Hepatic Glycogen Storage Diseases Toward One Global Collaborative Network
J. inborn errors metab. screen
;
5: e170002, 2017.
Artículo
en Inglés
|
LILACS-Express
| LILACS
| ID: biblio-1090948
ABSTRACT
Abstract The third international meeting of the Scandinavian Association for Glycogen Storage Disease focused on hepatic glycogen storage disease and was organized for health-care professionals, patient representatives, and representatives from the industry. This report highlights dilemmas in dietary management, differences in monitoring strategies, and challenges with rare disease care, research, and patient participation.
Texto completo:
Disponible
Índice:
LILACS (Américas)
Idioma:
Inglés
Revista:
J. inborn errors metab. screen
Asunto de la revista:
Medicina Cl¡nica
/
Patologia
Año:
2017
Tipo del documento:
Artículo
País de afiliación:
Dinamarca
/
Islas Feroe
/
Alemania
/
Países Bajos
/
Suecia
/
Estados Unidos
Institución/País de afiliación:
Copenhagen University Hospital/DK
/
Karolinska University Hospital/SE
/
National Hospital of the Faroe Islands/FO
/
PatientConnect/NL
/
Scandinavian Association for Glycogen Storage Disease/SE
/
Selbsthilfegruppe Glykogenose Deutschland e.V./DE
/
Skåne University Hospital/SE
/
The Queen Silvia Children's Hospital/SE
/
University of Florida College of Medicine/US
/
University of Gothenburg/SE
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