Ways of acquiring and needs of requiring disease-related knowledge among patients with inflammatory bowel disease / 中华全科医师杂志

ABSTRACT

Objective@#To survey the ways of acquiring and the needs of requiring disease-related knowledge among patients with inflammatory bowel disease (IBD).@*Methods@#A total of 376 IBD patients visiting the special clinic in the Second Affiliated Hospital of Zhejiang University School of Medicine from May 2013 to March 2016 participated in a questionnaire survey. The self-designed questionnaire included general information, hospital visits and internet use of the IBD patients.@*Results@#Totally 359 valid questionnaires were returned with a recovery rate of 95.5% (359/376). Among the participants there were 226 men and 133 women with a mean age of 41.8 years (14- 88 years); and 199 cases of Crohn disease (55.4%) and 160 cases of ulcerative colitis 44.6%. The main methods of acquiring IBD-related knowledge were information from IBD specialist (77.7%, 279/359) and using the internet (59.3%, 213/359). The most frequently searched itemsin internet werelong-term prognosis (97.2%, 207/213), medical treatment (76.1%, 162/213), etiology (58.2%, 124/213) and nutrition treatment (51.6%, 110/213); 96.6% (347/359) patients showed strong interest in keeping close connection with IBD specialist and 89.0% (319/359) wanted to join a IBD club.@*Conclusion@#IBD patients show strong interest indisease-related knowledge, which they acquire most from the doctors and the internet, IBD specialists are expected to provide the detailed health education for patients.