Encontros e desencontros na inclusão escolar de alunos deficientes físicos: uma visão a partir da promoção da saúde / Convergences and Divergences in school inclusion of physical disabled students: a Health Promotion perspective

A história que permeia a deficiência está imbuída de significações ligadas a preconceito e exclusão que se fazem presentes na atualidade e dificultam que as mudanças políticas sejam transpostas para as atitudes sociais. Assim, crianças deficientes vivenciam dependência a terceiros, inclusão escolar prejudicada, discriminação, sentimento de incapacidade, e vulnerabilidade frente a falta de disposição de serviços públicos efetivos. Esse estudo pretendeu articular saúde e educação como aspectos indissociáveis da vida humana, e o objetivo foi compreender os processos de significação relacionados à inserção de escolares deficientes físicos na educação básica, a partir dos princípios da política de promoção da saúde. Trata-se de um estudo de abordagem qualitativa, fundamentado na abordagem histórico-cultural, no qual utilizamos entrevistas semiestruturadas, observação participante e diário de campo como recursos metodológicos. O trabalho de campo teve início após as devidas autorizações do Comitê de Ética em Pesquisa com Seres Humanos e durou aproximadamente um ano. Ao final, quatro crianças, suas quatro mães e oito professores aceitaram participar da pesquisa, totalizando 16 sujeitos entrevistados e quatro contextos escolares observados. A análise temática indutiva proposta por Braun e Clarke (2007) foi empregada, sendo respeitado o percurso indicado por estas autoras. A construção dos dados acarretou na caracterização detalhada dos participantes e seus contextos socioculturais, bem como na produção de três temas, a saber: 1) Significações do conceito de deficiência e de deficiência física no processo de inclusão escolar; 2) Cadeira de rodas, dois lados da mesma moeda e 3) Escola inclusiva e promoção de saúde: uma perspectiva do modelo social da deficiência. Em suma, este estudo foi eficaz em alcançar seus objetivos propostos, apresentando importantes significações envolvidas no processo de inclusão do aluno deficiente físico. Esperamos que este trabalho contribua para a prática junto a estes escolares e inspire pesquisadores a investigarem a articulação da Educação Inclusiva com a Promoção da Saúde em seus diferentes estados, países e contextos, auxiliando profissionais que atuam na prática escolar e de saúde a lidarem com a temática

The history that permeates disability is imbued with meanings linked to prejudice and exclusion that are present today, making it difficult for political changes to be transposed into social attitudes. Disabled children may experience dependence on others, affected school inclusion, discrimination, feeling of incapacity, and vulnerability due to the lack provision of effective public services. This study intended to articulate health and education as inseparable aspects of human life. Our aim was to comprehend the signification processes related to the school inclusion of disabled children in basic education, based on the principles of the politics of health promotion. It is a qualitative study, based on the historical-cultural approach. Semi-structured interviews, participant observation and field diary was used as methodological resources. The field work lasted approximately one year, and began after the authorizations of the Ethics Committee in Human Research. In the end, four children, their mothers and eight teachers accepted to participate, totaling 16 subjects interviewed and four school contexts observed. The inductive thematic analysis proposed by Braun and Clarke (2007) was employed, respecting the paths indicated by these authors. Data construction entailed the detailed participants characterization and their socio-cultural contexts, as well as the production of three themes, namely: 1) Significance of the concept of disability and physical disability in the school inclusion process; 2) Wheelchair, two sides of the same coin; 3) Inclusive School and Health Promotion: a perspective of the social model of disability. That pointing out that health promoters are also promoters of Inclusive Education. In short, this study was effective in achieving its proposed objectives, presenting important meanings involved in the process of disabled student's inclusion. We hope that this work will contribute to the practice among these students and will inspire researchers to investigate the articulation between Inclusive Education and Health Promotion in their different states, countries and contexts, helping professionals who act in school and health to deal with this issue

Stress and Adaptation in Family with Physical Disabled Children / 간호학회지

The purpose of this study was to describe the relationship between family stress and adaptation in families with a disabled child through literature review using McCubbin's Double ABCX family crisis framework. The literature review focused on (1) family stress and factors affecting family stress, (2) the critical individual, familial and social resources which families acquire and employ over time in managing crisis situation, (3) the changes in definition and meaning families develop in an effort to make sense out of their predicament, (4) the coping strategies families employ, and (5) the range of outcomes of these family efforts The results showed that families reported financial difficulties and the burden of care-giving demands as major family stressors. Siblings of disabled children manifested depressive symptoms and social isolation, but was not consistent study results. The parents' views of the cause of the disabling condition fundamentally affected their behavior toward their disabled child. Especially, the fathers' views of the child's characteristics made the greatest contribution to positive changes in the mothers' perceptions. The term perceived social support refers to the cognitive appraisal by individuals that they are cared for and valued, that significant others are available to them if needed, and that they are satisfied with their interpersonal relationships. The perceived social support was more protective than social support source, network size and network density. Parental adaptation was found to be related to the child's communication competence rather than family coping strategies proposed by Lazarus and Folkman. One study results showed that there was no difference in depressive symptoms and physical health between mothers with a disabled child and those without all though mothers with a disabled child had negative attitudes and perceived themselves as having significantly less social support and lower family functioning. But a longitudinal study revealed decreases in the negative impact of the child and increases in sibling and overall family adaptation.