Perfil de población con baja visión que asiste a la unidad de baja visión y rehabilitación visual en un hospital clínico de Chile / Low vision population assisting a unit of low vision and visual rehabilitation in a clinical hospital from Chile

El objetivo de este trabajo fue caracterizar epidemiológica y sociodemográficamente a las personas atendidas en la Unidad de Baja Visión y Rehabilitación Visual del Hospital Clínico de la Universidad de Chile. El método utilizado fue un estudio descriptivo, transversal y retrospectivo de los registros clínicos de las personas atendidas en la Unidad, entre marzo de 2015 a octubre de 2016. Para el análisis se utilizó el software MS Excel, calculando las frecuencias relativas y medidas de posición central y dispersión. En los resultados se observaron un mayor número de pacientes de sexo femenino (55,5%), y adultos mayores de 60 años o más (53,3%). El 73,3% de los pacientes pertenecieron al sistema de salud público y un 35,6% poseían menos de 8 años de estudio. El 80 % de las personas atendidas se encuentra en edad laboral, de éstos un 63,9% se encontraban laboralmente inactivos. Las enfermedades oftalmológicas con mayor frecuencia correspondieron a las enfermedades genéticas del ojo (22,2%) y la degeneración macular relacionada con la edad (17,8%). Un 57,8% de los pacientes presentó alguna patología sistémica asociada a baja visión. Sólo un 6,0% recibió rehabilitación visual anteriormente. Se concluyó que la mayor prevalencia de enfermedades oculares asociadas al envejecimiento como la degeneración macular relacionada con la edad y enfermedades genéticas del ojo, sumado a las características sociodemográficas y en particular a que un 94% de los pacientes no habían tenido acceso a rehabilitación visual, constituyen un perfil que desafía al desarrollo de medidas de salud pública que resguarden la prevención, acceso y rehabilitación, siendo la formación de equipos multidisciplinarios especialistas una necesidad imperiosa.

This work aimed to do a characterization, epidemiological and socio demographical, to the people attended in a Low Vision and Rehabilitation Unit from a Clinical Hospital of the Universidad de Chile. A descriptive, transversal and retrospective method was used for the clinical registers of the people attended in the Unit, between March 2015 to October 2016. For the analysis, a MS Excel software was used, calculating the relative and measured frequencies of central position and dispersion. In the results, a greater number of feminine patients (55. 5%) were observed, and seniors of 60 years or more (53.3%). 73.3% of the patients belonging to the Public Health Care System and 35.6% had less than 8 years of studies. The 80% of attended patients were in working age, from this 63,9% were unemployed. The ophthalmological diseases with more frequency belonged to eye genetic diseases (22.2%) and macular degeneration related to age (17.8%). 57.8% of the patients presented a systematic pathology associated with low vision. Just 6.0% received previous visual rehabilitation. We concluded that the greater prevalence of ocular diseases associated to aging such as macular degeneration related to age and eye genetic diseases added to the sociodemographic features and particularly a 94% of the patients did not have access to visual rehabilitation, represent a profile that challenges the development public health care measures that safeguard the prevention, access, and rehabilitation, being an imperative need the making of specialist multidisciplinary teams.

Neuroplasticidad en personas con baja visión: locus preferente retinal y su potencial para la rehabilitación visual / Neuroplasticity in people with low vision: Neuroplasticity in people with low vision: preferred retinal locus and its potential for visual rehabilitation and its potential for visual rehabilitation

Visual rehabilitation in people with irreversible Low Vision (LV) aims to optimize the use of remaining vision to execute visual tasks. Conventional rehabilitation exploits the visual potential through training using the remaining visual function, with or without visual aids, to improve performance on specific tasks. However, there is no consensus about the impact of this approach in the long term and on the quality of life of patients. On the other hand, visual neuro-rehabilitation has long-term advantages that can be complementary to conventional strategies and is based on the generation of scotoma awareness and training in the systematic use of extrafoveal regions for fixation and for use as oculomotor reference. These regions called preferred retinal loci (PRL) are established spontaneously in the peripheral retina that still retain visual function and constitute evidence of a high degree of plasticity of the visual system. There is wide evidence of the efficacy of visual neuro-rehabilitation strategies on performance in specific visual tasks, but their impact on the overall visual performance and quality of life of patients is still pending. (AU)

Evaluación oftalmológica en niños derivados a un proyecto de rehabilitación en baja visión de un organismo de apoyo social / Ophthalmological evaluation in children referred to a low-vision rehabilitation project of a social assistance agency

INTRODUCCIÓN: Un niño con baja visión (BV) rehabilitado puede tener una educación integral. Objetivo: Estudiar el perfil de los escolares derivados para evaluación a un Proyecto de Rehabilitación en un organismo de apoyo social. PACIENTES Y MÉTODO: Estudio transversal descriptivo de beneficiarios evaluados entre septiembre 2015 y septiembre 2016 en JUNAEB. Se consideró diagnóstico de derivación, agudeza visual monocular (AV) con corrección óptica para lejos (cartillas Feinbloom) y cerca (cartillas Zeiss). Se clasificaron según AV y perimetría. Se consideró éxito de tratamiento lograr AV > 0,4 para le jos y/o cerca con ayuda óptica. RESULTADOS: Se evaluaron 278 escolares. 153 (55%) fueron hombres, 121(43,5%) entre 10 a 14 años. Catarata congénita bilateral, distrofias retinales, alta miopía, atrofia óptica y nistagmus congénito fueron las patologías más frecuentes. 224 (80,6%) se habilitaron con ayudas. 85 (37,9%) presentaron BV moderada y 63 (28,6%) BV severa. 122 (54,5%) presentaban perimetría normal, 68 (30,4%) campo visual (CV) tubular, 19 (8,5%) defecto sectorial del CV y 15 (6,7%) compromiso central del CV. 198 (88,4%) escolares lograron éxito visual de lejos y todos lograron éxito visual de cerca. 48 (17,2%) escolares no pudieron ser rehabilitados, estando asocia dos a una afección neuroftalmológica (41,7%), alto error refractivo (16,6%) o glaucoma congénito (10,4%). 6 (2,2%) casos mejoraron su AV con nueva corrección óptica. CONCLUSIÓN: El éxito obtenido demuestra la necesidad de habilitar visualmente a escolares con BV. Nuestro desafío es mantener este programa y educar al oftalmólogo prestador para una derivación oportuna.

