Expenditure to treat thalassaemia: an experience at a tertiary care hospital in India

ABSTRACT

The medical and economic problem of thalassaemia are considered to be a vast public health problem in the thalassaemia belt countries, emphasizing more on prenatal diagnosis as the solution of the problem. A cross-sectional descriptive study was conducted in the Institute of Haematology and Transfusion Medicine located in Medical College, Kolkata, India to assess the socio-demographic profile, clinical presentation, expenditure for treatment of thalassaemia patients and awareness about cause and prevention of the disease. Thalassaemia patients attended the Govt. setting were mostly from lower socioeconomic status with low level of literacy. Annual expenditure for treatment of thalassaemia ranged from $ 108 to 432; depending on type of treatment with average cost per transfusion was $ 5.2 +/- 2.2. Average 18.5% +/- 14.3 of the total annual income was spent on the treatment for thalassaemia. Average man days or school days lost for the patients was 29.87 +/- 18.5 and 19.07 +/- 12.7 for the accompanying persons. Blood transfusion and carrier screening facilities should be decentralized to decrease the expenditure for treatment and alleviate the harassment of the families. Folate and calcium tablets, hepatitis B vaccination can be made available at government setting free of cost