Why parents consent to their children’s participation in genetic research: A study of parental decision making
Indian J Med Ethics
;
2019 OCT; 4(4): 274
Article
| IMSEAR
| ID: sea-195248
ABSTRACT
Parents need to be asked to provide informed consent on behalf of their child for participation in genetic research. Decision making for such parents is difficult because ethical challenges in paediatric genetic research studies are different from similar adult studies. This paper focuses on interviews conducted with parents who were asked to consent to their children’s participation (or not) in a genetic research study of intellectual disability and/or autism.
Full text:
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Index:
IMSEAR (South-East Asia)
Journal:
Indian J Med Ethics
Journal subject:
Ethics
Year:
2019
Type:
Article
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