INTRODUCTION: A low-vision (LV) rehabilitated child can receive comprehensive education. OBJECTIVE: To study the profile of school children referred for evaluation to a rehabilitation project in a social assistance agency. PATIENTS AND METHODS and Method: Descriptive cross-sectional study of beneficiaries evaluated between September 2015 and September 2016 in the National Board of School Assistan ce and Scholarships (JUNAEB). The referral diagnosis, monocular visual acuity (VA) with optical correction at far (Feinbloom chart) and close (Zeiss chart) distances were considered. They were classified according to VA and perimetry. Treatment success was considered if VA reaches > 0.4 at far and/or close distances with optical devices. RESULTS: 278 students were assessed. 153 (55%) were men, 121 (43.5%) between the ages of 10 to 14. Bilateral congenital cataract, retinal dystrophies, high myopia, optic atrophy, and congenital nystagmus were the most frequent pathologies. 224 students (80.6%) received optical devices. 85 (37.9%) presented moderate LV and 63 (28.6%) severe LV; 122 (54.5%) presented normal perimetry, 68 (30.4%) tubular Visual Field (VF), 19 (8.5%) sectoral VF defects, and 15 (6.7%) central scotoma. 198 (88.4%) students achieved visual success at a far distance and all achieved visual success at a near distance. 48 (17.2%) students could not be rehabilitated due to a neuro-ophthalmological condition (41.7%), high refractive error (16.6%) or congenital glauco ma (10.4%).Six (2.2%) cases improved VA with a new optical correction. CONCLUSION: This success demonstrates the need to provide low vision aids to schoolchildren with LV. Our challenge is to maintain this program and to educate ophthalmologist for timely referral.

Sustentos teóricos acerca de los problemas clínicos de la baja visión y la rehabilitación visual / Theoretical basis on the clinical problems of low vision and visual rehabilitation

Se realizó una búsqueda en la literatura digital. Se revisaron artículos en español y en inglés que resultaron significativos de la temática en estudio, con el propósito de identificar los referentes teóricos acerca de baja visión y la rehabilitación visual. La baja visión es una condición que deriva en una reducción importante de la visión de la persona y en este contexto representa un reto mundial. Las principales causas son el glaucoma, la maculopatía miópica, la degeneración macular relacionada con la edad y la retinopatía diabética. La rehabilitación visual implica un conjunto de procesos encaminados a obtener el máximo aprovechamiento visual de un paciente con baja visión, en aras de lograr su reincorporación a la sociedad. Las causas que provocan la baja visión son múltiples. En Sancti Spíritus las más frecuentes son el glaucoma, la maculopatía miópica, la degeneración macular relacionada con la edad y la retinopatía diabética. Se teoriza el proceso de rehabilitación visual, que garantiza el uso del resto útil de la visión que conserva el paciente, con el empleo de las ayudas ópticas y no ópticas(AU)

Digital literature review was made to review Spanish and English articles that were significant in the study subject, with the objective of identifying the theoretical referents on low vision and visual rehabilitation. Low vision is a condition that results in significant reduction of a person´s vision and thus it represents a challenge worldwide. The main causes are glaucoma, myopic maculopathy, age-related macular degeneration and diabetic retinopathy. Visual rehabilitation involves a set of processes aimed at obtaining the maximum visual utilization from a patient with low vision, with a view to achieving his/her re-incorporation into the society. The causes of low vision are varied. The most common ones in Santi Spiritus province are glaucoma, myopic maculopathy, age-related macular degeneration and diabetic retinopathy. The article theorized about the visual rehabilitation process that assures the use of the remaining useful vision that a patient preserves, by using optical and non-optical aids(AU)

Instruments for evaluation of functionality in children with low vision: a literature review / Instrumentos para avaliação da funcionalidade da criança com baixa visão: uma revisão da literatura

ABSTRACT We conducted a literature review of tools used to evaluate functionality in children with low vision with the aim of analyzing the applicability, advantages, and disadvantages for children <6 years of age, an age at which visual development is mostly complete. Publications in Portuguese, English and, Spanish describing functional evaluation tools for children aged 0-18 years with low vision in the following databases were included: Web of Science, Virtual Health Library, Cochrane, Scielo, and PubMed. A total of 181 articles were collected, 15 of which were included in this review. Thirteen tools were identified, nine of which evaluated overall functionality and quality of life through questionnaires. The other 4 instruments, using a observational test model, evaluated functionality and they were elected. Observational tests chosen for their accuracy and lower selection bias were used to evaluate visual functionality. Of these, the Functional Vision Assessment up to 6 years seems to be promising. In conclusion, we observed a lack of tools for evaluating functionality in children with low vision. This type of evaluation is necessary for planning visual rehabilitation to improve quality of life in children with low vision.

RESUMO Realizada revisão bibliográfica dos instrumentos de avaliação da funcionalidade da criança com baixa visão analisando sua aplicabilidade, vantagens e desvantagens, principalmente entre crianças abaixo de 6 anos de idade, período de grande importância para a reabilitação visual. Publicações descrevendo instrumentos para avaliação funcional nas bases de dados Web of Science, Biblioteca Virtual em Saúde, Cochrane, Scielo e Pubmed; em crianças (0-18 anos) com baixa visão, nos idiomas português, inglês e espanhol. Recuperaram-se 181 artigos, sendo 15 incluídos na revisão. Foram identificados 13 instrumentos, sendo nove para avaliar funcionalidade global e qualidade de vida, em modelo de questionário. Os demais, (4 instrumentos), em modelo de testes observacionais, avaliavam funcionalidade visual e foram eleitos. Para avaliar funcionalidade visual foram utilizados testes observacionais, eleitos por serem precisos e com menos viés de seleção. Destes, o AVIF-2 a 6 anos mostrou-se um instrumento promissor. Concluindo, observou-se escassez de instrumentos para avaliar funcionalidade em crianças com baixa visão. Essa avaliação é necessária para planejamento da reabilitação visual e melhora na qualidade de vida de crianças com baixa visão.

