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1.
IJCBNM-International Journal of Community Based Nursing and Midwifery. 2015; 3 (2): 150-155
em Inglês | IMEMR | ID: emr-161827

RESUMO

The problems caused by haemophilia lead to impairments of the quality of life in patients with haemophilia. This study aimed to investigate the effects of yoga on quality of life in the children and adolescents with haemophilia in Shiraz, Iran. This semi-experimental study with pre- and post-test design was performed on 27 boys between 8 and 16 years old who suffered from haemophilia. The patients were divided into two groups. The number of bleedings, absences from school, and referrals to the clinic was evaluated. The demographic data were collected through interviews and using the patients' records in the haemophilia center. Besides, the quality of life was assessed through the Haemo-QoL questionnaire. Then, the yoga intervention was performed for 14 weeks and the data were collected in three stages. The collected data were entered into the SPSS statistical software, version 18 and were analyzed using non-parametric Friedman test. After the intervention, significant differences were observed in the mean scores of quality of life dimensions and the number of bleedings, school absences, and referrals to the haemophilia clinic [P<0.001]. Thus, yoga may improve the haemophilia children's and adolescents' perception of quality of life without the risk of injury. This intervention also seemed to be effective in reducing the number of bleedings, referrals to the haemophilia clinic, and absences from school


Assuntos
Humanos , Masculino , Qualidade de Vida , Criança , Adolescente , Hemofilia A
2.
IJCBNM-International Journal of Community Based Nursing and Midwifery. 2013; 1 (2): 110-120
em Inglês | IMEMR | ID: emr-140203

RESUMO

Hemophilia might impact the quality of life [QOL] in children and adolescent. This study aimed to assess the quality of life in children with hemophilia and identify the factors that predict their QOL. It was a cross-sectional study. A consensus sample of twenty-seven male children aged 8-16 years old with hemophilia participated in this study during 2011. The Haemo-QoL questionnaire version age group II [8-12 years old] or age group III [13-16 years] was used to measure the quality of life in children with hemophilia. Data were analyzed in SPSS using Spearman's rho, Pearson correlation coefficients, and multiple regression analysis. The total mean score on the Haemo-QoL was 54.1 +/- 7.3. Haemo-QoL correlated with the number of bleeding event and school absence, family income, mothers' education level, severity of hemophilia, person who performs his/her infusions, insight to health status and insight to suffering from hemophilia [P0.05]. QOL was predicated by family income [fiN-0.69; explained 73% of variance] and infusion of the clotting factor replacement by parents [P=-0.33; explained 81% of variance]. The QOL of a sample of male children with hemophilia was impaired. Moreover, number of bleeding event, number of school absences, mother s' education level, severity of hemophilia, insight to health status and insight to suffering from hemophilia were associated with Haemo- QOL. In addition, family income and parent- administration of the product were the factors which predict the QOL in children with hemophilia

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