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Discussion of the Brazilian neurologists about sudden unexpected death in epilepsy
Mosini, Amanda; Abdalla, Ively Guimarães; Calió, Michele Longoni; Fiorini, Ana Claudia; Scorza, Carla Alessandra; Susemihl, Maria Alice; Finsterer, Josef; Scorza, Fúlvio.
  • Mosini, Amanda; Associação Brasileira de Epilepsia. São Paulo. BR
  • Abdalla, Ively Guimarães; Universidade Federal de São Paulo. Escola Paulista de Medicina. Disciplina de Neurologia Experimental. São Paulo. BR
  • Calió, Michele Longoni; Universidade Federal de São Paulo. Departamento de Fisiologia. São Paulo. BR
  • Fiorini, Ana Claudia; Universidade Federal de São Paulo. Escola Paulista de Medicina. Departamento de Fonoaudiologia. São Paulo. BR
  • Scorza, Carla Alessandra; Universidade Federal de São Paulo. Escola Paulista de Medicina. Disciplina de Neurologia Experimental. São Paulo. BR
  • Susemihl, Maria Alice; Associação Brasileira de Epilepsia. São Paulo. BR
  • Finsterer, Josef; Messerli Institute. Klinikum Landstrasse. Vienna. AT
  • Scorza, Fúlvio; Universidade Federal de São Paulo. Escola Paulista de Medicina. Disciplina de Neurologia Experimental. São Paulo. BR
Rev. Assoc. Med. Bras. (1992) ; 68(5): 675-679, May 2022. graf
Article in English | LILACS-Express | LILACS | ID: biblio-1376184
ABSTRACT
SUMMARY

OBJECTIVE:

This study aimed to evaluate the concept of health professionals affiliated with the Brazilian League of Epilepsy on whether or not to inform patients about the risk factors related to the occurrence of sudden unexpected death in epilepsy.

METHODS:

A descriptive research of inquiry was conducted with direct survey on the Brazilian neurologist's view, regarding medical behavior in the health area to report or not about the risk of sudden unexpected death in epilepsy. Data collection consisted of a structured questionnaire available online.

RESULTS:

The study population consisted of a sample of 44 Brazilian League of Epilepsy members who answered the questionnaire, of which 25 (56.8%) were men and 19 (43.2%) were women. Among the analyzed questionnaires, 79.5% reported that they were aware of the risk factors for sudden unexpected death in epilepsy and 18.2% admitted not knowing the potential risk factors for sudden unexpected death in epilepsy. Notably, 59.1% of these professionals thought that an early discussion with the patient about sudden unexpected death in epilepsy must be considered. The majority (70%) felt that the neurologist should do this, and 22% believed that the subject should be discussed with psychologists. It was noted that 84.1% of respondents did not discuss or discussed only with some of their patients about the risk factors for sudden unexpected death in epilepsy.

CONCLUSIONS:

There is a need for encouraging early discussion of sudden unexpected death in epilepsy with epilepsy patients if the patient asks about the risks related to epilepsy and its treatment, when treatment adherence is low, in cases of intractable epilepsy with strong indication for surgical treatment, and when polytherapy is needed.


Full text: Available Index: LILACS (Americas) Type of study: Qualitative research / Risk factors Country/Region as subject: South America / Brazil Language: English Journal: Rev. Assoc. Med. Bras. (1992) Year: 2022 Type: Article Affiliation country: Austria / Brazil Institution/Affiliation country: Associação Brasileira de Epilepsia/BR / Messerli Institute/AT / Universidade Federal de São Paulo/BR

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Full text: Available Index: LILACS (Americas) Type of study: Qualitative research / Risk factors Country/Region as subject: South America / Brazil Language: English Journal: Rev. Assoc. Med. Bras. (1992) Year: 2022 Type: Article Affiliation country: Austria / Brazil Institution/Affiliation country: Associação Brasileira de Epilepsia/BR / Messerli Institute/AT / Universidade Federal de São Paulo/BR