Telemedicine and epilepsy: a patient satisfaction survey of a pediatric remote care program
Epilepsy Research
;
165: [1-5], Sept. 2020. map, graf
Article
in Spanish
| LILACS
| ID: biblio-1348813
ABSTRACT
Purpose:
The aim of this study was to assess parent satisfaction three years after the implementation of a pediatric epilepsy telemedicine program.Methods:
The program was developed with support from the Ministry of Health through Hospital Nacional de Pediatría J.P. Garrahan. A secure internet connection was used for high-speed, high-definition video and audio. Synchronous face-to-face consultation between the patient and the neurologist was used. To evaluate the success of the program, at the end of the consultation the parent or caregiver of the patient was asked to complete a survey evaluating satisfaction with health care, cost, and privacy issues. The survey was administered by community health workers to the parents of patients that were in follow-up or first seen at the rural health posts during 2019.Results:
Between January and December 2019, 116 consecutive parents of patients seen at the epilepsy telemedicine clinic filled out a semistructured questionnaire. Mean age of the patients was 8.5 years (range, 117 years); 85 % of the patients had a follow-up of more than 6 months. All the families felt supported by the team and were satisfied with the program in terms of epilepsy management. Less work- and schooltime lost, less travel time and costs, better access to medication, and more regular follow-up visits were reported. The parents considered they had received clear information about the epilepsy of their child.Conclusion:
Telemedicine proves to be an important tool in the comprehensive management of people with epilepsy
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Index:
LILACS (Americas)
Main subject:
Rural Areas
/
Telemedicine
/
Epilepsy
Type of study:
Qualitative research
Limits:
Adolescent
/
Child
/
Child, preschool
/
Humans
/
Infant
Language:
Spanish
Journal:
Epilepsy Research
Year:
2020
Type:
Article
Affiliation country:
Argentina
Institution/Affiliation country:
Hospital de Pediatría "Prof. Dr. Juan P Garrahan"/AR
/
Hospital Materno Infantil/AR
/
Hospital de Pediatría Niño Jesús/AR
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