Ocupational performance and quality of life: interrelationships in daily life of visual impaired individuals / Desempenho ocupacional e qualidade de vida: inter-relações no cotidiano de pessoas com deficiência visual

ABSTRACT Objective: Identify levels of self-perception of occupational performance and quality of life of individuals with visual impairment and subsequent analysis of the interrelationship between the indices found. Methods: Descriptive cross-sectional survey with people with visual disabilities enrolled in visual rehabilitation program. COPM was applied to measure the self-perception of occupational performance, the SF-36 for quality of life measurement and a socio-demographic questionnaire to describe personal characteristics. Results. Twentythree subjects were included in the sample: 74% with low vision, 52.2% were female and mean age of 46.7 years. The self-perception of performance and emotional aspects domains of participants with low vision were better than those with blindness. The greater the time of visual impairment, worse was the self-perception of pain. The vitality domain showed statistical significant relationship with the domains general health, performance and satisfaction as well as the mental health domain were related to general health, pain, performance and vitality. Conclusion: The best were the mental health index, the better were the evaluations of physical, functional and social areas, a fact that indicates the importance of considering mental health in visual rehabilitation programs. The COPM and the SF-36 address the issue of functionality in different ways and their results are not compatible.

Objetivo: Identificar níveis de autopercepção de desempenho ocupacional e qualidade de vida de indivíduos com deficiência visual e posterior análise de inter-relação entre os índices encontrados. Métodos: Estudo descritivo de corte transversal junto a pessoas com deficiência visual inscritas em programa de reabilitação visual. Foram utilizados os questionários COPM para mensuração da autopercepção de desempenho ocupacional, SF-36 para mensuração de níveis de qualidade de vida e questionário de investigação sociodemográfico e perfil dos sujeitos. Resultados: Vinte três sujeitos compuseram a amostra, sendo 74% com baixa visão, 52,2% do gênero feminino e média de idade de 46,7 anos. A autopercepção de desempenho e aspectos emocionais dos participantes com baixa visão foram melhores do que os com cegueira. Quanto maior era o tempo de deficiência visual, pior era a avaliação da dor. O domínio vitalidade apresentou relação estatisticamente significativa com os domínios estado geral de saúde, desempenho e satisfação, assim como o domínio saúde mental apresentou relação com estado geral de saúde, dor, desempenho e vitalidade. Conclusão: Quanto melhores foram os índices de saúde mental, melhores foram as avaliações dos domínios físicos, funcionais e sociais, fato que indica a importância de considerar a saúde mental em programas de reabilitação. A COPM e a SF-36 abordam a questão da funcionalidade de maneiras distintas e seus resultados não são compatíveis.

Life quality of low-vision elderly people: before and after hearing and speech intervention

Aim: To evaluate life quality of elderly people with acquired low vision before and after hearing and speech intervention. Methods: This was a descriptive cross-sectional study. The study was made with 52 elderly people with acquired low vision. Two questionnaires that measures life quality were used in this study. The first was ‘Low Quality of Life Vision (LVQOL)’ and the second the ‘National Eye Institute Visual Function Questionnaire (NEIVFQ-25)’. The study included people with more than 60 years with acquired low vision and who accepted to participate signing the consent form. The hearing and speech therapy were made into three months, one meeting a week. The questionnaires were applied in the first and last day of the intervention. Results: The age ranged between 60 and 91 years. The macular disorder (38%), such as age-related macular degeneration, macular hole and high myopia were the main causes of visual loss. Although the tests show superior performance after the intervention, there was no statistically significant difference. On the question about difficulties seeing in general, 17 participants answered that they had much more difficulty before the intervention and only 5 participants have reported having much difficulty after the intervention. Conclusion: The intervention trended to positive results, and after the meetings, participants showed improvements in aspects of the two questionnaires used in the study, decreasing the degree of difficulty in performing activities.

Objetivo: Avaliar a qualidade de vida de idosos com baixa visão adquirida antes e depois de intervenção fonoaudiológica. Métodos: Foi realizado um estudo descritivo e transversal. A população do estudo foi constituída por 52 idosos com baixa visão adquirida. Dois questionários que mensuram qualidade de vida foram aplicados neste estudo. O primeiro foi “Low Quality of Life Vision” (LVQOL) e o segundo the “National Eye Institute Visual Function Questionnaire” (NEIVFQ-25). Foram incluídos na pesquisa sujeitos com mais de 60 anos, portadores de baixa visão adquirida e que assinaram o Termo de Consentimento Livre e Esclarecido. A intervenção fonoaudiológica tinha duração de três encontros, um por mês. Os questionários foram aplicados no primeiro e no ultimo dia da Intervenção. Resultados: A idade variou entre 60 e 91 anos. A alteração macular (38%), como degeneração macular relacionada à idade, buraco macular e alta miopia foram as principais causas da perda visual. Apesar dos testes mostrarem um desempenho superior após a intervenção, não houve diferença estatisticamente significativa. Na questão sobre dificuldades de ver em geral, 17 sujeitos responderam que tinham muita dificuldade antes da intervenção, e após a intervenção somente 5 sujeitos relataram ter muita dificuldade. Conclusão: A intervenção tendenciou à resultados positivos, e após os três encontros, os idosos apresentaram melhoras em aspectos avaliados nos dois questionários usados no estudo, diminuindo o grau de dificuldade na realização de atividades.

