Factors Affecting Research Participation of Bereaved Families of Terminal Cancer Patients: A Prospective Preliminary Study / 한국호스피스완화의료학회지
Korean Journal of Hospice and Palliative Care
;
: 233-239, 2016.
Article
in English
| WPRIM
| ID: wpr-222517
ABSTRACT
PURPOSE:
Little is known regarding the factors associated with the willingness of family caregivers of terminal cancer patients to participate in a bereaved survey. This study aimed to ascertain the pre-loss factors that predict actual participation in a bereaved survey.METHODS:
We conducted a prospective observational study using data from two multi-center surveys at the end-of-life and after loss. In order to identify the pre-loss factors associated with participating in the bereaved survey, we used a step-wise multivariate logistic regression analysis.RESULTS:
Among 185 bereaved individuals, 30 responded to the survey (response rate 16.2%). There were differences between the participation group and the non-participation group regarding religion, economic status, and perceived quality of care as assessed by the Quality Care Questionnaire-End of Life. A final multivariate model revealed that bereaved individuals who professed a religion (adjusted odds ratio [aOR]=5.01; P=0.008), had a high income (aOR=4.86, P=0.003), and satisfied with the care for familial relationship (aOR=4.49, P=0.003) were more likely to engage in the bereaved survey.CONCLUSION:
Our finding suggests that improving the quality of end-of-life care may promote actual participation in a bereaved survey through easing post-loss distress. More attention should also be paid to those bereaved individuals who are hesitant to participate in a bereaved survey.
Full text:
Available
Index:
WPRIM (Western Pacific)
Main subject:
Bereavement
/
Logistic Models
/
Odds Ratio
/
Prospective Studies
/
Surveys and Questionnaires
/
Hospice Care
/
Caregivers
/
Observational Study
Type of study:
Controlled clinical trial
/
Etiology study
/
Observational study
/
Prognostic study
/
Risk factors
Limits:
Humans
Language:
English
Journal:
Korean Journal of Hospice and Palliative Care
Year:
2016
Type:
Article
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