Outcome measures for adults with Down Syndrome based on the International Classification of Functioning, Disability, and Health Model: A Systematic Review
ABCS health sci
;
48: [1-12], 14 fev. 2023.
Article
in English
|
LILACS-Express
| LILACS
| ID: biblio-1537365
ABSTRACT
Introduction:
Adults with Down syndrome (DS) have functional disabilities due to the extra presence of chromosome 21.Objective:
To identify the functionality and disability assessment instruments used in research involving adults with DS and associate them with the components of the International Classification of Functioning (ICF).Methods:
Two independent researchers analyzed articles from PubMed, Lilacs, SciELO, Science Direct, and Cochrane databases, including cross sectional and clinical studies whose results involved functionality and disability for individuals with DS (≥18 years), with no publication date limit for the studies. The methodological quality of the studies was analyzed by the Downs & Black Checklist; descriptive analysis was used for the results. This review was registered in PROSPERO (CRD42021234012).Results:
15 articles were analyzed in which 48 instruments were identified for the assessment of adults with DS (36.42±10.62 years); the quality of the articles was considered "good". Of these 48 instruments, 41 were associated with bodily function, 5 instruments were associated with the activity component, one instrument was associated with social participation and one instrument was associated with the environment.Conclusion:
Of the 48 instruments identified to assess adults with DS, most were for the Body Function and Structure component; only the 6MWT and CAMDEX-SD have been validated for this population. LIFE-H and MQE were used to assess Social Participation and the Environment, but they cannot be considered dependable, as they have not been confirmed for individuals with DS.
Full text:
Available
Index:
LILACS (Americas)
Language:
English
Journal:
ABCS health sci
Journal subject:
Medicine
/
Public Health
Year:
2023
Type:
Article
Affiliation country:
Brazil
Institution/Affiliation country:
Universidade de São Paulo/BR
/
Universidade Nove de Julho/BR
Similar
MEDLINE
...
LILACS
LIS