Visual impairment, rehabilitation and International Classification of Functioning, Disability and Health / Deficiência visual, reabilitação e Classificação Internacional de Funcionalidade, Incapacidade e Saúde

Objetive: To describe the characteristics of people with visual impairment who participated in the Visual Rehabilitation Groups, according to the ICD-10 and the International Classification of Functioning, Disability and Health (ICF). Methods: Quantitative, cross-sectional survey, developed in a university rehabilitation research center between october and december 2012. The users from the Visual Rehabilitation Groups were invited; 13 of them agreed to participate. We performed an occupational therapy evaluation – with anamnesis, performance evaluation and functional vision assessment – an analysis of medical charts and patient description with the use of the ICF Results: The major causes of visual impairment were diabetic retinopathy, glaucoma, optical neuritis and keratoconus. Some functions and structures of the body, performance and capabilities in activities and participation, environmental factors facilitators or limiters were highlighted in this study, allowing the description of the characteristics of each participant through the functionality and the improvement of the therapeutic planning. Assistive technologies, optical and non-optical aids used and their everyday benefits were presented. Conclusion: Visual loss, at any level, led to functional impairments, limiting and restricting the participation and performance in everyday activities, interfering with the individuals’ independence, autonomy and quality of life. However, the use of optical aids, non-optical aids and environmental adaptations proved to be beneficial for increasing the functionality, showing the influence of external factors on the performance. Knowing and recognizing the existence of diversities within the visual impairment universe allows us to understand who the treated individual is, avoiding the generalization by the visual condition. The ICF showed to have a fundamental role in this context. .

Objetivo: Descrever as características das pessoas com deficiência visual participantes de Grupos de Reabilitação Visual, segundo a CID-10 e a Classificação Internacional de Funcionalidade, Incapacidade e Saúde (CIF). Métodos: Pesquisa quantitativa de corte transversal, desenvolvida em um centro universitário de pesquisas em reabilitação entre outubro e dezembro de 2012. Usuários de Grupos de Reabilitação Visual foram convidados, sendo 13 os que aceitaram participar. Foi realizada avaliação de terapia ocupacional – com anamnese, avaliação de desempenho e avaliação funcional da visão – consulta aos prontuários e a classificação dos participantes utilizando a CIF. Resultados: As principais causas de deficiência visual foram retinopatia diabética, glaucoma, neurite óptica e ceratocone. Algumas funções e estruturas do corpo, desempenho e capacidades em atividades e participação, fatores ambientais facilitadores ou limitadores foram destacados neste estudo, possibilitando descrever as características de cada participante por meio de sua funcionalidade e auxiliando no planejamento terapêutico. Tecnologias assistivas, auxílios ópticos e não ópticos utilizados e seus benefícios cotidianos foram apresentados. Conclusão: A perda visual, em qualquer nível, levou a prejuízos funcionais, limitando e restringindo a participação e o desempenho em atividades cotidianas, interferindo na independência, autonomia e qualidade de vida dos sujeitos. Entretanto, o uso de recursos ópticos, não ópticos, auxílios e adaptações ambientais mostraram-se benéficos para a ampliação da funcionalidade, evidenciando a influência de fatores externos no desempenho do indivíduo. Conhecer e reconhecer a existência da diversidade dentro do universo da deficiência visual possibilita entender quem é o sujeito atendido, evitando a generalização pela condição visual, tendo a CIF papel fundamental nesse contexto. .

Capacidad funcional y calidad de vida en los ancianos con degeneración macular y baja visión / Functional capacity and quality of life in elderly patients with macular degeneration and low vision

OBJETIVO: caracterizar la capacidad funcional y la calidad de vida en los ancianos con degeneración macular y baja visión, atendidos en el Instituto Cubano de Oftalmología “Ramón Pando Ferrer” en el período comprendido de enero a junio de 2013. MÉTODOS: se realizó un estudio descriptivo, de corte transversal. Fueron estudiadas las siguientes variables: edad, sexo, color de la piel, agudeza visual mejor corregida de cerca con cartilla Zeiss, antes y después de la rehabilitación visual, discapacidad visual, capacidad funcional para las actividades de la vida diaria, tipo clínico de degeneración macular, factores de riesgo de la enfermedad, motivación para la rehabilitación visual y ayudas ópticas y no ópticas prescritas. RESULTADOS: existió un predominio de la enfermedad en las mujeres (55,2 %), entre los 75-79 años de edad y en el color de la piel blanca. La discapacidad visual que prevaleció fue la baja visión ligera a moderada; la capacidad funcional mayormente encontrada fue la independencia con alguna limitación. La degeneración macular seca se presentó en el 82,7 % de los casos; el factor de riesgo más frecuente fue el tabaquismo (82,7 %); la lectoescritura fue la motivación principal y el mayor número de pacientes mejoró la agudeza visual después de la rehabilitación visual. Las ayudas ópticas y no ópticas que más se prescribieron fueron los microscopios y la iluminación. CONCLUSIONES: el grupo de edades entre 75 y 79 años, el sexo femenino y la piel blanca o caucasiana son los factores que aportan un mayor número de casos de degeneración macular y baja visión. La discapacidad visual que prevalece es la de los clasificados como baja visión ligera a moderada. La degeneración macular seca se presenta en casi la totalidad de los casos. Los factores de riesgo más frecuentes son el tabaquismo, la herencia y las enfermedades cardiovasculares. El mayor número de pacientes mejora después de la rehabilitación visual.

OBJECTIVE: to characterize the functional capacity and the quality of life of the elderly people with macular degeneration and low vision who were seen at "Ramon Pando Ferrer" Cuban Institute of Ophthalmology from January to June 2013. METHODS: cross-sectional and descriptive study that included the following variables: age, sex, race, best corrected near visual acuity using Zeiss chart before and after visual rehabilitation, visual disability, functional capacity for daily life activities, clinical type of macular degeneration, risk factors for the disease, reason for visual rehabilitation and prescribed optical and non-optical aids. RESULTS: the disease prevailed in females (55,2 %), 75-79 years-old age group and Caucasians. Predominant visual disability was mild to moderate low vision; the mostly found functional capacity was independence with some limitations. Dry macular degeneration was present in 82,7 % of cases; the most frequent risk factor was smoking (82,7 %); reading and writing was the main motivation and a large number of patients improved their visual acuity after rehabilitation. The optical and non-optical aids that were mostly prescribed included microscopes and lighting. CONCLUSIONS: females, 75-79 years-old age group and Caucasians are the risk factors that cause the highest number of cases with macular degeneration and low vision. Visual disability prevailed among those classified as mild to moderate low vision patients. Dry macular degeneration was present in almost all the cases. The most frequent risk factors were smoking, heredity and cardiovascular diseases. Most of the patients improved their condition after visual rehabilitation.

