un grupo focal. Se realizaron análisis descriptivos y de contenido a través de los cuales se organizaron tres categorías, cooperación, conflicto y triangulación coparental. Los resultados indicaron que los adolescentes perciben la dinámica familiar y son impactados directamente por las características, positivas y negativas, de la interacción entre los padres, tanto en la familia nuclear como separada. Por tanto, es necesario desarrollar estrategias para trabajar con las diferentes configuraciones familiares, centrándose en la coparentalidad, un subsistema accesible para realizar intervenciones y proteger el desarrollo de los niños
Asunto(s)
Humanos , Padres , Divorcio , Adolescente , Relaciones FamiliaresRESUMEN
RESUMEN Luego de que se autorizara en EEUU el uso de la vacuna contra el covid-19 en bebés de seis meses a niños y niñas de cuatro años, algunas personas (padres, madres, pediatras y comunicadores) plantearon la vacunación contra el covid-19 como una cuestión de acceso; sin embargo, muchas otras se mostraron reacias y otras se resistieron a las recomendaciones de los Centers for Disease Control and Prevention de EEUU. En este contexto, este estudio se propuso explorar: 1) reacciones divergentes ante la autorización de uso de la vacuna contra el covid-19 en niños y niñas de seis meses a cuatro años; y 2) lógicas contrapuestas que subyacen a las actitudes provacunación, antivacunación y vacilación ante las vacunas contra el covid-19. Para ello, se realizó una etnografía digital, con monitoreo de 5.700 reacciones a una serie de ocho infografías publicadas en las redes sociales por la John Hopkins Bloomberg School of Public Health, y observación participante en un grupo focal en línea a lo largo de un año, desde diciembre de 2021 hasta diciembre de 2022, conformado por 18 madres. Los resultados indican que el personal médico debe considerar diferentes nociones de "riesgo" al interactuar con los pacientes, especialmente aquellos que dudan en vacunarse.
ABSTRACT Following the authorization the use of COVID-19 vaccines in babies age six months through children four years old in the United States, some individuals (parents, pediatricians, and communicators) framed COVID-19 vaccination as an issue of access, while many others expressed hesitancy and some resisted recommendations from the US Centers for Disease Control and Prevention. In this context, this study aimed to explore: 1) divergent reactions to the authorization of COVID-19 vaccine use in children aged six months to four years; and 2) opposing logics underlying attitudes towards pro-vaccination, anti-vaccination, and vaccine hesitancy regarding COVID-19 vaccines. To achieve this, a digital ethnography was conducted, involving monitoring of 5,700 reactions to a series of eight infographics published on social media by the John Hopkins Bloomberg School of Public Health, and participant observation in an online focus group over a one-year period, from December 2021 to December 2022, consisting of 18 mothers. The findings suggest that healthcare professionals should consider different notions of "risk" when interacting with patients, especially those who are hesitant to vaccinate.