[ effect of using partnership care model on the quality of life in the school-age children with beta-thalassemia]

ABSTRACT

Thalassemia is one of the most common human genetic diseases that affects quality of life. The present research attempted to investigate the effect of Partnership Care Model on the quality of life of school-age children with beta -thalassemic. Present experimental study was performed on 72 thalassemic children who were randomly divided into two equal groups, intervention and control [36 each]. The questionnaires of demographic data and children's Quality of Life inventory [peds-QOL] were used as instruments. After gathering data in the pre-test stage, participant Care Model was implemented for children and parents in the intervention group according to its four steps [Motivation, Readying, Involvement and Evaluation] for two months. The post test was carried out three months after the intervention. There was no significant difference between the intervention and control groups in the terms of demographic characteristics and QOL [P>0.05]. After the intervention, independent t-test showed a significant difference between the means of peds QOL dimensions between groups [P<0.001]. Moreover, the paired t-test showed a significant difference in the peds QOL dimensions of the intervention group before and after intervention [P<0.001]. Overall, our findings revealed that the Partnership Care Model was effective on the increasing quality of life in the school-age children with beta -thalassemia