Caracterización clinicoepidemiológica de la baja visión en el adulto mayor y su rehabilitación visual / Clinical and epidemiolotical characterization of the low vision in the older adult and their visual rehabilitation

OBJETIVO: caracterizar clínica y epidemiológicamente a los pacientes con diagnóstico de baja visión, así como su rehabilitación. MÉTODOS: se realizó un estudio descriptivo, prospectivo, en 628 pacientes atendidos en el Servicio de Baja Visión en el período de 2011 a 2012 en el Instituto Cubano de Oftalmología "Ramón Pando Ferrer". Se recogieron los datos generales, los antecedentes generales y oculares, el defecto refractivo, la causa de la baja visión, la motivación, la ayuda óptica y la evaluación de la rehabilitación visual. La información obtenida se plasmó en una base de datos; posteriormente se procesaron y analizaron para dar salida a los objetivos del estudio. RESULTADOS: predominaron el sexo femenino, la raza blanca y el grupo de edad entre 70 y 79 años. La mayor parte de los pacientes no presentaron enfermedad sistémica y sí estuvo presente en la mayoría de los pacientes con predominio del glaucoma, lo que constituyó la primera causa ocular de discapacidad visual en estos. La ayuda óptica estuvo en correspondencia con la motivación expresada por ellos, donde la principal fue la lectoescritura. En la mayoría de los casos se logró una adecuada rehabilitación. CONCLUSIONES: en los casos de baja visión, la rehabilitación presenta relación estadística con el sexo, los antecedentes patológicos generales, la motivación y la ayuda óptica, algunas sin explicación clínica.

OBJECTIVE: with the objective of characterizing clinical epidemically to the patients with diagnostic of low vision as well as its rehabilitation. METHODS: was carried out a descriptive study, prospective in 628 patients assisted in the service of Low Vision in the period from the 2011 to the 2012 in the ICO "Ramón Pando Ferrer". the general data were picked up, the general and ocular antecedents, refractive defect, causes of the drop vision, motivation, helps optics and evaluation of the visual rehabilitation. The obtained Information was captured in a database, later on they were processed and they analyzed to give exit to the objectives of the study. RESULTS: it prevailed the feminine sex, the white race and the age group between 70 and 79 years. Most of the patients didn't present systemic illness. I didn't seize in the ocular pathological antecedents that it was present in most of the patients with prevalence of the glaucoma, constituting the first ocular cause of visual discapacidad in these. The optic help was in correspondence with the motivationexpressed by the same ones, where the lecture-write was the main one, in most of the cases an appropriate rehabilitation was achieved. CONCLUSIONS: the rehabilitation was evaluated meeting statistical relationship with the sex, the general pathological antecedents, the motivation and the optic help, some without clinical explanation.

Optical and nonoptical aids for reading and writing in individuals with acquired low vision / Auxílios ópticos e não ópticos na leitura e escrita de pessoas com baixa visão adquirida

Purpose: To evaluate the use of optical and nonoptical aids during reading and writing activities in individuals with acquired low vision. Methods: This study was performed using descriptive and cross-sectional surveys. The data collection instrument was created with structured questions that were developed from an exploratory study and a previous test based on interviews, and it evaluated the following variables: personal characteristics, use of optical and nonoptical aids, and activities that required the use of optical and nonoptical aids. Results: The study population included 30 subjects with acquired low vision and visual acuities of 20/200-20/400. Most subjects reported the use of some optical aids (60.0%). Of these 60.0%, the majority (83.3%) cited spectacles as the most widely used optical aid. The majority (63.3%) of subjects also reported the use of nonoptical aids, the most frequent ones being letter magnification (68.4%), followed by bringing the objects closer to the eyes (57.8%). Subjects often used more than one nonoptical aid. Conclusions: The majority of participants reported the use of optical and nonoptical aids during reading activities, highlighting the use of spectacles, magnifying glasses, and letter magnification; however, even after the use of these aids, we found that the subjects often needed to read the text more than once to understand it. During writing activities, all subjects reported the use of optical aids, while most stated that they did not use nonoptical aids for such activities. .

Objetivo: Avaliar o uso de auxílios ópticos e não ópticos na leitura e na escrita de pessoas com baixa visão adquirida. Métodos: Realizou-se estudo descritivo, tipo transversal. O instrumento de coleta de dados continha questões estruturadas, desenvolvidas em estudo exploratório e teste prévio e foi aplicado por entrevista, onde foram investigadas as seguintes variáveis: características pessoais, uso de auxílios ópticos e não ópticos, atividades para as quais utiliza auxílios ópticos e não ópticos. Resultados: A população foi composta por 30 sujeitos com baixa visão adquirida, com acuidade visual entre 20/200 a 20/400. A maioria dos sujeitos declarou fazer uso de algum tipo de auxílio óptico (60,0%). Desses 60,0%, a maioria (83,3%) citou os óculos como o auxílio óptico mais usado. A maioria (63,3%) dos sujeitos relatou fazer uso de auxílios não ópticos e os mais citados foram a ampliação de letras (68,4%), seguidos da aproximação dos objetos aos olhos (57,8%). Os sujeitos ressaltaram o uso de mais de um auxílio não óptico. Conclusão: A maioria informou utilizar os auxílios ópticos e não ópticos nas atividades de leitura, evidenciando o uso de óculos e da lupa manual, assim como da ampliação de letras, mas mesmo utilizando tais auxílios verificou-se que os sujeitos necessitavam ler o texto mais de uma vez para terem a compreensão do mesmo. Para a realização das atividades de escrita, a totalidade dos sujeitos declarou utilizar os auxílios ópticos, enquanto que a maioria declarou não utilizar auxílios não ópticos nessas atividades. .

