Clinical manifestations and quality of life in hidradenitis suppurativa patients: survey of participants from an internet support group
An. bras. dermatol
;
94(3): 298-303, May-June 2019. tab, graf
Article
in English
| LILACS
| ID: biblio-1011122
ABSTRACT
Abstract Background:
Hidradenitis suppurativa is a complex and infrequent autoinflammatory disease that impacts on quality of life. Its pathogenesis is not fully understood, which limits the development of curative treatments.Objectives:
To evaluate clinical and quality of life aspects of hidradenitis suppurativa patients from a social group on the Internet.Methods:
A cross-sectional, Internet-based survey study among participants in a discussion group (Facebook) of individuals with hidradenitis suppurativa. Patients were asked to answer a questionnaire about clinical-demographic aspects and quality of life (DLQI-BRA).Results:
A total of 390 individuals agreed to participate in the study, 82% of them female, median age (p25-p75), of 31 (25-37) years old, disease onset at 15 (13-23) years, family member affected in 20% of cases, overweight (BMI 29 [25-33]) kg/m2 and severe impact on quality of life (DLQI 20 [13-25]). Regarding Hurley's classification, the participants provided information that enabled classification into I (19%), II (52%) and III (29%). More severe cases were associated with males (OR = 1.69), higher weight (BMI OR = 1.03) non-white color (OR = 1.43) and higher frequency of other autoinflammatory diseases (OR = 1.37). Studylimitations:
Voluntary adherence survey with self-completion of the questionnaire by 390 from about 1600 group members.Conclusions:
Hidradenitis suppurativa patients who participated in a social network group had onset of the disease after puberty, with a predominance in females and overweight people, with great impact on the quality of life.
Full text:
Available
Index:
LILACS (Americas)
Main subject:
Quality of Life
/
Hidradenitis Suppurativa
/
Community-Based Participatory Research
/
Social Media
Type of study:
Observational study
/
Prevalence study
/
Qualitative research
/
Risk factors
Limits:
Adult
/
Aged
/
Female
/
Humans
/
Male
Language:
English
Journal:
An. bras. dermatol
Journal subject:
Dermatology
Year:
2019
Type:
Article
Affiliation country:
Brazil
Institution/Affiliation country:
Universidade Estadual Paulista/BR
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