Self-management experience of patients with inflammatory bowel disease :a systematic review of qualitative studies / 中华护理杂志

ABSTRACT

Objective To conduct a systematic review on the experience of patients with inflammatory bowel disease (IBD) during self-management.Methods Five English (PubMed,Embase,Science Direct,Web of Science,PsycINFO) and four Chinese (CBM,WANFANG,CNKI,VIP) databases were chosen to retrieve literatures on selfmanagement experience of patients with inflammatory bowel disease from inception to March 31st,2017.The JBI Critical Appraisal Tool for qualitative studies in Australia was used to evaluate the quality of studies.Integrating method was applied to integrate the results.Results Totally 35 findings were extracted from 6 qualified studies,7 new categories were generated and finally 3 synthesized results were obtainedl Medical managementin order to maintain remission,diversified methods were used by IBD patients,such as adjusting behaviors and accumulating disease knowledge;2 Emotion managementpositive attitude towards life was achieved via dealing with stress and negative emotions caused by IBD;3 Role managementcognitive and behavioral adjustment were taken to adapt the role of IBD patients and maintain the daily role before having IBD.Conclusion Many aspects were involved in self-management of IBD,and emotional management was often overlooked.Guidance and supports should be given by nurses targeting weak links of self-management,in order to improve disease management as well as quality of life for IBD patients.