Alternativa de rehabilitación visual en pacientes con baja visión por afecciones maculares / Visual rehabilitation alternative for patients with low visión caused by macular illnesses

Objetivo: evaluar los resultados de una modalidad de rehabilitación visual en pacientes con baja visión por afecciones maculares. Método: se realizó un estudio experimental, tipo serie de casos 20 pacientes en el Instituto Cubano de Oftalmología Ramón Pando Ferrer. Se indicó la realización de ejercicios de localización y relleno. Antes de la rehabilitación y después, se estudió la agudeza visual mejor corregida de cerca con cartilla de Zeiss, velocidad de lectura, presencia de fatiga y rastreo. Resultado: la agudeza visual mejor corregida de cerca mejoró en 16 pacientes que representó el 80 por ciento de los casos estudiados, la velocidad de lectura se incrementó del 73 al 86,5 como promedio; no presentaron fatiga y fue más efectivo el rastreo después de la realización de ejercicios de localización y relleno. Conclusión: la alternativa en la rehabilitación visual de pacientes de baja visión secundaria a afecciones maculares mediante de la realización de ejercicios de localización y relleno, mejora la capacidad visual de los mismos

Objectives: to evaluate the results of a visual rehabilitation modality in a group of patients with low vision due to macular illnesses.Methods: an experimental case series-type study was conducted in 20 patients at Ramon Pando Ferrer Cuban Institute of Ophthalmology. To this end, making locating and filling exercises was indicated. Before and after rehabilitation, best corrected near visual acuity was measured by using Zeiss chart in addition to reading speed, fatigue and tracking were also studied.Results: the best corrected near visual acuity improved in 16 patients accounting for 80 percent of studied cases; the reading speed increased from 73 to 86.5 as average; there was no fatigue observed and tracking was more effective after making the indicated exercises.Conclusions: the visual rehabilitation alternative for patients with low vision due to macular illnesses, based on location and filling exercises, leads to improvement of their visual capacity

Maculopatía tóxica por cloroquina y rehabilitación visual mediante microperímetro MP1 / Phacoemulsification in the treament of iridocorneal endothelial syndrome

La cloroquina es un fármaco que puede producir disfunciones visuales, baja visión e incluso ceguera según la dosis. Una dosis acumulativa menor a 100 g de cloroquina, o una duración de tratamiento de menos de un año raramente se asocia con lesión retiniana. El riesgo de toxicidad aumenta cuando la dosis acumulativa excede los 300 g (250mg/día durante 3 años). Este medicamento es utilizado en el tratamiento de enfermedades autoinmunes. Se presenta una paciente de 44 años de edad, con antecedentes de artritis reumatoide hace 14 años para lo cual se indicó tratamiento con cloroquina (1 tableta 250 mg/diaria) desde el diagnóstico inicial, y presenta un diagnóstico de maculopatía por cloroquina hace 5 años, a consulta por presentar baja visión y solicitando una posibilidad de rehabilitación visual. Se realizó examen oftalmológico, estudios complementarios y se rehabilitó mediante el microperímetro MP1. Se concluye que la maculopatía por cloroquina es una de las causas de discapacidad visual y que la rehabilitación visual con microperimetría proporciona mejoría en varios parámetros visuales, mejorando la calidad visual del paciente

Chloroquine-induced toxic maculopathy and visual rehabilitation through the use of microperimeter MP1.Chrloroquine is a drug that may cause visual dysfunctions, low vision and even blindness depending on dose. An accumulative dose lower than 100 g of chloroquine or a length of treatment less than one year is rarely associated to retinal injure. The toxicity risk increases when the accumulative dose exceeds 300 g (250mg/day for 3 years). This drug is used in treating autoimmune diseases. Here is the case of a 44 years-old patient, with history of rheumatoid arthritis for 14 years. Chloroquine treatment was indicated (one 250 mg tablet daily) at the time of initial diagnosis. Five years ago, he was diagnosed with chloroquine-induced maculopathy when he went to the doctor's because of low vision and asked for possible visual rehabilitation. An ophthalmologic exam, some supplementary studies and rehabilitation through the microperimeter MP1 were all performed. It was concluded that chloroquine-maculopathy with microperimetry provides improvement of several visual parameters and better visual quality for the patient

Qualidade de vida de crianças com deficiência visual atendidas em Ambulatório de Estimulação Visual Precoce / Quality of life in visual impaired children treated for Early Visual Stimulation

OBJETIVO: Analisar a qualidade de vida em crianças com deficiência visual atendidas em Ambulatório de Estimulação Visual Precoce da Unifesp em duas situações, antes e após intervenções reabilitacionais pela equipe multiprofissional. MÉTODOS: Aplicou-se o questionário de qualidade de vida QFVI. O instrumento possui uma versão para crianças menores de três anos e outra para crianças maiores de três anos (três a sete anos) e é dividido em seis domínios: Saúde geral; Saúde geral da visão; Competência; Personalidade; Impacto familiar e Tratamento. RESULTADOS: A correlação entre as subescalas nos dois momentos mostrou-se significativa. Houve diferença estatisticamente significativa em saúde geral da visão (p=0,029) e outras diferenças importantes foram obtidas em saúde geral, impacto familiar e qualidade de vida geral. DISCUSSÃO: Este instrumento mostrou-se eficiente na aferição da qualidade de vida relacionada à visão nas famílias que frequentam esse ambulatório. As intervenções multidisciplinares promoveram melhora da visão funcional da criança e qualidade de vida da família como um todo. CONCLUSÃO: A qualidade de vida relacionada à visão de crianças atendidas no Ambulatório de Estimulação Visual Precoce da Unifesp apresentou melhora significativa na saúde geral da visão.

