Résumé
Background: Family caregivers are considered as hidden patients experiencing physical and mental disorders. This affects the quality of not only their lives but also the health care provided to patients. This study aimed to investigate the quality of life [QOL] and its related factors among the caregivers of patients undergoing hemodialysis
Methods: This systematic review was conducted based on the eight-step guidelines presented by the York University. The databases relevant to the medical field including Nursing and Allied Health, Web of Science, Scopus, Pubmed, Embase, PsycINFO and Psychology Library were used. Finally, 12 articles observing the inclusion criteria and with regard to the research questions were found. The data obtained from these articles were summarized, classified, and analyzed
Results: QOL among Family Caregivers of Patients on Hemodialysis is low, compared to the general population; however, their QOL is higher than the patients under their care. Factors relevant to the QOL for caregivers including age, gender, perceived social support, perceived burden of care, affliction with other diseases [lupus, hypertension, hypothyroidism and depression], intellectual understanding of the limitations of the patient's disease in their daily life, employment of adaptation strategies, better marital relationships, accepting self and family relationship with the patient [mother and wife]. Furthermore, the factors associated with care takers affecting the quality of caregivers' lives were age, QOL and the type of treatment
Conclusions: Caregivers of patients undergoing hemodialysis enjoyed low QOL. Since there is a direct relationship between family caregivers' quality and patients' QOL, health care system and health policy makers should pay more attention to family caregivers
Résumé
The Roy's adaptation model is a helpful instrument to be used in treatment processes of patients with chronic diseases. According to chronic nature of amputee veterans' diseases, it is expected that the implementation of care plans based on this model can increase adaptation in the patients. The present study was performed to design and determine validity and reliability of a researcher-designed adaptation questionnaire based on the Roy's adaptation model on war veterans with lower limb amputation. This study was conducted among war veterans referred to the veteran clinic of Orthotics and Prosthetics center using convenience sampling method during 2012-2014. Main concepts of adaptation defined based on the Roy's adaptation model were used to provide items. The validity and reliability of the questionnaire was assessed using the content validity index [CVI], content validity ratio [CVR], face validity, internal consistency [Cronbach's alpha], and stability [test-retest reliability] tests. Thirty five items were developed including 15 items on physiological area, 11 items on self-concept area, four items on dependence/ independence area, and five items on role playing area. The CVI was 0.95. The Cronbach's alpha was 0.78. The correlation coefficient values were more than 0.7 in each area. The psychometric analysis of the questionnaire showed proper validity and reliability for measuring adaptation on war veterans with lower limb amputation. The questionnaire is recommended to be used in nursing practice