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Burden and quality of life of mothers of children and adolescents with chronic illnesses: an integrative review / Sobrecarga e qualidade de vida de mães de crianças e adolescentes com doença crônica: revisão integrativa / Sobrecarga y calidad de vida de madres de niños y adolescentes con enfermedad crónica: revisión integradora
Rev. latinoam. enferm. (Online) ; 23(4): 769-777, July-Aug. 2015. tab
Article in English | BDENF, LILACS (Americas) | ID: lil-761704
Responsible library: BR1.1
ABSTRACT
Abstract

Objective:

to identify and analyze the evidence available regarding evaluation of burden and quality of life of mothers who are caregivers for children and adolescents with chronic illnesses.

Method:

an integrative review, undertaken in the electronic sources MEDLINE; Academic Search Premier; CINAHL; LILACS; SciELO and PubMed, between 2010 and 2014.

Results:

among the 22 documents selected, there was a predominance of convenience samples and non-experimental transversal designs, at the levels IV and III2. The caregiver burden scales used were the Zarit Burden Interview and Montgomery-Borgatta Caregiver Burden Scale-Revised along with the following instruments for evaluating quality of life The World Health Organization Quality of Life-BREF Scale; Self-report questionnaires; The Ulm Quality of Life Inventory for Parents of chronically ill children; Asthma Caregiver Quality of Life Questionnaire; and the Nottingham Health Profile. Quality-of-life appears to be influenced in a complex and interrelated way by the physical and mental health of the mothers who are caregivers, in accordance with their level of independence, social relationships, environment, and the extent to which they see themselves as burdened.

Conclusion:

the revealing of the results for the evaluation of burden and quality of life of mothers who are caregivers has implications for the planning and implementation of effective interventions, by the multidisciplinary team, if they are to relieve the burden.
RESUMO
Resumo

Objetivo:

identificar e analisar as evidências disponíveis sobre avaliação de sobrecarga e qualidade de vida de mães cuidadoras de crianças e adolescentes com doença crônica.

Método:

revisão integrativa, realizada nas fontes eletrônicas MEDLINE; Academic Search Premier; CINAHL; LILACS; SciELO e PubMed, entre 2010 e 2014.

Resultados:

dos 22 documentos selecionados prevaleceram as amostras de conveniência, desenhos transversais, não experimentais, nos níveis IV e III2. As escalas de sobrecarga do cuidador utilizadas foram Zarit Burden Interview e Montgomery-Borgatta Caregiver Burden Scale-Revised e os instrumentos de avaliação da qualidade de vida The World Health Organization Quality of Life-BREF Scale; Self-report questionnaires; The Ulm Quality of Life Inventory for Parents of chronically ill children; Asthma Caregiver Quality of Life Questionnaire; Perfil de Saúde de Nottingham Health Profile. A qualidade de vida comparece influenciada de forma complexa e inter-relacionada pela saúde física e mental das mães cuidadoras, de acordo com seu nível de independência, relações sociais, ambiente e o quanto se percebem sobrecarregadas.

Conclusão:

a revelação dos resultados de avaliação de sobrecarga e qualidade de vida das mães cuidadoras implica no planejamento e implementação de intervenções efetivas, pela equipe multidisciplinar, que aliviem a sobrecarga.
RESUMEN
Resumen

Objetivo:

identificar y analizar las evidencias disponibles sobre la evaluación de sobrecarga y calidad de vida de madres cuidadoras de niños y adolescentes con enfermedad crónica.

Método:

revisión integradora, realizada en las fuentes electrónicas MEDLINE; Academic Search Premier; CINAHL; LILACS; SciELO y PubMed, entre 2010 y 2014.

Resultados:

de los 22 documentos seleccionados prevalecieron las muestras de conveniencia, diseños transversales, no experimentales, en los niveles IV y III2. Las escalas de sobrecarga del cuidador utilizadas fueron Zarit Burden Interview y Montgomery-Borgatta Caregiver Burden Scale-Revised y los instrumentos de evaluación de la calidad de vida The World Health Organization Quality of LifeBREF Scale; Self-report questionnaires; The Ulm Quality of Life Inventory for Parents of chronically ill children; Asthma Caregiver Quality of Life Questionnaire; Perfil de Salud de Nottingham Health Profile. La calidad de vida se presenta influenciada de forma compleja e interrelacionada por la salud física y mental de las madres cuidadoras, de acuerdo con su nivel de independencia, relaciones sociales, ambiente y por cuán sobrecargadas se perciben.

Conclusión:

la revelación de los resultados de evaluación de sobrecarga y calidad de vida de las madres cuidadoras implica en la planificación e implementación de intervenciones efectivas, por el equipo multidisciplinar, que alivien la sobrecarga.
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Full text: Available Index: BDENF / LILACS (Americas) Main subject: Quality of Life / Chronic Disease / Caregivers / Cost of Illness / Mothers Limits: Adolescent / Child / Female / Humans Language: English Journal: Rev. latinoam. enferm. (Online) Journal subject: Nursing Year: 2015 Type: Article / Project document Institution/Affiliation country: Universidade Federal do Estado do Rio de Janeiro/BR