RESUMO
Introduction: Morbidity and mortality of Thalassemia significantly reduced and nowadays there are more attention to the quality of life and related factors. Considering that thalassemia and its complications impact on quality of life of children, it is still unknown. The aim of this study was investigation of quality of life of Thalassemic children in four domains of physical, social, emotional and school, that compared with the control group
Methods: Thalassemic children [n=40] referred to the special diseases center of Besat hospital selected. Also, healthy children [n=40] that was matched based on age, sex and education selected from their classmate as control group. The standard quality of life questionnaire consisted of two sections used for data collection, the first section included demographic questions [n=9], second section included 23 questions about the quality of life in four dimensions: physical, social, emotional and school. Data analyzed by SPSS v.14 software. Kolmogorov-Smirnov test used for testing normality of the distribution
Results: The mean age of subjects with mean and standard deviation were respectively 13.2 +/- 4.26, level of education of the majority of children [45 percent] were elementary school and 50 percent of their fathers were illiterate and 34.5 percent of mothers in elementary level. The majority [67.5 percent] of residents were without private homes [40 percent] and personal vehicles [70 percent]. Results related to the quality of life showed that children the quality of life in four domains of physical, emotional, social, and school children with specific thalassemia was lower than control group [P<0.05]. Total quality of life in were 1.4 +/- 0.69 in children with thalassemia and 9.6 +/- 0.14 in healthy children, t-test showed a significant statically relationship [P=0.000]
Conclusion: The results showed that children with thalassemia have problems with the quality of life in four domains of physical, social, emotional and school. Therefore planning to promote mental health, participation in social activities, providing the necessary consultations and adaptive solutions along with clinical and therapeutic services in this patients center patients can increase their quality of life
RESUMO
Introduction: Asthma is a chronic disease and common that despite advances in treatment has high mortality, currently estimated to be 300 million asthma patients worldwide, more important is increase of prevalence. In the important point in the treatment of asthma in addition control of symptoms is improve quality of life of patients. The impact of asthma and its complications on quality of life in the view of children and people involved with them is unknown yet. To presentation effect of asthma on the life of children with asthma we need assess the quality of life directly, so this study done with purpose of comparison quality of life of children with asthma in the viewpoints of them and their mothers in 2008
Method: In this descriptive-analytical study children with asthma hospitalized in pediatric and emergency wards of Beasat hospital of Sanandaj in 2008, in convince sampling elected and investigate the quality of life in the view of them [38] and their mothers [38]. Demographic information and quality of life questionnaire [PedsqL] children and their mother viewpoint each has 28 question that investigate asthmarelated problem [11 question], treatment-related problem [11 question], problem related concerns [3 question] and problem related to communication [3 question], with five-point Likret scale [never, seldom, sometimes, often, always] from zero to four. Higher scores indicate more problem and lower. Quality of life data collected with structured interview. Information analyzed using statistical [t-test and Chi-square]
Results: Results show mean score of quality of life in the viewpoint of children with asthma was 77.12 +/- 96.59 and in the viewpoint of their mothers was 73.21 +/- 43.81. Comparison mean quality of life score of children and their mothers using the t-test, alpha level of %5 indicates significant statically difference in total score [P=0.000] and in four part of asthma [P=0.003] and part of treatment of disease, concerns and communication [P=0.000]. Chi-square test show statically difference between quality of life in the viewpoint children with location of life [P=0.04] and there we sent significant correlation with other demographic information; age, sex
Conclusion: Result showed that the viewpoint of children and their mothers about quality of life was different in total and in different dimension and mothers view was more undesirable. Therefore in attention to the important role of mother in children care and recommend nurses must consider view of mothers about quality of life and provide background to their participation in care planning to as much as possible promotion of children quality of life