PURPOSE: To evaluate the quality of life in visually impaired children followed in the Early Visual Stimulation Ambulatory of Unifesp in two moments, before and after rehabilitational intervention of multiprofessional team. METHODS: A CVFQ quality of life questionnaire was used. This instrument has a version for less than three years old children and another one for children older than three years (three to seven years) divided in six subscales: General health, General vision health, Competence, Personality, Family impact and Treatment. RESULTS: The correlation between the subscales on two moments was significant. There was a statistically significant difference in general vision health (p=0,029) and other important differences obtained in general health, family impact and quality of life general score. DISCUSSION: The questionnaire showed to be effective in order to measure the quality of life related to vision on families followed on this ambulatory. The multidisciplinary interventions provided visual function and familiar quality of life improvement. CONCLUSION: The quality of life related to vision in children followed in Early Visual Stimulation Ambulatory of Unifesp showed a significant improvement on general vision health.

Optical aids for low vision: use of the Internet to guide teachers of the visually impaired / Auxílios ópticos para baixa visão: uso de internet na orientação de professores de deficientes visuais

PURPOSES: To describe and interpret teachers' opinions about and responsiveness to guidance on optical aids for low vision. METHODS: It was conducted a cross-sectional analytical study. The convenience, non-random sample consisted of 58 teachers from the public school network of the city of Campinas. It was constructed and applied a structured questionnaire, available online at the assessed website. For qualitative data collection it was conducted an exploratory study using the focus group technique. RESULTS: Responses expressed, for the most part, a marked interest in the website, its easiness of access, and the comprehensive nature of the information provided. Most people reported frequent use of the Internet to seek information, and found it easier to access the Internet at home. Among the qualitative aspects of the evaluation, we should mention the perceived importance of the website as a source of information, despite some criticism about the accessibility and reliability of the information found on the Internet. CONCLUSION: Teachers' need for training to deal with visually impaired students and their positive response to advice and information lead to the conclusion that web-based guidelines on the use of optical aids were considered beneficial to ease the understanding of visual impairment and the rehabilitation of the affected subjects.

OBJETIVOS: Descrever e interpretar opiniões e receptividade de professores a orientações sobre auxílios ópticos para baixa visão. MÉTODOS: Caracterizou-se como estudo transversal analítico. A amostra por conveniência, não randômica, foi constituída por 58 professores do sistema público de ensino, no município de Campinas. Aplicou-se questionário estruturado, disponibilizado on-line no site objeto de estudo. Realizou-se também estudo exploratório de abordagem qualitativa, com aplicação da técnica de grupo focal. RESULTADOS: Predominaram as opiniões de muito interesse no site; facilidade e suficiência de informações oferecidas. A maioria reportou uso frequente da internet para buscar informações; consideraram mais fácil acessar a internet na própria residência. Quanto aos aspectos qualitativos da avaliação, evidenciou-se o reconhecimento da importância do site como fonte de informações, embora existissem restrições quanto à facilidade de acesso e confiabilidade de informações veiculadas na internet. CONCLUSÃO: A necessidade de preparo em relação à deficiência visual, declarada pelos professores e a receptividade a orientações e informações, permitem concluir pelo benefício de orientações divulgadas pelo website sobre uso de auxílios ópticos, o que facilita a compreensão de problemas visuais e a reabilitação em baixa visão.

Individualización de pacientes con baja visión en el Centro Oftalmológico del Hospital General Docente Dr Juan Bruno Zayas Alfonso / Individualization of low vision patients in Dr Juan Bruno Zayas Alfonso Teaching General Hospital Ophthalmologic Center

Se efectuó un estudio descriptivo y transversal de 73 pacientes con baja visión, que asistieron a la consulta del Centro Oftalmológico del Hospital General Docente Dr Juan Bruno Zayas Alfonso de Santiago de Cuba, desde julio hasta diciembre del 2009, a fin de describir algunas características clínicas y demográficas. La degeneración macular asociada a la edad primó en más de 25,0 por ciento de los integrantes de la casuística, seguida por el glaucoma crónico simple y la miopía degenerativa y, según lugar de procedencia, los pertenecientes al municipio de Santiago de Cuba representaron 73,0 por ciento del total. Se logró rehabilitar a 89,0 por cientode los pacientes examinados y tratados

A descriptive and cross sectional study of 73 patients with low vision who visited the Ophthalmologic Center at Dr Juan Bruno Zayas Alfonso Teaching General Hospital in Santiago de Cuba was carried out from July to December 2009 in order to describe some clinical and demographic characteristics. Macular degeneration associated with age prevailed in more than the 25,0 per cent of the case material, followed by simple chronic glaucoma and degenerative myopia and, according to origin place, those belonging to Santiago de Cuba municipality represented 73,0 per cent of the total. It was possible to rehabilitate the 89,0 per cent of the examined and treated patients

Características e percepções de pais de lactentes portadores de baixa visão em serviço universitário de reabilitação visual / Characteristics and perceptions from parents of infants with low vision in an university service of visual rehabilitation

Introdução: Com a notificação de que o filho recém-nascido é uma criança com deficiência, vem a dor, frustração, angústia, medo, insegurança, culpa e muitos outros sentimentos. Modificamseas relações sociais, familiares e estruturais que abalam o equilíbrio familiar. Objetivo: Compreender a perspectiva destes pais acerca do conceito da deficiência visual e da inclusão familiar. Método: Questionário auto-aplicável a 20 pais de criançascom idade entre 0 e 36 meses. Resultados: A média das idades das crianças foi de 24,8 meses; 35% dospais afirmaram terem sido os primeiros a perceber o problema visual dos filhos, enquanto o restante foi informado pelo médico. A média das idades da criança no início da estimulação visual foi de13,4 meses, variando de 1 a 33 meses. Ao serem questionadas sobre o conhecimento das leis que assistem ao deficiente visual, 60% das mães informaram desconhecê-las. O medo da discriminação foi a maior angústia dos pais em relação ao futuro destas crianças. Conclusão: O encaminhamentoprecoce pelo pediatra e a criação de programas de formação e de custeio de equipes multidisciplinares devem ser incentivados.

