Efeitos da pandemia: percepção de estresse e apoio em famílias com filhos com desenvolvimento atípico / Pandemic' effects: perception of stress and support in families with children with atypical development

A pandemia da COVID-19 exigiu medidas de proteção que repercutiram no modo de vida das famílias. Os impactos podem ter sido mais intensos em famílias com crianças com deficiência ou transtorno global do desenvolvimento (TGD) que necessitam de cuidados e estímulos específicos. O objetivo deste estudo foi analisar o impacto do isolamento social na percepção de estresse, estresse parental e apoio social percebido por mães e pais de crianças com deficiência/TGD. Trata-se de um estudo transversal com 37 participantes, em duas fases independentes de coleta de dados (F1; F2). Utilizou-se instrumentos autoaplicáveis disponibilizados em um Formulário Google: Questionário Sociodemográfico; Questionário sobre percepção da influência do isolamento social na dinâmica familiar; Escala de Estresse Percebido; Escala de Estresse Parental e Escala de Apoio Social. Observou-se que a percepção de estresse em F2 foi significativamente maior que em F1 e em famílias com mais de um filho (p

The COVID-19 pandemic required protect actions with quarantine and social distancing, which had an impact on families' lifestyle. The impacts of the pandemic may have been even more intense in families of children with disabilities or pervasive developmental disorder (PDD) who need specific care. This study aims to analyze the impact of the social distancing situation on the perception of stress, parental stress and perceived social support by mothers and fathers of children with disabilities/PDD with 11 years old or more, and associations between these variables. This is a cross-sectional study with 37 participants in two independent phases. The following self-administered instruments were available in a Google Form: Sociodemographic Questionnaire; Questionnaire on the perception of the influence of social distancing resulting from the pandemic on family dynamics; Perceived Stress Scale; Parental Stress Scale and Social Support Scale. There was a significatively higher stress perception between mothers in Phase 2 (P2>P1) and higher stress among families with more than one child. Most mothers referred social support, an increase in the stress perception with children care and stress comparing the phases. This study demonstrated the importance of social support to parents' adaptation in stress increasing related to pandemic situation

SMART: a service-oriented architecture for monitoring and assessing Brazil's Telehealth outcomes

Abstract Introduction Brazilian Telehealth Program was instituted by the Ministry of Health in 2007. Its initial structure was composed by nine telehealth centers administered by public higher education institutions. No standards, processes, applications or quality indicators had been defined since its creation. All this, combined with the decentralization of the centers, led each one of them to develop their own system, with different programming languages and architectures. The lack of regulation and integration of the information with the Ministry of Health made it difficult to evaluate the program. In this context, this paper describes the specification, implementation and validation of an architecture, entitled SMART, to integrate the various telehealth platforms developed by the centers. Such architecture aims to standardize information so that the Ministry of Health can monitor and evaluate the results of Telehealth actions. Methods SMART's architecture consists of four main components: a web tool for data manipulation; a web service to receive the center's production data; a component responsible for converting the received data into decision support data; and a component that collects data from external sources to compose the data warehouse. Results The architecture was validated with performance tests, which were executed under extreme workloads. The results of the experiments were summarized in order to attest SMART's effectiveness. Conclusion The analysis of the results obtained on real data shows that the project's performance remained stable under the workloads and its high quality was proven due to the absence of errors during the experiments.