Breast Cancer Patients’ Experience of Current Health Services as A Holistic Care: A Qualitative Study

@#Introduction: Breast cancer is now one of the leading causes of death and morbidity worldwide, including in Indonesia. Every health care professional and community member should pay close attention to these issues. Women diagnosed with breast cancer will experience physical, psychological, and social issues. Methods: This study looked into breast cancer patients’ experiences with holistic nursing care. The complexity of the difficulties confronting breast cancer patients will influence their experiences and perceptions, necessitating a holistic approach to nursing services. A qualitative exploratory, descriptive method was adopted in the investigation. During data collection, fifteen participants were recruited and interviewed. Focus Group Discussion (FGD) was utilized to collect data. Result: The study’s findings provide five significant themes: (1) knowledge and understanding of breast cancer; (2) experiences felt at the beginning of breast cancer complaints; (3) non-health breast cancer treatment; (4) perception of nursing services received by breast cancer patients; (5) facts and holistic needs during and beyond treatment; and (6) patients’ expectations of nursing services to help their needs. Conclusion: The findings provide information on how breast cancer patients understand the examination procedure, accept a diagnosis, and proceed to treatments.

Cultural adaptation and validation of the CaSPUN (Cancer Survivors' Partners Unmet Needs) measure among partners of gynecological cancers

@#PURPOSE: The partners of cancer patients commonly provide the needs of cancer patients along cancer trajectory except for patients with gynecological cancer. In developing countries including Indonesia, who have strong family bonding, the family of cancer patients are involved more intensely in providing cancer care. This situation may bring the cancer patients' families experience the burden and decrease their quality of life. Therefore, assessing the family's supportive needs are as important as patient supportive needs. There are more gynecological cancer survivors in Indonesia; however, little is recognized about partners' supportive needs due to lack of validated assessment tools to measure it. This study aimed to translate, culturally adapted and test the validity and reliability of the CaSPUN questionnaire among partner of Indonesia gynecological cancer patients. DESIGN: First, the procedures of forward-backward translation and modification of the CaSPUN were conducted to ensure cultural adaptation. Second, using convenience sampling with 295 partners of gynecological cancer patients, we tested the construct validity and internal consistency of the CaSPUN-Indonesia Version (CaSPUN-I). We conducted Exploratory Factor Analysis to explore the factor structure of CaSPUN-I and Cronbach Alpha to confirm internal consistency reliability. RESULTS: The CaSPUN were modified to make more understandable and culturally appropriate in the Indonesian context. Five factors were extracted from EFA in the CaSPUN-I with factor loadings of items between 0.41 and 0.85. The Cronbach's alpha coefficient for the CaSPUN-I ranged from 0.96-0.97. CONCLUSION: The CaSPUN Indonesia version presents acceptable validity and reliability for assessing supportive care needs among families of Indonesian gynecological cancer patients. The CaSPUN-I can be used by healthcare providers to assess and design the supportive care program for family of Indonesia gynecological cancer patients.