Introduction: With the notification of theparents that the newborn is a visual deficient child comes the pain, frustration, anguish, fear, insecurity,guilt and many other feelings. Change comes on the social and familial relations structure. Objective: To understand the perspective of these parents about the concept of visual disability and family inclusion.Methods: Survey with self-administered questionnaire to 20 parents of children aged between 0 and 36 months. Results: Mean age of children was24.8 months; 35% of parents said they were the first to perceive the visual problem of the children while the rest was told by the doctor. The mean age of the child at the beginning of visual stimulation was 13.4 months, ranging 1-33 months. When asked aboutknowledge of the laws that assist mothers of children with visually impaired 60% reported ignoring them.Fear of discrimination was the greatest anguish of parents regarding the future of these children. Conclusion: The early referral by the pediatrician and the creation of training programs and funding of multidisciplinary teams should be encouraged.

Comparison of patient satisfaction with services of Vision Centers in rural areas of Andhra Pradesh, India.

Aim: To compare the satisfaction of patients with the services of Vision Center services (primary eye care) in large village (s) and small village (s) in rural settings in Andhra Pradesh state, India. Materials and Methods: We have administered standard questionnaires to randomly selected patients to assess patient satisfaction when assessing Vision Center Services. We used the Chi-square (P <0.05) to explore differences in satisfaction of patients with Vision Center services located in the large village (s) and small village (s) rural settings. Results: Vision Center patients at the large village (s) expressed higher levels of satisfaction (median 78%) than patients treated at the Vision Center at small village (s) (median 69%). The difference was statistically significant (Chi square P value ranging from <0.001 to 0.03) for all the items except two – ‘easy to identify vision center location’ and ‘spectacles dispensing time’ as compared to other (privately run optometry) facilities (Chi square P value=0.498 and 0.993 respectively). The location of the Vision Center, convenience of journey, ophthalmic technician’s behavior with patients, are some of the most important factors that determined the patient perception about Vision Center services. Conclusion: The overall satisfaction levels of the Vision Center experience at 78% and 69% were good. However, continual improvement is to be made in service time, staff performance, cost and quality of vision care, especially at more remote primary eye Care Centers.

Serviço de visão subnormal do Instituto Brasileiro de Oftalmologia e Prevenção da Cegueira (IBOPC): análise dos pacientes atendidos no 1º ano do departamento (2004) / Low vision service at the Instituto Brasileiro de Oftalmologia e Prevenção da Cegueira (IBOPC): analysis of the patients examined on the first year of the department (2004)

Objetivo: Traçar o perfil dos pacientes portadores de baixa visão atendidos no serviço de visão subnormal do Instituto Brasileiro de Oftalmologia e Prevenção da Cegueira (IBOPC). Métodos: Realizou-se um estudo transversal no qual foram revisados 82 prontuários de pacientes com baixa visão, atendidos pelo Serviço Único de Saúde (SUS) no primeiro ano do departamento de Visão Subnormal do Instituto Brasileiro de Oftalmologia e Prevenção da Cegueira em 2004. Os dados analisados foram: sexo, faixa etária, etiologia, acuidade visual inicial e final (pós-refração) para longe e perto, com e sem auxílio óptico e recurso óptico indicado. Resultados: Dos 82 pacientes avaliados, 11 (13,4 por cento) foram excluídos do trabalho por não apresentarem visão subnormal. Dos 71 pacientes restantes, 32 (45 por cento) eram menores de 20 anos. Quanto ao sexo, não houve diferença estatisticamente significante (51 por cento eram mulheres e 49 por cento eram homens). A etiologia mais frequente em crianças e adolescentes foi o glaucoma congênito (15,6 por cento). Em pacientes de 20 a 39 anos prevaleceu a toxoplasmose ocular (21,1 por cento). Entre os pacientes de 40 a 59 anos, a retinose pigmentar foi a patologia mais frequente (19 por cento). Nos idosos, o glaucoma foi a patologia mais encontrada (40 por cento). Trinta e três pacientes (40,2 por cento) tinham acuidade visual entre 20/60 e 20/160. O sistema telescópico foi o único auxílio óptico indicado para longe (44 por cento) e os óculos foram os mais indicados para perto (54,5 por cento). Conclusão: Existe uma alta prevalência de baixa visão em crianças e adolescentes em países em desenvolvimento como o Brasil. Desta forma o oftalmologista precisa criar programas preventivos, melhorar as condições de atendimento e atentar para o diagnóstico precoce e o tratamento destes pacientes.

Purpose: To outline low vision (LV) patients profile of the low vision department of the Instituto Brasileiro de Oftalmologia e Prevenção da Cegueira (IBOPC). Methods: Transversal study of 82 medical charts from the low vision service at the Instituto Brasileiro de Oftalmologia e Prevenção da Cegueira of the first year of the department - 2004, considering age, gender, etiology, distance and near visual acuity with and without optical aids and prescription assistance. Results: Of the 82 available patients, 11 (13.4 percent) were excluded of the study because they did not present low vision. Of the 71 patients, 32 (45 percent) were younger than 20 years old. Regarding the gender, there was not a significant difference (51 percent female and 49 percent male). The most frequent etiology in infants and adolescents was congenital glaucoma and in patients aged between 20-39 years was ocular toxoplasmosis (21.1 percent). In patients with 40-59 years old, pigmentary retinosis was the most frequently pathology (19 percent). In elderly people it was glaucoma (49 percent). Thirty-three patients (40.2 percent) had visual acuity between 20/60 and 20/160. The telescopic system was the only optical aid indicated for distance (44 percent) and glasses were the most indicated for near (54.5 percent). Conclusion: There is a high prevalence of low vision in infants and adolescents that live in developing countries like Brazil. Therefore, ophthalmologists need to be aware to promote early diagnosis and treatment to these patients, creating preventive programs and better assistance conditions.