Funcionamiento social en niños hemofílicos: Análisis de encuesta para determinar factores psicopatológicos de riesgo / Social functioning and psychopathologic risk factors in hemophilic children

Background: Children with hemophilia can experience problems with their mental health status and social functioning. Aim: To assess the mental health status of hemophilic children. Material and methods: Thirty four hemophilic children aged 5 to 13 years were studied. A translation of the special survey to assess mental health in children, denominated "Domingo" Mental Health Survey was applied. It consisted in animated cartoon questions related to the family, social and school life. According to the score obtained, children were classified as normal, doubtful or pathologic. The social functioning areas studied were family, school, relationship and emotional. Aggressiveness, depression/anxiety and rejection were the psychopathologic factors analyzed. Results: Forty four percent of hemophilic children were considered normal, 20% doubtful and 35% pathologic. According to the severity of the disease, 67% of children with severe, 57% with moderate and 45% with mild hemophilia, were considered abnormal. Aggressiveness was the main risk factor in the emotional and family area, depression/anxiety in the family and emotional area and rejection in the family area. Fifty six percent of children had abnormalities in their social functioning and the severity of the disease was a predisposing factor. Conclusions: Psychopathologic factors in children with hemophilia appear mainly in the family environment.

Desmistificando a existência da pessoa portadora de hemofilia / The existence of a hemophilic

Este estudo originou-se das minhas percepçöes e inquietaçöes como enfermeira assistencial e durante toda a minha trajetória como docente de enfermagem. Caminhei para o desvelamento da existência das pessoas com hemofilia por meio das várias descriöes do fenômeno, vivenciado e por elas relatado. Optei por uma abordagem fenomenológica, na modalidade do fenômeno situado, tendo como proposta metodológica compreender o significado que a pessoa hemofílica atribui ao seu viver com hemofilia, por acreditar que esse seria o caminho para captar a essencialidade da pessoa portadora de hemofilia, explicitando o seu mundo-vida dentro e fora do hospital...