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Adult congenital heart disease outpatient clinic. descriptive analysis of a 12-year experience in Brazil
Amaral, Fernando; Manso, Paulo Henrique; Jacob, Maria Fernanda Balthazar; Schmidt, André.
  • Amaral, Fernando; Universidade de São Paulo. Faculdade de Medicina de Ribeirão Preto. Department of Internal Medicine. Ribeirão Preto. BR
  • Manso, Paulo Henrique; Universidade de São Paulo. Faculdade de Medicina de Ribeirão Preto. Department of Internal Medicine. Ribeirão Preto. BR
  • Jacob, Maria Fernanda Balthazar; Universidade de São Paulo. Faculdade de Medicina de Ribeirão Preto. Department of Internal Medicine. Ribeirão Preto. BR
  • Schmidt, André; Universidade de São Paulo. Faculdade de Medicina de Ribeirão Preto. Department of Internal Medicine. Ribeirão Preto. BR
Rev. bras. cir. cardiovasc ; 35(3): 254-264, May-June 2020. tab, graf
Article in English | LILACS, SES-SP | ID: biblio-1137274
ABSTRACT
Abstract

Objective:

Description of adult congenital heart disease (CHD) outpatient characteristics has not been reported and several aspects regarding these patients require attention. We describe the 12-year experience of a Brazilian unit.

Methods:

The main characteristics of 1168 patients were reviewed annotating for each patient age, gender, city of residence, main diagnosis, functional class at last examination, defect complexity and in-hospital referral pattern.

Results:

Increasing workload was documented. Among the CHD patients, 663 (57%) were between 14 and 30 years old and 920 (79%) lived in the referral region. Referrals were made by hospital cardiologists for 611 (52%) patients, while 519 (45%) were referred by pediatric cardiologists. Regarding CHD severity, 637 (55%) had a defect of mild complexity. Of the patients analyzed, 616 (53%) had undergone an intervention, mainly atrial septal defect (ASD) closure, correction of tetralogy of Fallot, ventricular septal defect (VSD) closure and relief of coarctation of the aorta (CoAo). The main diagnosis of the 552 (47%) patients not submitted to an intervention were ASD, VSD, aortic stenosis, complex CHD and pulmonary stenosis. Regarding functional class, 1016 (87%) were in class I and 280 (24%) were lost to follow-up. Seventy-three patients had died, mainly due to cardiac death.

Conclusion:

In a unit were complex pediatric congenital heart surgery started twenty years ago, an increasing adult CHD workload was documented. Referral came predominantly from cities around the unit, most patients had low complexity defects and were in functional class I, a significant loss of follow-up was documented, and the death of patients was mainly due to the heart defect.
Subject(s)


Full text: Available Index: LILACS (Americas) Main subject: Heart Defects, Congenital / Heart Septal Defects, Ventricular Limits: Adolescent / Adult / Aged / Aged80 / Humans Country/Region as subject: South America / Brazil Language: English Journal: Rev. bras. cir. cardiovasc Year: 2020 Type: Article Institution/Affiliation country: Universidade de São Paulo/BR

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Full text: Available Index: LILACS (Americas) Main subject: Heart Defects, Congenital / Heart Septal Defects, Ventricular Limits: Adolescent / Adult / Aged / Aged80 / Humans Country/Region as subject: South America / Brazil Language: English Journal: Rev. bras. cir. cardiovasc Year: 2020 Type: Article Institution/Affiliation country: Universidade de São Paulo/BR