Instruments for the assessment of health-related quality of life in pediatric patients with inflammatory bowel disease / 国际儿科学杂志

ABSTRACT

Health -related quality of life is used as an outcome criterion to evaluate the quality and effect of different therapies. It's also frequently used in epidemiological studies, as well as health economic research.Instruments to assess health-related quality of life has been developed, mostly for adults. Inflammatory bowel disease is a chronic debilitating disorder. Assessing health-related quality of life of pediatric inflammatory bowel disease is useful. Present paper briefly describes four internationally most widely used available generic instruments and inflammatory bowel disease specific health-related quality of life. All of the generic instruments comply with psychometric standards concering the reliability, validity, and sensitivity of the scales. Diseasespecific instruments, conforming with psychometric criteria, have test-retest stability, constructive validity and could be widely used.