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Hemophilia care in the state of Rio de Janeiro, Brazil
Fontes, Eva M. A; Amorim, Luiz; Carvalho, Silvia M; Farah, Miguel B.
  • Fontes, Eva M. A; Hemocentro do Rio de Janeiro. Rio de Janeiro. BR
  • Amorim, Luiz; Hemocentro do Rio de Janeiro. Rio de Janeiro. BR
  • Carvalho, Silvia M; Hemocentro do Rio de Janeiro. Rio de Janeiro. BR
  • Farah, Miguel B; Universidade Federal Fluminense. Departamento de Patologia. Niterói. BR
Rev. panam. salud pública ; 13(2/3): 124-128, Feb.-Mar. 2003. tab
Artículo en Inglés | LILACS | ID: lil-346099
RESUMO
In the developing countries of the world, few people with hemophilia receive adequate care. Nevertheless, Brazil has made significant advances in the treatment of hemophilia over the last decade. The provision of factor concentrates imported by the Government of Brazil is gradually increasing, and patients receive the concentrates for free. A national register was established as well as a coordinated program for comprehensive care. Of the 6 297 persons with hemophilia in Brazil who were registered as of January 2001, 689 of them (11.1 percent) were registered in the state of Rio de Janeiro. Of those 689, 664 of them were being monitored at the state's coordinating blood transfusion center, which is located in the city of Rio de Janeiro. Among those 664, factor VIII inhibitors were identified in 81 of them (12.2 percent). Among 653 of the Rio de Janeiro patients who were tested for transfusion-transmitted diseases, the overall prevalence found was 41.5 percent, with the specific rates being 13.3 percent for human immunodeficiency virus (HIV), 2.9 percent for hepatitis B virus (HBV), and 39.4 percent for hepatitis C virus (HCV). The state of Rio de Janeiro has adopted a comprehensive hemophilia management approach that includes medical, psychological, and social care. As a result, the quality of life of hemophilia patients has improved noticeably. For example, the rate of hospitalization among patients fell by 30 percent between 1998 and 2001, and there has also been a decline in the school and work activities that they have missed
Asunto(s)
Texto completo: Disponible Índice: LILACS (Américas) Asunto principal: Regionalización / Manejo de la Enfermedad / Hemofilia A Tipo de estudio: Estudio pronóstico / Factores de riesgo Límite: Adolescente / Adulto / Niño / Child, preschool / Humanos / Lactante / Recién Nacido País/Región como asunto: America del Sur / Brasil Idioma: Inglés Revista: Rev. panam. salud pública Asunto de la revista: Salud Pública Año: 2003 Tipo del documento: Artículo País de afiliación: Brasil Institución/País de afiliación: Hemocentro do Rio de Janeiro/BR / Universidade Federal Fluminense/BR

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Texto completo: Disponible Índice: LILACS (Américas) Asunto principal: Regionalización / Manejo de la Enfermedad / Hemofilia A Tipo de estudio: Estudio pronóstico / Factores de riesgo Límite: Adolescente / Adulto / Niño / Child, preschool / Humanos / Lactante / Recién Nacido País/Región como asunto: America del Sur / Brasil Idioma: Inglés Revista: Rev. panam. salud pública Asunto de la revista: Salud Pública Año: 2003 Tipo del documento: Artículo País de afiliación: Brasil Institución/País de afiliación: Hemocentro do Rio de Janeiro/BR / Universidade Federal Fluminense/BR