RESUMO
OBJETIVO: Realizar a adaptação transcultural do instrumento para avaliação da qualidade de vida de indivíduos com epilepsia "Quality of Life in Epilepsy-89" (QOLIE-89) para a população brasileira. METODOLOGIA: Dois tradutores bilíngües fizeram a tradução do instrumento original para o português. A seguir, dois professores de inglês nativos e bilíngües ficaram encarregados da retro-tradução. Na segunda fase uma equipe multidisciplinar "Comitê de Juízes" julgou as diversas versões obtidas quanto à clareza, compreensibilidade, manutenção do conceito explorado em cada questão no instrumento original e sua adequação de sentido para nossa população. No terceiro momento, 21 pacientes do ambulatório da Unidade de Pesquisa e Tratamento das Epilepsias (UNIPETE) responderam ao questionário. RESULTADOS: Quinze pacientes (71.4 por cento) eram do sexo feminino, com idade entre 15 e 49 anos. Oito (38.0 por cento) haviam cursado até o ensino fundamental. O tempo médio de aplicação foi de 45 minutos. As dificuldades de compreensão ocorreram apenas nos pacientes que cursaram até a 8ª série. Na versão final em português sofreram modificações as questões 14, 16, 19, 21 e 85. CONCLUSÃO: A versão em português do QOLIE-89 foi facilmente compreendida, sendo mínimas as modificações realizadas no processo de adaptação cultural do instrumento.
PURPOSE: To describe the cross-cultural adaptation of the instrument "Quality of Life in Epilepsy-89 (QOLIE89)" for Brazil. METHODS: Two independent bilingual specialists translated the QOLIE-89 to Portuguese- Brazilian language, who, after discussion, arrived at a consensus version. Later, two independent translators native in the target language and fluent in Portuguese translated this consensus version back into English. The second step was to compare the back-translation with the source version by a Multidisciplinary Committee. The new version was evaluated in order to preserve conceptual equivalence of the source and final versions, adjustment of cultural words and context, clearly content, and fully comprehensibility. In the third step, a final version was tested in a pilot study including twenty-one outpatients with confirmed epilepsy diagnosis in treatment at UNIPETE. RESULTS: Fifteen (71.4 percent) subjects were women, with 15 to 49 years. Eight (38.0 percent) had attended elementary school. The patients required about 45 minutes to complete the questionnaire. In the final Portuguese version of the QOLIE-89, the questions 14, 16, 19, 21 and 85 were considered difficult to understand and were modified. CONCLUSION: The Portuguese-Brazilian version of the QOLIE-89 was easy to understand for most of the patients, after minimal modifications.
Assuntos
Humanos , Qualidade de Vida , EpilepsiaRESUMO
PURPOSE: Patients with epilepsy experience the impairment of Quality of life (QOL). The objective of this study was to investigate the 'Quality of Life' in epileptic patients and the influences of clinical factors upon QOL in epileptic patients. METHODS: Total 138 epileptic patients (male : 77, female : 61) were recruited for the study. The Quality of Life in Epilepsy (QOLIE)-89 was applied to evaluate QOL in epileptic patients. We gathered data about clinical variables (seizure type, frequency, duration of disease, number of antiepileptic drug, and depression) and socio-demographic variables (age, sex, marriage, employment, and education), and compared each variables in use of QOLIE-89 score. RESULTS: Depression influenced negatively the most of all subscales (16 of 20 subscales) and overall score (p or =16 year) had higher score at overall score and emotional well-being (p<0.05). However, age, marital state, employment, seizure type, and duration of disease did not affect QOL significantly. CONCLUSIONS: Sex, education, number of AEDs, depression, and seizure free state were major socio-clinical factors affecting QOL in patients with epilepsy. It is suggested that physician should recognize these factors and manage appropriately for improving the QOL.