Parents' Emotional and Social Experiences of Caring a Child with Cleft Lip and/or Palate
Pesqui. bras. odontopediatria clín. integr
;
21: e0168, 2021. tab
Article
in English
| LILACS, BBO
| ID: biblio-1250460
ABSTRACT
ABSTRACT Objective:
To evaluate the emotional and social experiences of parents or caregivers of children with cleft lip and/or palate (CL/P) in a city in the Northeastern of Brazil. Material andMethods:
A quantitative and cross-sectional study was conducted among parents or caregivers of children with CL/P by interviews based on a questionnaire. Interviews were conducted during the First Smile Project in Sobral, Ceará, Brazil. All participants (n=41) agreed to participate in the interview and signed an informed consent. The data was analyzed in SPSS software version 22.0.Results:
The majority of participants were female (87.2%), with a mean age of 37 years, with a low level of education and low family income. The great majority (90.2%) of the parents were not prenatally diagnosed to have CL/P babies. Of those interviewed, 56.1% mentioned that the first diagnosis of cleft lip and palate was not presented by the professionals in a clarifying way to the family. Fear (36.6%) and sadness (19.5%) were the main feelings experienced when the child was diagnosed with fissure. Feeding (48.8%) was pointed out as the main concern in caring for a child with CL/P.Conclusion:
The parents and caregivers interviewed faced important emotional and social problems that must be addressed by the professional team that assists the child with CL/P.
Full text:
Available
Index:
LILACS (Americas)
Main subject:
Parents
/
Child
/
Cleft Lip
/
Cleft Palate
/
Caregivers
/
Affective Symptoms
Type of study:
Evaluation studies
/
Observational study
/
Prevalence study
/
Risk factors
Limits:
Adult
/
Female
/
Humans
/
Male
Country/Region as subject:
South America
/
Brazil
Language:
English
Journal:
Pesqui. bras. odontopediatria clín. integr
Journal subject:
Dentistry
Year:
2021
Type:
Article
Affiliation country:
Brazil
Institution/Affiliation country:
Federal University of Ceará/BR
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